That makes sense re the nails, Bibi, as Taxol is light sensitive. Bit late now, perhaps, for the nail varnish. Onwards and upwards. x
Tania I didn't see a thing because they draped a sterile towel over my face with a gap at the side taped to a drip stand . . I was in my low immune system week, so perhaps they were being super cautious. One word of warning . . The music they played was dreadful! I was expecting something classical/relaxing but it was Lady Gaga of all things on a loop. Torture!
Brave that nails thing sounds very uncomfortable/unpleasant for you. Would it be worth trying the ice mitts/slippers if they have them at your hospital? I read somewhere non-official that it's the taxol reacting to light in the nail bed, hence the advice about dark nail varnish . . I guess you could always get on the Michael Jackson gloves 🙂 BBx
Good luck Tania with your first T - I also had the port fitted under local and dont remember a thing about it, although I was apparently awake! Having it taken out on Monday under the same procedure as it'll be my last taxol (Paclitaxol) tomorrow. Brave - I also have night sweats on the taxol and about to start letrozole soon so hope that doesn't make them worse! Sorry to hear about your nails sounds awful - I painted my toe nails black but thought I was a bit past it for the goth look on finger nails - although if it saves your nails why not! Bibi good luck with the herceptin and taxol - I have my 5th herceptin Thursday week and so far been ok but not sure about the herceptin/letrozole combo! Hope everyone else is ok
Good luck, Tania.
Yes, Bibi, we all survived the party. Like chemo, it was worse than I thought it'd be! We'll get him driving lessons for Christmas... although we've told him he needs to improve his timekeeping first (he's late for everything).
I'm now on Taxol, which is paclitaxel, as opposed to Taxotere, which is docetaxel. Same type of drug, not sure of differences between them. Potential side effects, perhaps?
I had my first Taxol session last Wednesday. I've had no nausea or anything like that but I've woken up a few times in the middle of the night drenched in sweat. I ABSOLUTELY HATE THAT and thought I'd finished with all that, being postmenopausal!
My nails are suffering badly, although that had already started under the AC part of the chemo. The pinkie nail on my right foot just peeled right off the other night and both thumb nails and a couple of finger nails are very, very painful. I can type but it's almost impossible to pull up zips, open bottles, etc. The nail bed of the left thumb looks very inflammed and I fear the worst...
Energy levels have been ok. Was very tired y'day but as you saw on the blog I'd been running around like a mad woman the day before. I forced myself to get on my exercise bike for a bit y'day afternoon and then last night I had the best night's sleep I'd had in weeks... with no sweats.
I'm keeping my fingers crossed that I remain ok as on Friday we're off to Paris for a few days! We were in two minds about whether to do it but then decided to go for it. We're taking the boys out of school on the Friday and the oncologist moved my appointment from next Monday to next Tuesday so we can get four days there.
Can't complain too much, I guess.
Good luck everyone with whatever's next. x
Hi all hope you're OK today. Just wondering how Brave & Richelle are getting on with the taxotere? Brave, I saw on your blog that you had your son's 17th, so you're were obviously vertical (at the start of the night anyway) rather than horizontal, which is good news. Ours had his 17th this month & started driving lessons last Sat. Called after to say he thinks he's got it all now . . . . Gotta worry about the lack of road awareness ha ha. I had a bad day 1 of last EC, but nausea lifted on day 2 (great) & feeling ok today, just a little knackered. Glad to see the back of that vile stuff. Onto the Herceptin & Paclitaxol next, with whatever joys they will bring. I'm not exactly half way yet, because they decided 12 rather than 9 weeklies, but psychologically I'm through phase. Better shut up now (steroids in system!!) xx
Hi JHB certainly recognise the 'just holding it down' phrase! I had exactly the same drugs/chemo as you. Hope you're a bit better this morning. On cold capping & tax, if you can get weeklies it's a much shorter infusion time, although obviously you have to do it more often, so swings & roundabouts really. Our unit doesn't allow cold capping with the 3weekly taxol because of that. Ask Richelle she had her first tax recently. x
Hope you're doing ok,
Glad you managed to hold everything down Bibi, hopefully it will just get easier.
I had my last EC yesterday and they had prescribed me EMEND due to the 2 nights in hospital from sickness last time. Although the nausea is still here (even with the EMEND, dexamethasone, ondanstetrone and cycliizine - phew!!) it seems to be holding everything down at least!
Had my meeting with the Onc on Friday and they confirmed will be putting me on to Tax next. I'll go with whatever they think neccesary, and I think that there are a number of you on the board doing tax so I'll be interested to hear everyone elses experiences of it. I've decided to carry on with the cold cap as it's worked ok so far but I hear it's worse with tax as you have to keep it on for a lot longer..
