I got myself into such a state about my CT scan but did it and just waiting for,results now. I had my 12 /20 today and just looked at my boob,and it's suddenly gone really red all over and nearly up to my neck. It doesn't feel sore at the moment but the redness was a bit shocking, really worried how it's going to end up but the time I have finished and beyond,
Haha, the cucumber ladies!
How is everyone doing?
Kim how was your CT scan? I hope it all went alright and also hope you're rash is easing up. You're getting closer to no.20!
Janey what therapy have you chosen to have? I hope you're doing alright, that's a lot and as Lesley says nothing's definite. Try and take a portion at a time. You have your Oncology date and that'll soon come around and note any questions popping into your head between now and then....they may not all be relevant. I like that phrase Nanna naps.....oh that is a perfect explanattion of them. Though mine are more like nodding and dribbly nanna naps!
Sue hope work goes well and it's not too overwhelming but a welcome distraction.
And Lesley, ooo I hope the canestan works and good news about the bone scan. I pushed for one through my GP, still waiting and already Vit D deficiant but waiting!
ahhh cucumbers...maybe pack them into abikini top to hold them in place!! Or maybe just keepthem for G & T's!!
No.1 son has just cooked dinner....off to eat now so take care all, and hope your evenings are caaaalm.....
Good evening cucumber ladies, oh Janey, that is not what what you wanted to hear! Still, it's not definate yet is it? That's the worse though, you just have to go along with what they say and just sit or lay there while they do things to you and take the control away from you.
Well, went to the doctors this morning, got there as they opened the doors and asked for an on the day appointment, got booked in with the specialist nurse. As someone on here said, they don't know anything about RT, poor lady nearly passed out when she saw my boob. She said, oh your so burnt. Told her, not bothered about the burning, it's the rash and the swollen nipple which has a greenish hue I'm bothered about. In the end she asked a doctor to look. Got a prescription for canestan for rash and assurance that nipple is not infected. The good news is, consultant sent results of bone scan through and although some thinning nothing major, been prescribed vit d and calcium tablets twice a day and another scan in 2 years.
Hope everyone else is doing ok xx
Happy birthday Lesley, just past the hour but hope you enjoyed it. That sounds like a good day....food, friends, shopping, napping and wine....pretty good one I think!
Hope you get the rash and nipple pain sorted out and start getting some comfort.
Kim good luck with the CT scan tomorrow and also hope your getting some relief.
Oh, no.2 son came back from the allotment with 3 more cucumbers....am seriously thinking to make a cucumber boob-mask! Or a cucumber foot bath!
Thank you Janey. Change of plans, we ended up having brunch with some friends then hit the shops to spend some of my birthday money from my husband (new TK Max just opened in town) then I was was so tired we came home and I had an old lady nap, got a better sleep than I do at night! Just had a takeaway and a couple of glasses of wine. Decided not to ring BCN but go to GP early in the morning and get an on the day appointment instead as will probably need a prescription for the rash which is getting worse. Nipple doesent seem as painful tonight but that could be down to the wine. Hope you're doing ok and enjoying your cucumbers xx
Good luck with scan Kim, and well done, over half way with rads. Keep us posted with results of scan. Glad you've found a cream that suits you xx
Lesley you poor thing it's sounds very sore. I hope it settles soon. I am having my 11th / 20 tomorrow, boob has a rash but not too sore at the moment. I am plastering on the aveno cream. I am also having a CT scan tomorrow so nervous about that.
Kate, thanks so much. Will note that down and perhaps get some. X
Lesley, hope you have a better day tomor for your birthday. X
we're a healthy lot aren't we with our home grown veggies!! If we all lived near ea h other we could do swappsies!
hoping for a better sleep as didn't get much last night. Just couldn't switch my mind off.
Have a good night folks.
No Kate, no drop in, but a few days after my surgery I had a seroma and rung my BCN and left a message on her answerphone, one of her colleagues rang me back and told me to go to breast clinic and said they would fit me in for draining. Had to wait 3hours but that's not so bad. It did come back but it was close to when I was seeing consultant for results so waited and he drained it again. Janey, it's not where I had to go for rads it's my local hospital fortunately. Still going to try to wait it out until Tuesday though, really do not want to got to hospital in my birthday. Thank you for birthday wishes, won't be one of my best ones but at least I've finished rads, that's a huge bonus xx
Hello ladies, well you all put me to shame, busy working on your gardens/allotments and baking while I've been moping about!
