Great thread! I am also overwieght since treatment, gained another stone! Was overweight before and am interested in observations that this can cause recurrence.
I have a theory about my BC. Could be away with the fairies, but will run it past you anyway.
I was given the Mirena coil 8 years ago because I couldn't have hysterectomy due to PE and DVT. Within a very short time started getting cysts on a regular basis. Didn't have periods from begining of coil being fitted, they also produce hormones?
I asked if there was a link between the cysts and the coil but it was brushed away!!
If anyone has any information would love to here from you.
Meanwhile, I think it takes a really strong person to be able to change their lifestyle/diet as well as coping with everything else. I finished treatments/hysterectomy in July this year and started Arimidex side effects are so awful I am rarely going out ,as for exercise, walking is a problem, ther is'nt much of me that doesn't hurt. I hope this will improve but to be fair it has got worse each day.
I have ordered a swimming costume to start getting myself motivated ans someone suggested yoga on one of the forums but I feel like my bones will break if I try and get in the LOTUS POSITION!!!!!
Sorry for going on
Have you got a BC group near you that you could join. I have been to our local one quite recently and believe me the support is excellent, because everyone is in the same boat I feel it will boost your self esteem just feeling like you are part of a 'family'.
Love to all
It's easy to say but get out and walk - anywhere.Just open the front door and away you go.If you live in a horrible neighbourhood you don't have to take it in -put some good thoughts in your head and keep plodding along.If you've got a problem you can mull it over.I find the more worries I have the faster I walk! If you're into comfort eating get out there before you raid the fridge- even if it's with a jam doughnut in your hand! Start with ten minutes either way and work up to whatever you like.You'll reap the benefits.They wont be physical at first but you'll feel a whole lot better in yourself.....Good luck!
i just wanted to add that when i was first diagnosed i was convinced that i would completely change everything unhealthy about me..but i haven't unfortunately...because of the depression that the cancer has caused and the loneliness (i'm single and still hurting from a horrible break up) i still rely too much on treat food and wine...think i need counselling coz i'm still not valuing myself and my health as i should be...kind of not sure where life is going and what my role is now so no motivation to get fit and healthy..and now have such a poor body image that it seems a mountain too high to climb...not interested in men...etc etc...have been using the excuse of going thru treatment but its now over and i'm 2 stone heavier than i was..which makes me 4 stone overweight...yikes!!
definitely in a rut and need a huge kick up the arse ...if i did some exercise and lost some weight it would do wonders for my self esteem but can't seem to find the strength..feel like an old woman at 38! live on my own so its easy to just be naughty and no-one will know
any advice ladies???
my take on it is that there are a huge number of toxins that our bodies and esp our liver and immune system now need to deal with (anything from alcohol, to air fresheners to smoking), and depending on our genetic make up one or more of these could trigger cancer,,,alcohol and diet being the major one for hormone related BC
not sure changing diet etc makes a big difference after initial dx tho..i think most important factor in recurrence or spread is whether they got it all out of body in first place
i think in this modern life our immune sys is constantly fighting cancer and it just depends whether it is strong enough at a partic time of stress/risk...lots of people i know found the lump after time of major stress....break up/divorce, death of loved one etc...when we are at our weakest..
sorry if that is all obvious to you..its late!!
Interesting comments, all.
I have to say that I subscribe to the 'everything in moderation' theory for food.
I'd just like to say that I was first diagnosed in 1993. I then gradually gave up smoking, lost weight, took more exercise, cut down on alcohol, improved my diet. Subsequently had a second primary diagnosed in 2004.
I know I'm a statistic of one, but I mention my own situation because I think the causes behind the rising incidence of breast cancer are extremely complex and go way beyond what we eat and drink and how we exercise. A good diet is good for you, no doubt about that. But the genetic picture is far from complete and I don't think enough attention is paid to environmental factors. For example, I remember reading not long ago (probably in my son's New Scientist or something similar!) that the percentage of oxygen in Earth's atmosphere has been falling for some time, due to pollution and overpopulation. That oxygen deprivation can't be good for any of us, including unborn generations - and there's nothing we can do about it in the short term.
