Privately in Oxford. An excellent woman oncologist, recommended to me by the Marsden.
I shall permanently be under treatment - because by the time diagnosis was made I already had metastasis, I have taken the line of no surgical interference but rather to contain the situation with chemo and hormonal treatments, supported by an excellent and committed oncologist.. So far it has paid off.
That is a very valid point. I work in a big teaching hospital and the specialists are excellent. However, part of their remit is to undertake research and present at conferences etc. This means the patients don't ususally see the consultants except for initial appointment as most of the treatment is then distributed amongst the registrar and house officers, who are on six month rotations. This is the downside to a big hospital, whereas the smaller ones are more likely to offer continuity. Making your presence felt is difficult enough when well, but when feeling so low, you are far more likely to just succumb and take the easy route. Have you finished your treatment now?
The problem with the Churchill is that it is not merely an oncology department but also a research centre, and the cancer teams continually change. The senior oncologists are often away on research business, leaving day to day care to the registrars. The care I had there was good, but personally I could not take the constant changing of doctors, and felt that there was not the awareness of me as an individual that would help in decision making. You do have to make your presence felt.
The treatment I had at MK in the Treatment Centre was very good was well looked after and the staff were lovely I have no complaints. I feel a bit abandoned now by onc dept. and have had to chase up appointment to get rads going. I'm having a shut in the bedroom evening, leave me alone evening feel very anti social tonight does anyone else get like that? I sound like a moaning old bag I'm not normally honest!
I have just ordered Susan Loves Breast Book does anyone else have it? Also have a Hope & Caring Bear (wanted it instead of an Easter Egg) not so fattening!
Yes a get together would be nice.
I'm another local!
I've had my chemo at MK so far (which is where I live), but will be having the remainder of my chemo & Herceptin & rads at Northampton
MK have been great so far & I can't fault the treatment I've had. Northampton have a lovely unit, and parking is indeed a bit of a nightmare, but the staff there seem lovely too.
Maybe we could arrange a MK/Npton/Oxford meet sometime if anyone's up for it?
Hi everyone and thanks for your comments
Now that Ihave time to reflect, I think the problem is that I saw a junior onc so maybe he was less likely to guide me one way or another. After having done hours of research I think my problem is also compounded by the fact that my disease is extremely rare so there is very little reseach about it directly and I am bang in the middle of the risk categories in terms of very low/ very high risk. What I am going to do is ask to see a senior onc who may be more willing to help me decide. Otherwise all the treatment I have had at Oxford has been superb and I can recommend it highly.
I feel a lot better today, thanks for your message. I have only had 5 rads on my pelvis because of the pain.
Parking is a real problem but the waiting for treatment in the rad department is not too bad. I never had to wait more than half an hour and it took longer to get me in the right position and just a few seconds to zap me.
The people I had for my rads were all young and really nice. Hope they are nice to you too. If you have any questions ask them, they are helpful and kind. I will be thinking of you on Tuesday.
I am also being treated in Churchill. I had chemo and mastectomy, now going through rads. Waiting for appt to start herceptin. I have been happy with my treatment but the waiting between treatment is hard. I'm with Prof Harris. Who are you with?
When I had a recurrence in 2005 I was treated at the Churchill and was actually very impressed by the standard of care. My mastectomy was done by a superb surgeon and though I didn't need chemo, the oncologist who did my follow-up appointments was very approachable and extremely thorough. I was sorry to have to leave the care of the Churchill when we moved to mid-Wales last year.
How are you today? I live in Milton Keynes I had my surgery in MK had a lumpectomy on the 1st Feb so am on Tamoxifen for 5 years and then Radiotherpy still don't know how many they did talk about 20 suppose they will tell me on Tuesday. Are you still having rads how many have you had? might see you at Northampton.
My doctor didn't even know I had had my surgery! communication is nil.
I answered your PM yesterday, but only saw this thread today.
We are all different. Some of us want to be given the choice, others would like to be guided. In my case I was not given any choice. I will get everything available.
Starting 6 chemo on the 31st followed by 25 Herceptin, Radiotherapy and 5 years of Tamoxifen.
I would suggest that you talk to your Breast cancer nurse and/or your oncologist and explain that you do not feel capable of making this kind of decision yourself and need their guidance. You could also post a message on this forum asking ladies who have been given a choice to give your their feedback.
I personnally think that we are lucky to be treated in Oxford as it is a research hospital which means that the oncologist have access to the latest findings and are keen to evolve in their fields as they are researchers as well.
Best of luck and have a good Easter
Hope you have better luck than me. You need to get there in plenty of time, parking is a nightmare!
Where do you live April?
I am going for rads at Northampton my first appointment is Tuesday we went over today to find where I have to go and was amazed at the parking of about 6 spaces! was told by my onc that the parking is awful its bad enough getting there then to get stressed about the parking. After your experience Anne not looking forward to it it is stressful enough without people being like that towards you.
That is hard to make you choose! I was told it had spread to my bones and chemo would not help me. I have had some radiotherapy but that was because my GP insisted due to the pain. I just feel he does not listen to me or does not answer my questions. He likes talking about other things. I think I will have to go back there are so many questions I want to ask, or I will go to my GP. Why do they not all work together?
What are you going to do Anne? It is so frustrating as they literally hold your life in their hands. My onc was very nice, but left it totally up to me to choose whether I have radiotherapy or not. I really dont know anywhere near enough to make such a big decision like that
Sorry cannot comment on your hospital but interested why you are not happy with onc. I really do not know how I feel about mine.
I am treated at Northampton. Well I go the oncology department. I went on Tuesday and had a bad experience the consultant ignored me and spoke to the trainee and practically ignored me. I came out very cross, I wish I had said something before I came away.
I would be interested to hear from anyone who has been treated at the Churchill in Oxford. I wasnt too happy with the onc there and am considering transferring to Northampton. Any comments??