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Anyone suffered from cording?

11 REPLIES 11
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Re: Anyone suffered from cording?

Hi Ladies

Thanks for your replies and reassurance.

Physio has been delayed due to having to be operated on again in order to drain an abscess under the node scar. Actually since the swelling has been removed the cording has improved considerably as has the range of movement.

Once the wound has healed though I have an appointment with the lymphedema specialist nurse who can give me advice on the whole area including massage and stretching. Good idea to take someone else along to see how it's done.

Thanks again for replying, I was getting pretty scared there!

Maggie x
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Re: Anyone suffered from cording?

Hi Maggie

 

Just to add another note of reassurance.  I had cording from my armpit to my elbow after my mastectomy and node clearance, 5+ years ago.  The physiotherapist at the local hospital (who specialised in women's health) showed us some good massage techniques, concentrating on the armpit area.  I took my husband and my mum to the consultations so they could see how to do it as it's virtually impossible to do effectively on oneself.  We were diligent about doing it every day for a few weeks and the problem receded and has never recurred.

 

Could your BCN add some weight to your push for a rapid referral to physio at the hospital?  (Mine did).

 

I felt very despondent and thought I'd never get back to full range of movement after my op (and then a frozen shoulder problem the following year) but it did happen.  I'm never going to be the opening bowler in a Test Match but I can do most things.

 

All the best, you have my sympathy.

 

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Re: Anyone suffered from cording?

Hi there,

I too experienced cording and asked for a Physical Therapy referral.  PT helped tremendously by deeply massaging the area and giving me exercises to do at home that involved stretching and rolling a tennis ball under the arm. I also had slight lymph fluid buildup under arm and on back (due to removal of 4 centinel lymph nodes), and PT helped show me how to re-route the draining lymph fluid to other lymphatic drainage areas. The cording came be quite symptomatic so ask your PS for referrals to PT to get assistance.  They can help you get relief.

Hope this helps,

Aly3

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Re: Anyone suffered from cording?

O maggie59 no good about the infection.  Thats just a bit unfair! 

My surgeon told me if I dont push it hard with the stretches I will lose my arms range of movement. Feels like a vice across the scar and that whole underarm chest to wrist is like new fence wire. I swear it twangs when you move.

Im a bit astounded as the stretching is so important they dont send us to physio instead of a quick demo and a brochure. Timing on getting stuck in is really important as the scar tissue builds.

 

Much love and long stretchy hugs. Xxx

Sandie

 

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Re: Anyone suffered from cording?

Thank you, that is very reassuring. I have been suffering with an infection which has delayed treatment but have got some physio now lined up. Also have bio oil at the ready. The scar is s the worst bit I think. It feels really solid and dense but will massage it well and hope...
Mx
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Re: Anyone suffered from cording?

Hi, just wanted to re-assure you, I had dreadful cording down my affected arm to my wrist. This came from the scar tissue from node clearance. I had quite a bit of physio on it. The physio put pressure on the cords and the thinner ones you could actually hear them crack. The cracking didn't hurt,in fact it was  relief. The more stubborn ones took quite a while i'm afraid. I sat everynight rubbing bio oil into my scar,which was quite uncomfortable. I would strongly suggest that you do the stretching exercises though, even if it hurts, because it really helped me. I am nearly 2 years now and I have full movement in my arm. I can still feel a couple of small lumps underneath the scar,which are small cysts,the reminants of the swelling. (They don't hurt! I just know they are there) they have been looked at under ultrasound and show as being full of fluid! I am able to to everything that I could do before,so it will eventually get better,it's just slow. Hope this helps.

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Re: Anyone suffered from cording?

I've got cording in my good arm from chemo have struggled to get them to look at it. has now got worse yet veins not used since September. going to push for physio.
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Re: Anyone suffered from cording?

Thanks Rebecca, that is really useful and is exactly how I feel with the cords trapped in the scar tissue.

I have asked for physio but will chase again as you are quite right, the exercises are very painful. I have suffered with shoulder problems before and don't want that to happen again!

Thank you again.

Maggie x
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Re: Anyone suffered from cording?

Hi Maggie,
I had terrible cording after my SNB and then my ANC/mx. The pain is horrible and gradually creeps down your arm. Exercises were so sore.

I had to have some Physio where she genet lay applied pressure to the cords in my arm starting at the lowest point and working up. She told me to do the same. Sort of gentle circular movements with firm still pressure to finish. It hurts but it does get better over time. Just remember to work from wrist upwards to help with any fluid buildup from the massage.

I also had a lot of scar tissue and the cords seemed to be trapped in amongst the lumps under my arm. For this she told me to massage the area firmly throughout the day. So I used to press under my arm when I was watching telly, making tea, reading, in the shower, etc. after a few days I felt the scar tissue kind of tear when I rolled over in bed! Bit of pain then relief and movement returned. Took about 3 months to really feel better both times I had it.

Sorry if this is a bit detailed but having had it twice, I feel something of an expert! Good luck and do insist on getting Physio if you can. It really helped me.
Rebecca
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Re: Anyone suffered from cording?

Sorry to hear that you are having such a rough time Maggie. X annie
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Re: Anyone suffered from cording?

Hi Maggie whilst you await replies here please feel free to call our helpliners for further support with this, lines are open 9-5 weekdays and 10-2 Saturdays on 0808 800 6000

Here's a couple of links to the cording information and exercise advice from BCC which may help:

https://www.breastcancercare.org.uk/breast-cancer-information/treating-breast-cancer/surgery/after-b...

http://www2.breastcancercare.org.uk/publications/treatment-side-effects/getting-fitter-feeling-stron...

Best wishes
Lucy BCC

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Anyone suffered from cording?

The tendon from under my arm where the nodes were removed down to my elbow is thick, raised and extremely painful. I understand that it is 'cording'. It is getting worse and is making doing my exercises agony.
Has anyone had this and what would you suggest? I am hoping for some physio but haven't had it so far..
Maggie