If I'm wittering, people, I'm sorry (had some Taxotere a couple of days ago).
I'm not overweight (never have been), am 5' 7" am small boned and weigh just under 9 stone and was extremely active (ski-ing, going to the gym 4 times a week and belly dancing!). I've never smoked and never drank to excess.
I've lived with b.c. for 14 years and 4 years of those with secondaries so Jane Plant's theories just don't do it for me I'm afraid.
I also have the BRCA2 gene so it's probably always been on the cards for me that I'd develop breast cancer and no diet or exercise in the world would probably have made a difference.
The main thing for me is that I'm still here and still enjoying my life and I'll eat (within reason) what I want although I don't really drink that much alcohol now as part of my secondary diagnosis involves my liver.
Hi Momathome - no, I don't think you're mad and thanks for your comment!!!
thanks Irene and Lily for taking the time to respond. I do eat healthily and have made the effort to do juicing throughout treatment aswell as eating a normal healthy diet. Though I have to admit since being on Taxotere and having larger amounts of steroids i've definitely had increased apetite and more cravings for sweet things and my weight has increased quite a bit! I have 2 more Tax to go and then i s'pose bit by bit I can tackle the weight thing, don't think I've got the energy at the moment I seem to be really tired with this tax but hopefully when treatment finishes I can focus more on fitness actually fancy starting yoga.
thanks again for your comments.
So do I Lily,
what is life without quality. Yes of course, when I can get my eating back to normal post chemo, I will. More often than not, I will feed my body the best that I can, I will also feed it the Feel good factor, chocolate does it for me... I will exercise and have taken note about keeping the weight off. I refuse to go on any weird 'diets' that make life completely miserable. Food is a very important part of our lives, physically, mentally and socially. I will try to keep well rounded and not box myself into a tight, joyless corner.
I want to live, not just exist.
hope you know what I mean,
take care all
I meant to add I read the Jane Plant book, no started and abandoned it as not really into organic wheat germ suppositories for the rest of my life and other disgusting sounding things. People will be walking around breaking twigs off trees to eat soon, saying they are organic, natural and part of the earth!! I think some dogs get more nutritious dinners that some of the extreme diets point too, we do descend from cavemen not rats. Sorry a bit over the top there. Anyway I think the Plant diet was only about 64 women and not the thousands/ millions of the rest of us so very very small number. Good luck to her that she is fine ( she might have been without doing that, who knows) but so are a lot more people who were true to how they want to live. Organic cows are not given hormones like other cows but then isn't tamoxifen, etc supposed to be blocking all that for us, or have I got that wrong? If most womed get BC later in life, it poses the question as to how they lasted that long on their usual diet? The big BC USA doc Susan Love says that being overweight shows the greatest link to recurrences. So losing weight and exercise could be the way to go if necessary. they are finding a big link from obese teenagers, so we can help our daughters and sons with that, now we they have a close relative link. Smoking and too much alcohol we all know about and make our choices. I vote for the smile and be happy therapy
Good luck to you all
this decision keeps coming back to me from time to time, but then I have another chemo and have to settle for eating what my body craves or can cope with. While on treatment I think personally you should nurture your body as it has so much to fight with being poisoned regularly. I cringe when people say I'm not bothering to eat because it tastes horrible, as what has your body got to fight and repair with if you don't. Apologies to those who are sick and this is not an option. Rest and good food are stores for the good cells to regenerate. When chemo is finished, I think you move into another area and that is when I will start to try to get and be healthier. According to Susan Love, the renowned BC doc in the US, she sees the biggest risk of recurrence coming from being overweight so she encourages healthy eating, maintaining a good weight and regular exercise. That would fit into what most people regard as sensible. They have found that obese teenagers have a higher risk of BC, so that is an area we can help our daughters and sons have improved chances, now they have a close relative link. I am fighting one of my daughters to give up smoking and will resort to emotional blackmail soon. Obviously the alcohol levels are something to think about too.
