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Anyone starting chemo round about Tues 15 July

chebsy13
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Re: Anyone starting chemo round about Tues 15 July

Hi all - still BAAB - started moulting today (14th day after first FEC as predicted!)

Won't be allowed on the furniture soon!

Love to all x x

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Re: Anyone starting chemo round about Tues 15 July

Hi there

On the Manuka honey, I bought one in Tesco for £11.99 but only paid £7.99 in Sainsburys but they don't do it in all of their stores.

Constipation, someone said there is a recipe for GO cake somewhere on here, I think it makes you Go if you know what I mean!!!.

Love to you all

Ann (BAAB)

xxx

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Re: Anyone starting chemo round about Tues 15 July

Ah ha ha - Chebsy you make me giggle! Not really suffered with the bunged up problem and think I'm sorted now. And I love your acronyms... I just have to try and remember them. Currently BAAB. Did suffer with an ulcer just before number 2 but hoping not to get any this time. Have been having a teaspoon of manuka honey, but only because my Mum bought it for me - I wouldn't be buying it myself... I almost fell over when I saw how much it cost in Tesco!

Ah well - the sunshine has gone and now throwing it down with rain...

Nel x

chebsy13
Member

Re: Anyone starting chemo round about Tues 15 July

Hello everybody people - good Pimmish weekend all round?

Sounding good Nel - and that's you managed number 2 - no facetious pun alluding to constipation intended! I think one of the worst side effects is the latter - going to see Oncy on Friday so might ask if can be prescribed summat to de-bung! Then Tuesday's blast day and I suppose I'll be back to KATT ( Knackered All The Time) as opposed to BAAB (Bright As A Button) as have been of late. Anyone with sore mouth? Pineapple good but Manuka honey is pricy but brill and you only need a wee bit to wipe round the gums, OH a bit hurt as he is a beekeeper and thinks his should be good enough - his tastes much better but hasn't the well documented medical back up for healing.

Loads of love to all - x x x

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Re: Anyone starting chemo round about Tues 15 July

Morning all

Well now on day 8 of 2nd FEC. Just been in shower and washed H and comb over no longer working! Used hair dryer and I looked like a muppet, or possibly a dandelion! Been wearing a cap all weekend as been pottering round the house/garden but think wiggy will be coming out if I have to go anywhere soon. We'll see how I cope with the heat and the wig. Took last week off work but working at home this week (when I'm not being distracted by this website!) - felt a bit sicky earlier, but think it was a one-off and a ginger biscuit soon sorted me out. Generally felt ok last week apart from sleepy for a few days. Kept feeling dizzy yesterday and (apologies in advance!) was a bit constipated, but think I've sorted that now. Really, nothing to moan about - just a few small symptoms that can be related to the chemo.

Have still been drinking shedloads of water and have kept out of the sun as much as possible and been wearing high factor sun cream if I have been out.

And like Ann and Chebsy, I was on the Pimms at the weekend too - it's always Pimms o'clock!

Nel xx

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Re: Anyone starting chemo round about Tues 15 July

Cheers Chebsy

I've been on the Pimms too.

Happy hot summers day to you all.

Love

Ann

xxx

chebsy13
Member

Re: Anyone starting chemo round about Tues 15 July

Hello all - hope you had a good weekend - I did! OH working in Bristol all week -(we live in Boscastle) back at weekends - was committed to this before we knew chemo was on the cards but works really well as I have a queue of friends wanting to take me to chemo and it makes us really appreciate each other ....there's lovely - good luck to any who have it coming next week - my 2nd FEC is week after - feeling really positive and want to send those positive vibes to all my new bosom pals..........I've been on the Pimms....lots of love Chebsy x

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Re: Anyone starting chemo round about Tues 15 July

Ann so glad you are feeling well hun ......nice one ....and yes nice to know you have 5 more to go .then 4 then so on will soon be all over

take care
sal x

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Re: Anyone starting chemo round about Tues 15 July

