71.4K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

April 2017 starters

Yealand
Member

Re: April 2017 starters

Hi everyone, I have my third date for chemo, let's hope this goes ahead as had delays with wound not healing, 6th April, 3 Fec followed by 3 fec-t, thinking of everyone, good luck ladies. Although some days some will suffer with side effects of chemo, remember it is your friend xxc
Onwards and upwards
Member

Re: April 2017 starters

Hi all finally started my chemo on the 27th March arrived for the allotted time at 2 but did not go in until 3.30 note to self check next time if there is any delay. Then had two nurses try to get a canula in which they did eventually and she went off to get the Meds then checked her system and said they did not have the signed consent form on the system and I would now have to wait 2 hrs for a doctor to come to redo the consent fortunately I had brought along my consent form ladies make sure you take yours with you just in case. Chemo then went without a hitch I am on 4 sessions of fec followed by T. Large bag of meds to go home with a sort of party goody bag fortunately I picked these up from the pharmacy first and was able to go through them with the nurse another recommendation as it does help when there are so many of them. Really not had any side effects no feelings of nausea just a bit light headed waiting for something to hit all the best to those starting this week it really is not as bad as you think it is. 

Munchkin
Member

Re: April 2017 starters

Hi everyone, I'm starting chemo this Friday..31st March, I just recently posted on March starters. I'm having 6 rounds of chemo, the first 3 EC, then the next 3 Docetaxel, I understand the oncologist has to go over all the side effects, even though you may only have a few, my biggest fear though was when she said in some rare cases, on Docetaxel the hair sometimes doesn't come back!! I went numb! I know with all chemo treatments the hair can fall out, but I always thought it came back! Has anyone else has this treatment and the hair has come back? Eye brows..lashes..etc...😕Xxx

LouP
Member

Re: April 2017 starters

Yes good luck Linda, let us all know how it goes xx
Lmcunningham1
Member

Re: April 2017 starters

Ah thanks Tracey. Im keen to get started now xxxx
tstock70
Member

Re: April 2017 starters

Just want to wish Linda all the best for her first chemo session tomorrow xxx

tstock70
Member

Re: April 2017 starters

Sounds like we on the same regime then LouP and a day apart x  Enjoy your time in Spain xx

LouP
Member

Re: April 2017 starters

Hi all, I've had a letter to say I start on the 3rd April, 3 lots of EC and then 3 lots of another one beginning with T. I'm currently in Spain for a few days which is nice before it all begins. I findi get upset with each stage but then when I've got my head round it, feel strong and positive again. Does anyone else feel like this?? Lou xx
tstock70
Member

Re: April 2017 starters

Hi ladies, I am starting my first cycle on the 4th April, having 3 cycles of FEC and 3 cycles of Taxotere. I have had my hair cut short in readiness!! I am not going to bother about the cold cap either.
Look forward to being able to support each other through this journey ❤
Take care
Tracey xx
Lmcunningham1
Member

Re: April 2017 starters

Hi onwards and upwards and everyone else.
I am starting my first chemo on Wed so officially still March but more April really.
I too am triple negative although I am having chemo before surgery so dont yet know about Lymph node involvement. Im having a PICC line put in tomorrow and Im assuming ill find out more from the chemo team but I do know im having a weekly chemo first for 12 weeks followed by FEC xx
Onwards and upwards
Member

Re: April 2017 starters

Hi ladies I have just posted on the march forum but as my first chemo will be on Monday I think April is probably the better forum. I was diagnosed triple negative with no node involvement mid January and had a left mx on the 30th January all very quick and without any real problem however the path to chemo has been very Dificult and now just want to get on with it (but not) I am having a reduced dose 4 x fecT and Subject how that goes 4 x docetaxal with immune boosting injections in between sessions. Is anyone else having the injections? I have been told I can do these myself and certainly intend to do this. Not having cold cap and already have the wig ready and i was really impressed with it went to the McMillan center to arrange this and they were brilliant my sister reckons it looks better than my own. Good luck everyone with the start if this part of the journey

meash67mosh
Member

Re: April 2017 starters

Hi LouP

 

I like you are feeling the same!! I have been told I am due to start on Monday, do you know what you will be having and how long for, have they asked you to go for a heart scan I had mine on Tuesday but they didn't give anything away.  I have just been asked to also go to the chemo clinic on Friday to talk to my chemo nurse.  I totally understand your thoughts and apprehension, you are fearful but want to start so the finish comes sooner.  It is fear of the Unknown and that is very normal, we have got a long journey but you will get through it because you have come this far and this is just another part closer to the finish.  