I think you have to find the right path for you. Some things are known like not taking supplements while on chemo, don't want to boost the bad guys too. Others will unfold over coming years about soya, etc from people going on trials and raising money for research.
Good luck guys and hope we are all sitting reading the latest BC news for a long time.
Yes I have been there too, that body crisis thing, and it does knock confidence. I will admit to being overweight for me, and though I would dearly love to be back to 10 stone (I'm tall), Now at 13 stone but only just over the national weight thingy! I know when I drink less wine the weight falls off me but wine is a comfort to me.
Sometimes we need to take a step back and make decisions about our health and diet while remembering that if it is central to our lives and very important, why give it up. Everything in moderation I say.
How many times have we heard stories about people with bad diets or smokers living long long lives. My husbands gran lived to be 100. She smoked all her life and was very fit. She smoked woodbines (untipped) and at the age of 90, was a home help for a couple in their 80's! What a character!
My point is, we know a bad diet, smoking etc can kill us, but I don't think 1 thing causes or prevents BC, I am convinced other things play a part such as stress, lifestyle, genetics etc etc.
So I will still eat my saturated fats but will also eat lots of fruit and veg, lean meat and a mainly healthy mediteranean diet.
Hi, everyones comments been really helpful to me too, thanks. I'm coming to the end of my chemo at end of November and just really want a new healthy focus to make me feel i am doing my best after treatment finishes and i agree momathome with the crisis of confidence in my body, just how I'm feeling and want to do something positive!
Thanks ever so for your responses. I think we're all in agreement on the whole, and the only reason I wonder about diet is because here I am having to go through this whole thing. My diet has always been pretty good, I've never been overweight and eat lots of veg (hubby vegetarian) though I do put my hands up to having a sweet tooth and enjoying a glass of wine here and there (though sadly not while on chemo!)
Special thanks to Irene and Pinkdove, I hope you don't think I'm mad, just having a crisis of confidence in my body.
Totally agree with you Irene!!!
I've lived with it for the past 14 years nearly now and haven't changed my diet because it was good in the first place.
I have absolutely no intention of giving up my treats because of BC. I am not convinced at all that these changes make much difference. My lovely friend who died this yr from secondaries had spent the last 2 yrs of her life eating strange and not very appertising organic, non dairy, etc etc. A very boring diet. Food is central to my life. We are a family of foodies. We all cook well, my son is a head chef in a very posh resturant and my daughter is also a chef. I have had my own catering business and cook most meals from scratch using natural ingredients. I do eat fat (butter) marg worries me, it's not natural. I eat sugar but not masses, don't like sugery drinks, drink plenty of water, enjoy wine, chocolate, chips, salad, veg, fruit, egg & bacon, pies, cake and so on.
If our diet is varied and we enjoy it, why make ourselves miserable in the vain hope that it will keep BC at bay. It clearly doesn't in some cases (my friend).
Enjoy, eat, drink and be merry!
Just want to join in this thread. I've been vegan for about 20 years - strict, no products of any animal, bird, or fish derivative, and probably a bit over 50% of my diet has been from raw foods for quite a while now, and it doesn't really make a difference because here I am with breast cancer. I'm ER- PR- Her2+. I have soy products as a regular part of my life but mainly in the forms of tofu, miso, and so on, with minimal altered soy forms. I read the accompanying book to "The Choice" with interest and I think that if it works for you, great! It's pretty much the way I've lived my entire adult life so is no change at all for me. What I can say about a 100%vegan diet/lifestyle is that so far it's helped me make a quick recovery from mastectomy and has helped me cope with chemo. Of course, it could all change at the drop of a hat, but the way of life has worked for me for 20 odd years and no reason to change it now.
Josie - have a fabulous birthday!
Happy Birthday Josie hope it's a good one!!