Hi Ann and all,
wow, what a brave lady, dont think I could shave my hair off but have my hairdresser coming next tues at 4 to cut my hair short and that will be hard enough, hate me with short hair but better get used to it. Yes, tku, am still ok, just being a bit lazy and laying in, think I need to hit that one the head tho as exercise needed to stay strong. Will have hot bath wash hair (ha) and hopefully get my two old dogs out to the woods where it will be nice and peaceful. Have been reading thro threads and making a shopping list. Aloe vera mouth wash and t paste being on it. Was concerned about not bin to the loo since 1st chemo but tin of prunes last night has done the trick for now. Senokot was next on my list, hope we can use it. Also had allbran earlier, something had to give..... Am hoping after haircut I can go into Lincoln and get a wig sorted out, it will make the fitting easier if my hair is short. Better get up and get bath running b4 my bed calls me back...

bfn, take care,
Chris xxxxxxxxx

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Re: Anyone starting chemo round about Tues 15 July

Hi Ann,

I used the cold cap last time and so far so good but I am not really sure when it starts to fall out from reading this site it appears to be the 3rd week? but not sure. If my hair is still there when I have my 2nd treatment then I will cold cap again. I have had my hair cut really short for a few reasons one is it will be easier to get the cold cap as tight to my head as possible. I do not have to brush it (too short!) so not so much tugging on the scalp and the other if it does go then I and my family are already use to me looking scalped! everyone says it looks good but I think they are all being polite. My poor old mum didn't make any comment so I know she finds it all a bit severe but once again if it goes at least she has got use to looking at me with it being really cropped now so it may be easier for her.

Hello to Chebsy, Chris, Nel and all!!

Have a good weekend girls.

love Bevy x

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Re: Anyone starting chemo round about Tues 15 July

Hi girls

Feeling really well and so glad no 1 is under my belt, as a friend said yesterday one down four to go and then your last one!! makes it sound better.

Are any of you trying the cold cap?. Not sure if it will work but it's been worth a try, when will my H start coming out if it's going to?.

Chris I hope you are still sailing through it, I have a friend starting hers next Tuesday she is shaving her head for charity on Sunday afternoon, more guts than me.

Hope you are all well.

Love

Ann

xxx

chebsy13
Member

Re: Anyone starting chemo round about Tues 15 July

Hi all - good to hear from you bevy and Chris - and Doone (when you get here ) we can do this - I believe greatly that together we can sock it to whatever is socked to us - not an easy path but we can do this !!! I've had two glasses of wine and feel I can take on the world on behalf of us all - I think it's time for bed said Dougal ........keep in touch - it does help - love and good vibes to all going through this crap - Chebsy xxxxxxxx

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Re: Anyone starting chemo round about Tues 15 July

Hi girls,

The good news is I am now feeling normal? (if I ever was) on the 10th day so hopefully it will pan out like that for all of you I know is seems like a long time to wait but at least it arrives which is good to know. I think all you can do is keep getting the fluids inside to keep the body re-hydrated and try to flush it all through and when you feel spaced out just lie there and think of being on a wonderful beach with the sea lapping, the sun shining and a gentle breeze wafting over you o.k. I know I sound as if I am on drugs but guess what I am!! thinking of you all

Bevy xx

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Re: Anyone starting chemo round about Tues 15 July

Hi Ladies,

I started my 1st chemo yday (ac+t) and so far have not been sick so havnt had to christen my new plastic bowl yet!! but am aware of yr experience Ann so am not getting tooo ahead of myself! will soon take my last sickness pill of the day and am trying to drink loads of water. My second chemo is on 14 aug, am feelin a bit happier now the army has gone in to invade,

really tired, will have early nite, take care all of you, will come back soon

love Chris xxx

chebsy13
Member

Re: Anyone starting chemo round about Tues 15 July

Hi Ann - poor thing - sounded quite rough but hopefully you over that now. Just take it easy and don;t try and do too much...and keep on drinking loads of water - I really think that hejps greatly! Remember over the next day or so you might feel extremely tired and just go with the flow - I'm feeling really good and positive at the mo - remind me of that when I go for second bast on 5th Aug - Take care and let us know how you get on - love and good vibes Chebsy x

You're sounding good Nel!