Puce boob has now gone back to red thankfully but rash underneath and cleavage no better and poor nip is still massive and throbbing, stabbing pains continue, but there's a limit to how much whinging I can do (even on here). Think I'll have to call my BCN for some advice. I've only seen her once and that was when the consultant gave me the diagnoses so it's about time I called her. Will try to hold off until Tuesday though as its my birthday tomorrow and although only got a quiet lunch with husband planned I certainly don't want a visit to the breast clinic to spoil the day. The strange itching sensation under my scalp is much improved since I've started taking the antihistamine tablets regularly so that's one positive.
I hope everyone going through their rads at the moment are doing ok and enjoying ticking the sessions off the list and watching it get shorter, and those finished are healing well xx
Hi Kate. Thanks so much for your update as its good to hear how you're coping. Where did you get your pure coconut oil from just in case I need to get some? Sounds like you are doing things right. Just doing as much or as little as your body can deal with. I have had a lazy day today but hope tomor I might catch up a bit!
You mentioned all your home grown goodies. Hubby came back in after work with his home grown tomatoes and cucumber and courgette for me. I love all the fresh veggies. Good for my diet too!!!
sleep well folks and have a good Sunday.
We had a lovely girly afternoon tea and apparently on Fridays everything is calorie free! I wish! Was lovely to catch up though over lots of goodies. Got back and first thing was get the bra off. Bliss!
Feeling lumpy and bit sore but seems this is the norm from reading other comments so not too worried. So glad I can come on here and know that everyone understands how each other is feeling.. I find my mind is sometimes taken over by what ifs etc etc. Just pacing myself and preparing for going back to work tues eve.
hope you had a good day too. X
Hope you enjoyed your calorie free afternoon tea Sue and are feeling ok xx
Glad you enjoyed your celebratory lunch. Maybe the excitement of the end of rads etc kept you on a high but then we always come down with a bump don't we! Hope you get the itching sorted. Can't be very nice for you.wonder what causes that?
I was soooooo glad to get home today and as u put it, air my boobs!! It feels bit sore today and also under my arm. Can't see any signs of any infection so hoping it will ease. I'll be glad when I get a treatment plan sorted. At least then you know what you're dealing with don't you.
tomorrow I've got a friends 50th bday afternoon tea. Calorie free of course! Hopefully have a giggle as its good therapy. Don't apologise for whiniging. It's essential in these circumstances.
hope you get a good night.
Well Sandy, hopefully by now you will have finished your last one, congratulations and well done it's a wonderful feeling isn't it? Enjoy your lay in tomorrow.
i enjoyed my celebratory lunch yesterday but was glad to get home and air the boob. Even though I had to go out braless I was still very uncomfortable and even a soft cotton camisole chaffed. I felt exhausted when I got home and felt unwell later (two large glasses of wine may have contributed to that). Today is not much better, bit of post rad blues kicked in. Strange itching feeling under the skin in my scalp at back of head has been bothering me the last week or so and gradually getting worse, not sure it's it's anything to to with the Anastrozole, or am I becoming a hypochondriac?
i was going to go into town for a mooch round the shops today but felt too tired and low. Think maybe I'll leave it for a while.
Anyway, that's enough whinging from me (here is the only place I feel free to have a good whine) I hope everyone is coping ok, if not come on here and join me in the moaning xx
Really hope you hear soon Janey. It's the hardest part having to wait. I wonder if some hospitals get their results back sooner than others. I don't know. I've book d to return to work on 23rd then lumpectomy results should be 25th. Sounds like folk have been looking after you Janey with goodies and that's nice to know that people do care. It makes things easier for you. Let us know if you hear anything. Sleep well!
I'm hoping we get to start at the same time too but got another week for my results. It's quite tiring when lots of people visit isn't it but they just mean well. I didn't realise how tired I'd feel and even a week later I am trying to pace myself a bit. I've been given some beautiful flowers from different people and then today had to plonk a bunch of roses in a pint drinking glass as out of vases!!
Have a a good evening and keep taking things easy.
I was having terrible skin redness and a very hot breast. I can recommend Avene thermal spring water spray.
Only one more left!!!! Hurray. Well done getting to the end Lesley you must be so pleased! I can't wait to have a nice lie in on Friday I think it's going to be raining so good excuse for a lazy day. I am feeling pretty tired at the moment so can't really believe I can get any more tired but I'm sure I will from what I have heard... I had my breast review yesterday which went well said my skin is very good it's just a bit red and expect it to get redder... My nipples though are still sensitive and sore so slapping on the cream and not wearing a bra. She also asked how I was getting on with the tamoxifen which I started before rads and touch wood apart from feeling very warm every now and then I've been okay. Im almost at 60 days. My heart goes out to you all suffering the flushes.
