Hi Josie, welcome to the thread. Good luck with your chemo tomorrow. The team send you home with a pack of anti-nausea pills which really worked for me. I took them as prescribed, ate small meals often and drank plenty of squash and I was fine. I did have nausea but wasn't sick once. I also found ginger biscuits helped too. Mind you I was a wine drinker (still have the occasional drop) so that may have put me in good stead! Take care, let us know how you get on x
Welcome to the BCC discussion forums, I am sure you will find lots of help and support from your fellow forum users.
I have put for you below the link to BCC's publication regarding chemotherapy and hope you find it helpful.
You're right Joyce, we don't know what lies ahead and I'm preparing myself as my oncologist said that the side effects get progressively worse so I'm appreciating every good day I have. Fanta, I too had my hair cut in prep - from shoulder to short style. My hair is continuing to fall out and I also plan to have it shaved but think I'll wait until it starts to look patchy, at the moment, it's thinning all over. Disco D, I'm sorry you didn't manage to get a ticket to see Bette, I was just very lucky to be on the internet at the right time. Best wishes everyone x
Welcome to the BCC discussion forums where I am sure you will get lots of good, honest support from the many informed users of this site.
To help you along I have put for you below the link to one of our free services which I hope you find helpful.
I hope you find this helpful.
sounds like you had a fantastic time and exactly the right attitude. Like you I am determined to do things when I can because there are quite a few days when really all I want to do is stay in bed. So enjoy the good days - even if there are those out there who think we treat it like a holiday!!! A holiday is certainly not what I would call it.Just gong into my third week of first chemo and planning a couple of outings - don't know what is around the corner after second one - enjoy.
l wanted to share my weekend with you guys to show that we can still enjoy ourselves during this treatment. Before I was diagnosed I'd booked to see the fabulous Bette Midler in Manchester. Thinking that the drive up on Saturday and back on Sunday might be too much (I live in S. Wales), I booked a night in Blackpool on Friday to break up the journey.
I had a fantastic weekend, a real tonic. I sang and danced and forgot about the cancer and treatment for the night. Earlier on Saturday in the hotel, my hair started to fall out big time but all over, not in clumps so didn't notice to others ( I was on day 19 of my 1st cycle of FEC). If I'd been home I probably would have been upset but, with a night to look forward to, I just combed out the loose hair, put my make up on and had a great night.
I'm now planning a treat for the third wk of each cycle. Not on the scale of a Bette Midler concert, just simple things that give me joy, like a trip to the beach.
My second treatment of FEC is on Friday and already I feel more prepared for it because of the lovely experience I've just had. My partner was concerned that I'd done too much, my reply was I'd do as much as I can, when I can. Wishing you all well and hope you manage to get some good times on your good days x
Carole, I got my appointment letter today re PICC & also 'group educational talk'. it's on Friday 31st at 9am & then back the following day at 9.30 for the first cycle. Hard work all this running backwards & forwards! At least I've now got a temporary parking permit & will be issued with one for the duration of chemo, because the parking fees are certainly not cheap.
The difference between PICC lines & ports (short for port-a-cath) is the position of insertion I think.
Hope your ECG is ok.
I forgot to mention I'm having a PICC line. It seems to be standard procedure at my hospital, to save the veins. Don't know why some have a PICC & some have a port though.
I hope you were reassured by your visit to the unit. I hope I will also have a preview because it helps to be able to visualise the place I find. Just waiting for the chemo people to contact me re blood tests etc but I suppose it won't be until near the end of July.
I think I will stay with this thread (since I started it), as there are so many lovely fellow travellers here, but will see if an August one starts too, out of interest.
Sorry, I didn't see your post until now. Gosh 4 lots of chemo - you really are a veteran! Really good news that your results are showing an improvement already & I hope that continues.
I just feel like I'm waiting around now. I was sure I would be starting this month, so it's a bit frustrating because i just want to know that I'll be ok during treatment. Still, at least I have time to help my mother with her house move etc before chemo starts.
I am May starter but would echo Tweasel's comments - I didn't have time to get the port fitted before my first treatment and they struggled to find my veins - white coat syndrome!! I would not hesitate to recommend getting the port fitted - it makes the treatment and blood testing so much easier and quicker. Avoids any fainting episodes too!
I also had the port fiited under local anaesthetic with sedation too but general anaesthetic is also an option.
For your treatments, the hospital should also give you some numbing cream to apply to the port area 30 mins before you attend the hospital but it is really easy to use.
Manicmum glad your CT scan and MRI were clear and that your girls had fun trying on your wig. It must be hard for you and DiscoD with young girls - its bad enough for me and mine are teenagers. Having said that your kids love you unconditionally and its surprising how resilient they can be. I'm trying to stay positive, but its difficult for us all in this horrible situation. I'm going wig shopping on friday as although I'm hoping to try the cold cap, I've heard a lot of women lose their hair anyway. I'm taking my sister and one of our best friends and also my youngest daughter as we are staying with my Mum in London for the night, so that should be a giggle. I'm also going to have a port put in (think they said in the chest) which doesn't sound nice so if anyone has had one of these please let me know how you got on. Hugs, Carole xxx
Hi Ros, I was at the hospital about 3 hrs, half hour before chemo and 45 minutes after because of cold cap. Chemo given slowly through injections along with saline drip - took about half hour. Felt no discomfort or adverse effects from that, it was almost an anti-climax! I did suffer with the cold cap though. I found it very painful and felt sick, the nurse and my husband said I should remove it, that's when I burst into tears because I felt frustrated and knew if I didn't do it on the first cycle, I couldn't use it for the rest. I honestly don't know if I'm going to try it for my 2nd cycle next week, I'll have to see how I feel. Of course, not everyone struggles with the cold cap and I certainly think it's worth a try.
