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Apri 2016 chemo starting? Please join!

helly18
Member

Re: Apri 2016 chemo starting? Please join!

Yes, it was a very good day. Thought it would be useful to post for others  starting out that read the thread that there are good times during chemo ☺.

Pants about the hair, I found slow shedding started probably around same time but really picked up a week later. Xxxx

sunshine1
Member

Re: Apri 2016 chemo starting? Please join!

Sounds like you've had a good day helly! My hairs started sheding today..not sure how I feel about it! Wasn't Expecting it for a few more days as I'm only on day 11 x
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Boiling weather today,cant seem to tolerate it like i normally do. Walked the dogs on the beach, kids swam in the sea,ice cream and garden centre which has a fab play area. Now that shattered i cant move 🙂 x
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Mmm,now the weathers warmed up the sight of a picc line seems to generate more interest than headscarves, off to esty to look at a cover 🙂
Zoe2016
Member

Re: Apri 2016 chemo starting? Please join!

Leo, bex that is number two done a step closer to finishing, I hope you are both having minimal side effects, just to note one of the side effects of ondansetron is constipation so make sure you speak to them if needed.
Leo sorry to hear your news and I hope chemo kicks ten tons out of the tiny little s#$t!
Bex hope x-ray went well. Take care and hope you get some sleep tonight x
Bex1980
Member

Re: Apri 2016 chemo starting? Please join!

Sorry to hear you're feeling rough already. I'm feeling really tired but am too scared to move from the sofa incase it starts the nausea off (like last time)! Hope you manage to sleep some of it off. My 9 year old has busied herself making cakes in the kitchen whilst my mum supervises remotely from the lounge as she was insistent on doing them by herself! That's a shame about Common People. I think my sister has tickets for that again this year. Like you said a rug and a good friend/husband to look after you will hopefully make it possible still xxx
Leo
Member

Re: Apri 2016 chemo starting? Please join!

........ Hi back

Yes, they couldn't find a vein for a while but got there in the end! 

I was just thinking the same thing on the sickness drugs front...... Hope you feel ok, I am starting to feel a bit rough so have taken the eve one and going to have a kip now....... kids home soon, volume control up!

Bit fed up that the next one is just before bank hols weekend ... we are booked in for common people!!

Mind you, I could always do it on a picnic rug I guess?!

 

hugs

 

Leo xxx

Bex1980
Member

Re: Apri 2016 chemo starting? Please join!

Thanks Leo, I've been booked in for 9.30 in 3wks time. Looks as though you had a bit of a nightmare with the canular this morning. Hope you weren't there for too long after me. I'm at home now a bit spaced out & waiting for the sickness to kick in which I think will be around 5ish! Just trying to make sense of all the meds again! I know I have to take the Ondansetron around 10pm this evening but I'm sure I took another anti-sickness tablet when I started to feel sick last time. They've changed them though for some reason. I had Metroclopramide last time and have got domperdone this time, although I imagine there are pretty much the same thing xxx
Misty
Member

Re: Apri 2016 chemo starting? Please join!

Sending you big warm cyber hugs and really thinking about you, Leo. This is such a rollercoaater ride and these *bleeping* knocks are hard to deal with. Love xx
Leo
Member

Re: Apri 2016 chemo starting? Please join!

Awww thanks all, what a fabulous support to log on and read xxx

Chemo all done and back home chilling out now...

Bex, lovely to put a face to a name..... we will probably see each other again I am sure.. I am going to ask for that time slot as it helps with school run etc.... Hope your x Ray went ok xxx

Much love to one and all

 

 

 

Take care xxx 

Love leo

Loolyboo
Member

Re: Apri 2016 chemo starting? Please join!

Hi Leo, thinking of you this morning & BIG hugs your way 💕
Loolyboo xxx
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

So sorry to hear that Leo but as the medical team have told you the chemo will likely sort it out. It so hard getting news your not expecting but you will deal with it on out own way and we are all here to support you. I will be thinking of you. Lou x
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Oh Leo that is **bleep**e news for you to have to think about at the moment! Heres to the fec-t making everything fec off! Sending huge hugs xx
Bex1980
Member

Re: Apri 2016 chemo starting? Please join!

Hi Leo, sorry to hear you're feeling a bit low at the moment and the **bleep** news you've had. I imagine everyone is trying to tell you to remain positive but I know how difficult that is. I've got to have an X-ray this morning pre-chemo on my arm which I still have pain in so not looking forward to that. Will be in chemo chair 1 though from 10am so hope to see you at some point. Sending you lots of hugs xxxx
Sarahkears73
Member

Re: Apri 2016 chemo starting? Please join!

Hi everyone, Lou, yes we can do this we just have to keep reminding each other. Leo, sorry to hear about the spot, good news it's just that, a spot and the chemo is going to blast it to kingdom come. I remember the sinking feeling I had traces in 2 lymph nodes and remember being more upset than when they told me originally. Lots of hugs and love, imagine that chemo as ninja warriors killing off your spot!! Xx
sunshine1
Member

Re: Apri 2016 chemo starting? Please join!