Hope you all have as good a week as possible,
Thanks all for your good wishes, it was more horrible than chemo 2, but nowhere near as bad as chemo1 & feeling slightly better today. Started being sick, so I got the GP to prescribe some more drugs just before they closed & that calmed it down enough to sleep. Marsden helpline had said go to A&E . . I could barely stagger to the lav, let alone drive & then hang around for hours. Honestly.
Tania I've got a port & had no trouble with it. You have to go in for operation under either local or general. I had a local because I was scared of being sick after the general & was fine. It did hurt a bit for 2 days & you are aware of it because it sticks up (mine's also right on my bra line so was rubbing & had to use diff bra). At least you can sill have the chemo through the PICC before they whip it out.
Carole I asked onc about port & she said take it out after last chemo & do the herceptin in the thigh just like you said.
Best wishes to you all. So pleased last pukey vile (F)EC is over!!! XxxxxX
Hope everyone ok today - Bibi hope the chemo went ok and you're resting. Tania I had a blood clot a week after they put the port in and had to go into hospital for 2 days on a blood thinning drip - funnily enough at the time I had a sty and it spread to a double one so I did look great walking round the hospital with my drip and crusty eye. They gave me antibiotic eye drops and I've also got some fucithalmic cream - think we must all be run down with this treatment. I've been on clexane injections since August and have port out next Monday and can't wait to get rid of the thing! xx
I peeled anywhere I didn't moisturise . . Behind my ears, bit between eyebrow & eye, inside ears . . Weird or what!?! Book is interesting/quite short. Food for thought certainly. x
Hi Lisalou My port was sore today, after they did bloods via it on Fri. I didn't tell them because I thought they might not do the chemo through it. I think I was a bit allergic to the antiseptic they out on on Fri. Hope you haven't done anything to your PICC, i wouldn't want the port putting in again. I've mainly had digestive stuff, plus sore feet, as if you have cut them, but nothing to see & some nappy rash (nice). When's your next one? BBx
Ah thanks all . . Been awake since 3.30am! Tania my nose runs the whole time & I read a SE of Paclitaxel is a runny nose . . I might need a nose bag soon, as it's soooo sore now, like when you get a cold. Also have slightly runny/puffy eyes in the morning. Very glam. Poor hubby. Xx
Thanks ladies I'm hoping for re-run of chemo 2, as have been fine for the last 2 weeks, but the others seem to have found chemo3 a little harder, so have that in the back of my mind too. x
Good luck for tomorrow Bibi - you'll be half way there and that's brilliant! Sarah I had a real clean out when first diagnosed and now got the bug again - the way I'm going I'll have to buy a whole load of new clothes! xx
Hi Lisalou Good to hear from you again & sorry it's been hard on you. I remember you had some trouble at the start. Well we're all around half way through except Carole, who will beat us all to the finish line. I've got no.3 in the morning. x
Sorry to hear you've been having a tough time of it Lisalou - you'll get lots of support and advice on here and you must be half way through so that's brilliant - hopefully the reduced dose will be a lot better xx
Hi Shelly well done on getting to the half way point without a single moan on here! Best of luck for the rest. I think we're all expecting the T phase to be worse, but at least we have 3-4 weeks off after that before radioT. Have a good weekend. BBx
You are a day different to me , my first was the 27th August and if all goes to plan last one will be the 10/12/2015. I too am very apprehensive of the T as the Fec has been very doable for me .
A few ladies on here are at the same point as we are. This forum has been wonderful and very informative. It really helps to speak to and read other ladies experiences on this journey we all face. Are you having chemotherapy first ? .
Hope you have a good weekendxxxxx
They gave me OnicoLife drops to rub in a week before I started on the Taxol/paclitxel in preparation but they'd already gone brittle with the previous chemo drugs :-(.
What a weird side effect re the nails . . Not sure what you can do about that except pray! Did you go with the dark nail varnish or eau naturelle? x ps Sarah have a good w/endxx
Thanks for asking, Bibi. It was fine in the end. Cough is indeed on the way out and I'm feeling fine.No aches and pains yet and nausea's in check. Fingernails not looking good, though.Thumb nails tender and feel as if they could split at any time.
Sorry Hazel I don't think we've had too much of the that on August, but a few of the Sept ladies have had neutrophil issues. You could ask them. Very annoying for you. Fingers crossed it revivers over the weekend. BBx
I'm a September starter but am asking you lot as you're a bit further down the road!
I'm due to have my third cycle of EC on Monday so went for blood test and to see onc yesterday. Onc was happy with my progress but didn't have blood results back. Just rang chemo unit for them and neutrophils are low again 0.9 so I have to go in early Monday for a repeat blood test. This happened before my second cycle too. Has anyone else experienced this and any tips to boost it up? It has deflated me because I feel really well and have stayed off work this time so not overdoing it.
I will be eating lots of fruit and veg over the weekend to try and boost myself up!
Thanks Carole. I might have to exert a bit of patient power & get it taken out when chemo stops. Have a good dayx