Other tips: I have problems with my veins but the nurse put my hand in warm water for 10mins before inserting the cannula then put a heat pad around my arm during treatment, that worked a treat; I wish I'd listened to advice on here about taking movicol or similar before constipation becomes a problem (definitely not fybogel, I learnt from experience!), I ended up with suppositories from my GP and was in a lot of pain and discomfort; take all the anti-sickness meds, I felt nauseous but wasn't sick, ginger biscuits helped too!; I had a reaction to dexamethasone, a burning hot red face and neck for 2 days and was told off by onc team for not phoning them; on day 8 of my cycle I had diarrhoea, contacted emergency number and prescribed Loperamide, worked instantly; eat little and often and drink plenty.
The fear and anticipation of chemo was actually worse than the actual chemo. I know it's early days and I may not be so lucky next time but so far, so good. Hoping your's and everyone else's goes as well. Take care and best wishesx
I had my first chemo and cold cap on a really hot day so it was great and didn't need a blanket etc. No icicles on my hair as they gave it a few minutes to "warm up" at the end of treatment. Total time with cold cap was about 3 hours - or should have been I in fact had a delay of 3 hours befoe starting the treatment!! I seem to have had quite a long gap between my mastectomy and chemo so it seems to vary quite a lot - surgery 22nd April and first chemo 1st July but pleased to have had the time to heal and feel almost human for a coupe of days.
Hello ladies, reading these posts makes me feel more positive and ready to face what lies ahead.
Sheena - thinking about you this last week and wonder what decision you have made regarding chemo. Please keep us posted and let us know after your appt - is it tomorrow?
Joyce 11 - hope the lack of side effects continued and I hope I fair as well tomorrow. At the chemo talk, we were told there are icicles on your hair afterwards and to bring a blanket, think I will need a hot water bottle or two!
Hopefullyholly - I am having the same chemo as you - how long were you at the hospital and hope I too have minimal side effects. Any tips appreciated.
Manicmum - love the i.d. name - diagnosis and chemo has come so quickly. It takes time for you to get your head around it yourself before embarking on treatment. You must feel it is all a bad dream. Hope your first chemo went okay and you feel reassured that a treatment plan has now been started for you.
Sending big hugs xx
Thanks for asking about my appointment. It was fine - a really lovely oncologist who was very reassuring about my prognosis. I will be having FEC and have decided against the cold cap, as I have fibromyalgia & am very sensitive to the cold.
Guess what though: I won't be starting until 1/8! So it seems I don't really belong in my own thread (you & I can be stowaways in July's thread together). The delay is because the dr wants me to be ok for my birthday in August & a later start works out better - very considerate!
Best wishes to you & all the July threaders
My 5 injections are Nivestim which is used for helping the body to make more white blood cells so will take all the help I can get. Mind you a GnT might be required before I do the first one tomorrow evening. So far so good with first chemo but expect more after the next ones!!
Hi Hopefulholly, I should have started in July but will be a bit behind everyone as starting week beginning 3 August. Good that you had minimal side effects and long may that continue.
Ros - good luck with your first chemo next Tuesday - I kind of wish I was getting going with it but I couldn't miss my nieces wedding in Italy, especially as my girls are bridesmaids.
Joyce I'm also going to give the cold cap a go - not sure what good it will do me, but I will try. I'm also having the picc line so hope its not too bad? Why are you having five lots of injections - I've not been told anything about that but I have found they don't twell you everything, maybe too much to take in? xx
Hi ladies, my first chemo was on 23 June but as my next has been delayed until 17 July I'll be more in line with July starters so would like to join in with this thread. Having 3 FEC then 3 T. I've also had minimal side effects (touch wood). Sending virtual hugs to my virtual breast friends! X
Good evening everyone
inspired by the courage here, if I do decide to go ahead and have chemotherapy I know that I am not alone and will be able to get, and hopefully give support
sending you all my very best wishes
Cold cap looks like a jockeys helmet and mine was purple!! Very cold for first few minutes then I found it quite tolerable it just extends the time you are in the unit but small price to pay. Definitely worth a try because if you don't you'll spend your time thinking what would it have been like. I know that's what made e give it a go and still no guarantees about the hair.
Hi Carolec, wishing you a fantastic holiday. It is something to look forward to and take your mind off starting chemo. The waiting and thinking about it is sometimes harder than actually getting on and doing it.
Hi Joyce, how did the first chemo session go and what was the cold cap like to wear? I am going to try it and hopefully will not be too cold in this weather. I imagine it like a helmet!
Hi Sperry, hope your first chemo went okay. Please let us know.
Sending big hugs. xx