Hi all finally started my chemo on the 27th March arrived for the allotted time at 2 but did not go in until 3.30 note to self check next time if there is any delay. Then had two nurses try to get a canula in which they did eventually and she went off to get the Meds then checked her system and said they did not have the signed consent form on the system and I would now have to wait 2 hrs for a doctor to come to redo the consent fortunately I had brought along my consent form ladies make sure you take yours with you just in case. Chemo then went without a hitch I am on 4 sessions of fec followed by T. Large bag of meds to go home with a sort of party goody bag fortunately I picked these up from the pharmacy first and was able to go through them with the nurse another recommendation as it does help when there are so many of them. Really not had any side effects no feelings of nausea just a bit light headed waiting for something to hit all the best to those starting this week it really is not as bad as you think it is.
Hi everyone, I'm starting chemo this Friday..31st March, I just recently posted on March starters. I'm having 6 rounds of chemo, the first 3 EC, then the next 3 Docetaxel, I understand the oncologist has to go over all the side effects, even though you may only have a few, my biggest fear though was when she said in some rare cases, on Docetaxel the hair sometimes doesn't come back!! I went numb! I know with all chemo treatments the hair can fall out, but I always thought it came back! Has anyone else has this treatment and the hair has come back? Eye brows..lashes..etc...😕Xxx
Hi ladies I have just posted on the march forum but as my first chemo will be on Monday I think April is probably the better forum. I was diagnosed triple negative with no node involvement mid January and had a left mx on the 30th January all very quick and without any real problem however the path to chemo has been very Dificult and now just want to get on with it (but not) I am having a reduced dose 4 x fecT and Subject how that goes 4 x docetaxal with immune boosting injections in between sessions. Is anyone else having the injections? I have been told I can do these myself and certainly intend to do this. Not having cold cap and already have the wig ready and i was really impressed with it went to the McMillan center to arrange this and they were brilliant my sister reckons it looks better than my own. Good luck everyone with the start if this part of the journey
I like you are feeling the same!! I have been told I am due to start on Monday, do you know what you will be having and how long for, have they asked you to go for a heart scan I had mine on Tuesday but they didn't give anything away. I have just been asked to also go to the chemo clinic on Friday to talk to my chemo nurse. I totally understand your thoughts and apprehension, you are fearful but want to start so the finish comes sooner. It is fear of the Unknown and that is very normal, we have got a long journey but you will get through it because you have come this far and this is just another part closer to the finish.
All the the ladies on this forum are so very kind and sharing, I am sure they will help you through it. It's just a god dam shame we have to be here at all!! When did you have your surgery. Take care xx
yes thank you, everything is so useful. Yup i had a coil fitted on Linda (my friends have named it Linda the lodger as shes going to be evicted) a couple of weeks ago and they said the same thing as you have said, so they know where it was. I dont think im going to bother with the cold cap.
Lmcuunigham1 are you?? xx
LouP, the F part is just another drug, not everyone has it, i also had a lumpectomy after my chemo, just to give you a boost, after my first chemo my lump shrank significantly, it was very heartening and by the end of chemo it had gone, when i had my pre surgery scan it wasnt there and i was " a total response to chemo", not sure if you had or will have a wire put in before chemo, this is so the surgeon can tell where the cancer was after the chemo! On my first chemo i was beyond terrified and the lovely nurse who administered it said to think of chemo as " The good stuff" which sees off the cancer, as i said its the perception of chemo which is worse than the actual event, for the Fec/Ec part a nurse sits in front of you with your arm on a pillow and administers it with a syringe- totally painless! It takes about 30 minutes, unless you are cold capping, i didnt do this as didnt want to be stuck there for about 3/4 hours, also get migraines! I bought a very good wig from a company called Amore, it looked just like my own hair and people didnt know unless i told them, i also wore beanies in the house, a company called anabandana are very good as are hats4head. It is upsetting losing your hair, but it grows again very quickly, by christmas 2014 mine was a short pixie style.
Haha Lmcunningham1, those 5am wake ups are awful arent they!! I guess we all just have to do what we have to do regarding work and yours does sound quite stressful. My friend said to me you need to think of chemo as your friend and not an enemy xx
Thanks Lovewine, thats good to know. What is the difference between FEC and EC (im having EC), is the F just another drug involved in the treatment?? I aim to keep working, although my boss doesnt want me travelling to London so will either work in a local office or from home (nice weather coming 🙂 )
Im having 3 EC and then 3 Taxol, then a lumpectomy once its shrunk. I was diagnosed 23rd Feb and everything happened really quickly, scans, tests etc and feel so lucky as its Stage 1 and is confined to my boob, but now feel like everything has stopped so i think your mind goes into overdrive! Im going away for a few days tomorrow to chill before it all starts. My daughter says im a massive talker and feel better talking about it so apologies if im going to bore you all!!!
I think thats what i need to get out of my head. I know we are going to have side effects but ive got it in my head that im going to be laying there doing nothing for 3 weeks being very poorly, i think you read peoples different side effects and end up thinking you're going to end up with all of them. Im so positive about all of this but this part is "worrying" me, im also definitely going to lose my hair so have thought about shaving it off the day i have my first chemo. Just got to think that its a means to an end 🙂
Ladies I am sorry that you have found yourselves on this forum but you have come to the right place for support and encouragement! It is 3 years ago when I joined the April 14 thread. I had chemo prior to surgery and radiotherapy. The actual administration of the chemo drugs is fine some of the side effects after can be a nuisance but most can be controlled by medication! Most ladies manage to work through their treatment!
Our group had about 12 ladies in when we set out and 5 of us still communicate and meet up annually! We discuss much more than cancer now! ☺️ Good luck ladies it is only a short space of time !
Hi, i had my chemo meeting last Thursday and they said i will start in the next 2 to 3 weeks. Have felt so positive but had a bit of a wobble the weekend as i know its not going to be long now. Im fearing the not knowing...............xx