Hope everyone doing ok and has a good mothers day weekend.
My treatment was cancelled this week due to an infection so I feel like I got a bit of a reprieve!
Hazelr - hope you are feeling ok. I looked at those magnets but not sure I think it would work 🙂
Take care all,
TomCat the udder cream was from winstanleysbikes.co.uk but you can also get it on Amazon. Hope you find something that works.
Hi Tomcat, glad that is another over. Don't know if it has been posted on this thread but lots of people have been recommending Udder Cream which is available on line.It contains urea which is very good for the skin apparently. Never used it myself but one site I read said it is recommended for during chemotherapy. Worth a look. Take care. xx
Caroline , glad it was a quick one today. Hope you keep well. xx
Third Taxol done and dusted and then went to a friends for a celeration afternoon meal (nothing to do with me).
I still need a solution to my fingers. something like E45 wouldnt touch it. its far to bad. I have much much better stuff as I have excema and its not even trying\
You have had a busy week! I don't know much about expanders and things - is that another full op? Will you be ok to drive to rads after that? It sounds like they have a good idea of what they are doing and I hope it all goes to plan 🙂
My fear about rads is mainly because of my heart, as my tumour was on the left side. I have an oncologist appointment in about 3 weeks so I will ask about it then.
I hope all goes well tomorrow.
Hope your day has been ok and your all taking care.
Emm .. My husband has recovered thanks.
Sorry to hear your eyebrows starting to shed. I would recommend a stencils and a smudge proof powder compact. Its took me a while to put them on/get the right colour etc but its worth the effort. My brows haven't completely gone but are very very sparse. I ordered some stick on ones and they are ok but decided I prefer the power as the shape of the stick on ones not quite right.....for me anyway but they are worth a look at.
Not had a problem with fluid retention yet and not having radiotherapy this time as had it in 2010. The worst thing about it is the travelling to hospital every day. The actual treatment lasts for a few minutes and you dont feel a thing. It made me feel very tired but nothing like as bad as chemotherapy.
Tomcat .. Sorry to hear your suffering with skin and veins. Im on a different treatment but Ive had several rashes and dry skin E45 has worked for me. Ive also come out in spots on my face which Im told is also chemo related .. joy ..
I can feel the veins starting to pull in my arm and they look sunken. The nurses told me to keep my arm moving and gentle massage helps as the vein lining recovers.
I hope the blood transfusion help you to feel better.
Marli ... I have felt same after re EC4 re fatigue. Its been much worse and taking longer to recover. I've felt exhausted and slept much more this cycle. Guessing its the cumulative effect?
Im due EC5 this Thursday and dreading it as per......but hay closer to the end of chemo anyway.
Hope everyone starts to pick up soon and good luck to anyone else getting zapped this week.
Love Caroline x
Marli, I'm sorry you have had such a hard time this cycle. I know they say that the tiredness gets worse each time 😞
I think you are doing the right thing by taking it easy and not pushing yourself too hard. Buy some nice magazines and be gentle on yourself 🙂 The end is in sight now.
How are people feeling about the prospect of radiotherapy when this is over?
At the moment I really am not sure that I can face it or will be going ahead.
Riverside dawn - similar time to me I think. Will see the surgeon between 5 and 6 so should be late March and will know then. N0. 4 has been the worst for me, basically very tired and unwell. Decided to just go with it and sleep if I need to. Been shopping a couple of times but come home exhausted. Hair standing up well , not losing much now, but very grey and dull !
Tomcat - sorry to hear you are struggling with your skin and veins. I use arnica gel on my veins to help them recover. They are standing up well, no Hickman yet and only 2 to go. Needed to go in a second vein last week, but that was me drawing back from the needle at the crucial time, so I will know better next time and imagine I am on a secluded beach. I wish. lol.
I have been using Argan oil on my hands every night and a really rich cream on my feet, followed by cotton socks.Finger tips hurt though, I have difficulty getting paracetamol out of pack. Not doing badly so might be worth a try, almond oil, olive oil or any other nice oil might work. Has the blood transfusion helped. We are here to support you to the end of your treatment.
Hope everyone is coping with SE's - end is in sight for most of us.
I had a strange conversation with someon the other day. I met her in passing and was told she had just finished treatment and was doing well. She looked at me and said "You are clearly not finished as you still have eyeborws". You really would think that after the experience she would be a little more sensitive!!
I have now had 4 ACs, 2 Taxols with herceptin and a blood transfuision. I have 10 more Taxols and Herceptins to go an then Radiotherpy and then 13 more 3 weekly Herceptins - nearly there eh,
Taxol has zapped my skin of all moisture. My hands, and my fingers in particular are cracking like mad. I ahve tried handcream and I have tried Doublebase which fixes most things but they are not improving.They are scratching and cutting on everything and get infected too - yuck. Any advice - let me know.
Also, I am hurting more and more with the needles. They often need two attempts each time now and its driving me mad. I need bloods tomorrow and chemo on Thursday and I only just had the transfusion on Sunday - I fee like a pin cushion. Anyone else the same?
Just wanted to say that I hope everyone is doing ok this week.
Waiting I hope your husband is feeling better, and Tomcat I hope the transfusion went well.
My eyebrows are on their way out - the right one more so than the left one which looks even more odd than just losing them altogether!
Also I'm having quite a lot of fluid retention with my legs swelling. Anyone else had that?
Other than that, things are going well and I'm enjoying the sunshine 🙂
Take care all,
Hope everyone feeling as well as can be after treatments this week.
Emm and Marli, the end is in sight just two to go .....Yah!! ....... think Im a week in front as due number 5 next Thursday all being well. Husband got the dreaded man flu.....yikes! but dont think us women can catch that can we? lol...
Will be keeping my distance just in case.
