Hi Sarah I think the sweats will stop once the chemo has as mine do get better by the third week and seem to be at their worst when the drugs are at their peak performance 😅
Tania I didn't cold cap and only lost most of my brows and lashes when I started the T I have had to resort to an eyebrow pencil and false lashes but went into boots and they gave me a free makeover and put the lashes on for me to show me how to do it, trim them etc, the benefits counter is licensed to fit them and the girl at the number 7 counter was fab and I even got a lovely little goody bag from them as they knew I was having treatment
My hair has started to grow but not properly and in patches so having left it for ten days I had to shave it again as started to look like uncle fester on a bad day 😜
I have had had some muscle cramps but in bizarre places like my wrists/forearms and ankles ? XXXX
Hi Tania SE were much better on the second T the extra steroids were a god send, still felt tired from day three to day seven with mild joint pain, some finger and toe pain but only needed occasional paracetomol. Night sweats were an issue but not sure if this was the chemo or GCSF injections. Eyelashes have all gone now and some minor mouth discomfort but my dentist prescribed a high fluoride toothpaste before I started which seems to have helped. On the whole a million times better than the first one so will keep my fingers crossed yours is the same xxxx
Sarah I'm fine thanks, just enjoying last couple of days of freedom before Herceptin on Fri & tax on Mon (eek). A lady at golf told me they were told to dry their cuticles with a hairdryer after bath/shower on tax. I hadn't heard that before . . Will be nice to check if the thing still works as it certainly hasn't been used for weeks! Glad you're feeling better Tania. xx
Hi Ladies I hope you are ok today? I agree Tania. I have super low days! Its normally around day 6-10 and my mind works over time. I wonder how on earth I am going to deal with the next lot of chemo because I have had enough of it and how it makes me feel. I worry how once this has finished. Will I be able to go one day without thinking about it and will I now forever be paranoid about it coming back. The list of questions in my head is endless. But from talking to other people they seem to do it. Richelle you have one more left! How do you feel? Its good to hear the 2nd one hasnt been too bad. I have heard that a few times now. 🙂 I have had a bit of back pain today. I dont know if I have been sitting at the computer badly of if its the chemo but I have taken a tablet so all good. Ihope the mouth ulcers go soon jhbee. Lisa jane and shazza hope you are ok too. Bibi you must be due your next lot of chemo soon? How are you feeling? Debs hope you are ok today too. xxxxxxxxxxxxxxxxxxxxxxxxxxx
Hi ladies sorry some of you are not feeling too good/positive at the moment. I think it's a perfectly normal reaction to what we're going through, we just have to do everything we can (diet/booze) & hope/pray we are amongst the lucky ones. I think Sarah's idea of talking to people is also good. Remember with any statistic that it doesn't tell you what will happen to you. If it's a 99% chance, you can still be in the 99 or you can be the 1. Big hugs to all xx
Jhbee, I had awful mouth ulcers last week and got some gel called Anbesol from the chemist and found it very effective.
Sorry to hear some of you are having a rough time, I think dark thoughts are natural at times given what we are all going through and talking about feelings and fears can help relieve worries. As some guru said express don't suppress!
I went to a support group last night for the first time and there were about 15 women there many a number of years down the line, all in rude health and planning an outrageous Xmas party night!
Also, wanted to say the second tax with the steroid tail was much better than the first one and I have felt much brighter after only a week this time with very little pain, so keeping my fingers crossed for those on tax having an easier second round xx
That said I've been madder than a wet hornet all week which is new but luckily my very patient family have resisted my concerted baiting attempts thank goodness 😡
I have a question ladies - any good tips for mouth ulcers?
I have used Igloo cream pre-chemo and it worked a treat but these chemo mouth ulcers don't want to go (reflection of my body's current dodgy resistance I guess!!)
I agree about not reading the other threads I was doing that at the beginning and I think thats what got me in a state. I also agree Debs as to becoming a bit of a hermit I have to kick start myself again after each treatment. Stupid as it sounds having the hospital appointments mean I have to go out and once I have started I want to be out all the time and get fed up when I know I have to stay indoors again. I asked for some help this time and this website have volutnteers on here called "someone like me." You speak to a lady who co-ordinates someone that is very similar to you and theyget a volunteer to give you a ring and a chat. I have spoken to my lady twice now she had a 3rd anniversary yesterday she has given me a lot of hope. We have also had some laughs. I know this might not help everyone but for me its been so helpful. Good luck to all the ladies going through treatment this week each time we are one step closer to this being over. xxxxxxxxxxxxxxxxxxxxxxxx
I agree it's best not to do internet/ google searches on the subject as you tend to find more negative experiences. It's hard I know, I have a 10 year old and a 6 year old and things play on my mind as I'm sure they do for everyone. I think chemo itself gets you down so I hope that things will get easier for you. I got a lovely card from the sister of a colleague who let me know that she had been through a very aggressive form of breast cancer. She had a mastectomy and chemo. That was 18 years ago.
I've just had confirmed my first times for Tax - I had assumed it was every 3 weeks like FEC but it's every 2 weeks,
I know some of you are having it weekly too, which are you having Tania? Just wondering whether I should be asking for weekly (was really sick the last 2 rounds of EC!)
Hope everyone's doing ok today,
Tania , I know it's hard but I avoid reading anything at all if I can .I just use this forum with our board and don't even read the other boards .. I cope with going through this journey almost blind to a certain degree, just being told what I am having and when and avoid all statistics. Everyone is different and I may feel the need later on to ask more questions but for now I find ignorance is my way of coping . I am sorry you have had a rough time with your T, I am dreading mine on the 20th but it's just the unknown. Xxx
Sarah, I am pleased you are finding the T not too bad , I am still suffering with the nausea and have become more of a hermit after each Fec. I really must try and leave the house more when I start to feel better !!!
