Update is that not feeling too bad - gonna take my horse to a local show for an outing later so that will be an acid test. Have been feeling abit sicky at times but not too bad. What I have noticed is that I keep getting hiccups and everything seems of popcorn...?!? Is this just me being weird? xxx Keep going ladies!!!
Hi Tina - is all dairy a No No? or just ice cream? - What are people doing for breakfast if milk a no no?
Hi Bottyboo, sounds like you have a great family around you. Your description of your son fits with many of the pupils I support at school. It is a pleasure to be able to work with great pupils with wicked senses of humour, they certainly light up my day. I am planning to spend time at home continuing developing 'communication books' for individuals who don't have a natural voice. The majority of our pupils need an augmentative alternative communication (AAC) system. We then become communication partners support them to learn and eventually use their book to express their own needs, wants, feelings etc... It is an area in which I feel very passionate about and thus feel gutted that 'C' has interrupted me supporting them! I know that my colleagues will continue to support pupils and families in my absense but I am gutted to be missing the 'achievements' no matter how small they might be, in my absense. 7 off them are heading off to Lincolnshire week after next for a school journey, this is something I have planned and have now handed over to a colleague (she will be brilliant but I wanted to be part of the fun! ) 😔 I know they will send messages and photos so I will just have to enjoy their adventure from afar this year!
Hopefully you will get some non contact time and be able to use time to get on top of admin tasks.As you say there is always loads of that !!!
How are you going with your treatment?
well done Missy - been thinking about you today. Have been reading 'Tea & Chemo fighting cancer living life by Jackie Buxton - BC nurse reccommended it - easy read about Jackies experience and useful websites along with humour! Her anology of the six sessions is:
' Number one: First one done. Number two: we're a third of the way through. Three already, we're half way there. Chemo Four: I've done more sessions than I have left to do. Chemo five: the next one will be my last: Six, well in 3 weeks time I won't have to come back Chemo. In fact, God and powers-that-be willing, I hope I will never have to come back. ' - I thought this was a good to see each step and to tick them off 😎
Isobelle, thanks for your message and tips, much appreciated. Hadn't thought about having a bag ready but seems a sensible thing to do.
I want Jelly and Ice cream! Not fair! Hello everyone. I am ok after 2 days of dog-tiredness. This afternoon feel largely back to usual and been out for a walk and done food shop. Got a rash with antibiotics so they said they had to stop and will have to get different ones after weekend. Being a complete germ phobe at moment. Sat in garden eating icepoles earlier.....so far so good. Xx
Thanks for your best wishes 😉 Well, first one done and ticked off. It was ok - am feeling abit like I have a hangover at the mo and have been trying to drink and drink lots of fluids. Feel like am stocking up to run a pharmacy!! Everyone at the hospital were lovely and I had jelly and icecream for the first time since I was a kid! xx
I hope you are all doing ok.
Tina - how did it go and how are you? I've been thinking of you.
Missy - all the best for today (big hugs)...
Flower and Geraldine - how are you?
Cal and Sue - Sounds like you're both well prepared. Just been trying to think of tips I've been given which you may not have thought of which I've seen on various forums.I bought a blender to make smoothies (Amazon delivered the next day). This week (started Monday afternoon) my appetite has been almost non-existent so even just having an easy smoothie (eg pre-prepared packs of fruit for smoothies blended with apple juice) helps. The Royal Marsden Cancer cookbook is good and discusses diet and nutrition and has different recipes for different issues that can arise while on chemo. We tried a few recipes last week and the all went down well. Perhaps ask other to prepare some for you if you aren't into cooking ... Accept all the help offered, I have two exercise books. One I have used to list important numbers, including a list of people who have offered to do different things to help and for writing down messages/reminders to myself in case I forget things and another I have used to keep a record of which meds I take when and what my temperature and symptoms are so next time I can look back etc. Macmillan have a good app for this too but I find I prefer to write on paper, better/easier in the middle of the night! I am also using a book to keep a reflective journal. Look after your nails by using nail strengthener, I find Nail Envy good and also keep your cuticles and hands and legs and feet well moisturised (cracks can let in infection). Buy some antiseptic cream and plasters and carry them with you (I keep some in my handbag). Also use antiseptic wipes or hand gel when out and about. Baby wipes are good for the days you might not want a full wash. I also have a stock of cleaning wipes at home for cleaning round the kitchen and bathroom as they are a lot less hassle and I'm all for making life easier. Also I have an overnight bag packed just in case I have to go into hospital (pjs, undies, slippers, toiletries, notepad, pen, book, small amount of cash in case needed). Hope these ideas are helpful!