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Re: Anyone starting chemo round about Tues 15 July

Hi all

Spoke too soon yesterday, a couple of hours home and the sickness kicked in. Threw up my lunch, water and sickness tablets, got up about 1 o clock today and feel back to normal now. Hopefully that's it and will feel ok now.

Tried the cold cap so it extended my stay at the hospital, it's worth a try I suppose but will let you know how I get on with the H.

Hope the rest of you are doing well.

Lots of love

Ann

xxx

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Re: Anyone starting chemo round about Tues 15 July

Hi all

Had 2nd FEC on Monday and been ok since - keep taking the drugs and drinking loads of water. Been super sleepy this afternoon but just listening to body and doing what it tells me. Still hanging on to my hair... just! It's getting quite thin, but your average person probably still wouldn't notice. We'll see!

Not had any problems with taste really. Got a funny taste when having the treatment but sucking on a sweet soon sorted that out, and an ice lolly when I got home. But nothing since.

Chebsy - my hair dresser said exactly the same... aren't they lovely?

Hope you're not all suffering too much.

Nel x

chebsy13
Member

Re: Anyone starting chemo round about Tues 15 July

Hi Ann - have been sending the good vibes to you- I wasn't sick at all - drank gallons of water and I'm sure that helps!

And hello everyone - Anyone else taste affected? Mine has gone a bit - love baked beans but they tasted liked the yukkiest yuk! Nurse warned me of this - that you can go off foods you really like and not to force yourself to eat them- ot you'll be off them for life.and to try spicy foods so it's curry tonight!

Feel really good today - except I live in the bit of Cornwall shrouded in cloud - rest of country is having summer - can'r have everything! Just had hair cut really short ready for losing it -lovely hairdresser did it for free "I can hardly charge you when it's all going to drop out anyway!"

Take care C x

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Re: Anyone starting chemo round about Tues 15 July

Hi girls

Just got back from my first chemo, all went ok.

Hopefully will get through without any sickness, you never know!!!

Lots of love

Ann

xxx

chebsy13
Member

Re: Anyone starting chemo round about Tues 15 July

Hi All

Hope it goes ok today Nel - good vibes to you -and to those just staring -(Thar was meant to say -just starting but perhaps staring is better! I know before I started FEC I had a lot of mindless staring at nothing times)...... Discussion groups are great for sharing experiences- to be able to think about the "Might be like this" but you must also think "Might not be like this!!!" I know some people have a really rough time but some people don't - so it's best to be prepared but wait and see!

I had a fun time at Duck Race - again wanted a sign to say "I'm fine - just get tired easily" as the whole village turns out for the event - for those without Duck Race knowledge - Numbered plastic ducks are sent down the river and you buy a ticket. If your number wins you get a first prize of £25 .........wow I hear you say...and no I didn't win. We make our own amusement here!

Still get a bit tired and have no appetite but Manuka honey arrived in post just now (good for sore mouths) I just had a big spoonful and I feel great - It is expensive but I'm worth it - as my Granny would say -"To hell with poverty, feed the cat the canary!"

Love to all Cx Drinking a toast to each other wherever we are when we finish sounds great Ann!

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Re: Anyone starting chemo round about Tues 15 July

Here here Ann! I know we are all spread all over the country but I think we should pick a date in the new year to all go out in our respective patches and drink to the end of chemo hell and to each other's very good health! I know some of you are going on to rads after, and we can have another "Finishing Party" after the end of that!

Or is this just my raddled chemo brain having another moment? Who knows.

All the best to those having a dose in the next few days, hope all goes well and no glitches.