 

All the the ladies on this forum are so very kind and sharing, I am sure they will help you through it. It's just a god dam shame we have to be here at all!! When did you have your surgery.  Take care xx

Lmcunningham1
Member

Re: April 2017 starters

I cant bring myselr to cut my hair before the time. A bit of me is fascinated to see how itll fall out but im sure that fascination will go away once it starts!
Ive got my plan now. Im having a PICC on Friday, picking up drugs Monday and first chemo Wednesday. Feeling scared but less so now I have the date. Initially im having 12 weekly chemos alongside 7 x 3 weekly. So itll be a long summer xx
rosie14
Member

Re: April 2017 starters

Ladies I had forgotten about the hair loss! At the time it is a bit of a shock but you know that it will happen! Some ladies have their head shaved whilst others have their hair cut very short in preparation. You get a tingly feeling on your scalp when it is about to start and it happens over a few weeks not overnight! It usually starts soon after the second cycle. I wore a bandana most of the time and had a wig as my YS had his wedding just after I had finished chemo!
Your hair will grow back again it starts once chemo is over and after 4 months you will have a covering it tends to grow wild and curly to start with but at least it is your own hair!! After a few trims at the hairdressers it all settles down and becomes a very distant memory! At least the chemo will kill your cancer ladies!!'🌸
Lmcunningham1
Member

Re: April 2017 starters

No im not going to bother with cold cap. I love my hair but ive accepted its going to go, ive had long hair all my life but I couldnt cope with the stress of hoping the cold cap would work plus I really dont like the thought of my head freezing 🙂
Hope your Linda is evicted soon lol
Linda xx
LouP
Member

Re: April 2017 starters

yes thank you, everything is so useful.  Yup i had a coil fitted on Linda (my friends have named it Linda the lodger as shes going to be evicted) a couple of weeks ago and they said the same thing as you have said, so they know where it was.  I dont think im going to bother with the cold cap.

Lmcuunigham1 are you?? xx

Lmcunningham1
Member

Re: April 2017 starters

Thank you that's really good information. Im going to look up the bandana and hat websites now.
Lovewine
Member

Re: April 2017 starters

LouP, the F part is just another drug, not everyone has it, i also had a lumpectomy after my chemo, just to give you a boost, after my first chemo my lump shrank significantly, it was very heartening and by the end of chemo  it had gone, when i had my pre surgery scan it wasnt there and i was " a total response to chemo", not sure if you had or will have a wire put in before chemo, this is so the surgeon can tell where the cancer was after the chemo! On my first chemo i was beyond terrified and the lovely nurse who administered it said to think of chemo as " The good stuff" which sees off the cancer, as i said its the perception of chemo which is worse than the actual event, for the Fec/Ec part a nurse sits in front of you with your arm on a pillow and administers it with a syringe- totally painless! It takes about 30 minutes, unless you are cold capping, i didnt do this as didnt want to be stuck there for about 3/4 hours, also get migraines! I bought a very good wig from a company called Amore, it looked just like my own hair and people didnt know unless i told them, i also wore beanies in the house, a company called anabandana are very good as are hats4head. It is upsetting losing your hair, but it grows again very quickly, by christmas 2014 mine was a short pixie style.

Lmcunningham1
Member

Re: April 2017 starters

The 5am wake up is the worst! Lol
Enjoy your little break before anything starts, im sure you wont often but i hope it occasionally takes your mind off of it 🙂 xx
LouP
Member

Re: April 2017 starters

Haha Lmcunningham1, those 5am wake ups are awful arent they!!  I guess we all just have to do what we have to do regarding work and yours does sound quite stressful.  My friend said to me you need to think of chemo as your friend and not an enemy xx

Lmcunningham1
Member

Re: April 2017 starters

Thank you April 14 ladies for your helpful advice and reassurance. I have stopped working as my job involves working with violent children and physically as well as mentally im not uo to it but im very pleased to hear Im unlikely to be bedbound for weeks/months on end as my horrible imagination likes to tell me ... especially at 5am haha
Ive just heard from the hospital and my chemo will start next week. Im having 7 cycles with the first 4 im also having a weekly chemo but its at a reduced strength so shouldn't make me feel any worse. Im ok about losing my hair ( until it actually hapoens im sure ) im trying to look at chemo as being an army to help ne fight cancer as i cant do it on my own. Xx
LouP
Member

Re: April 2017 starters

Thanks Lovewine, thats good to know.  What is the difference between FEC and EC (im having EC), is the F just another drug involved in the treatment??  I aim to keep working, although my boss doesnt want me travelling to London so will either work in a local office or from home (nice weather coming 🙂 )

Im having 3 EC and then 3 Taxol, then a lumpectomy once its shrunk.  I was diagnosed 23rd Feb and everything happened really quickly, scans, tests etc and feel so lucky as its Stage 1 and is confined to my boob, but now feel like everything has stopped so i think your mind goes into overdrive!  Im going away for a few days tomorrow to chill before it all starts.  My daughter says im a massive talker and feel better talking about it so apologies if im going to bore you all!!!