Bottyboo, I hope the waiting is ok for you xxx
I hope I haven't missed anyone out here?
You are all in my thoughts,
Sue, sounds like you plan to keep busy with work. Like you I can do paperwork and skype into some meetings but I will miss the face to face contact with the kids. A coffee might be nice, I will take a look at the map .... i am sure we will keep in touch here😎c
Will be thinking of you tomorrow - Missy
Geraldine - I have an appointment booked for Thurs and also a bone scan on Fri - do you think that is ambitious/ do able?? I know we are all different but hoping to tick these boxes by attending if I can. My other question would be how has you appetite been and do things still taste ok? Kinda dreading starting but also just want to get going so that feel more in control!
My first chemo treatment is tomorrow! Anyone else bucking superstition and starting on friday 13th?! Am 44 and am having neo-adjuvant chemo - grade 3 invasive ductal carcinoma with lymph node involvement - have scans next week..... am trying to take all in my stride but is difficult! This forum is great x
Thank you Cal B ... we're on the same regime. The 1st cycle hasn't been too bad at all so I hope all goes well for you next week. Drink lots of water, try to eat little and often, listen to your body and be kind to yourself getting plenty of rest.
If you have any questions, just ask away
What do you do? I have had to stop working - too risky as I work with some fantastic children who have very complex medical needs BUT I am planning to skype in and keep in touch. I have bought home some 'homework' so hopefully I will be able to still be productive from afar! I am sure your boss will be supportive even if they are a little suprised. C
sorry Sue - new to forums and didnt see you previous message !!!!!! I am going to Canterbury for my treatment. I am planning to shop over weekend to get some 'ginger' products and some ready meals just incase I need something quick and easy! Hubby around and can put things into the oven but neither of us are 'cooks'! Maybe I am being too ambitious to think that I might fancy food? I heard that it is important to drink at least 2L of water day before, day of and day after if poss - I guess this helps with veins and also flushing the system ??? I am open to all tips! I will let you know how things go. x c
Hi other ladies on this thread. I am following all comments and finding the chat very useful. Hope you don't mind me joining the thread. I hope I can offer some moral support too. x C
Hi Geraldine pleased to see that you are not feeling too bad. I am booked to start Monday 16th May - 6 cycles FEC-T. Met team this monday and had CT scan today as well as seeing consultant re a wig and scarf, cap options. Will get hair cut shorter tomorrow, thinking that if I go shorter now then I will be able to get rid of the wig quicker on the other side!! Well thats my plan😎. I am in Kent and will be checking in on the forum to see how everyone is doing and offer some 'hugs' from a far.
Hi sue, yes we have nattered on another thread :), you are nearly there now. I have just nipped across for a nosy from April 16 thread so not sure where people are from but I am sure one of the lovely ladies will feedback. Good luck x
Good luck Tina, everyone is different but I dont feel safe to drive home after treatment, heads to muzzy. X
Hiya Tina, I wouldn't have been able to (felt a bit dizzy) but we are all different. Probably better to ask someone to help if poss, will be thinking of you, take care Isabelle xxx
Just checking in.....still ok.....tired most of the time but otherwise ok.....went or a short walk earlier. Good luck for tomorrow x
Hiya, I've mostly achy late this afternoon but everyday is a day closer to this finishing right? About cold capping, I've heard it's best to take paracetemol before hand and take whatever you can to keep warm, those microwaveable wheat bags, blankets, scarves etc xxx
Hi, im booked for 12 or 12.30, ill find my card out later. Can you take them during it too to help? Were you warm enough? What clothings best? X