Love to all

Helen xxxxx

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Re: Anyone starting chemo round about Tues 15 July

Roll on Christmas when it's all over and we can have a life again.

Can't ruddy wait!!

Love to you all

Ann

xxx

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Re: Anyone starting chemo round about Tues 15 July

Well it's my second FEC tomorrow. Been drinking lots of water and taking it relatively easy, but also getting the house in shape so I don't have to think about it next week. Got a cold a few days ago and rang chemo unit who told me to go to them for my blood tests on Friday - took them two attempts to get blood from my hand, but everything was ok so can still go ahead tomorrow. Cold now almost gone. Also had a mouth ulcer but that's also almost gone. Re mental side of things, I didn't really notice it apart from once - was looking back threw our wedding pics with my Mum and looking at the group photo of everyone and I kept forgetting people's names - people I know really well! But that's about it really.

Hair has been coming out since about day 16 (Tuesday) - it's coming out more and more each day and think that the second lot of chemo will make it worse and probably finish it off. I've had it cut quite short (about an inch) and unless you know, you probably wouldn't notice that it's thinner and at the sides by my ears and on one side at the back it's really really thin. I guess if you did notice anything, you'd probably just think I'd had a bad haircut! But, no need for power wig just yet (yes, that's what it's called on the side of the box!). I put mine on now and then and don't think you can tell, and when I went for my first chemo both husband and I were looking to see if we could tell who was wearing a wig and who wasn't - and we couldn't really tell, so they must do quite good wigs in our area, or we're just naive?! Also have a nice fluffy/fleecy buff for in the house when I'm not going to wear my wig.

Good luck Ann and Chris for this week and hope everyone else isn't feeling too rough for much longer. I'm looking forward to crossing off number 2 tomorrow and October 13th which is number 6.

Nel x

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Re: Anyone starting chemo round about Tues 15 July

Hi all,
I start my 1st chemo this coming thurs, half frightened to death reading yr comments but wanting to go go go. As we dont have a choice then the sooner the better. I agree with the comment about the next year almost being non existent, I hope it goes as fast as the last few years seem to have gone. I dont feel part of life anymore, just existing 4 now to get through this. Im trying to take on board all your comments, re not having an empty tum and drinking lots of water, I will probably need the loo half way thro tho!!! Am going on tues to sign on the dotted line and speak to onc. Also havin a bone scan thingy so will be up there all day! oh joy, I must write e.thing down as I have a brain that leaks...badly. As 4 the hair thing, will not bother with cap as am resigned that i will lose my hair, wil prob opt 4 a wig with my daughters help, so long as she realises im not 21! May buy some cotton scarf things tomorrow and practice tying, probably end up in the bottom drawer> If all else fails I will just hibernate. Tv, water, biscuits, computer all in bedroom, 12 month sabatical!
R we meant to be on any particular diet? tc e.one, Chris xxx

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Re: Anyone starting chemo round about Tues 15 July

Hi Everyone. Feeling loads better today, dare I say it almost "normal" whatever that is! Like the rest of you, the physical is getting better, but the mental (and I use that word advisedly!) is the dodgy bit at the moment. Its really weird not being able to think straight, I'm getting to the age (45) where I do forget names of things e.g. children, husband etc. but its never been this bad, I can't seem to string a coherent thought together. I suppose I must be able to do it a bit or I wouldn't be able to type here, but you know what I mean. Its like your experience Debs, doing and saying stuff that you would never normally, it makes you feel like your mind and personality have gone AWOL as well as your body. And the K.A.T.T. (thanks for that one Chebsy describes it perfectly) is a bit much to deal with when you're used to just being able to do whatever you want without too much trouble. I watered my stuff in the greenhouse yesterday and it completely floored me for the next hour or so, I was huffing and puffing like an 80 year old when I had finished! Oh well, got to be done I suppose, can't wait for this year to be over then the worst of it (hopefully) will be behind us all.

