Like most people on here my BC has been a real shock. Going from feeling happy, healthy and content to a dithering wreck minus my left breast within 3 weeks. Life has been an utter blur but I started to climb out of the hole and began thinking about the future, getting back to work and getting on with life. Until yesterday when when I found out chemotherapy will be starting 2 December. I kind of expected it but how very scary when becomes your reality. I am trying to be positive about the treatment for my children but omg I'm crumbling inside. I would really welcome any advice about preparing for the treatment and how about the scalp cooling?
Hope someone out there who can share with me. Love C xxx
Welcome to the forums. I'm sorry to hear of your diagnosis, the first few weeks are always difficult when coming to terms with your diagnosis and treatment.
As well as the support you will receive on the forums you might find it helpful to order the BCC resources pack. It has been specifically designed for those newly diagnosed and contains information to help you understand your diagnosis, test results and the various treatments available. If you would like to order a copy just follow the link bellow:-
You may also like to talk things through with one of the helpline staff, they are there to offer emotional support as well as provide information. The free phone number is 0808 800 6000 and lines are open 9-5 Monday to Friday and 10-2 Saturday.
this is the first time Ive put anything on this forum. My chemo due to start in two weeks. Only diagnosed a week or so ago Been told I need chemo before surgery then radio therapy. I have to be honest I feel like its someone else Im talking about. 47 and about to start chemo. I am terrified. any tips would be appreciated. Just not sure how I am supposed to react. I work full time and not sure re work either. The hair loss will be pretty devastating too. 😞
NOT silly at all we just want to get back to normal and that I'm sure is very natural. And the treatment (I carnt even call it by its name without feeling sick now that is silly) was given via a cannula in the back of my hand which had to be soaked in a bucket of hot water as my veins hide away. The E was given first, it is red and very thick so was diluted with a saline drip and given by syringe into the cellular, closely followed by the C. I then promptly vomited and was given anti sickness drug into the same vein. The process took about an hour, followed by another hour in the cold cap. The nurses were very nurturing and kind but I HATED the whole thing. Things got very bad for me at about 2am and continued till 10am the next day. Murphy I've had a particularly bad reaction to the drugs. Ive been back to hospital several times and things are now under control (Ihope). The trouble is you just don't know how you will be effected till the drugs are inside.....Some women are fine so please dont expect to be the same. My body doesn't react to well to new chemicals I can remember being sick with every contraction in child birth too.
Think I'm just unlucky. Try to stay positive and keep in touch, Caroline x
I'm with you on the 23rd for my second blast and I really do not want to go. I sympathise with you hunny, I really do. The scars heal but the emotional trauma just goes on. I understand completely about being up one day and down the next. I think we just have to let it be and I'm sure given time we will heal emotionally. I didn't have reconstruction straight away as could only deal with one thing at a time and I think you are very brave but I hate my flatness and feel sad for the loss of the breast that fed my babies. I worry that my children are seeing me fall apart too. They are used to having a very strong mum but the chemo is taking it's toll and I've only had flipping one! This is the place to share our true feelings Murphy and we are all here for each other as we do understand. Be kind and gentle with yourself and I'm sending you a BIG hug and lots of Love.
Welcome Brewster, Hoping you feel better very soon. I noticed a real change for the better at 6/7 week after single mastectomy. Hang in there & just be kind and gentle to yourself. Lots of Love x
Hi Andreea, a warm welcome but sorry you've had to join us. Like you, things happened quickly for me too diagnosed on the 14th Oct and mastectomy on the 20th. I'm still catching up emotionally.
You will get lots of support here and we WILL all somehow get through this together.
Hope you are feeling ok following first chemo and not being upset by side effects. Think I've been unlucky as had very bad reaction to first on the 2nd Dec. Been back to hospital twice and sickness finally under control but unfortunately constipation is a SE of anti sickness drugs Aaaaaaghhhh!!!! Anyway it's sorted now just feeling exhausted. I caught myself in the mirror the other day and thought who the hell is that?
Tonnes of luck & determination to everyone starting soon. Keep posting and lets try to stay strong together.
Love Caroline xxx
I've been reading so many posts since i've been diagnosed with BC in September. Same like many of you here, was an absolute shock. I am 35 and i was thinking i am in the peak of my life, focusing on my career after my first (and last) child and then Boom! dark, silence, then all happened like a hurricane.
Within 3 weeks I went through two operations, a lumpectomy then a mastectomy, and now, just had my first chemo on 5th Dec!
