67.7K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Apri 2016 chemo starting? Please join!

GeriF
Member

Re: Apri 2016 chemo starting? Please join!

Hi ladies, i'm from the May 16 thread but wondering whether anyone can give me some advice. I had my 2nd cycle of FEC last Tues & since the weekend have been very light-headed. I've rested & kept hydrated but wondered if anyone else had experienced this? X
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Hi Diddy and Helly I had a good day yesterday and felt normal so hopefully now on the good days prior to number 3. Good Luck with T Helly. Diddy hope you pick up shortly. I am doing the same with my hair at the moment. It's a lovely day today enjoy. Xxx
diddy23
Member

Re: Apri 2016 chemo starting? Please join!

Hi all, glad to hear that you're all doing okish! I've hd 3 lots of Taxotere and  Cyclophosphamide and I've definitily felt alot more tired and low this time. Its day 11 for me now and I really hope that my energy levels start to increase soon. I shaved my head completely afyer my last treatment and wierdly my hair has strated ti grow back already! So I now have a very short and uneven covering of stubble. I really didn't expect that. I've also got my wig out but haven't worn it yet.

 

Helly, I hope Tax is kind to you and you cope well with the side effects.

 

helly18
Member

Re: Apri 2016 chemo starting? Please join!

Awh, glad your doing ok, must say I find the fatigue increases with each cycle  (but that maybe just me), 3rd knocked me for 6! Due to start taxotere next week so bricking it a bit! I think the wigs are fab mine looks better than my own hair lol, take care c

LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Ok thanks Helly. I had a trip to hospital Sunday as had a seroma that decided to leak. All ok now it's dried up of its own accord. I was given antibiotics just in case of infection but they knocked me for six. I couldn't keep off the loo. Have been a lot more tired this time. Day 10 now so should pick up next few days ready for round 3. Got my wig yesterday it's lovely. I am thinning all over and particularly on my crown. How are you getting on. Xxx
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Lou, just checking in to see how you are? X

Misty
Member

Re: Apri 2016 chemo starting? Please join!

Hi Jane. And welcome. I haven't been in this chartroom for some weeks as there's lively chatter in the private secret (ie no one else can see you are in it) Facebook group which migrated over from this forum. You are all so all so welcome to come over there (see earlier part of this thread for info on how to join by finding me on Facebook and then I can invite you to be part of it). Hope all of you are doing ok. Much love xx
diddy23
Member

Re: Apri 2016 chemo starting? Please join!

Luckily for me I'm only having 4 treatments. I think they're blasting me with heavy doses so that I only have 4 rather than 6. I think that suits me although the side effects knock me out for a week to 10 days. Starting to feel them now. But in 3 weeks I'll be finished. I hope you're finding it OK. The Herceptin seems to be fine for me. The injection didn't hurt at all today, although the 1st 2 did. I guess it depends on who does it for you. Good luck & enjoy the sunshine if you can xx
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Well done Diddy one to go is fantastic how many treatments are you having as I noticed you said you had now had 3 TC and Herceptin. I am having 6 in total FEC T with herceptin to start with the T on round 4. Had heart ultrasound yesterday all ok so they have a baseline to work from. Lou x
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Hi Helly I am taking the other tablets as well. I had no issues first time re toilet but thanks for the heads up on that. The tablets all seem to counter one another. X
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Thanks Loolyboo I agree sleeping is the best remedy it is just getting to sleep. Xx
diddy23
Member

Re: Apri 2016 chemo starting? Please join!

TC and Herceptin round 3 done. Woohoo only one more to go. Now waiting for the Se to start. Hope everyone else is doing well and not suffering too much xx
Loolyboo
Member

Re: Apri 2016 chemo starting? Please join!

Thanks Helly 💕 will keep you all updated - so far so good, no sicky feeling which is a relief! 😊 xxx
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Woo hoo loolyboo, hope Mr T is kind to you :).

 

Lou, glad you had an uneventful time, I had to take the other anti sickness tabs as well as the emend  but found the emend fabulous, only thing I would say is it really made going to the loo far more challenging than the first cycle  (which was bad enough! ) !!!!! X

Loolyboo
Member

Re: Apri 2016 chemo starting? Please join!

