Lisa xx sorry you arent feeling too good a GA is a massive thing to go through and add that onto everything you have been through lately with chemo its understandable x rest up and thinking of you x
Carolec you just reminded me I have 2 Lush new bars I got as part of an xmas present I may start using them as soon as ive ran my current bottle of burts bees baby shampoo out which considering I keep shampooing my head every day out of habit whilst half asleep wont take too long! now im on T it may start to sprout back (fingers crossed) 🙂 - my lovely friend bought me lots of goodies to use during and after chemo and bought me a big basket full of oils like avacado, jojoba Bharingaraj and essential oils that are all supposed to be good for hair growth 🙂 she got me some shower caps too which at first I thought was crazy but i worked out its so I can put the oil on my head and lounge around for a while and let it do its stuff
Bibi my friend said Aloe Vera gel is good for psorasis and may help .. she said she kind of sits around for a bit before he shower with it on the patch on her scalp (she hasnt had chemo) and then rinses it off when she washes her hair
Hope everyone is well xx
Lisa you're bound to feel down after all the treatment and entitled to feel sorry for yourself. My second time too - 14 years ago on 26th Jan - but at least they have caught it early and thrown everything at it - sending big virtual hugs xxx
PS I'm still using the same shampoo I used during chemo - it's called New from Lush - apparently stimulates the hair follicles xx
Big hugs Lisalou. Not surprised you're thoroughly fed up. I think the anaesthetic is a bit of a downer too. Hope your armpit is not hurting too much & that you have a better weekend. I am using Nioxin shampoo & follicle spray. At least our hair smells nice even if it looks a bit weird. xx
jhbee I also lost my eyebrows and in fact hair from everywhere else after chemo and not during which is weird, although I suppose we are al different. I also lost a bit more from my head and the front thinned but not sure if that was the letrozole kicking in. Hair is growing back now and have a full covering on legs - just what I don't want! I've been using Regain and Nourkrin conditioner for my hair but not religiously and also Nizoral which might help the scalp probs - think you recommended it through a link Bibi. Bibi I also have the grey fringe now and a mixture of blonde/grey/white/mousey in my shoulder length bob and don't think we can colour our hair for some time.
Brave - the deep breath holds are not that bad and you can use the technique for snorkelling! Everyone I met in the waiting room who were using this technique said that they had coped well, apart from a lovely lady who was about 80 so I'm sure you'll be ok. I also asked my consultant about the zometa and he said it is for osteoporosis but they are trialling it for recurrence. This prompted him to arrange a bone density test for me as haven't had one done yet even though I've been on letrozole since end October.
Brave and Lisalou hope thr draining sorts itself out soon - I remember the too-ing and fro-ing to hospital but it will be fine soon. Hope you're getting plenty of rest Lisa which is easier said than done with a little one xxx
Very interesting thanks JHB. I really want to use T-Gel, but I thought it might be too strong to use, so will give it a try. Most of mine flaked off (kind of disgusting, sorry ladies) now I can wash my hair more often again (yay), but there is a small stubborn patch glued to my head, where I had a bald patch from botched cold cap application in Nov. Have decided to leave that bit in case it's not ready to come off. Sort of want it off so I can put regaine on the patch, which has c.1cm of hair growth. Have much thinned dark shoulder length hair at the back & front is the original fringe still (nearly white). Sides are about 2" long (I think they snapped off) & a horrible shade of dark grey. I had no idea what my hair colour was as have dyed for years. I look TOTALLY ridiculous. My HB says he thinks it looks OK (gotta be kidding right?) but points for loyalty & being generally lovely. LisaJane I don't know if you're still out there, but what did you end up with? Ladies who didn't cold cap ... Yours probably looks a lot better.
Lisalou hope you are not too sore m'dear. You'll soon get those drains out & be doing the birdie song exercises like the rest of us. xx
Thanks Bibi, that's v helpful. Meant to post to you re the horrible post Taxol scalp..the oncologist just said it should be ok to use whatever I had used in the past (I did have dodgy scalp post pregnancy too) ie. coal tar shampoo etc. I've tried to get through to The Marsden's Medical Day unit to see if the nurses have a bit more specific info but no luck as yet. Hopefully yours is improving Bibi, but mine's definitely getting worse!
I already had mild psoriasis on my elbows before starting chemo and I remember the nurses saying that the chemo would clear that up, as it works on other fast moving skin cells (like psoriasis, dermatitis etc) as well as on cancer cells. My elbows cleared up beautifully! Then the Taxol and as well as much more hair shedding the psoriasis has come back on my elbows and some on my face now as well as the cradle cap type stuff on my scalp! Makes me wonder if this indicates that the EC, was doing a better job at zapping the fast moving cells all round?
Anyway have booked in with the GP now as bald patches combined with horrible scalp is getting me down, along with ever disappearing eyebrows and eyelashes. Sorry to moan but I think I'm a bit impatient for an improvement after chemo!
