Looly that's good to know, I was terrified the first time so was hoping this one will be a bit easier as you know what to expect, just hope tweaking the anti sickness drugs make a difference.
It is mandatory (i am sure they are prescribable lol) to have treats while able I had 2 glasses zinfandel the other night and was nearly upside down on the couch as it's been that long! Enjoy while we san x
Just been out for a current date night with hubby and it all tasted ok.. weirdly the nasty ice cream desert thingy was good too.
Pixie hair cut done, wine ad chocolate all the way... we deserve treats when they taste ok!
I had naff all sleep for the first week or so and was told the anxiety pills are fine in the mix... if they help then I would take them.
Has anyone else had a wig fitting nightmare session yet(ie I have to go back in two weeks as none of them would fit my head!) Just wondering if there were any fellow big heads out there with advice?!Xxx
Night all x
The hair is going today, it's coming out in handfuls and as i was arranging picking up the kids next week with one of the mums the wind was blowing strands all over her!😕
Hi Sarah, no I got up in the end, dogs looked at me like I had lost the plot! Everytime I nearly dropped off oh snoring like a hog.
Internet shopping is becoming a bit of a hobby and I got so exited about the price of some lovely fast heated rollers that I nearly bought them forgetting for a moment I won't have any hair for quite a while 😕, must be the lack of sleep!
Hehe 'fec off' love it Helly!
*snort* i know you have to be careful what you say lol😊
Hi misty have sent request, you should see white/black spotted greyhound, i also haven't put anything on fb bc related x
I noticed there was a roll-call which I missed a while back so I'll reply to Misty's list.
I'm Ali-B - 46, married to a great husband and kitty-mum to two cats and live in Surrey (no I am not posh)! Diagnosed Christmas 2015 and started chemo late Feb 2016! I work in IT and am desperate to get back to work it can be stressful at times but I really enjoy my job and love my colleagues who have been so supportive during this time. I am learning to play the guitar and it has been a saving grace during this time. But *BOY* I can't wait to think on planning a nice holiday when this is all done - mainly because I have no idea where I want to go!! 🙂
Day 13 here also but wasn't brave enough to try cold capping (or cut it now lol). It's prickly and I feel like I have nits (although I've never had nits!) so am presuming it's about to fec off in the not to distant future. Fingers crossed you don't have much shedding after the cold cap x
I wish I was brave enough to cut my hair off now because the waiting for it to start coming out is getting on my nerves! I seem to be finding more strands about but that could be cos I can't stop running my hands through to check 😕
What a busy thread!
Thank you for getting up the Facebook group idea.... I have just friend requested you on it Emily.......
Looking forward to a good old kip at some point soon...... xxx
Love to one and all xxx
Thanks Sarah and Becky, I will be using a paxman machine, so thanks for tips. I have been to chemo centre, was worried what it would be like, but was pleasantly surprised at how friendly everyone was and how comfy it looked, there was also option to have treatment in a side room if I preferred. I have the headbands and conditioner, but will look into the tea 😀👍🏻 Xx
Hi Ladies, I am another April chemo starter, lucky me!
I was diagnosed on Feb 17th following a routine appointment for mammogram. I had not felt any lumps, and as I am under the age for normal screening, I was lucky that I was called early.
I had had a therapeutic mammoplasty on March 10th which my lovely surgeon removed the lump with good clearance although I had to have auxillary node clearance surgery on March 24th. MRI and CT scenes were clear which was a relief. This Tuesday I am having a portacath inserted and my first chemo session is this Thursday. I am having 3 X FEC and 3 X T. I am planning to cold cap as the original operation has left me with one E size and one C size boob so I am already pretty odd looking so fingers crossed I can keep as much hair as I can 🙏🏻. Once chemo has finished my Dr has recommended hyper fractionated radiotherapy, has anyone any experience of this?
This forum has been a godsend with tips and advice. Good luck to everyone going through this process, it's definitely not easy but feel part of a good group being on this site 😀
OK folks, I have found out how to set up the group, but need to invite people to join in order for the group to agree to let me start it.
Could at least one of you find me on FB (my full name is Emily Stokes Hotchkiss and there's a picture of a white dog on a green background) and friend me. Then I can invite you. Ultimately that's what we'll all need to do in order to join the group (i.e. friend each other so I can invite you).
Hope everyone whos started chemo is doing well.
I started on Thursday the 14th, today has been the first day of feelin okish - slept better last night and have only taken 1 anti-sickness tablet today. Am having 4 cycles of EC then 4 of Taxol.
I got diagnosed with Breast Cancer on January 8th, had my lumpectamy on January 22nd. Originally lump was 2 cm and grade 2 but went to grade 3 and a total of 4.5cm was removed during the operation with clear margins. My Breast Cancer was hormone related and ER8 and PR 7/8 positive and HER2 negative.
During the lumpectamy they tested some lymphnodes and I had to then have my lymphnode removal operation on February 23rd and the results were 1/8. Due to that 1 lymnphnode having cells in it i was told i'd have to have chemotherapy.
I do not have children and did the fertility freezing which was, after some hard work, paid for by my NHS area.
Prior to January 8th I was a long-haul flight attendent based at Heathrow.
Had to have a number of scans before starting chemo - body and bone scan, heart scan and CT scan. The CT scan showed something 'suspicious' on the pelvis so I had to have a MRI the day before starting chemo. MRI was the worst scan i've had so far - partly due to having to keep my arms up behind my head for 40 plus minutes which was painful after my lymhpnode surgery and those doing the MRI showed no interest in this! But was also extremely noisy and uncomfortable.
Am hoping to get my results of the MRI when i'll see my oncologist again on Monday 25th-i'll be having next chemo on the 28th, every 2 weeks as my oncologist said this has shown to be a 20% reduction in it returning in my age group. This was discussed at the recent European Breast Cancer Conference which my oncologist attended in March 2016.
One down 7 to go!........Best of luck everyone during this treatment, Rebecca
Hello all, I hope everyone is doing as well as they can be. I'm feeling okish. Still quite tired and muzzy hedaed nut alotbetter than Friday afternoon when I felt really terrible and just slept. Hopefully, no other side efects will surface this cycle and the tiredness will lift soon. I think I can cope with the fatigue if it doesn't get too much worse. Its just tricky hving to get on with things as the OH is also crocked and needs looking after.
I had a go at my stomach injection this morning without much success. Luckily my medical student son took control and showed me how to do it! He'sgoing back to Uni later so Ill have to do it myself tomorrow.
Here's to a sunny week ahead and getting a bit more back to normal. xx
@Guest user wrote:
Good afternoon ladies
My mastectomy scar is feeling quite painful and delicate this afternoon. Yesterday is the first time I washed by standing up in the shower and letting water (and shampoo and conditioner) run over my upper body. I am now wondering if the shampoo and conditioner were wise. Hadn't even used soap on the area. Had the op 3 1/2 weeks ago. Had almost no pain at any stage other than the odd twinge and now today getting regular stabbing pains in the scar area. It all looks ok, but wondering if anyone else has had this?
Also, I spoke to my friend who had BC 2 1/2 years ago. She had recommended these forums. I said I was finding our conversations useful, but finding it hard to use the actual site because we're sometimes having multiple conversations at once. She said her chemo starter group started their own secret private Facebook group as a way of having multiple conversation threads more easily. Would any of you like to do this? I have never set up a group on FB, but am sure I can figure it out.
Sending you all sunny vibes - so grateful sun is out after yesterday's freezing yuck