Hi Maggy1, I had surgery in Feb this year, had radiation and now on Arimidex. I haven't noticed any side effects apart from my hot flushes. But I had those before BC. I am 64. Keep your chin up it may mot be too bad for you either. I decided to go with what the doctor recommends as they are supposed to be the experts. If you have any side effects the best person to talk to is your cancer doctor, I have found mine extremly helpful even just to ask questions on anything I am not sure about. Good luck hope this helps.
Hang in there, Belle, it will get better! I felt the same way 8 years ago when I started taking Arimidex. I honestly thought I was losing my mind, plus I had horrible side effectts. I know this isn't what you want to hear right now but it will take time for the side effects to subside. From what I learned on this site 8 years ago, it takes a couple of months for the side effects to completely disappear but, once they do, you will be free of them. I was told that Arimidex was the best one to take and the one that has the least amount of side effects, so I stuck with it and haven't had any problems with the side effects since they subsided. The best thing you can do for yourself is to stay positive and don't give up! It will get better!
I'm 62, with RA and several other health problems unrelated to BC (I've had them for 20-30 years). So I was worried about starting Anastrazole/Arimidex. But I have never felt better in my life. Aches and pains are minimal compared to what they were like before I had chemo, and my hair is really coming back well and I don't have a bald patch. OK, so I've got bone thinning, but that was diagnosed before I started Anastrazole as I was at risk anyway (RA plus mum and gran both had osteoporosis) so I can't blame the tablets for that. I've read that quite a few people with side effects find that after taking the tablets for a little while, they clear up somewhat. Hopefully Belle, that might happen to you too.
Gentle exercise, walking, swimming, should all keep your joints supple and relieve muscle tension (that might also be a cause of pain).
Wishing you well
Thank you all for info on arimidex.
Will keep you posted on my experiences.Was disappointed that they did not discuss drug with me after rads and I had to ask to see a dr to discuss side effects.
asked for bone density test as was being offered it a month later and not before according to NICE guidelines. The surgery side of treatment was excellent and really felt a partner in treatment. Feel the oncology side is not as person centred. Maggy1
I was on Tamoxifen for three months then developed phlebitus then multple clots in lungs so was immediatly taken off Tam. 9 months later was put on Arimedex then six months later changed to Nastroza - dont get so many hot flashes but do get bone ache and no furry face or arms. Onc said I was to do 4 years and was quite forceful on ths when I had complained about bone pain - coudnt be bothered to ask why not five ayears ssumed it's because I'm 62 and my mother had osti ... thingy sorry spelling defeats me - you know what I mean. Do prefer Nastroza far too many side effects on Tamox.
have changed to taking Nastroza to mid morning to handle flashes hate them at night sleep deprivation is still a bu....r
just wanted to add
i have been on tamoxifen for a yr and half and just had a local reaccurance
i had no issues at all with the tamoxifen
i am now waiting to have my overies out and will be put on arimidex and i am hoping the side effects for me will not really be an issue like the tamoxifen - we will have to see
i am 37
I was on Tamoxifen but developed a new primary within the year. I was then put on Arimidex ( and had my ovaries removed) and have been on arimidex for 5 years. I saw my specialist and was told I would finish the arimidex in June as there were no benefits after 5 years. Am interested to hear different stories relating to this> Why is there a difference?
I had an early menopause Christine & the chemo finished it off completely. I had Tamoxifen for the first 5 years and then I had a local recurrence which is why I'm on Arimidex now and I have been told I will be on it indefinately.
Ibx157, may I just ask why you have been given Arimidex with the age of 42 /43? What makes a doctor decide to give Arimidex after Tamoxifen and why not? I somehow suppose you were not menopausal, given the age seven years ago.
I've been on Arimidex for 7 years now and before that Tamoxifen for 5 years and I can honestly say that I've had very little side effects at all. My joints were a bit sore on Tamoxifen but that only lasted a few weeks and I developed fine downy hair on my face but again that only lasted a few weeks. I had a bone scan to check for osteoporis and that indicated that my bones were osteopenic so I have medication for that (although they are not sure whether the drugs have caused this or whether it is just normal for me as I'm very slim). I did have to go through 3 different drugs for this before I found one that didn't make me sick but now I'm on Protolos and have no side effects from that at all.
I hope that helps. I'm only 49 so I would much rather be on this medication than 6 foot under! I have also joined a gym just to give my heart a bit of a work out to keep it strong (nothing too intense haha).
Good luck with your journey. I'm sure you will be fine.
Have got through the operation and radiotherapy without much pain. Diagnosed at the end of October. Always worried before each stage. Stage i 17mm grade 3 tumour and .5mm tumour next to it. Finish rads tomorrow and now worried of side effects of arimidex. Has anyone out there not had terrible side effects. Am 61 and past the menopause.Hate the idea of exposing myself to heart disease.osteoporosus and mood swings etc. Wuill be given medication tom and would like advice before discussing it with doc.