Lisalouw, hope you start to feel better soon. Brave, good luck with the draining, I had to go backwards and forwards for draining quite a bit, but it sorted itself out in the end!
JHBee I don't think you need to tell them unless it's likely to affect your income. I found the attached http://www.theguardian.com/money/2004/nov/24/expertsproperty.property x
Hope everyone is doing ok.
I have a random question! We are looking to remortgage as we've come to the end of one agreement. It's only just occurred to me (doh!) that I'll need to disclose the breast c. when applying for a new mortgage - and that this might make applying trickier than in healthier days - yikes!
Sorry for boring question!
I think you're right, Carole. The Macmillan website says: "Exemption certificates cover all prescriptions, not just those relating to cancer. Anyone who has had a cancer diagnosis can get all their prescriptions free of charge, including those for cancer, the effects of cancer and the effects of cancer treatment."
I've got my rads planning session this coming Monday with a view to starting the sessions on Thursday 4th after I get back from my dad's funeral. I'm to have them for 3 weeks and one day and, Carole, because they want to zap the lymph nodes behind the chest bone, they want me to do the breath hold thing with - I think - the snorkelling apparatus.
My reconstructed boob and the underarm area are still filling up with fluid so I think I may need draining again soon.
Love to all. xx
Hope everyone is ok today and think most have nearly finished chemo. Lisalou hope your clearance went well - not sure how long they keep you in for so you may still be in hospital. Brave my oncologist never mentioned zometa and I'm on letrozole but also having herceptin so maybe that would be too much but will ask him. Also my GP never mentioned free prescriptions at all but I was lucky that a friend had had breast cancer and told me when I was first diagnosed. The Gp I saw at the time reluctantly gave me the exemption certificate to send off but I was told its for all medication for at least 5 years and not just for cancer related medication xxx
Tania Glad you're feeling so well you are considering work again & all the best for the last couple of rads & the future. Thanks for your support over the past few months. x
Oh all the best for tomorrow then. Fingers crossed it goes ahead, so you have it over & done with. I'm fine ta. Chemo finished now, so rads next in a few weeks. Will you be having them after your op? I don't like the idea of subjecting my body to radiation, but I it will be the end of all treatment after that, so something to look forward to finally. Let us know how you go after the op. xx
Yes I too am hoping the side effects aren't too bad after yesterday. My MRI showed the tumour to be 24mm so oncologist wanted me to carry on as he said all good . He feels that I am now candidate for lumpectomy at the moment but I am keeping an open mind as it could all change . Have an open mind for mastectomy . Hope you are still able to have your clearance , thrush in the mouth is horrible , I've had it twice on docetaxel now and dreading it this time too .
Really dont know know how I have managed to escape a cold so far as my husband and son have had them . My immune system must be better than it feels . Love and hugs back at you xxxxxx
Lisalou so sorry you have been ill again. I bet you just want to get the op over & done with. I can't quite work out if you are having it or not from your post (autocorrect in action again probably), but all the best when you do & hope your issues clear up quickly. BBx
No 7 chemo didn't go to plan again. I was given piriton through cannula before my chemo and waited half an hour before chemo was put through. One mil later I was once again having a severe allergic reaction to the docetaxel .
Doctor had to be called again , one I had recovered I was given more piriton and then half an hour later the chemo was tried again at a much slower pace. I was fine this time.
just one more to go , my last one being 8th February wahoo.
Hope you are all ok xxxxxx
Oh Debs, you must be so sick of chemo by now & now another month before the last. Did they reduce the dose further or anything? You have suffered so much on it haven't you? I really feel for you. Huge hugs coming your way.
Carole hope you're better soon. Have a nice weekend all & Brave hope all OK with you xx
Good luck debs for Monday - I had op first and found the chemo far worse but haven't had node clearance - in any event at least after the op the dreaded BC alien will be gone! Jenjen thanks for that as explains why they don't keep me longer - my first 4 herceptin were while I was on the taxol so was there anyway for 3 hours - home visits sound good but unfortunately my hospital won't offer that but it's only a 30 min drive anyway xxx
I am having cycles 7 and 8 of chemotherapy , number 7 is on Monday. Then an operation . Had a 5 week break so not looking forward to it 😞. xxxx
Hi hope everyone ok. Debs did you find out if you're having the op? Good luck Lisalou for the 20th. Jenjen how did you get on with the Paclitaxol and herceptin? I have herceptin no 10 on the 22nd and its funny how hospitals are so different. I have injection in thigh and I'm in and out in about 15 mins and don't have to stay for obvs - maybe because I'm not having it through IV/port. I have the dreaded throat infection/cough which is going round at the moment - we need this cold weather to get rid of the germs! Brave big hugs again and everyone else xxxx
Ha ha. You have plenty of time. It seems to start as the odd occasion, then from about week 6 a bit more frequent & then Imodium stopped working for some of us, which is when it became a little activity limiting. I found that Imodium from the hospital pharmacy has 18 capsules in for 7.99, whereas supermarkets are 5.99 for 6. Just a little inside info in case you end up buying in bulk. I remember Carole talking about it when she was on weeklies, but I had no idea how bad it was at the time (sorry Carole!). x
Pleasant change to FEC pukesvilke isn't it? Yes reduction for 11/12th, but in a quandary now peripheral neuropathy has gone, should I come clean & do the full dose?? She did say the reduction would also help with the tax trots, much discussion of which on Sept, on the other hand, I do want to get rid of the mutant boob alien for ever. Guess I'll have to take a view by Friday or will end up with another long day. xx
It's 10g 3 x a day starting 24 hours after T for 4 days if you're on the 3 weeklies or 2 days for weeklies. My onc had never heard of it, but it's very common on US threads & there is research showing it doesn't interfere with the action of T. She said it was fine, but I could tell she thought I was a bit mad. Well me not her with rubbery painful fingers, so my prerogative I reckon😀. Jen I only started it on dose 9 because it doesn't usually start until then for weeklies. Not sure what dose is after you have finished the T though. I will do some research for you Brave, you have enough on your plate at the moment.