Brilliant that round 2 done & dusted, you really have been through it Lou 💕
I got home at 2pm after my first T & fell asleep in bed until 6pm, only second time I've gone to bed in the afternoon throughout treatment, hopefully with my second set of steroids taken at 1.30pm today I will sleep better tonight, I love sleeping! 🤗 Loolyboo xxx
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Round 2 Complete no problems this time. I did find my arm ached but given drugs being pushed through a small vein not too surprising. Glad you feeling better Helly. Well done Loolyboo I have Herceptin to look forward to. I don't feel sick this time but I have had Emend this time round. Hugs to all. Xx
Loolyboo
Member

Re: Apri 2016 chemo starting? Please join!

Hi Helly
Thank you 💕 didn't managed to fall asleep until around 2.30am and then up with my little one at 6.30am but I was awake anyway, I'm hoping I'm not so hyper this afternoon so I can have a nap 😃 On the up side, it feels so nice to have a little energy!
Loolyboo xxx
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Lou, good luck for today :).  This round seems to have floored me a bit not sure if it's cos it's the halfway mark but seem to be picking up a bit x

helly18
Member

Re: Apri 2016 chemo starting? Please join!

Hi Jane and welcome :). I had 3rd fec last Wednesday and seem to have taken longer to get over this one but everyone is different, start docetal next. Good luck for your next treatment xxx

helly18
Member

Re: Apri 2016 chemo starting? Please join!

Good luck loolyboo, hope you managed  to catch some snooze? Xxx

Loolyboo
Member

Re: Apri 2016 chemo starting? Please join!

Hi, had first herceptin today & seems to have gone as it should also had my first lot of 8 steroids today ready for first T tomorrow - don't think I will get much sleep tonight, hyper! 😆
Big hugs to everyone 💕
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Hi Jane i have only had the one round of FEC but due round 2 on Wednesday then a final FEC before i start on the T with Herceptin because I am HER 2 positive. I didnt find round 1 too bad i was  tired and headachy but mangeable and i did work from home. Lets see what the remainder of sesssion 2 brings. I did get one sygrine  of E last week before the issue with the cannula and having to have an antidote.  All is well now thought so back on the chemo track.  I suspect it is a culumative affect so the drugs are still in your system as your go through the next session and your body will get tired.  Hope all goes well this week. Lou x

Sarahkears73
Member

Re: Apri 2016 chemo starting? Please join!

Hi Jane I think maybe some of the effects build I've just had third EC and knocked me for six. I've got 3 docataxil to come. Hope you coping ok X
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

thanks Helly saw Consultant today and good to go for Chemo 2 part 2 on Wednesday. Have heart ultra sound first thing then over to Chemo Unit. Fingers crossed no hiccups this time.   How are you doing.  Lou x

Jane M
Member

Re: Apri 2016 chemo starting? Please join!

Hello everyone,

I am joining this very late - having had two doses of chemotherapy already and due the third one this week.

Does anyone know - will each one feel worse? I thought the first was bad but the second hit me much harder.

I am on Docetaxel, Carboplatin and also Herceptin injections.

Jane

helly18
Member

Re: Apri 2016 chemo starting? Please join!

Lou, thinking of you this week, hoping you get number 2 out the way x

LMB212
Member

Re: Apri 2016 chemo starting? Please join!

That's good Helly. I am still at hospital for my last antidote. I am the only one left in the Chemo Unit. Feel tired and looking forward to getting home. I do hope I can round 2 next week. Have a good weekend everyone. Lou x
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Feeling a bit better today Lou, hope you ok? X

LMB212
Member

Re: Apri 2016 chemo starting? Please join!

That's 3 down Helly well done. Hope side effects aren't too bad. Lou x
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Glad round 3 done Sarah hope the sickness improves. Lou x
Sarahkears73
Member

Re: Apri 2016 chemo starting? Please join!

I think it is cumulative I'm beet red from steroids too. This time next week we will feel better xx
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Don't know whether it's cumulative Sarah,  but I had a crap night, normally have late morning session so steroids before 12 didn't get them till 3.30 so awake most of the night, feeling nauseous which was awful but God  knows what it would have been like without the emend.

Hope everyone feels a bit more improved today.

Anyway big milestone reached  and onto docetal next time xxc

Sarahkears73
Member

Re: Apri 2016 chemo starting? Please join!