Oh Leo that's really rubbish news. But really positive they think they have caught it so early!

I hope tomorrow goes OK for you and the SE are minimal.

You will be in my thoughts. Massive hugs xxxx

Have you tried out head scarfs? They come in loadsa sizes 😉 xx
Leo
Member

Re: Apri 2016 chemo starting? Please join!

Hi all,

Not posted for a while..... have enjoyed the whole feeling better thing, but now due in for round 2 FEC tomorrow am... goo luck to the other ladies that are on today and tomorrow..... think it was Becky, I may see you in the general... I am in chair 3!!

I have had some really rubbish feedback from the PET scan this week, outlining a possible spread of a tiny spot of B.C. in the liver...... absolutely beyond gutted.......

I have been told it has been caught so early that it is very highly likely to respond to the FECT, and if it doesn't then there are a lot of options to sort it out immediately after chemo........ really **bleep** news to try to digest, and a bit angry that they felt it needed sharing so early on in the chemo process...

Feeling very low about it, so any cyber hugs or support are very needed at the moment...

Oh yes, and still no wig option for this big head of mine, sniff and sob!!

 

Night night all xxx

LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Thats good Sarah. i am working from home and currently have the sun bearing down on me whilst i am using my laptop sat in the window chair.

 

We can do this. 

 

 

Lou x

 

Sarahkears73
Member

Re: Apri 2016 chemo starting? Please join!

Glad you on the up, I've just taught my Skype lesson so lovely to feel a bit better isn't it?! X
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

that made me smile Helly. I do think the better weather helps.

 

 

 

Lou x 

helly18
Member

Re: Apri 2016 chemo starting? Please join!

The sun is shining, up showered  and walked kids to school, woo hoo on the up. Highlight of the day a trip for picc line flush and dressing change 😅.

helly18
Member

Re: Apri 2016 chemo starting? Please join!

Zoe,have you discussed it with the uni as depending where you are on the pathway depends on the time left to complete so potentially you wouldnt lose credit for what youve already completed?
I am looking to start again next year just got the dissertation to complete.
Zoe2016
Member

Re: Apri 2016 chemo starting? Please join!

I'll see if I can find out, thanks Isabelle x
On a diversion
Member

Re: Apri 2016 chemo starting? Please join!

So sorry Helly and Zoe that you've had to postpone/withdraw from your Masters courses. Is there any way the credits you already have can be used for another qualification, for example a post graduate certificate? 

 

Isabelle xx 

Zoe2016
Member

Re: Apri 2016 chemo starting? Please join!

Oh Helen sorry to hear about your MSc I was doing mine and put off for a year when I had my second then BC happened so stopped as didn't need the added stress of studying as well. Years and half work down the pan! Did you get all your money back from canceling holiday, because the holiday company should have and exceptional circumstances dept who as long as you send proof of diagnosis should give you full refund. Hope everyone is feeling a bit better. Just sat in the shade of the hospital garden waiting for wig appt. Keep having visions of it blowing off in the wind or toddler yanking it off in public 😉 x
diddy23
Member

Re: Apri 2016 chemo starting? Please join!

I'm sorry to hear that you've had to cancel - as you say it is a pi$$er!  It's good that you've made the decision though - Having a bit of control over something can help when we aren't able to control most of what's happening to us. I really hope you'll be able to book a holiday once your treatment is finished. Something good to look forward to during this rubbish time. xx

Ali-B
Member

Re: Apri 2016 chemo starting? Please join!

Oh Pants Helly,

 

Effing b45t4rd BC. It puts our lives on hold. We have to get through this with gritted teeth!! G@ddamit we will!!

 

Ali xx

helly18
Member

Re: Apri 2016 chemo starting? Please join!

Thanjs Diddy i will investigate app ☺.

Trivial in the scheme of things but finally cancelled  holiday we had booked  for August and feeling p! $$ed off.  We had already made the decision that it was to tight a time frame just in case treatment was delayed for whatever reason  (insurance didn't cover us as waiting for biopsy (4th!) at time of booking that no one thought a problem otherwise would have took a chance !)and were going to move the date which would have cost another £160. However, timeframes, insurance etc been too awkward and it was stressing me out so decided to cancel and look at later on.

 

Also sent my deferal of studies for MSc. had just started dissertation  in feb, hey ho.

diddy23
Member

Re: Apri 2016 chemo starting? Please join!

Helen, I know what you mean about reading. I love reading but haven't managed to finish one book since I was diagnosed in Jan. For me Audiobooks have been a saviour. I use the Audible app on my phone.
Sarahkears73
Member

Re: Apri 2016 chemo starting? Please join!

I would and got colpermin for the spasms which really helped too xx
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Might ask the gp to change tabs Sarah had an easier time bringing twins into the world 😲
Sarahkears73
Member

Re: Apri 2016 chemo starting? Please join!

Helen you have my total sympathy I've been same am now on movicol for the constipation which is helping xx
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Just started to surface properly after 2nd fec! Although much better this cycle due to the emend the tiredness has crippled me, terrible constipation despite taking tabs and i have the concentration of an ant! Think i will give audio books ago as i read for england normally.
Hugs to everyone xxx
nicho56
Member

Re: Apri 2016 chemo starting? Please join!