Ann -know what you mean about being all consumed by it, I think thats why these forums are so comforting as I detect from my loved ones that they are getting a bit fed up of talking about my various side effects etc. Not in a horrible way, and I understand it must be hard. Someone said to me right at the beginning that BC is now part of your life, but don't let it become your whole life, but I'm struggling to see how that works. And on the wigs front, when I was waiting for my chemo I saw lots of women with wigs (of course) and to me all of them were very obviously wigs although some better than others. I have ordered a wig but am not very keen and will try the bandanas thing first - I have got some buffs which are really nice and soft, if only I could work out how to put them on! I am on day 10 and the hair is still hanging on there I washed it this morning and there was no more than normal in the plug hole! I'm sure its only a matter of time, although some people say it hangs on until after your 2nd.

Love to you all. Helen xxxxooxx

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Re: Anyone starting chemo round about Tues 15 July

HI all

sorry to hear that some of you feel so rough and down.

Ann go on the Buff website they are great, really comfy and they stay on a baldy head.

God some of you have had it rough, I have had two FEC now and it was ok although can't think straight a lot of the time for a few days after, got myself in real trouble this week. I answered one of those dodgy e-mail from what i though was my bank and gave them all our details and someone tried to take money from our account and now we have to change all our accounts. It really is not like me to be that STUPID!!!! but I think I was one day post chemo and I really think it was that. Also re:funny smells I thought I could smell a horrible smell in the bathroom to me it smelt a bit like when I was in hospital so I bought one of those pressy smelly things and it was ok after that. No one else could smell it. This Chemo does weird things to us.

Hope everyone has a good weekend.

Debsx

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Re: Anyone starting chemo round about Tues 15 July

Hi girls

I don't think our lives will be anything like normal for at least another year ( when we have enough hair to do anything with ) that's probably why I have lost interest in everything, life is just on hold.

Not sure about you guys but it's all I think and talk about all of the time, and can't seem to stop it. I don't want to go shopping, haven't been to the hairdressers for ages ( what's the point!! ) have only just started to put a bit of nail varnish on as my nails were getting into a right state ( used to do them all of the time ). It's as if I have been pushed in a dark cupboard and someone who looks like me has taken over my life and is just going through the motions.

How do you all feel.

Keep looking for women wearing wigs and bandanas but can't see any, do they just have really good wigs or am I the only one around here who will be hairless?.

Love

Ann

xxx

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Re: Anyone starting chemo round about Tues 15 July

4th day and feeling a bit better today thank god physically anyway feel a bit wobbly mentally guess that might be the tablets effect? or me just feeling pissed off. Still another day begins and I think I will too have a little look around th garden and try to pretend I am normal too (don't bloody feel like it though) will we ever get our lives back?

love to you all Bevy x

chebsy13
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Re: Anyone starting chemo round about Tues 15 July

Hi all - sorry you having such a rough time Helen- hope you've picked up a wee bit? Know what you mean Bevy, about being pole- axed - I'm just K.A.T.T. ! - my new acronym - Knackered All The Tme! Hate this feeling but think now three days of steroids and sickky tabs done - and don't need to take tham any more ...till next time...I might pick up! No I'm not going for the ice cap - It's an hours drive to hosp and don't want to have to spend all that time down there. Going to get hair cut short on Tues and then get head shaved when it starts to go= Have bought buffs to wear - they look great for summer! Make lovely beanies - and daughter has sent a gorgeous cashmere beanie - ooooer get her! I often wear wee hats - got lots in Morocco so people probably won't notice my locks no longer lurk! Anyway - thinking of you all - hang in there - we CAN do this together!!! Good luck Ann - let us know how it goes. I am now going to stroll round the garden and pretend I am alive!
Love and good vibes! C x

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Re: Anyone starting chemo round about Tues 15 July

Please to hear you're starting next Tues Ann! and so sorry to hear you're having such a rough time Helen. I felt wierd the first night and was very scared of what might happen but thankfully I wasn't too bad as I have posted previously. I did drink a lot of water the day before, during and after which may have helped and I also have made a hot drink of grated ginger which I leave to infuse for a while and then strain off and I found that quite soothing and apparently ginger is really good for calming the sick feeling worth a try if you can tolerate it I don't find it too bad so long as it is not too strong. I also had some pasta before having the chemo luckily was just after lunch and maybe having a full stomach helped? don't know really but just trying to give any advice I can that may be of assistance to anyone.

