Hello chemo buddies!
Well I have returned from having a look at wigs. I was adament until a few days ago re hats as didn't like the idea, but decided to have a look. Imagined it would be upsetting etc, but actually tried on 2 and the 2 nd one was great.....exactly the same colour as mine which is long but stylish bob.... Not wiggy at all. So much happier re this side of things. Will have a pixie crop at weekend and then wear it from that point so looks like I have had a hair cut. Just thought I would let you know not half as bad as I imagined.....x
Tina I asked about having my ovaries removed as my BC was ER + 8/8 and to me it made perfect sense to get rid of them but oncologist said it wouldn't make much difference as we also produce oestrogen in fat and muscle! You learn something new every day 😉
Chemo is to treat whole body with chemical flush and radiotherapy is localised to kill any cells that may remain in chest.....
Next potentially stupid question. ..im having to get chemo because my cancer was grade3 so "potential " of some escaped cells right? Even though its all been removed plus clear nodes. Its a "prevention "(that has no guarantees ),oncologists words. So is radiotherapy going to do the same job afterwards? Apologies in advance! Or is it because its er and her2 positive too? Xx
Yes, let us know what your oncologist says. Whats the injection she said id have to give myself further down the line....i couldn't take it all in or make notes, nor could my daughter. And is there a thigh injection or have i dreamt it? Im having weird dreams! X
From what I can gather having ovaries removed produces harsher immadiate menopause with more risk of osteoporosis, but I will ge asking this question myself as 100% ER.
You know what Tina, that is exactly the question I want to ask my oncologist tomorrow afternoon! I think from my own research that they used to do that in times gone by, but now there is some injection or other that stops the ovaries from working. I'll let you know what mine says.
Well id never ever heard of it! Hope your meeting goes well.
Does anyone know. ....if ive been told its oestrogen receptive too, couldn't i just get my ovaries removed? Is that a stupid question? X
Yea, I've just read it Tina, BBC front page, top news. Exciting times ahead in terms of treatment developments I hope. X
On this theme, anybody here actually invovled with any trials related to gene therapy?
I bet its not possible to delete the other may thread is it?
Has anyone seen the news tonight regarding breast cancer? Xx
We are all scared but take all the tips you can from this forum. It makes you feel more prepared. I don't know what is coming for me with 6 x TAC but I am going to try and do my best with it. This time next week I will be on part 2 and getting on with it will be better than sitting around fearing it for me. I will have to find (again) my inner warrior. It is like some cr##py endurance test and largely an isolating experience. Olivia Newton John talked about how she imagined a river of gold going into her with chemo! Not sure I will manage that. x
Thank you so much for your reply and for sharing. I am feeling so, so lonely and scared, I can't even put my feelings into words but I read all these posts about how other people are feeling and realise I am not alone. Is the weight gain due to steroids or due to being thrown into menopause or just a general side effect ?
I hope the rest of the time on chemo goes quickly for you.
Again, thank you so much for replying, love Isabelle xxx
I think I am on weekly Taxol because tumour is stage I/II, ie early stages and it was thought that the lower dose of Taxol would be well tolerated as it's every week for 12 weeks. I've just gone back to the notes that were taken at the time (my sister has been with me for every medical appointment, writing stuff down for me) and can see: "20mm tumour pls 4 nodes removed - good, Grade 3 - aggressive, bad!" Also, the pathology report showed the tumour had spread to lymph tissues though not lymph nodes. Breast Cancer nurse continues to remind me that every case is different, and that the same diagnosis may have different treatment. Having had 8 cycles I am getting used to the routine of blood tests on Wednesdays, chemo on Fridays and am starting to recognise some of the "regulars" who are on 3 or 4 week cycles. I just want it done. I'm really feeling the cumulative effects now, particularly fatigue and get one or 2 good days before cycle starts again. I've put on nearly a stone, which I hate, however I make sure I wear the fitbit (or unfit bit in my case) to try and walk more on the days I feel better.
Every case is different, and the most important one is "yours" so look after yourselves, ladies, love & luck to you all.
Hi Geraldine, Great to meet you! But I so wish the circumstances were different ... I think we're all feeling similar, but will be good to have the support of each other, so that's three of us starting the 9th ... xxxx
That's great ... I'm so grateful for this site and having the opportunity meet other ladies experiencing the same feelings.
I'm on FEC-T x 6 followed by 15 rads.
