Just found out my chemo for tomorrow is cancelled due toa slightly low wbc and the antibiotics I am on. Just what I needed spent all day getting my mind sorted - what a blow - now it drags on. Might go away for a few days as a distraction!!
Hi everyone, well after a bit of a fiasco with the prescription from A&E I finally got my Tramadol and fingers crossed the bone pain is easing, unfortunately I do have a nasty rash all over my neck and like some of you I do feel bloated and suffering indigestion. I'm trying to drink plenty but sometimes feel like I'm drowning also food has become such a bore as there is no enjoyment in eating. Back to Oncology tomorrow for PICC flush as it's been left in a bit of a mess from A&E and hopefully they can sort out all the issues. It's reassuring though to hear we all seem to have very similar problems with treatment, haven't had any hair loss yet but sure it will start after the next dose, I to am not sure about my wig, bit darker than my natural colour so ordered a cheaper blonde one just in case, sleep well all x
Hi Josie, I saw your post and thought you sounded like me when I was having chemo. I actually finished my FEC-T over a year ago and also really struggled with the lack of sleep. As it was caused by the steroids my GP was happy to prescribe sleeping pills (temazepam ) and they were a godsend - I got 20mg pills which are double the usual strength but they were fantastic as I could get a decent sleep every night even after lots of steroids - and everything is so much more bearable after a few hours kip. I was careful though as I know you can become reliant on them so I only took them for 7 days after each chemo. So it is definitely worth seeing your doctor about it as they can help you.
And for the cold cap - try to bear with it. It worked for me. My hair really thinned, especially on the crown but it was still there! My tips would be to hold on to the roots when you brush it (every hair is precious and you don't want to pull even one hair out !) and stock up on Batiste dry shampoo -it was my best friend! And the real bonus is after chemo finishes as the new hair seems to grow very quickly, so 9 months post chemo my hair looked thick and normal (albeit with chemo curl so I resemble a poodle!)
Sending hugs to all you July girls
Hi everyone, not been on here for few days but sorry to see how many of you are struggling.
I had my second FEC on Friday but took 3 hrs instead of 2 cos of my veins so now I'm welcoming the PICC line on Wednesday, not dreading it!
Ditto with hair loss but I feel much better about scarves now. I was about to order expensive scarves but rmembered my extensive collection of scarves, went on line to find tying instructions and spent a comical hour learning how to tie them, with funky results! Saved me a fortune, just need to buy couple of cheap skull caps for the scarves to fix to.
In the process, I tried on a 'fashionable' turban but my boys said I looked like I should be on my knees scrubbing a half-moon on the doorstep as some of the older women in my village still do. To top it all, I use 24 hr lip stain but, probably due to the treatment, most of it comes off apart from the middle of my top lip, I honestly looked like Hilda Ogden (for younger readers, she was a famous character in Coronation St.) ! It gave us all a good laugh and reminded me how important it is to keep a sense of humour, not always possible, but a good belly laugh is a great tonic. Take care and best wishes everyone.
Not offended Josie11 it made me smile when i read your message. Sleep doesseem to be an issue even the demon alcohol doesn't seem to help but i keep trying it on the days when not taking the steroids of course.
Unfortunately I don't like my wig even though as you say it will be perfectly styled so have decided to bite the bullet and gond look at another place tomorrow so hopefully if I can get one i like i won't feel so bad about the hair. Felt like puting the hoover on it earlier tose what was left -might start a trend!!
Sorry to hear about everybodys problems - we just have to try to keep going. My shower this morning with the weekly hair wash was like a horror story with hair everywhere and couldn't wash it off!! Still going with coldcap on Wednesday but only if I have any hair left, on antibiotics due to insect bites and omeprazole due to severe indigsetion and heartburn. Can only get better.
Hi Kobeobe, I also have boys, 16 & 19. I've found that it's best to let them sort it out in their own heads, when they want to talk or ask questions they will come to you, that way your not overloading them with information
Hi All, Well eventful day today in A&E. Felt quite rough this morning so contacted Oncology and advised me to go to hospital for blood test. Arrived 7 am feeling rough with high heart rate. After blood tests, chest Xray, fluids and antibiotics I was ok to come home this evening. Am now on Tramadol for 5 days, back to Oncology for PICC line flush Tuesday so will review meds then. Moral of story drink plenty of water and take strongest painkillers offered! 🙂
Hi All, it's that time of night again and still no let up on the pain, I would just like to get through one night without waking up.:( It seems we all have very different chemo going on mine is T FEC so the first 3 affect my bone marrow hence the physical pain and the next 3 may cause nausea, I started steroids the day before and also had PICC line fitted, I didn't go for the cold cap, I did write this earlier this evening but not appeared on my thread so apologises if this is posted twice! Hope everyone is doing ok x
Yes my hair was the same on the 5th day of my 1st chemo they started to come off from behind ears andthen whent all over I had cut my hair very short with clippers.