Lou sorry you had issues. I had round 3 yesterday and got first time felt really sick last night despite the meds. It's eased off this morning thankfully. Just feel tired and foggy. Hope you get sorted out with the rest. Helen I'm half way now too a bit of a milestone. Hope everyone else is feeling not too bad xc
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

I am fine Sunshine thanks. Glad yours went to plan although not glad your feeling pants obviously. Helly that was my second I was so comfy on the recliner and the cold cap was much better this time. But as I
said blips happen onwards and upwards and fingers crossed I will be having Round 2 next week. X
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Oh lou, how awful.  I can't remember if it's fec t your having but it us so much easier with a picc. I had 1st fec through  cannula and have got a damaged vein from that which is so painful , something to consider? Hope you get back on track soon  xx

sunshine1
Member

Re: Apri 2016 chemo starting? Please join!

Oh no!! What a drama that you don't need!!
Are you feeling OK?

I had no2 today and am feeling a bit pants. Not as bad as last time yet tho!! Xx
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

I meant remainder next week not tomorrow obviously because I am having antidote. Mobile phones predictive text.
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Session 2 not to plan. Got first syringe of the E in then decided to recanculated as drip was slow. Recanulated at wrist and as soon as the syringe was pushed I felt it. Obvious risk of it having leaked so I had to go to another hospital for antidote which I have to have tomorrow and Friday. Been at hospital 9am to 6pm so not a productive day bit blips happen and it's nobodies fault. Hope to get remainder of Part 2 chemo tomorrow. Still had 5 syringes to be administered. Hope everyone else ok. Lou x
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Good luck for tmorrow, cant say I'm looking forward to it but once this one over will be halfway through. Hope this cycle is kind to you x
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Thanks Helly. Oncology review and bloods this morning then all being well round 2 tomorrow. Hope everyone feeling ok. Lou x
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Lou, hope you doing ok? I can't believe it's nearly time for another treatment  cycle, the weeks do seem to go quick. Take care xxx

sunshine1
Member

Re: Apri 2016 chemo starting? Please join!

Mine was bad for day 6/7 of injections and the day after..but then it eased and is ok now xx
Loolyboo
Member

Re: Apri 2016 chemo starting? Please join!

Hi Sunshine
Me neither 😕 I'm on the last day (7) of injections today and I'm aching in the exact same places you mention, pffffft! I'm hoping it eases now until the next round.
Thank you to everyone for my bday wishes.
Loolyboo xxx
sunshine1
Member

Re: Apri 2016 chemo starting? Please join!

Loolyboo..I have had bone pain from the jabs.
My back, pelvis and thighs were bad..mostly my pelvis. Was really uncomfortable. Not looking forward to having that again! X
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Thanks Helly. Yes I have been ok. More tired and when I get tired I get headachy but all mangeable so far.I have managed to work from.home albeit I have taken a holiday today as my eldest was sick during the night so I have kept him off school today. Can't believe it's round 2 next week. Hope everyone else is ok. X
helly18
Member

Re: Apri 2016 chemo starting? Please join!

Lou, glad the cold cap seems to be doing its job, hope you are feeling reasonable otherwise? X

helly18
Member

Re: Apri 2016 chemo starting? Please join!

Happy belated birthday loolyboo sounds a fab day.  The filigrastrim seems to give me aching shoulders but not had restless legs  (yet!) X

Zoe2016
Member

Re: Apri 2016 chemo starting? Please join!

Happy birthday for yesterday loolyboo. Not on injections so not sure.
Ah Leo that sounds like a lovely day, I must admit I've hid indoors all weekend, bar the odd walk round the block, managed the school run this morning so getting my exercise. Hope it lasts.

Sorry about the hair hun, hope it lasts as long as possible for you x
LMB212
Member

Re: Apri 2016 chemo starting? Please join!

Happy Birthday for yesterday Loolyboo. I did get a little pain in legs for a few days didn't tie it in with the injections at the time but it could have been. Sorry to hear about the hair sunshine. I did Cold cap and I am now on day 13 and all ok so far but I am under no illusions that it won't suddenly start sheding. Hope everyone as a good day. I am waiting for IT to ring me back as I can't get logged onto my laptop. Lou x
Loolyboo
Member

Re: Apri 2016 chemo starting? Please join!

Good morning 😊
Hope everyone are feeling little side effects today, we're all one day closer to the finish line 😊
just a quick question - has anybody else got aching legs from the filgrastim injections? My legs were so restless last night, pfffft!
On the flip side, I turned 40 yday 🎉 & had a lovely birthday with my family and keeping the champagne gifts on ice until my treatment is finished for a big celebration! 🍾
Loolyboo xxx