I like to look at it from the position that I am cancer free for the moment. My doctors are very positive, in fact my oncologist told me that I didn't have cancer any more after my 2 ops, but I don't want to tempt fate so will never use the "I'm cured" phrase. Because mine was hormone dependant, I probably never will. My mum had cancer when she was 45 and it will be her 80th birthday next July. I've learned quite a lot from her positivity, and as they suspect it may be genetic (though not BRCA 1 or 2) I hope I can emulate her and go on to live a full life. The recurrence issue is my main worry, and since lobular cancer is more likely to reoccur in either breast, my surgical team think a bilateral will give me the best quality of life.
Ann x x
Thanks Ann, I think I am already recognising that a change for the better is that I have a different perspective already...not so easily wound up or complaining about trivia! On the down side, I think I am not ever going to feel really safe again, even if my outcome is positive.
You have had a lot of treatment already...are you in remission, or it that too soon. I suppose you are having the bilateral mastectomy so that you can get rid of the worry about a recurrence? When you are diagnosed; there is so much racing through your mind and all this new language to learn, that trying to hold out for more surgery than they thought necessary would have been impossible. In the end, it's your body...I think you're making a good decision and will feel relived once it's done.
I'm 53 and have four grown up daughters and fed three of them....mine have done their job so if there is any question that a mastectomy would be better than a WLE, then so be it! I'll keep you informed, seeing the surgeon on Wednesday, so I hope I'll at least get a date for the op.
i was was diagnosed way back in November 213 with a grade 2 invasive lobular cancer with no node involvement. I had 2 X WLE (second time to get clear margins) followed by chemo and 15 sessions of rads with 3 boosters tagged on at the end. I coped really well with chemo and had no problems with rads other than my skin split directly under my boob. I managed to work throughout my treatment and tried to keep my life as normal as poss during treatment. I finished active treatment in September last year, and while I have healed really well physically, emotionally ive been unable to move on. My mum is a BC survivor and underwent an immediate mastectomy, whereas my aunt had WLE followed by mastectomy later and died of the disease (although I must stress that my aunt died in the 70's when treatment options were limited). I had decided from an early age that if I was unfortunate enough to get BC, I would want a mastectomy. On diagnosis my BCN and surgeon managed to change my mind, and it's a decision I've bitterly regretted since. So now I'm going to undergo an elective bilateral mastectomy with immediate DIEP reconstruction at the beginning of December.
Sorry for for going on! I sound like a right manic depressive but I'm generally really well and now that I know my mastectomy is going ahead, I have long spells where I totally forget that I had cancer. It's changed me as a person. I'm much less judgemental and much more relaxed than I was pre cancer and things at used to drive me mad don't bother me anymore, so there's definitely been some positives to having this horrible disease. I hope you get the best possible results from your surgery and that you're spared chemo and only require rads. Will be checking in to see how you get on.
Take care and big hugs, Ann x x
Thank you for your kind words Ann, everybody here is so lovely and supportive, it's good to be able to talk to those who really understand! I have been looking at the 'Newly Diagnosed' section too, but there are so many ladies and all at different stages and with different situations that I felt a bit overwhelmed that and think I am a bit 'in between' at the moment...until after my surgery and the results from further examination of the lump and node, I am still quite unsure where I will be heading. I'm beginning to understand why the ladies here talk about a 'journey' and it's becoming clear that things are going to change along the way!
If you don't mind me asking, how far along the line are you Ann, and how have you been coping with the treatments?
I'm so sorry that you've had to join our club, I had sincerely hoped to be reading that all was well with no further treatment required. However, as Jill has said, 10mm is very small (mine was a whopping 37mm grade 2 lobular cancer in comparison!) and you've found it very early. If all stays the same once the lump has been removed, all the stats point to you having an excellent chance of beating this. And as you travel on your journey, you'll have all these lovely ladies to support you and keep you company. Take care Ann x x
So I have a diagnosis of a Grade 2 invasive ductal cancer. I am seeing the surgeon on the 19th, then hopefully about three weeks after that, have an operation; a lumpectomy and a 'sentinel lymph node procedure'. Only when they examine the removed lymph node will they know if the cancer has spread, I think those results come in a couple of weeks after the surgery. 2 - 3 months after the surgery they begin radiotherapy. (They didn't really want to talk about chemotherapy as it was "jumping the gun" but I expect that will come into play if they find the cancer has spread) They said it is not life threatening but really, I realise that they say that without really knowing if it has spread. I don't recon I will have a fuller prognosis some time late September or October.
Not what I wanted to hear of course, but there it is! I don’t like having to wait so long until they can tell if it has spread but I am happy with the hospital and they way they are dealing with this.
Yes, when I give it some more thought, I do quite often think that something will turn out bad, so as not to be too upset when it does, or pleasantly surprised when all goes well; so I guess my thinking now is about the same, but the stakes are higher!
I will definitely be trying to stay positive if I am diagnosed and you're right of course, the treatments and research are coming along all the time.
Now, time to try and get some sleep, I have only had one bad night so far.
Thank you you so much for your encouragement and positive words!
I think that's about where I'm at! Maybe I should be more positive...this is definitely uncharted territory!