Thanks ladies I might try listening to some soothing music that helped a bit last time. Definitely feel worse this time though even minus the sickness x

Julie x

Sarahkears73
Member

Re: Apri 2016 chemo starting? Please join!

Hi Julie I'm same after my chemo, the steroids are what causes the restless fidgeting I'm told. I went to bed with tv on but closed my eyes was easier just to listen. Didn't help much but passed some time. Hope you soon feel better xx
Zoe2016
Member

Re: Apri 2016 chemo starting? Please join!

Julie, glad the nausea is under control, do you have any audio books or a stand up dvd, limited concentration needed and may help distract you. Hope head settles soon x
nicho56
Member

Re: Apri 2016 chemo starting? Please join!

Evening ladies, i had 2nd fec today and thanks to emend have no nausea or sickness but my head really hurts and the fuzziness is driving me mad. Feeling rather low at present can't seem to concentrate on anything, just about able to right this!! I'm so fidgety as I don't know what to do for the best 

hope e everyone has had a reasonable bank holiday

Julie x

Zoe2016
Member

Re: Apri 2016 chemo starting? Please join!

Wanted to share this a make up artist who had BC shows tips and make up tips, baldly beautiful on YouTube x
Sarahkears73
Member

Re: Apri 2016 chemo starting? Please join!

Hope everyone has managed some decent time this bank holiday I finally feel more human today, hoping the improvement continues. Lots of hugs to anyone suffering with stomach, head, hair, anything else xx
Zoe2016
Member

Re: Apri 2016 chemo starting? Please join!

Laura, I'm feeling fine other than scalp, my was sore from bout day 4. Other symptoms went in a week. Hope your other symptoms improve soon.

Thanks Lou.

Sissy, I'm is in a pixie cut already but don't think it will be long till clippers need to come out.

Juliette, I have my second lot on Tuesday and although the first went OK I'm still anxious again. Hope Thursday goes well for you x



LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Hi Sunshine so far my side effects minimal. Apart from the initial sickness on the night of Chemo I would say I a little woolly headed or headachy and more tired. I am managing to sleep but do wake up. Trying to drink plenty of water. Appetite ok I'm addition. I know my immunity will be at its lowest from tomorrow for a few days so will be careful. I hope you start to feel better shortly. Little naps or even lying down with eyes closed may help. Xx
diddy23
Member

Re: Apri 2016 chemo starting? Please join!

Hi Zoe & Sunshine, sorry to hear that you're both not feeling great. My hair started coming out on day 16 after my first treatment of Taxatere. I decided to get it cropped to number 2 and I feel alot better about it now. I went to my local shopping centre today and I dont think that people were staring at me! 

 

I have my second treatment on Thursday and I'm not looking forward to it at all - I felt rubbish for about 9 days after the first one. But after Thursday I'll be half way through so thats positive.

 

I really hope that you all feel better very soon and come to terms with the hair loss.

 

Lots of love xx

Sissylw1980
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Re: Apri 2016 chemo starting? Please join!

Hi Zoe, mine started shedding at day 16 after my first FEC, id already had it cut shorter by then, however I got fed up with seeing it every wear so ended up cropping it to a grade 3. It felt a lot less sore and itchy once I'd shaved it. Sissy xx
sunshine1
Member

Re: Apri 2016 chemo starting? Please join!

I just don't feel myself and am getting tired on and off. Some days seem better than others.
My tummy feels a bit delicate too..certain smells and tastes make it churn.
And my tongue seems to curl up when I eat/drink something not quite bland enough lol.
How about you? Xx
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Hi Sunshine I hope you get some relief from the sore head. Do you have any other side effects at this stage?
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Oh Zoe that doesn't sound pleasant. Hope it eases for you. Big hugs Lou x
sunshine1
Member

Re: Apri 2016 chemo starting? Please join!

Oh no Zoe..Doesn't sound very nice at all.
Hope you are feeling OK otherwise.
I also didn't cold cap so have all this to come. My scalp is sore but manageable for now x
Zoe2016
Member

Re: Apri 2016 chemo starting? Please join!

My head feels like it's on fire, so so sore. I'm shedding all over the place, I'm day 17 post first FEC, I didn't cold cap. Any of you ladies having same discomfort? Did it improve when you shaved if you did? I'm literally pulling my hair out! X
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

I only took my steroids for 3 days. Haven't had any problems with constipation at this stage thankfully. Feel ok at moment planning to go to my son's football presentation later this afternoon. Lou x
Sarahkears73
Member

Re: Apri 2016 chemo starting? Please join!

I'm on the same steroid, 2mg 3 times a day for 2 days then twice and then once a day on 4th day. 2 lots anti sickness meds. It's the constipation (sorry) that's got me at the moment and have taken some laxatives which seem to just be giving me awful stomach pains. Not a happy camper this weekend at all. Hope everyone else is managing. Xx