Thanks for the help with managing my painful scalp - today I think is the day when what I have left comes off! My saddest point about this because yes I know it will grow again is I am an identical twin - we have the same hair as well as evrything else feature wise so it will be like a temporary loss - maybe only a twin can realise what that means. On the positive the scalp will hopefully stop aching and itching and a slightly different hairstyle might be good for me. Second chemo that was delayed because of my WBC count but due for next week so we move onwards!!
Hi Ann, I had my first chemo on the 14th and am basically having the same as you with regards to chemo first, then surgery and radiotherapy, the only difference is I have started with T. On day 10 now and bone pain still an issue but seeing my consultant next week so hopefully can work out the pain control. Hope it all goes well and welcome aboard!!
I'm from the October 2014 thread. I finished chemo in Feb this year.
My head was really painful when my hair started falling out, it felt sore like it had been scalded or had sunburn. I used to sit with a packet of frozen peas on my head, and that helped a bit, although the relief was only temporary. When I gave in and finally shaved my head - just after I'd had chemo 2, it really did help to stop the sore head from hurting. I was also able to slap on lots of nice cold cream, which soothed it lots.
Good luck and best wishes to everyone!
Hi Manicmum, glad the port fitting went ok, I'm sure it will make things a lot easier. Good luck for treatment tomorrow, at least you know what to expect and will be more prepared x
Thanks for all the useful info about padded scarves-my flat one looks flat if you see what I mean. Has anyone experienced a sore scalp as hair drops - any remedies / suggestions - does it go once all hair gone??
Thanks for all the useful info about padded scarves-myflat one looks flat if you see what I mean. Has anyone experienced a sore scalp as hair drops - any remedies / suggestions - does it go once all hair gone??
Kobeobe - Thanks for the reply about Headstrong. It sounds just what I need. My nearest one is Preston so will give them a ring today. Hope the nausea isn't too bad after your first chemo. It does pass after a few days; just keep taking all the tablets your given.
Mazzi - Think I will probably go for padding, like you say for volume. I have a Boehmia leaflet and it was when looking through that I hadn't a clue what style to choose; never realised so much choice.
Wishing you all a lovely day and hopefully the sun will shine to make the day brighter. xx
Hi All, with regards to headwear I bought a couple of things from Bohemia headwear, just look them up on Google, quite a good range available. I got one of the padded style scarves as they are really easy to tie and give you a bit of volume instead of flat to your Head. I was put in touch with a local hair salon where I purchased my wig and they also had a range of hats etc, bought a cap style with ties as my eyes are sensitive as it is to strong sunlight and may become more so during treatment. There are also a few useful videos on you tube that show you how to do headwear and make up tips to.
I looked at the headstrong site some time ago nd couldn't see anything in Kent - Have I missed it?
Kobeobe7 - Did you go to the Headstrong appt? I have been wondering whether to book an appt as I need help and advice in scarf wearing. I have never worn any hats or scarves so complete novice. Do you also need to wait until hair loss occurs. I have noticed some head scarves have padding and some don't, so need some tips. I just want to be prepared. x
Hi girls, had PICC line fitted today, all good, nurse hit the right spot first time!
Ros, I didn't have the cold cap for my second FEC on Friday, I'm afraid it just wasn't for me but good luck with it, let us know how you get on.
I'm sorry you've had a tough time Joyce, just think about the fab holiday you're going to get when this blip in your (our) lives is over!
Hi Potts, I think the thread here and others show how everyone is different and has different reactions to the drugs / side effects - just look at loulou, I feel tired just reading your thread, but it shows that chemo is doable.
Josie, I'd love to see a photo of you in that purple wig! I've promised my boys (3 adult sons and hubby) that we'll have a family photo when I get my head shaved (all 4 of my boys are bald!).
Fanta, 2 down, we're getting there.... Best wishes everyone xx
I asked if there was anything I can do about the WBC but there isn't other than keep checking my temp. Apparently quite common and I hadnot really factored it into planning things - like husband's diary to take me etc. Hair coming out ++ so sleep in a very attractive night cap - better than a mouthful of hair. Was going to go with the coldcap today but will seehow much is left by next week and if my new wig is good then might just shave off and coverup lol.
Manicmum, I use colouring books too, very relaxing and therapeutic. Good deals on ' The Works' website, books and pens.