Thanks for the info about organic milk didn't know about cows being injected with oestrogen urgh!! Think will change to organic, used to have soya before bc but have heard that its not recommended (soy milk) for women who have had bc.
Thankyou Shirley.I'm just on my way out for a lovely day with my daughter.Aren't birthdays so important after a BC diagnosis!Never thought I'd see 50 as my prognosis wasn't that great.It's hit me...... and I'm walking on air!!
You might find this information about lifestyle and complementary therapies useful
I agree with Kelley as well. If you are oestrogen receptive you might need to think carefully about changing over to soya milk plus we need all the various proteins, carbs etc.
My oncologist goes mad with anyone who talks about Jane Plant's book as she thinks it does more harm than good.
I think until they know what causes breast cancer it's about having everything in moderation.
Did you know Organic milk has no added oestrogen in it? They inject non Organic cow with oestrogen so they produce more milk, thus transferring it into the white stuff. Look after your bones and try the Organic varieties!
I'm a vegan who eats a bit of fish.I seem to be getting all the right nutriants.The only supliment I take is cod liver oil.I feel as fit as a fiddle,walk for miles and at 50(it's my birthday today!!!!)I weigh the same as in my 20's and feel (and am told I look) years younger.We can get all the calcium we need from green vegetables like spinach, and soya is not the only milk substitute -rice milk is similar.Granted the vegan lifestyle is not for everyone but it certainly works for me!
Yes i agree with last post as i was told not to change to soya as i was estrogen poss .....
so be carefull ass your bones will need calcium.
I would think very carefully before you stop eating dairy. Calcium is so important, especially if you have to take an AI. There is no scientific proof that it helps in any way. Changing to soya is not the answer as many think this is bad because it contains something that has the same effect as eostregen. A nutritionist said that the only safe way to eat soya is as tofu or miso. Jane Plant's views are controversal and unproved. She is not a doctor of medicine and although she claims her cancer was cured by stopping dairy, i believe she had chemo too. I changed to organic milk but that's the only concession I made.
I'm really interested by all your comments as I'm just reading a book called 'your life in your hands' written by Prof Jane Plant. It goes into quite a lot of scientific detail at times, a bit above me! However she is strongly for a non dairy diet and has done lots of research to back this up...worth a read and I've already changed to soya milk and non dairy spread cut out cheese and beef products, just wondering about all the other hidden dairy stuff in biscuits, cakes?! For me, coming to the end of my treatment it feels like this would be something positive to do.
Well I went dairy free after a triple negative dx and often wonder if thats the reason I'm still cancer free nearly 5yrs down the line.I didn't have a good prognosis and it seemed my only lifeline at the time! I certainly feel leaner and fitter and dont miss dairy at all anymore - except for my cheese and marmite sandwiches!! I've been vegitarian since my teens so initially I thought my diet would be very boreing but it's far from it.
I think something like this makes you reevaluate and question things that perhaps we've all taken for granted in the past. One thing I think is that there is no rhyme or reason and you have to way up the quality of your life as well. If you could live happily and not resent having to give up dairy, alcohol, sugary foods etc then it would be a positive change however if you were constantly hankering after a treat and feeling you were denyng yourself then is that good for you? I personally am cutting down on dairy and feel that I am doing something positive, perversely however my sister in law had breast cancer 5 years ago which unfortunatly spread and did not have a good ending, but when I found out she had it I changed to Soya milk and spreads and here I am 5 years later. So who knows.
We can only do what feels right for us and do whatever makes it that little bit easier.
Love caz x
I read a book this weekend, called The Choice. It tells of a woman who has had cancer twice and has decided to make some changes to her life. Changes are to stop eating dairy, distill all water she drinks, exercise more, stop eating sugary foods.
Can't stop thinking about it, though I'm pretty sure I'm not too convinced that I could manage some of these..esp the sugar thing!
I thinkit's because I can't understand why I, out of 13 kids, have managed to be the youngest one and the one who is battling this thing.
Am I going mad girls?