All happened so quick i still think is a sort of a dream and I need to wake up quickly. Then i look in the mirror and realise this is not a dream, this is so so true. I thought i put up with it all so brave and tried and act as normal as i could and carried on with life, but deep inside I feel so so lonely and crumbling. So i thought to join this thread and get involved and perhaps be useful somehow.
I wish you all an easy start with the chemo.
I was planning to try and work during Chemo as much as possible for my own sanity but my Dr is insisting that I take a month off at the start to protect myself physically and mentally and to look after myself. Digging out the knitting needles!
Caroline - Glad to see that the side effects are settling down for you. I start FEC on Friday this week, not looking forward to it!
I had a mastectomy 7 weeks ago with no reconstruction. I have had an issue with the cavity filling up with fluid. I have had over a litre of fluid taken out and its still filling up. Has anyone else had this issue?
I think the worse part of this process so far is the waiting. I am sure once the chemo started I will be fine but waiting is a nightmare! You can't help but think about all the side effects and how they will affect you.
Take care everyone
oh and the sleeping on my side thing - I found it the hardest post op part!! I really couldn't sleep as I am a tummy sleeper. It was like being pregnant again. It made me tired, grumpy and I found it hard to deal with the pain because of lack of sleep. 6 weeks on I can sleep on my tummy again and its blissfull!
I have started trawling the net for purple wigs - refuse to do the 'shes got cancer poor thing' look. I couldn't stand it. If they are going to stare they can stare at something fun!
Thanks for the welcome Sarah. I am going to try the cold cap too so will let you know how I get on. I have been checking out wigs though as i hear it is not always successful but might as well give it a go.
Hi everyone. Unfortunately I am here to join the December chemo ladies (and men if any reading)
I was diagnosed with invasive lobular breast cancer in November and was hoping to have had my mastectomy yesterday but that all changed when my MRI results came back. Fortunately it is only in the one breast but what they thought was 1 cm turned out to be 6 cm and therefore too big to be certain they get it all without shrinking it first. It is not a 6 cm lump(in fact no one has actually felt a lump yet) but is more like a spider web effect i think as that is how lobular cancer grows.
I go Tuesday 9th to find out more about the chemo and actually have first session on the 10th. I am having FEC x 6 sessions with 3 week intervals and am petrified !!
After 3 sessions I will have another MRI to check if it is shrinking as lobular does not always respond to chemo. Trust me to get an awkward one.
I have been reading all the suggestions on how to cope and manage side effects and will try to be strong and take it day by day. Love and hugs to all. Dee
I am starting Chemo on 18th December. Thank you everyone for so brilliantly telling us what you are going through. It is sos amazing to hear all these strong women!
I found a lump at the end of September and had a lumpectomy and a sentinal node biopsy on 21st October.
Although it is out and margins were clear and the lymph nodes are not affected at this point, it was an aggresive cancer and so Chemo and Herceptin is on the cards.
I saw the oncologist yesterday followed by the nurse who was fantastic (even though I was doing it in my second and very poor language!). Thankfuly she was very very patient!
I can't even remember the name of the chemo drugs and they are in a file in the car! I am having the first one two weekly for four treatments and the second one weekly for 12 treatments. That is about all I heard. I think I blanked after that.
After that I will be having Herceptin 3 weekly for 13 treatments!
I am flying to the UK for 9 days between my first and my second treatmnents. I may well be ill while I am there but it beats staying home alone so I am planning on going anyway and have delayed the 2nd treatment a few days. Better that than start in January. I have my brother's wedding about a month to a month and a half after the chemo and at the start of the herceptin which could be interesting - means flying and short hair!
The oncologist thought that I would be very suprised when he told me about the chemo but to be honest I was prepared and not really that suprised. I had prepared myself for it from the start. I burst into uncontrollable tears with the nurse though when I realised that the herceptin was going to be after the chemo - so we are talking a full year of treatment. That really really threw me. I hadn't even considered not being finished by my brother's wedding in June!
I don't see myself as a cover up wig type of a gal (when I say gal I'm 41!). I died my hair brown last week for my brother's engagement party but before then it was blue, purple, pink etc. If its wigs then it has to be purple and I think my Buff collection and hats may be coming out. I figure if people are going to stare at me I would rather get the 'wow look at that amazing hat/wig' stare than the 'oh poor thing has cancer' stare! That I really couldn't bare.
Oh my goodness - you poor thing! Sounds awful
Which chemo drugs were you given?
Hopefully next time they will be prepared for your reaction and will give you different meds to cope with it.
Take it easy and keep us posted about how you are getting on.