Thanks for all the messages guys. I did manage to see Grace yesterday Ros and so glad I did as today I've not been able to leave the house, feeling nauseous, fed up of the antibiotics, mouth ulcers (even my tongue has split -yuck!), blisters on the soles of my feet, what's that about? And I can't drink wine! Also feeling guilty for feeling a little low when I should be elated about my granddaughter. And this is supposed to be my good week. And I put photo of me holding the baby on Facebook and received private msgs asking if I was well?! There's me thinking that I don't look like a cancer / chemo patient when clearly I do. Sorry everyone, I seem to be using the forum as a kind of confessional / therapy session today.
I promise I'll be upbeat in my next post. X
I had a day like yours yesterday and could not hail myself out of bed until midday - fed up, tired, nothing to look forward to and raining hard. Today is a better day - bit of sunshine, retail therapy - shoes I don't need and done a few jobs. Hopefully tomorrow will be even better - might have a glass of white to celebrate being more cheerful.
Sorry to hear you're feeling pee'd off. I bet we can all appreciate how you're feeling. We try so hard to keep moving forwards through this whole process and sometimes the crappiness of it all just hits. And the unfairness. I don't think anyone can really appreciate it unless you've been there. A good friend who had BC 12 years ago and is fighting fit now said that it all sort of hit her when treatment was over. She felt v low and angry about it all. All our treatment deals with the physical but there's very little time given to the emotional toll it all takes. Stay strong, you're so close.
Virtual hugs. Jo xx
today i've woken with a cloud over me...fed up, feel useless, just generally pee'd off. Get so sick of same routine, or lack of it, ...miss going to work,& the reality of potential for not being able to return to my role is hitting...., also reflecting on past few months and saddened at my experiences of 'support' from some family and friends,...its been an eye opener at times.
Guess its cos im nearing the next part of treatment, dont get me wrong i'm happy chemo will soon be finished..except the Herceptin and Tamoxifen, but still all feels so much to get through.
Best get my ass in gear and sort my head out, otherwise its going to be a miserably long day,....i''ll do some ironing to cheer myself up!!!! (not).
I know ive loads planned over next few days before next cycle, just have a dip now and then...instead of PMT its now PCT, lol.
Hope the suns shining on everyone else, im off to blow these clouds away.x
Congratulations Hopeful...lovely news.
Sounds like a few have had a rough time with PICCs and thrombosis to lines/infected sites...tbh, thats why ive persisted with cannulas as was worried re complications if invasive devices. But on the whole their benefits out weigh the problems for the majority of folk and generally they are much better for most people....im a wuss.
Have driven to Lancaster and back today...from York...moving daughters stuff across to her new Student house...how times have changed, it was quite nice and clean!..unlike some i stayed in many years ago.
Day 13 post Tax2 & Feeling quite well except bit fluid retention & dry skin..trying gently exercise but still easily fatigued, taste also back to normal..yay!.as is my good week we're going to Lakes for few days at the end of the week. Also hubsters doing Brave The Shave and having a Big Bald BBQ at ours next weekend, raised £1000 so far...30+ coming to that, hes organised it all and ive been ordered to relax and let everyone else sort stuff...so i am. No BBQ food for me though, shame as love it.
Then last chemo on 1st Sept!!!!.....cannot wait to get it over with.
Take care all. Jo,x
Ah that's lovely news HopefulHolly.Congratulations.
Thanks for responding Manicmum - I don't feel like I'm having a heart attack anymore and feel prepared for round 3 now. I'm going to ask for some stronger indigestion meds as I've noticed I'm getting more indigestion so who knows maybe it's linked. Good luck going back to school next week. I'm not going back til after Christmas but I am really bored. There's only so many box sets you can watch!
Jo - It was good to hear that you've had less problems with Docetaxel. It sounds like you must be getting near to the end of chemo. Well done you. I'm jealous.
And so many of us seem to be suffering with clots. It's pretty gruesome but obviously a very common SE. The injections sting a bit or am I just being a wuss!
Well we're all getting closer to the end, take care everyone whatever stage you're at.
