That's re assuring thank you. I wasn't expecting hair loss after the first one but hay..... my oncologist did tell me that I will probably loose the hair come what may. I've got a few pretty scarves not sure about a wig but will probably feel differently in the weeks to come. xxx
I've not been given anything to boost white blood cells, but then I've had 3 infections so may be I should have had something, I'll ask before no. 3 on the 2nd. That sore scalp thing, was it Caroline mentioned?, that seems to happen just before hair loss. Keep positive as I had it after no. 1 but nothing lost after no. 2. x
Thanks Sarah and Catherine.
Yeah we are all treated individually which is a good thing and not panicing at all infact quite the opposite it's kind of resigned acceptance for me today. Not been offered anything regarding immunity, guessing I don't need it. xxx
Hi Everyone, Hope you all feeling ok....
Safe journey back to the UK Catherine I think your amazing!
I was also told to be careful with paracetamol as can mask a temp but ok to take it if needed just to be careful.
Sarah, are you having immune injections to boost your blood count? Hope you don't have any SE. The leaflets are scary aren't they. I've just read the chemo one again and think I've had all the flipping SE.
The second one carn't be any worse can it?
Also wondering did everyone get advised to have flu jab as this wasn't mentioned to me. Just wondering if I should be having it as the nurses keeps banging on about low immunity all the time & being careful about where I go etc... Although, my husband and two boys have been sneezing their heads off this week.... despite been sent out daily with antibac & instructions to gel up before eating etc... LOL
Anyway... it's day 19 for me following chemo number 1 and feeling ok. Still mouth washing 4x a day to keep sore mouth in check and E45ing hands regularly to keep eczema like rash at bay (never, ever had eczema before in my life!).Noticed strange sensation in scalp a( It feels a bit like when you've had your hair tied up all day and you let it down?) couple of days ago so have been putting off washing my hair but couldn't wait any longer. Just got out of shower & quite a bit of hair loss I'm sorry to say. Although it still looks okish, definitely feels thinner and really glad it's short now. Wig appointment 31st does anyone if the wigs need to be ordered or do they have loads and can take away on the day?
Finally decd up for Christmas. My boys went out to buy our tree and decd it up. They've don't an fab job bless 'em. I'm only telling you... but I don't feel a bit festive and I usually love Christmas. Just trying to do all the wrapping done before the 23rd (chemo number 2) as I know I'm gunna be feeling bad again.
Think I'll put Mr Buble on........
Love and hugs to you all. Caroline xxxx
Dawn - went for pre chemo chat today and was introduced to the 'cold cap' machine... still hopeful 🙂
thanks again for all your advice
Dee - I will be starting chemo just before you on 30th Dec - I also cannot have the planned mastectomy due to fast growing tumor (25mm to 45mm in 2 weeks :/) so chemo rushed forward - I have joined the 'January Crew' secret group on Facebook and its been good to keep in touch with others.
The fear is the worst thing and I am thinking of you - definitely one day at a time
I can unerstand about something that would mask a temperature but to be honest, it wouldn't mask a really high one anyway. I was offerred paracetom while I was there as I had a headache and I know peple take ibuprofen for aches and pains etc after the injections s I am going for it. i was also told to take optalgin - which is something you dont have in the UK but is a common pain killer here. Seems to be ok in general I think you just need to be careful if you are hot and tempy etc I woud thingk
So far - 25 hours on and I feel normal - which is great but also terrifying 😉
Have a good weekend.
Good Luck for Monday.
Lots of love and positive thoughts being sent yourway.
SarahJane think we must have posted at the sametime as just noticed your post. Hoping the sickness and upset tum has passed for you and I wish you a peaceful night.
Day 18 after first chemo for me and noticing a distinctly tender scalp mmm hoping this is not a sign of things to come. X
Great to hear you ok Tomcat, well done girl.
Hope your ok Sarah Jane.
Emm hope sickness under control if not give your team call as there are lots of different tablets to try. I found hospital staff really helpful and got SE under control for me but needed to try 3 different types of anti sickness tablets before I felt ok. The anti sickness tabs can cause constipation though. This was a problem for me. I was given movicol and it did the trick. I would just say keep an eye on the old bowls and don't leave it too late as you don't have to suffer.
Second one on the 23rd for me and heres hoping to be more prepared this time.
Love Caroline x
Well done TomCat.
I start mine 2nd Jan and am keeping in touch with some of the late December starters.
Hope you day continues to go well.