Thank you for you kind words and support, it really does help and means a lot to me. I guess you think the worst and hope for the best, but for some reason I have this feeling that I will not be getting the all clear; must be the inner pessimist I didn't realise I had! Not sure how well I will manage to sleep tonight, I find myself wondering just how many people are out there right now, waiting for results and also how many having treatment? I feel guilty that I have never given it any thought before. I will keep you posted, hopefully sometime tomorrow afternoon xx
Well I didn't get a call today so I will be going to my appointment at the clinic at 11 am tomorrow, all being well. I am extremely nervous about hearing the results of the biopsy, though! It's weird thinking that by the afternoon my life might have been turned on its head, or that I will be very happy; right now I just don't know but a few others at the hospital probably do! xx
Yes, I'm keeping off Google for now, just here for now and maybe I'll look in on Cancer Research, especially if I get a diagnosis, or the help line here. Just hoping that I won't be getting a call on Moday to says my results were not back from the path lab as the team only meet to discuss results once a week! x
Good advice Jill
Faed cancer research uk is very informative along with breastcancer.org I stick to them two for any info I want. x
I'm the same as you re wanting all the info. The nurse actually said they left it off letter as a lot of people prefer not to know. We are all different but I have read so much I keep saying I should take a doctorate after this lot! Not that I understand half that I am reading. lol x
Haha, I can hardly use the phone keypad, I'm on a full size iPad, and have to keep a firm eye on autocorrect! Glad your hospital staff were so good, it's amazing that there is such a difference in the information given, hopefully they will take on board you suggestions. I am on the side of wanting as much info as possible, this probably doesn't help with the waiting not knowing stress, thought!
bet you can hardly wait for mid August, and your next 'new normal'!
Oh yes, great news Suzie, hearing of other ladies getting good news is reassuring, as you know everyone who goes to the call back isn't diagnosed with anything serious. On the other hand, it's also so helpful to hear from the ladies who are in the various moments of their treatments.
Lorna, you had a horrible time on your call back, that must have left you reeling! I had a three part letter, the first was to me, telling me about the appointment date, there was a map of the hospital showing where the breast clinic was and another generic one, outlining what would happen at the clinic, more mammograms, and ultrasound and discussion with the doctor who would tell you what they were seeing and then if necessary a core biopsy and it also said you wouldn't get the results of the biopsy for a week. Given that information and then what I could find on the forum here, I had no big surprises. Maybe I am lucky with my hospital, but their care and kindness made a bad day much more manageable. If only they could get the biopsy results quicker, I am worried that I won't get them next week due to staff holidays!
Faed it's virtually impossible to stay positive whilst waiting for results, it's such a shock isn't it. I have to say I thought the worst part of this whole thing was the call back. I only expected another mamogramme as I had been called back before. like you, after more mams and ultrsound they told me they would do a core biopsy.. didn't even know what it was! I was in complete shock when they cut me there and then. left a marker in, took a sample etc.. horrified as were the other 3 woman I was with. I told the nurse that they should give us a bit of a hint on the standard call back letter that this can happen on occasion, I would have least been a little prepared!
Beyond that I had to wait 2 weeks for results and it was positive but very very small (6mm) and they could see no lymph node involement but this wasn't confirmed until after the op.
I hope you get the all clear but if it's positive try not to panic, they can do so much these days.
I am 9 days away from my last radiation treatment and then life will ressume hopefully!
sending love and keep us posted
You are very welcome Amanda, I am very pleased that you have found the forums so supportive and that's great to know
Thank you Lucy, I am so glad I found this great website and forum, it has truly been a wonderful site to have found! I was working myself into such a state and then getting more upset about being worked up, too! Reading the comments from all the lovely ladies is so helpful, just to know other people were feeling the same seemed to take the pressure off. I also learnt quite a lot of what to expect during the first appointment which helped tremendously as well.
I might well be on to your help line once I have got some results, it is so good to know you're there, it's like having a safety net!
Thank you again,
Thank you so much Ann and Macdon for your encouraging words, I do feel silly about being so pessimistic, especially at this stage! I will definitely let you know how I get on, hopefully it will be the 11th but I will report back, whenever and whatever they say. It's a whole new felling of uncertainty that I have not really experienced before, I'm usually the one organising and doing things and now my husband and my youngest two of my four daughters who live with us (they're 23 & 20) are rallying round and propping me up! I haven't told my eldest two yet as they are having a surprise get together for one of their birthdays next weekend and I don't want to put a damper on it...anyway, there is nothing much I can tell them yet! How are you finding the waiting Macdon? Have you any idea what they are intending to do at your next appointment? Amanda x
Hi A.Faed and welcome to the BCC forums where I am sure the support has helped
Please also feel free to call our helpliners if you wish to talk things through, lines are open 9-5 weekdays and 10-2 Saturdays on 0808 800 6000 and they offer a very good listening ear
The waiting is tortuous, so please don't be hard on yourself. Hopefully, the results will reveal nothing more than a fibroadenoma or a lipoma. I can remember thinking I wasn't going to make it to the end of the week and was as miserable as sin!! It's perfectly normal to feel this way. Come back and tell us how you get on and I truly hope I can be first to say how happy I am that you've been told it's nothing to worry about. Take care and be kind to yourself. Ann x x x