Congratulations Hopefulholly on the birth of Grace Elizabeth. Great to hear the good news. Hope you had the opportunity to welcome her. xx
Hi everyone, just wanted to share my good news. My second granddaughter Grace Elizabeth was born today, a healthy 7lb 12 oz, just the tonic I needed! X
Hi Sarah-d - I had a Hickman line fitted day after you and I am having palpitations more noticeable in bed but also during the day. I did start with a few palpitations after starting chemo tho. I still feel sore around the wound site too but feel it is part of the healing process. If you are unsure give the Helpline here a ring. I think we are on the same treatment 3FEC and 3Tax, rads and Tamoxifen. I have just had my third Fec so halfway. Yay! If I can help please ask and the ladies on this thread have given good advice and we are all here to help you through. Take care and good luck for Wednesday. xx
I have no experience of a PICC line but have always found it useful to ring my chemo unit for advice re any problems and this seems to be the quickest thing to do and for immediate professional advice. My BCN has also been very helpful with questions / concerns. Good luck.
Hi All, Back from my weekend away to Dorset, had a lovely time catching up with friends and eating lots ready for 3rd T on Tuesday. Did find the travelling exhausting though, luckily the weather stayed nice and not too hot on the coast. Going for my reflexology and massage at the Oncology suite tomorrow which I'm looking forward to.
Reading some of your posts I feel like I'm getting off lightly with SE's at the moment, will see what happens during the week and if I can get my pain relief perfect this time. So dreading not eating properly, I hate the lack of taste and ability to eat and cook. I just hate all food and drink for about 8 or 9 days. I will live on cream of chicken soup, milk and bananas which are the only things that taste normal to me, as long as they don't bung me up!!.
Have a good week all x
Thanks Manicmum - I wanted to take ibuprofen but I've read that you can't take them with the clexane injections so will double check with my onc as sometimes it's just precautionary x
Carolec sorry to hear you're suffering. Warm flannels, ibuprofen gel and elevation. Mine felt better after two weeks or so x
Hi All, hope you don't mind me popping over from the August 2015 thread - did originally post on this thread but chemo delayed and started in August. I also have red swollen painful arm and told on Monday that I have blood clot near portacath. Now on daily blood thinning injections but arm still red and swollen. Does anyone have any tips on how to reduce the arm swelling? It's been almost a week now and doesn't seem to be going down xx
HI fanta , sounds like what I had when I first had blood clots in my arm. Was really painful, red and swollen.
Hope you feel better soon x
hopeful holly I hope you do meet her on Monday, how exciting! X
yep terrible chest pains, turns out it was due to acid from the steroids. Have medicine for it now which I take daily and it's really helping.
ive got blood clots all up the veins in my 'good arm' really painful for the first two weeks, still there now but not red, hot and swollen
take care x
I used to go to weight watchers and my main chant was "there are no saturated fats in a gin and tonic" - must have been a good chant because at the time I lost 5stone and still have a liver in tact LOL
Thanks Joyce. You make me laugh and reminded me of when I joined Slimming World and had to hand in my weekly diet sheet and, due to the amount if points I used on wine, the consultant suggested that perhaps I was in the wrong support group! Cheers Joyce x
Wow you have had a trying time. I have just had my 3rd Fec and not doing too badly - half way there - just wondering what the T will bring but hey just have to get on with it don't we. Looking forward to a glass or two tomorrow and have a "drinking" friend coming over next weekend so something to look forward to. Maybe I am talking to the wrong group lol.
Hope you soon feel better.
Hi everyone. What is it about the 3rd FEC? I had mine 2 wks ago and have experienced more severe side effects, nausea, fatigue etc. Perhaps it's the cumulative effect? I've also been unwell as had a thrombosis caused through the PICC line. Info for those with PICC, symptoms were a swollen, purple arm and hand and pain in arm and neck - not very subtle so easy to spot! Tried to save the PICC as I have thin veins but it had to be removed. I now have to inject blood thinners every day for 3 months, could have been worse, thought I had a dvt in my leg, would have meant injecting every day for 6 months!
Also had a high temp (37.9) led to blood tests which identified low neutrophils (white blood cells) which is an indication of infection so on strong antibiotics which are causing severe nausea. Hoping the levels will improve in time for first Docetaxel next week. Apart from that I'm fine lol!
Hi Moneypenny, just stepping in as I too have an underactive thyroid and on high dose of thyroxin. I'm afraid to have my thyroid levels checked because of my veins. Although my hair was fine, my hairdresser said I had plenty of it. Had it cut into short style before chemo, used cold cap but found it too uncomfortable so didn't use for 2nd and 3rd cycle, lost hair by the handful after 1st chemo then slowed and increased again after 2nd and 3rd, had hair cut very short into a pixie style, still have enough covering to not need to wear my wig or scarves but it won't be long before I need to. As you can see, we all have different experiences and it's very much a personal choice. I'm sure you'll make the decision that's right for you.