Hey Geraldine, you are in! What regime are you on? It really is a pile of s##t isn't it.....we will support each other through xx
I'd love to be a chemo buddy as I also start on the 9th May.
The closer it gets, the more anxious I'm feeling. I'm usually a really strong person and most of the time I can put on my positive hat but this whole diagnosis has floored me.
I'm 51 and was diagnosed with triple negative in Feb. Had a WLE in March where they removed a 30mm tumour and 26 nodes, 5 of which were affected. Margins were clear.
It's all been a rollercoaster of emotions as cancer does not run in my family. I had a CT scan last week and booked for a bone scan next. My oncologist has also suggested tested me for the BRCA-1 gene and if positive putting me forward to take part in a clinical trial. My head is all over the place waiting for results and trying to accept my current situation at the same time.
Would love some support and help support others along the way.
Thank you Mary. I am preparing in little ways......got ginger cordial and ginger tea and ginger biccies!, prunes, thermometer, notebook for symptoms and temperatures, trying on scarfs to practise for around the house, booked wig appointment just to have a look.....
I was a bit angry inside when I asked onc what I could do to try and get best future outcome for me.....apparently there was nothing. I asked re vit D but not interested even though had level checked at GP in preparation. I already know re the brisk walks for 30 mins and have been doing but not even mentioned. Surely they should give you some things to feel you are helping and working to get best outcome together. X
Thanks for your post. I was just wondering if you know why you are having weekly taxol as opposed to FEC or FEC T as your diagnosis is the same as mine!
Hi Flower and other May starters,
Just dropping in from Marcch 2016 starters to wish you all well.
My circumstances slightley different to yours - HER2 positive, stage I/II grade 3 so have had lumpectomy, 8 out of 12 cycles weekly taxol and have cold capped, hair a bit thinner & finer but still there. Another month of chemo to go. Herceptin injections are every 3 weeks, and I have radiotherapy "with boost" to come after the chemo. Hospital where I have the chemo has excellent Macmillan Centre which offers counselling, aromatherapy, relaxation, make up etc. The counselling has helped me come to terms with fact I have been off work since Jan 4th (day before dianosis) and will likly be off until Jan 2017. I am a teacher in a special school but feel totally disconnected to it as my life now is weekly blood tests & chemo; next it will be daily radiotherapy,
Sorry to hear you have negative oncologist, use the forum to get questions you can ask as well as all the support you need.
Take care of yourselves,
Sure, I have had breast conserving surgery and auxiliary node biopsy. I have had two ops in the last few weeks and am still very sore from the second op two and half weeks ago because my nerves were affected. My lump contained DCIS and grade 3, HER+, ER- and the plan as far as I am aware is to start with FEC, then herceptin and radiotherapy xxx.
I was was just looking at booking a spa weekend for when it finishes then realised I probably can't go due to the treatment so will have to think of another treat!! X
Do you mind saying any more re your diagnosis and chemo regime planned? Ok if not...I was very scared re the surgery too but in reality it was ok really and I have bounced back really well. Never had so much as an grumbling appendix or anything pre this so starting pretty major. X
I feel very similar. I have curly shoulder length hair and I know it will come as a shock even to see myself with short hair, let alone no hair. I keep wondering about cold capping but I don't want to spend more time at the hospital than necessary. I'm sure we'll get through somehow even if we have our wobbles. Good to have someone starting the same day 😊 XXXX
We can stick with this one maybe. I have random crying episodes re this and the whole damn lot. I am so into healthy eating and living that to fill my body with this goes against everything.......however not stupid enough not to do it and rely on a few berries and some flaxseed! We will get there together literally.....i will get hair cut this coming week and looking at wigs on tuesday but just not sure about it x
Oh good 🙂
I notice there are now sort of two May starter threads! Shall we stick with this one?
I am starting the same day as you and coping one moment/panicking inside the next but putting on a brave face for my family and friends ...
Planning to have my hair cut this week in preparation 😞
I am normally a confident person but this has really knocked the stuffing out of me. I am anxious now most of the time. I have recovered well from mastectomy and start chemo earlier (4 weeks) due to this. I did not get offered immediate reconstruction but am ok with it currently cosmetically. It is the thought of rogue cells which I cannot bear. The oncology appointment was so negative that I dread going again. I am aware this is a serious situation and terrfying me was of no benefit. My surgeon said oncologists tend to be jaded and negative due to the fact they tend to generally see people not doing well, and not all the women out enjoying life again. I prefer her more optimistic approach. X