I had to go with a friend today to pick my daughter up from the airport and it completely pole-axed me just had to lie on the bed all afternoon feeling wiped out. Still tomorrow is another day!

thinking of you all sharing this grotty journey.

love Bevy x

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Re: Anyone starting chemo round about Tues 15 July

Hi girls

Have the go ahead to start my chemo next Tuesday, hopefully I will cope as well as you all have so far.

Love

Ann

xxx

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Re: Anyone starting chemo round about Tues 15 July

Hi Everyone! I'm back in the land of the living (just about), haven't reported back as had a pretty horrible time really, my first lot of FEC pretty much floored me. Today is the first day I have felt okish, although still have some side effects (horrible taste in mouth, weird sense of smell and chronic acid reflux and wind - lovely!) but the main side effect I had of sickness and nausea has subsided a bit now - I had my first proper meal yesterday. In hindsight I think I should have contacted the hospital for a change of meds, but I was so nauseous that I couldn't even have water in my mouth which made taking the meds quite hard and meant I wasn't drinking anything which I know makes it worse. I think because I wasn't constantly being sick (only because I wasn't drinking or eating) I thought I shouldn't ring the hospital but with a bit of perspective now think I should have. I will tell them next time and hopefully they can adjust my sickness meds, as I am now completely terrified about the next lot. I felt so ill that several times over the weekend I considered not going any further with the chemo and just taking my chances - don't really want to get to that point but don't know if I can do this for another 3 months. Anyway, the worst is over for the moment (I hope!), just got to wait for the hair falling out now! I decided not to bother with the cold cap as I have sort of come to terms with losing my hair, and I'm actually more bothere about losing my eyebrows and eyelashes and I don't think the cold cap affects that. Anyway its done now so will have to wait and see.

Hope you are all doing ok, from the posts on here seems most of you seem to be coping with it ok and not too much discomfort which is good. When I read everyone else's posts I feel like a bit of a wimp really talking about giving up, but really it was quite horrendous and I have to remember that I actually have quite a high pain/discomfort tolerance (delivered 2 babies, 9 and 10 pounds with no pain relief!) so maybe it was that bad!

Anyway, love to you all, hang on in there. Helen xxxx

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Re: Anyone starting chemo round about Tues 15 July

good luck Anndi hope it all starts for you soon so you can get on with it. I will report back on the 2nd session as to how the cap is working I have been told that my hair will probably start to leave me in about 3 weeks if it is going to so if it is still hanging in there I will go for the cap treatment again it was just the headache afterwards that was a bit of bugger but then maybe I would have got that anyway from the chemo?

all the best to you all.

Bevy

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Re: Anyone starting chemo round about Tues 15 July

Hi there

Nice to see you have both coped really well with the chemo, just want to get started with mine now.

Bevy am going to try the cold cap so will keep checking how you are getting on with it and picking up a few tips!!.

Mine has been delayed as my LD back scar isn't healing very well, hopefully within the next couple of weeks.

Keep well.

Ann

xxx

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Re: Anyone starting chemo round about Tues 15 July

Hi everyone,

had my first session yesterday a bit of mammoth event as I was there for 7 hours! the usual chemo nurse was off sick. (glad she wasn't there!) anyway I wore the cold cap and although it was uncomfortable got on with it o.k. but did have dreadful headache and eye ache last night. I see you had a headache too Chebsy did you wear the cold cap too? Like you I took on board all the advice and drank loads of water prior to and during treatment. Had a wierd night feeling very anxious as to what will happen but did sleep on and off and woke this morning not feeling too bad. Long may it last. Just feel worried about the vien situation as it was a struggle to find one and I assume that situation must get worse.