Hope things go well for you Sunday Tomcat and the extra blood puts a spring back into your step..
The stick on eyebrows arrived today (from simply wigs.co.uk .. 10 pairs £7.99) and they are really good. Ive had two of my close friends over today and weve had such a giggle putting them on but yeah there are really good. Supposed to last three days but will post how long they actually stay on for.
Also got a couple o lovely bamboo hats from them as thinking ahead to spring when Im bald and back at work.
Take Care everyone and keep warm (its freezing again here in the North)
Oh dear Tomcat 😞
I'm sorry things didn't go well this morning. Did they go ahead with the treatment? I hope you can take things easy until the transfusion.
Just sending you all a gentle reminder about our daily Live Chat service - Talk Together. This is a private chat room where you can talk to others who are also facing breast cancer in confidence.
Talk Together takes place every weekday from 12.30 – 1.30pm and will not be moderated or accompanied by a nurse. If you would like to register or find out more information then please visit http://www.breastcancercare.org.uk/…/someone-…/tal
I hope it goes well today Tomcat.
And Marli, I hope you have a good day. After every treatment I forget the effects of the steroids, and end up bouncing around the house all night driving everyone mad 🙂
I think my hair might be starting to grow a little - it feels fuzzier and not as soft and fluffy as it was when it came out. I may get my blond afro yet!
Take care all,
Thanks for the information dawn. Think reconstruction is going to be May from what Onc. said yesterday.
Had No. 4 yesterday and all went well although had to have two attempts at veins because I drew back on first attempt but Sister still thinks we should not need a Hickman line, so here is praying.
Hair wash yesterday before chemo and not lost much hair this week so continue with cold cap - although not sure how nurse fitted it yesterday or if I was being a little OCD about it.
Been up early due to steroids but only today to get through.
Hope every one who has been zapped this week is feeling well. xx
Dawn , my BC is a recurrence and I am having chemo first to give the Breast surgeon the best chance of reconstruction. She mentioned using my tummy (Diep?) but this was without seeing Plastic Surgeon so will have to wait and see. Have sent for Reconstruction Information booklet to try and get myself prepared. The good news is that I can see the chemo working because the BC was showing up on the surface and as a very swollen boob. All the swelling and skin problems have disappeared.
Em - not very technical but will get my daughter to set it up next time I see her. Sounds fab. Marli xx
After Tomcat's message this afternoon my daughter went to Aldi and bought me plums, grapes, satsumas, bananas, a pineapple and some walnuts. I got this 🙂
I'm not a fan of kiwis but I will eat them if I have to. We are more or less vegetarian as one of my daughters was vegan for a long time as she has lupus, and I know it is much healthier. She cooked loads of kale for dinner, which must be good for something.
My toe nail doesn't hurt at all - it is just no longer attached to my toe!
I do feel better this evening, just had a wobble earlier I think.
Marli, I don't know if you have a smartphone or anything but there is an app called Google Keep. It is the best list app ever 🙂
Take care all.
Already had radiotherapy so straight onto mastectomy and reconstruction. Also need to discus with breast surgeon and plastic surgeon as nothing mentioned since dx. xx
It is indeed Dawn - am making lists of little jobs to do while confined to the house, such as binning old photos, sorting drawers etc. Ticking them off gives me some sense of achievement - I LOVE LISTS! For my birthday my daughter had a personalised one made for me - best present.
Have you had your surgery already? Think mine should be about mid-May or June so trying to get my head around that. Roll on September when I hope to be back to "normal" ! Marli xx
Oh Em, sorry to hear you are feeling so down. On the constipation situation I suffered badly on EC and after reading that it can take up to 2 days to digest meat I started eating veggie as much as possible using lots of pulses for soups etc and veg curries.Started before chemo day and took lactolose to try to prevent rather than cure. Read recently that kiwi fruit are one of the top foods to help constipation (google foods to help) as well as prunes. Anything is worth a try because it is so uncomfortable.
I have No. 4 of 6 tomorrow and although I am very positive I have found myself worrying about the other 2. Don't think we can help it. Am building in small treats to look forward to - am going to Look Good, Feel Better the Monday before the March one and having a lovely day with my daughter. Then last one should be Wednesday after Easter . That makes it sound better already! lol
Take care and try to keep your chin up, as they say. Hugs Marli xx
Thanks Tomcat 🙂
I was eating more fruit before as we were getting organic box deliveries but I stopped them as I was overrun with oranges! But I will make an effort and get some more.
I keep reminding myself of something the midwife said to me when I was having my son - when you get to the point when you think you really can't take anymore, that's when you know it's nearly over. I'm hoping it doesn't just apply to having babies 🙂
I am struggling a bit again - I know I only have 2 FEC left to go but I do feel like I can't do much more. I have to sit up to sleep as if I lay down palpitations wake me up. At first I thought it was my picc line but I don't know. Have mentioned it to the team but they don't seem concerned.
And this morning I went to cut my toe nails and one just came off 😞
Plus I have constipation from hell so my diet is now mainly bran flakes.
I do know that these things are all very trivial in the great scheme of having cancer, but I think that's the problem. I feel like it has got into every bit of my life - even my breakfast! 🙂
Sorry to moan. At least we have sunshine here.
Take care ladies.
Tomcat - that sounds uncomfortable. Is that the usual SE's for Taxol? I think that if you feel the need to sleep your body must need it. I've slept or at least rested more this time. Like the idea of taking the computer in might try that because as you say they can be long days. As I've said mine takes about 7 hours but a friend does come with me most of the time - mornings are not bad as their are a lot of people around but later in the afternoon I can be by myself. They put me in a corner of the smaller room with my cold cap machine - I seem to take up a lot of room . lol.
Take care and hope you feel better soon. Hugs xx