Brave hope things are not too awful. It's a funny old time between them dying & the funeral. We had 3 weeks with my dad & felt we were stuck in limbo for too long. Big hugs to you.
Bibi can I ask are you taking the L glutamine now? I was going to ask onc but wont be seeing him till week 5! How much are you taking if you dont mind me asking ? x
Hope you are well 🙂 not long to go and glad you are on track again.
Love to all ! Xx
JHBee Could not agree more about FEC & T. I felt ghastly the whole time on pukey old FEC & EC (I changed half way due to F toxicity). Some people have found quite the opposite & had no probs on FEC & just hate T. We're all different.
Do let me know if your onc has any top tips to get rid of the dry scalp. Mine's sort of like cradle cap for grown ups. I asked the pharmacist who gave me some cream, but it doesn't seem to have had much effect.
Debs all the best for today.
Carole that L-glutamine seems to have got rid of my peripheral neuropathy. What a relief to get the normal feeling back in my fingers/get rid of the pins & needles.
Hope the rads going ok for you Sarah & Shelley xx
Thanks for the Tamoxifen timing tip Bibi - will ask about it at my appt on Friday too. Interesting re the dry scalp thing - I'd been much happier on Tax after the grim sickness of EC (I had EC, rather than FEC) but I've definitely had more hair/ scalp, dry eye issues with Tax, I've even got patches of dermatitis on my face - last time this flared up was in my 20's, so I'm hoping it starts to fade!
Debs, good luck tomorrow, hope everyone else is doig ok. Jx
I find out tomorrow if I am having 2 more chemo or an operation. Because I am now 4 and a half weeks from chemo number 5 my hair has started quite quickly to grow back. It's fairly thick and wavy. If I have 2 more chemo I assume it will fall out again . As far as I know I will be having lymph node clearance when I have my op and then radiotherapy . Big hugs xxxxx
JHBee sorry knew the onc said something useful, but shared the wrong bit in my last post dhurr! I said I was concerned about impact of tamoxifen on sleep & she said people can sometimes get relief from changing the time they taken it each day, as that will change the time of peak flushes. You can also get some tabs from GP, but they try & avoid them if possible. If you are not a hormone reactor, sage tea is supposed to help too (if you can stomach it). x
Carole Hope the anti-biotics help you quickly & reduce the soreness.
JHBee my scalp seems to be peeling all over too. Most attractive, like terrible huge dandruff & I can't even use head & shoulders. I have used the cold cap too. Is it a thing I wonder?
I asked the onc how long before bloods were back to normal & we don't have to worry about infections. She said it's less about the numbers of WBC & more about how they react in the face of infection. She said they are sluggish to start with & usually get back to normal around 6 months. X
Oh Brave, that is so tough for you all. My thoughts are with you. It's difficult timing too, but I suppose that is the least of your worries right now. xx
Brave so sorry to hear about your Dad and no it's not fair at all at this time - try to take things easy (easy for me to say) as you're still recovering from your op, but you'll be in the best place surrounded by your family - my heart goes out to you.
Bibi glad to hear they are reducing your dose and Sarah glad you did ok on your first rads. Richelle well done for almost getting there and debs good luck for Wednesday. Jhbee I'm going to sort out some accupuncture as helps with the hot flushes and neuropathy from taxol but I've heard yoga is good too or one of those mini fans. I went through the menopause a couple of years ago so this is a second lot for me thanks, I think, to the letrozole. My hot flushes so far have not been really bad but if they are I end up taking layers off when it starts - only down to a tee shirt mind, I'm not that brazen!
Ive just come back from seeing my onc and am suffering from a strep infection - not very pleasant but the rest of the area is fine. It's only where they put the bolus plus the boost, so on antibiotics. It does get on my nerves when they say this is very unusual as if I'm some kind of oddity! Anyway it looks better already so sure it will be fine in a few days. Big hugs to you all xxxx