Good luck everyone and

Roll on Christmas!

love Bevy

chebsy13
Member

Re: Anyone starting chemo round about Tues 15 July

Hello all - had first dose yesterday and felt and still feel fine - keep waiting for something to kick in - but when? All very pleasant yesterday - dept even provided ice lollies! Bit of a wakeful night with slight headache - wonder what it will be like for me after my couple of days of steroids stop.
Thanks Angie for the "drink loads of water the day before" warning - really think that helped.

Any reason why yours was delayed Ann? Love and good vubes to all of you Cx

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Re: Anyone starting chemo round about Tues 15 July

Hi Chebsy and everyone else up for their first session this week

Hope all goes well for you, let us know how you get on.

Was supposed to have my first session yesterday but has been delayed.

Take care.

Ann

xxx

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Re: Anyone starting chemo round about Tues 15 July

Chebsy, Bevy, Fluffybunny, Joanne & Gill - just wondered how you all got on this week?

Nel x

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Re: Anyone starting chemo round about Tues 15 July

Thanks Angie - I did drink lots of water last time, but will remember to start drinking more over the weekend ready for Monday. You're half way through now aren't you? Bet that's a good feeling isn't it? Hope you don't suffer too much.

Nel x

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Re: Anyone starting chemo round about Tues 15 July

Heya Ladies.

Just got back from round 3 for me and I forgot to mention something to you all.

Start drinking plenty of water the day before so you're not dehydrated when you go in... honestly really really helps A LOT.

Feeling fine and dandy. Good luck lassies.

Angie

nicky08
Community Champion

Re: Anyone starting chemo round about Tues 15 July

Hi Chebsy and all ladies on here

Thanks for asking and I'm doing fine, waiting for dose No 4 of FEC on Thursday as long as neuts are OK, I've already had one delayed treatment. I remember being in all of your places a couple of months ago so just to let you know it is do-able but there are lost of seemingly little things that get you down. Make sure you enjoy the good days and these do outnumber the bad ones. The support, and laughs, I've had from ladies at the same stage of treatment as me has been brilliant and it really does help to discuss things with ladies going through chemo at the same time.

Good luck with your treatments.

Nicky x

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Re: Anyone starting chemo round about Tues 15 July

Good luck to everyone for this week. You'll no doubt be anxious, but just think that you'll be able to cross one off when you get home. I was a bit worried about my first one but it was just fear of the unkown - everyone was so lovely - staff and patients, the nurse sat with me for the whole time and chatted whilst giving the drugs and it really wasn't so bad. Just make sure you come home and listen to your body, take it easy and sleep when you need. And, make sure you take all your anti-sickness drugs. And if you don't think something is right, make sure you ring your unit or whoever you've been told to contact - they'd rather you rang and it was nothing than have you suffer.

What I've found quite useful is to have a little bag/basket with everything I could possibly need in it (ginger biscuits, travel bands, hot water bottle, puzzle book, notepad and pen plus all my chemo info) - it's easy to carry round the house and means you've got everything in one place if you're not feeling quite right. I haven't really felt so bad that I couldn't move, but it's ready incase I do feel awful.

Number 2 of 6 is next Monday (21 July) and I'm ready and waiting - bring it on! Another one down and crossed off.

Chebsy - thanks - I soon got over my Friday night blues. As I'm a bit ahead of everyone I'll keep you posted. Day 15 and I've still got my hair - keep expecting to wake up and find it on the pillow! Working from home today and actually going to work tomorrow... thought it'd be worth working as long as I can and lucky that work have been very flexible and allowed me to do pretty much what I want (be sick as and when, work from home if I fancy it or go in if I'm feeling ok). The doctor did say they don't encourage people to go back to work for fear of catching infection etc but I'm passed the most susceptible period and work in quite a small office, so think I'll be ok.