Hi Ladies. Not posted since I had my first FEC chemo. Which did not go too well, not a good patient! Blood pressure went very low and not sure if it was the chemicals or the cold cap that made me spaced out. I was sick at the Hospital and sick a further 3 times that night but following that just felt extremely nauseous. On leaving I was given Emend to take before I leave home for my next chemo and reading about this I am hoping I will not have the same experience as last time. I have downloaded the Mindful app as recommended and surprisingly it does have a calming effect and I now use the Breathing pause during the day.
Joyce11 - it must have been so depressing to have the chemo postponed, something I hadn't thought of. I have my mind set on the dates and am just focussed on getting through them without delay. Were you recommended anything to increase your WBC? Also has the hair loss continued even with the cold cap?
Hopefullyholly - did you go ahead with the cold cap on your second chemo? My next chemo is 28/7 and after the last experience I had decided to ditch the cold cap but as time is drawing nearer I feel I want to give it another go. My hubby and friends have said not to bother but it is not them losing their hair and as Manicmum said when that starts I think it will hit me that it is really happening.
On my two good weeks I plan things to look forward to; I am becoming an expert in Afternoon teas which also means I need to do alot of walking and I go with one of my friends to Silver Screen cinema (not over 55 but we must look it to the young staff!) and enjoy a cup of tea, biscuits and whatever film is screened.
Good luck and a virtual hug to you all - we are all getting through this together. The posts on here keep me going knowing I am not the only one trying to bravely get through this. xx
I just wanted to mention that although some of us are having similar chemo everybody has a different mix of drugs, reactions and pain barriers. Myself and my brother are both on chemo, he has the tablet form as his is brain cancer and has virtually no side affects apart from fatigue, I on the other hand have just had the worst week of my life with bone pain and fatigue and I always considered myself to have a high pain threshold. The basic rules are if you feel good then continue as normal but don't push yourself if your not physically or mentally up to it during the week straight after chemo.
I to am looking forward to going away when feeling better and I also have a spa day my son bought for my birthday before diagnosis which I am saving for when chemo ends in October. Have a good day all x
Hi Gaynor, ibuprofen is good for bone pain but I was given Tramadol. You need something strong for the first week and make sure you drink lots, you will feel better in a few days 🙂 x
Thanks for the suggestion have already been looking at post treatment trips and have a number of high cost ones in mind - well quite a lot of money saved this year justifies the expense at least apart from the obvious reasons to enjoy myself.
Hi manicmum, I am wondering how I will eventually feel about hair loss, joking about it now but not sure when reality hits. I have a shoulder length Bob and still wondering wether to go short before.
Joyce, sorry to hear your chemo was cancelled, it must be so frustrating when your mentally geared up for it, my brother's was also cancelled today due to low blood count and now has to wait another week.
Josie, I like the idea of the doughnut as I to had horrible neck pain for a few days, May have to give it a go.
Miarose, make sure you take it easy, had my first dose a week ago and I was beginning to think I would never feel well again but today I have definitely turned a corner, drink plenty even if you don't feel like it and take whatever painkillers are offered, the stronger the better, I already know the next session should be a little easier as I now have the meds I need. Night all x
Thanks for the thoughts ladies - I have to say that the wine has numbed the negative feelings a bit!! I will meet with some friends in Canterbury on saturday and my poor husband will spend even more time trying to juggle his diary commitments to fit in with new timings. Found a new wig lady today whose offerings made my current wig look like rat so that was a good thing to happen today.Hair still falling like rain.
I posted a long post last night but got directed to this as a more appropriate thread...
Without going into the everything again the basics are I have been offered chemo as part of my treatment as I had lumpectomy plus reconstruction and approx 10 lymph nodes removed as one out of the three from biopsy was cancerous.
I obviously want to do all I can to get rid of it an prevent for the future but I really want to know how bad chemo is hair loss I can deal with but as I have a young daughter 1.5yrs old will I be able to manage looking after her. What are the real side effects ie do you feel ill most of the time between sessions etc?
Thank you in advance x
Apparently cannot go away as there is an increased risk of infection and wuld have been 200 miles away from home with my twin sister - so cannot go according to chemo unit - so now even sadder and hitting the wine.
Next year will be a year full of breaks and holidays I have decided.