Hope all ladies are ok xxxxx
Hi Sarah Sorry to hear the T caught up with you . . You seemed to be doing so well. Hope today goes well. xx
I hope you all had a good weekend. This 4h Fec totally wiped me out yesterday , slept on and off nearly all day. Nausea seems to be a little better but energy levels at 0 .
How are you doing Sarah with your T ? , so far reading your posts I hope my first one on the 20th follows the same path . It would be nice to escape this nausea , it is doable but when it disappears it is wonderful .
Another sofa day day planned for me today , think I need to try and build up some energy levels.
finding my injections for WBC hurt quite a lot too. Think my tummy is bit sore. Do we have these with the T Sarah, I forgot to ask ?.
That's good to hear, Sarah. I was whacked on Friday after Wednesday's chemo but am having a good weekend. xx
How are you doing on day 4 post T ? . Hope the Se are manageable if you have experienced any , even better if not .
Hope all ladies are having a good weekend . Another sofa day for me , bit of nausea and feel bit wiped out
Thanks for sharing that Richelle. Very interesting. A friend I met during our 2 x operations told me last week that she has recently been feeling really down. She also has Survivor Syndrome, in that she feels guilty because she didn't need chemo/radio & the rest of us did. I'm a bit worried about her because she lives alone & has been waking up crying at 4am. I will print that out & give it to her on Tuesday. I've got her into our cancer help centre for counselling & we are going to meet up more frequently for walks. I'm not sure what else I can do, but what I found really interesting about your article was to be careful about what you say . . avoid platitudes, which sort of add nothing. Thanks.
Brave how are your nails? Meant to say to you that my chemo nurse said you can wear black cotton gloves for 24 hours if you don't want to paint your nails black. Might look a bit mad, but if it saves them getting worse could be worth a try. I have ordered some (1.99 on Amazon) because I want to keep oiling them up & can't do that if I paint them. x
Thank you for posting that link Richelle. I'll bookmark it for future reference as think it will come in useful in the months to come.
Not sure if anyone has read a document by Dr Peter Harvey a consultant clinical psychologist entitled after the treatment finishes - then what?
I have just just had it sent to me by a support nurse and found it a really useful resource both personally and for family to read.
one part in particular really resonated.....bottom of page two in which he states........
Once heard, the diagnosis of cancer can never be forgotten. Whatever your prognosis, whatever your hopes, your personality, the second that you know you have cancer your life changes irrevocably. For many people, their sense of security and safety is undermined, their hopes for the future compromised, and their trust in the world denied.
He goes on to say the recovery involved three stages: recuperation, convalescence and rehabilitation with the first stage starting after our active treatment has ended.
The end goal being to incorporate and assimilate our experience into our lives and self, not pretending it didn't happen, or denying its importance or power.
I have attached the link and hope some of you find it useful xxx
Your weekend sounds nice and relaxed - I'll have to do some Halloween stuff with the kids but not too hectic!
Sarah fingers crossed you keep on coping so well with the Tax,
Good weekend to all,
My first T is the 20th November , have already been prescribed Tramadol for the Se but will try and cope on Paracetamol as allergic to Ibubrofen . I will follow your progress on T too . Not sure on my end date as I would be due one on New Year's Day so think that May extend my date somewhat.
Hope all ladies have a good weekend, mine will consist of my comfy sofa and Tv .xxxxxx
Brave I wrote a comment in along those lines. I don't know if they'll print it. JHBee I start tax a week on Mon & my Herceptin next Fri. Good weekend allx
I've just seen those Evening Standard photos online. They're pretty gruesome, huh? I'm in two minds.That clearly is reality for some women but you'd really hope those mastectomies were done a good while ago, wouldn't you? Yes, Bibi, totally agreee it gives a one-sided (no pun intended) view. You're absolutely right they should also have photos of some nice reconstructions.
I agree would have been great to have finished with chemo this year, oh well..I'm wondering if headaches are due to continuing with the cold cap (though I hear you can still get headaches if you don't use one).
Well Ior the 16th 'll up my water intake, ask for Emend again, arm myself with plenty of painkillers and hope not to dip down as much as my last EC! When do you start your Tax? (I think you said you'll be doing weekly?)
JHB glad you're surviving & sorry to hear you will be joining us in the January tail . . I would so much have liked to be done by NY to start 2016 with a clean slate. Still, there was always going to be rads for me too. I found drinking lots of water the day of chemo got rid of that horrible headache ( I had it for 10 days with the first one & had to resort to co-codamol because ibuprofen/paracetamol wouldn't shift it). I did a litre and a half before chemo & same after before sick feeling set in. Yep, did spend all day running to the lav! x
Hope you're all feeling as well as poss.
Debs I started out on 4 x EC and they have now added 4 x Taxol. EC (though everyone else seems to have FEC?) has made me really nauseous with headaches but am feeling myself again after 10 days! Am hoping that the Tax won't be as hard hitting with sickness but I know it can have some other interesting SE up it's sleeve (might be trying the dark polish after hearing how painful your nails have been Brave)! My 1st Tax is on 16th Nov so I think last will be Jan 18th..
Have a good weekend all.
Good post Brave. I am in complete agreement. Poor Victoria then, if she is to undergo chemo like the rest of us. I saw her on TV yesterday & she was back at work looking very chirpy. Good for her.
Richelle glad to hear you're ok. xx