Lovewine
Member

Re: April 2017 starters

Hi LouP, i know its not easy , but once you get started you will wonder why you worried so much, as a general guide, i had 6 chemos which were Fec-T and herceptin for a year, on Fec which i had on a thursday i felt a bit sickly until about saturday and then started to feel more " normal", i would have monday off and work tuesday onwards, week 2 and 3 you are more or less back to usual self, on the last three which are the T part, you dont get any effects until day three or four, no nausea but feel very tired for the next few days afterwards, my life was as normal as i could make it- to me normalty made me feel better able to cope, i walked my 2 dogs over the fields every morning and the fresh air and exercise definitely helped! We are all different , some have more side effects than others, but most can be controlled very well, dont put up with anything as the nurses and onc will give you something to help, it does go past quickly believe it or not!! My best tip though as i said is to try and walk every day and keep normality!!
LouP
Member

Re: April 2017 starters

I think thats what i need to get out of my head.  I know we are going to have side effects but ive got it in my head that im going to be laying there doing nothing for 3 weeks being very poorly, i think you read peoples different side effects and end up thinking you're going to end up with all of them.  Im so positive about all of this but this part is "worrying" me, im also definitely going to lose my hair so have thought about shaving it off the day i have my first chemo.  Just got to think that its a means to an end 🙂

Lovewine
Member

Re: April 2017 starters

Welcome ladies, i am also from april 2014 with Rosie, the fear of chemo is so much worse than the reality of it, the actual procedure is painfree and you sit with other ladies in comfortable chairs chatting together, i had chemo first before surgery and radiotherapy. I was one of the ladies who worked through my chemo and treatment, it is doable, ask for all the anti sickness meds you can, i felt nauseous on the first Fec and i was given a drug called Emend for further ones, it worked very well, its very expensive so not all health authorities give it at first until they see if you need it! Also your hospital should have a Macmillan nurse and centre they are very helpful and can point you in direction of a grant to help with expenses available to all cancer patients, you are also entitled to free prescriptions which you can apply for a card- thats a great help when needing mouthwash etc to help with the chemo!
Good luck, you will get through it, also try and book on the Look good , feel better course offered at the hospitals, excellent beauty advice, good fun and a lovely bag of expensive skincare and make up to bring home!
All the very best🌷.
rosie14
Member

Re: April 2017 starters

Ladies I am sorry that you have found yourselves on this forum but you have come to the right place for support and encouragement! It is 3 years ago when I joined the April 14 thread. I had chemo prior to surgery and radiotherapy. The actual administration of the chemo drugs is fine some of the side effects after can be a nuisance but most can be controlled by medication! Most ladies manage to work through their treatment! 

Our group had about 12 ladies in when we set out and 5 of us still communicate and meet up annually! We discuss much more than cancer now! ☺️ Good luck ladies it is only a short space of time !

Lmcunningham1
Member

Re: April 2017 starters

Wow LouP it never occured to me that it might yet be another few weeks. Mind you I was diagnosed early Feb so I feel like ive waited long enough now.
Some days im quite confident that it wont be as bad as im fearing then i hear from women coming out the other side and i start fearing itll be far worse than im anticipating.
LouP
Member

Re: April 2017 starters

Hi, i had my chemo meeting last Thursday and they said i will start in the next 2 to 3 weeks.  Have felt so positive but had a bit of a wobble the weekend as i know its not going to be long now.  Im fearing the not knowing...............xx

 

Lmcunningham1
Member

April 2017 starters

Hello, i joined the March starters but as time has gone on ive realised im going to be early April instead.
Ive had my treatment delayed as after being diagnosed TNBC i decided to try to get on a trial. The trial needs BRCA mutant as well as TN so im awaiting the results of that first.
Im really scared, I have no idea what to expect from Chemo. Im also having chemo before surgery and im pushing to have a PICC line put in as already theyre having trouble trying to find veins.
Good luck to you all.
Linda xx