Hi All, much the same today, obviously we're all on different types of chemo as I am on T FEC so my first 3 courses are getting to the bone marrow hence the body pain, with the next 3 I have nausea to look forward to although hopefully I won't be too bad as I didn't have sickness while pregnant, fingers crossed. I started steroids the day before and had a PICC line fitted, I've now started taking the codeine although I can't be sure it makes that much difference. I opted not to have the cold cap in the end and after 30+ years of overstyling my hair I thought it would be a good opportunity to start afresh!. Have a good night's sleep everyone x
Hi Gaynor, hope it went ok for you today. As you can see by the time I'm not sleeping well, third night in a row so need to be careful about sleeping a lot tomorrow as will get into a bad routine. I have to say I thought I had a high pain threshold and am not one for taking painkillers regularly but I have really underestimated the levels, at the moment my body aches but my calves and feet are really bad tonight, want to try to avoid codeine as already on senna tablets from gp as getting bunged up!! I'm sure this is not helping my general feeling of wellbeing so hoping tablets will kick in tomorrow and I'll be a bit more perky, but if necessary I will stock up on codeine for next cycle. My boys are 16 and 19 and have already had so much to deal with in their life, especially losing there dad and other close family members in recent years, we've had a bit of a shaky start since diagnosis but they seem to be opening up a little more now and realising I need more help. As a close friend of mine who has been through all this herself keeps reminding me the sometimes intense pain from treatment is a necessary evil to recovery x
Hi Gaynor, I would at least take paracetamol before, maybe even co cocodamol. I didn't have steroids before chemo, just on the day, half hour before chemo started I think. Sorry for short reply, getting ready for my chemo. Good luck, you will be fine, anticipation worse than the chemo x
Feeling better today - went to see my hairdresser and got it tidied up and even shorter and she assured me she didn't have a sink full of hair. Bless her she was really good with a gentle shampoo, no products, no rough drying and aquick blast with a cool dryer. Woman in next seatcommented on how good it looked - so that mademy day really.
Next chemo next week so new worry is locating suitable veins but hey what will be will be.
Hi, had my first dose of Taxotere Tuesday, felt ok first day but have had the worst two nights ever! Every part of me aches but the worst is the fuzzy head and strange sensations, it's almost like it's happening to someone else. Have two teenage boys, sometimes they seem ok but at other times they can be distant, hate the feeling of being alone in the middle of the night so hoping this forum can get me through the long dark hours 🙂
Hi Joyce, it's not surprising having a bad day, no matter how we think we are prepared, it's difficult when we start to lose our hair. I hope you're feeling a little better no, it's the shock I think.
Fantasy, I too hate my hair, I'm shredding more hair than my dog but didn't realise how much hair I have, it's fine but there's a lot of it.
Manicmum, sounds like you had a rough time of it. It's very frustrating when things don't go to plan.
Josie, how are you feeling now?
Gaynor, did you check with your team? Can you go ahead with chemo tomorrow?
I'm due my second chemo tomorrow but, as nurse had difficulty finding veins for yesterday's blood tests, my onc has warned that they may not get a vein for the chemo which may have to be delayed. Worse, I have to have a PICC line fitted next Wednesday. I'm dreading this, not just the fitting but the thought of having this line in until October. I'm going to post in earlier chemo threads to get some advice / words of support. It's silly really, I've sailed through 2 surgeries yet I seem to have developed a dread of the PICC!
After my first chemo the nausea lasted about 5 days but I was given pills to take home to help for the first three days and more if I needed them but I coped with ginger biscuits for the next two - but I guess it will vary a bit for us all. Were you given pills to take home?
If it was me i would give the chemo unit a call and talk to them rather than getting there and maybe not having the chemo. At least once you know you will be able to "relax" abit about it.If there is a delay then that is still better than being ill when you have it.
Like you I am wonderingif the cold cap is worth it - my second FEC next week and will talk to the nurses as well - part of me sayshave one more and see what happens but a great shock even though you know it might happen.
Like you Holly my pills worked and managed with the odd ginger biscuit and many glasses of wine - seemed to help the sick feeling - strange that. Unfortunately yesterday took a downward turn when the hair loss thing became real. Am hoping that it is just where the cod cap didn't fit well and seeing the hair dresser tomorrow to go even shorter so that it is less irrittaing to me.