Anyway, I've gone on... good luck again. Keep us posted on how you all get on.

Nel xx

chebsy13
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Re: Anyone starting chemo round about Tues 15 July

looks like there are a few of us then - Nel - have a lovely eve watching exciting things like QI - know what you mean about giving up things - but 'twill be worth it in the end and you sound like you are doing just great!!! Keep us posted - you can be our guru! love C x

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Re: Anyone starting chemo round about Tues 15 July

chebsy13

I saw Dolly at the O2 dome last weekend!!

Now she wears some great wigs!! A fantastic show, so glad we managed to go before I start to have dodgy times for planning.

It can rain as much as it likes as long as it works and we see the rainbows.

What a diet - ginger, toast and jacobs crackers!

onward------------

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Re: Anyone starting chemo round about Tues 15 July

I'm on day 12 of my first lot of FEC. I've been very lucky and not suffered much at all - a bit more tired than usual in the first week and a small bit of heartburn, but that's it. Agree with Debs though that although I wasn't actually sick I wasn't 100% it was - just didn't feel quite right - hard to explain really. The first one wasn't so bad really - one down, 5 to go - roll on 13 October which is my last one.

Feeling sorry for myself tonight as OH has gone out to celebrate his birthday and I'm staying home alone - don't fancy pubs and bars with loads of other people and risk catching something horrible.

Good luck for next week - keep us posted.

Nel x

Imi99
Member

Re: Anyone starting chemo round about Tues 15 July

Hi all,

I'm also starting 6xFEC on the 16th July. Was initially diagnosed end of May but after a sentinel node biopsy on the 4th July, I now just want to get on with things - although have to say I can tell I'm really anxious cos I keep waking up very early in the morning (not like me as I do like my sleep!!).

Like you guys have stocked up on various things recommended on the chemo tips thread and am so thankful to those that have given their much-needed advice.

Good luck for next week.....and beyond!
Sarah xx

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Re: Anyone starting chemo round about Tues 15 July

Hello Nicky

Thanks for your advice, I will have a look for Taxo.

Lots of Love
Emma
xx

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Re: Anyone starting chemo round about Tues 15 July

Good luck next week ladies.

I'll be on round 3 of my 6 FEC on Monday myself. Half way already... woohoo. It just flies by, it's not all pleasant but as a friend on here said there will be more good days than bad and it doesn't last forever... she has her last Tax next week too. go Paula.

Stay calm, eat something before you go and drink heaps and heaps and heaps of water to flush the stuff out as fast as possible. It still does it's job.

Great quote Chebsy but I am so so sick of rain. We've been waiting for 2 weeks now for 2 dry days so we can fix the leaks in the campervan... we'll take 12 hours of dryness now 🙂

chebsy13
Member

Re: Anyone starting chemo round about Tues 15 July

Hi all - thanks Nicky for looking out for me-how are you doing after no3? - re chemo buddies - sounds like we have a convoy! Hope all is going/ goes well with you all very reassuring to know - we are not alone....and as Dolly parton puts it " The way I see it, if you want to see rainbows -you've got to put up with the rain!" Quite apt - keep in touch!

love 'n'hugs Chebsyx

(Tea and toast it is then Lisa - thanks for that!)

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Re: Anyone starting chemo round about Tues 15 July

Hi Girls

Good luck with starting FEC, you will be fine! I have had 2 cycles now and on the whole not too bad just try and listen to your body, not easy to do but its a must really. If you want to sleep do. I had no actual sickness with the first one but was sick with the second only once tho and i did feel I suppose I can only descibe it as 'not quite right' really. but i am 4 days after the second one now and feeling ok. Hope you all do ok and keep us posted, but we are all different and it is very difficult to draw from someone elses experience.

Good Luck

Debs x