Hope everyone has as good a weekend as they can.
Btw, my second granddaughter is being delivered by c-section on Monday. Keeping everything crossed that I manage to stay out of hospital and well enough to meet her on Monday x
Hi Ladies, Yesterday I had the Hickman line fitted and chemo. On the whole it was not too bad, I think the worry and anticipation was worse but now glad it is all over. Halfway now:) My next three are Taxotere which I think jky03 has mentioned previously. Any tips on preparation or advice would be appreciated Just waiting for District Nurse to come and give the injection. Hope everyone is coping today and enjoying the day. I have been sucking frozen pineapple which really helps the dry taste in the mouth. x
yeah feels like that..quite tender really but only for few seconds...may be nerve pain perhaps?...keeping my beady on my nail beds for any altered colour etc...know what you mean about already losing/shedding other parts, though im awaiting surgery in October, i'll be gutted if my nails come off too.
Jo - Re Docetaxel...i have found it much kinder to my veins than FEC, infact 2 lots in and no problems so far. I had chemical phlebitis after each FEC which is now nearly gone in left arm...hopefully it wont cause issues with post op probs as its my left breast/axilla that will have surgery to. Ive had cannulas throughout..didnt fancy a PICC, personal choice as was offered it.
I also got muscular discomfort in my chest with FEC and in left boob...disconcerting at times and did get checked out...ECGs all ok. Also indigestion was alot worse with FEC for me.
Try enjoy the weekend everyone having chemo next week...im just about turned around after 2nd T, 10 days post dose now....may even try a few beers tomorrow if dont taste too rank. Each treatment in, the nearer to the finish we are, wacky hormones and all.
I hope we are all having a bearable time. I'm definitely having good and bad days. I reckon my hormones are all over the place so my poor husband does get it in the neck sometimes. I'm counting the days down to the end of chemo but it's going slow 😐. I've had my second cycle of FEC and am just enjoying feeling good for the last couple if the weeks of the holidays.
I've got a a question about Docetaxel/Taxotere and wondering if anyone can answer it. Do these drugs tend to damage your veins as much as FEC? The nurse who put my PICC line in told me it didn't and I could get the line removed after FEC if I wanted. I asked a different nurse at my last session and she said the opposite. I got a blood clot diagnosed yesterday and am now injecting myself daily and would really like to get rid of the line.
Manicmum I think you had pains in your chest after one of your FEC treatments. Did it resolve itself? My biggest SE after FEC is tightness around the MX scar and a weird sensation in my chest that lasts for days. They say it is muscular but it doesn't feel like that to me.
I bet we all agree how much this treatment makes us worry about every twinge and pain. I'm going to try and do some yoga or get a massage as I can physically feel the tension. If anyone can recommend a yoga DVD that would be great.
Keep strong everybody
Quick question guys...
Wondering if anyone else on Docetaxel has had pain/discomrt in nail beds?
Ive started with occasional pain in one of my toes...around cuticle area, just hope its not leading to my nails starting to come off. Am using coconut oil and cuticle oil and so far my nails have stayed supple, though my skin on finger tips does get very dry despite regular moisturising.
Just love this schizzle, it just keeps giving doesnt it.
Welcome Moneypenny. I have been using the coldcap and due my 3rd FEC on Friday which has been delayed from this Tuesday as I need a Hickman line. I still have the majority of my hair which is fine as well. I had it cut short so it all fits under the coldcap. It seems to go through phases of shedding and then eases off. My hair looks very thin and I probably look better in my wig which I have not resorted to yet. I just feel the longer I can delay it the better. It seems a few have struggled with the side effects of the 3rd FEC so feel apprehensive with this one and wondering what the following 3T will be like but best not to look too far ahead.I will be halfway after Friday. Yay. Last Friday I was enjoying my weekend treat of red wine and started with palpitations! Fortunately on Sunday evening they did not return which was relief. I mean we have to have some pleasures. Take care and hope you are all on a good day.
Just wanted to add - I used the cold cap as I have really thick short hair and thought it was my crwoning glory. Lost 50% of it on day 17 in the shower - a bit like a horror movie really and because it was so thin I decded that I would stop the cold cap as I was advised it would be quite painful with a thin covering of hair. The hair continues to fall out and I am learing to love the scarves and wig despite never being a "hat" person. I too have enjoyed the shorter stay without the use of the cold cap so guess there are benefits either way.
Good to have you in the club!!
Hey Moneypenny, welcome aboard, guess its the group no one ever wants to be in but we are her together and shall see each other through. Re cold cap...cant really advise there as havent used it....couldnt bearvthe thought of sitting in the unit for 6hours a time....so initially cut mine really short then as it came out..3rd week after 1st FEC at the end of May so i shaved it off...obv taking care to use clean electric razor and avoid knicks...felt much better and empowdered after doing so. If i were in youre situation id probably have another go with it...my friend had similar sounding issues and though lost about 50% of her hair it grew back quickly and very thick n curly. Im waiting ladt cycle of chemo on 2nd Sept...and have a head full of fuzz now, after being totally bald, initially i was upst and self consvious but then embraced my look and have no qualms re going out in public naked so to speak. Hopefully you'll find the right way for you.
Re side effects...i found keeping a diary of them helped..then knew what to expect and when with each cycle and could take my anti emetics, laxatives,pain relief et al in antcipation to head them off some what.
Keep strong ladies, we can do this.
Hi folks. Wasn't too great after third fec on Friday, was more sick after then then the other two put together. However feeling so much better now. Just got to keep going.
Seem to be putting on so much weight, despite still walking lots of not really eating anything more than normal. Hey ho, I guess I can deal with it when the steroids and treatment stop.
Hope everyone is ok, need to try and make the most of the last two weeks before my girls go back to school.
take care everyone xx
Quiet few days recovering from 2nd Tax, now day 7, feeling tad unwell today - no temp, just headache, tummy aches...generally off it, but oh well, sofa and boxset catch up day...enjoy watchin my programmes uninterupted and can snooze when want too....bonus.
Got my hats from Bold Beanies...love my beanies, infact wearing one now even indoors...its a bit cooler today and even though have peachy fuzz on my head its freezing.
Goodluck to all having chemo this week, and that those who are in between ... gave a nice break and enjoy youre good weeks. btw,...i wear gloves now before appts...keep veins nice and warm and hopefully juicy!
Hi All, trying to enjoy this week before 3rd T Tuesday, not feeling too bad but still needing my afternoon nap!.Got a busy few days with appointments and catching up with friends and work mates then hopefully off to seaside for the weekend, my friend and her sister are taking me down and staying with another friend who lives near Weymouth, can't wait!
Also bought some more hats etc from Bohemia for Autumn/Winter, the good thing is that they look like ordinary hats so will still be suitable for when hair grows back.
Hope everyone doing ok x
Hi Joyce, I'm with you on the veins - my third FEC is a week tomorrow and 3 of the veins in my hand are damaged now. Round 2 was better as the anti nausea meds toned it down a bit and I didn't have the headache. Feeling fine now and so happy to have 2 good weeks before round 3. I hope tomorrow goes well for you and they get the vein first time, xx
We all seem a bit quiet at the moment. Learning to love hats and scarves!! Third FEC tomorrow hopefully if they can find the vein willing to take it. How is everybody doing??
It certainly is an interesting debate re anti histamines and use with Docetaxel/Taxotere...seems many find benefit in reducing severity of its side effects...especially the pains/discomfort.
Wonder if any studies/trials have been done in to it, also the variation in regions as to oncologists approach to certain chemo treatments and use of adjuntive meds is quite different throughout the country....ie GCSF, length Steroid courses, anti histamines, etc.
After a few aches and pains managed some sleep last night with regular paracetamol and ibuprfen...feel foggy still and fatigued but atleast been out this morning and actually felt able to drive safely (day 4)....with higher dose Tax last cycle was 9 days before i felt able to do that!
Sun is shining..gonna go for nice stroll this afty with hubby....head to coast me thinks....bag o chips anyone??
Well im day 3 after T2...and the number 42 has rumbled into town..& over me! but it seems a little easier than last time, just aches, fluid retention and no taste with a cack mouth. Snoozed on and off today after quick flit round with housework this morning. Trying to stay positive this time as with last T got really down with SEs but know they wont last, just hate the fog & grogginess, blah!
Gutted missing the match tonight...Notts v Mansfield, theyll be other games, its more the fact i need to give into to the chemo and let it do its work.
Im also off work...since May...too much of risk of infection due to healthcare worker....its challenging when youre used to busy schedules, but its my time and need to use it to get rid of this schizzle, ...also nice to spend more time with friends/catch ups when can.
Hoping for a comfy night and sleep, and as good a weekend as can expect...hope yours is too.