I also learned I was okay to have any massage I want which I was delighted to hear as my breast care nurse had advised against anything other than a head massage. There is so much conflicting advice! What has everyone been advised? I am looking forward to getting back to swimming once my skin clears and am definitely going to book a spa day (or two lol) once I have recovered. I think we are to avoid the sun though until skin clears?
Have a great day xxx
So relieved I didn't have to do the long journey this morning. Sue, ask about travel, I was very lucky, my local health authority arranged travel for everyone, regardless of their financial circumstances as the nearest place that did rads was a long distance away. I got picked up every morning in a car, and most days travelled with the same two people which as great as we supported each and became good friends (one was also a BC lady and one a prostate man).
Kim, I hope your hip is just a temporary thing, youve got enough on your plate at the moment without something else to give you pain. Really hoping things improve for you xx
Kate, can't believe your machine broke! Think that would have put into a real panic. I found the first few times scary enough at it was.
i was hoping that I would get a better nights sleep las night due to the relief that it was all over, but no, the draped flushes and throbbing good made sure I didn't. Still I did enjoy laying there this morning knowing I had a nice lunch to look forward instead of rads.
Jay, glad to hear outside healing well, just hope inside starts to catch up. Keep us posted xx
Thank you JayG and Kate for your advice. I don't think I'll be entitle but will ask in case. Didn't know about an exemption prescription card so will ask about that too. Hope you get on ok Kate. This is my mind working overtime time! Good job we have little granddaughter tomor to keep myself occupied!
Have a good day tomor folks.
Lesley that is brilliant well done what a relief it must be. I had 7/20 today def pinking up nicely. I have not been sleeping with hot flushes and hip pain. I got in a real panic today about my hip pain and spoke to the dr today and am having a bone scan and CT, more waiting for results now .
It seems that no one really expects the extreme tiredness but now I do understand how it feels and haven't even had rads yet. You've done amazingly and it has probably now taken until this time to come out fully. None of us are immune to these effects and they get us one way or another. Just don't feel guilty for resting!!!
get my results on the 25th. Two weeks after this op. Hoping it's just rads and the oestrogen med as don't really want to have to go through it all again. I'm not good at waiting!!! Wish these results came back quicker but hey ho go with the flow. It doesn't help the Parkinsons as stress aggravates that too!
really appreciate your help. Keep resting X
Thank you Sue. Yes, I saw oncologist at the hospital where I had my surgery about 2 weeks after getting the results from the consultant. Less than a week after seeing him I received a phone call from the hospital where I would be having my rads arranging an appointment to go for planning. Today they told me I would not be going back there but will receive an appointment with the oncologist back at my local hospital for follow in about 4-6 weeks.
Just woken up from an hour an half nap, think it's finally caught up with me. Everyone talks of feeling tired while having rads, I was tired anyway due to lack of sleep due to hot flushes during the night but didn't notice feeling anymore tired until this afternoon. Maybe it's all in my mind but suddenly exhausted.
have you have your results yet? Xx
So pleased for you having finished your rads. Well done for coping! Not really sure what to expect. Do you have a planning appt at the hospital doing the rads first? I suppose it will all be explained at next results appt.
enjoy your lunch out because you certainly deserve it.. X
Well that's me done. Sore, itchy and very very tired but I haven't got to get up at the crack of dawn tomorrow morning and endure the long journey there and back. Been told to expect skin to get worse before it gets better but they said its held up really well (apart from a very swollen and painful nipple).
Table booked for lunch at my favourite restaurant tomorrow with husband and friends to celebrate.
Hope everyone is doing ok xx
Hi, Kate, I think you start rads tomorrow 16th? Just wanted to wish you all the best. I expect you're nervous (I know I was!) but really, once they get you in position you just lay there and really it doesn't take long. There are a few bleeps and zapping sounds though.
Had my penultimate one today and saw the nurse after. I showed her my rash under boob and also my nipple which is sore, swollen and looks a funny colour. She gave me some gel to apply in case of skin breaks in coming days/weeks but advised to me to put some on my nipple now. I am so looking forward to not having to go there everyday and start getting back to some kind of normality though been warned Effects will continue for a while, but at least I won't be getting up at the crack of dawn and not getting back till lunchtime.
Hope everyone else is doing ok and ticking off the days, (it became the highlight of my day) or if you haven't started yet not getting too anxious about it. Xx
Morning Janey, yes that's a worry you don't need, you've got enough to deal with without adding half pay causing financial difficulties to the mix. Maybe you can speak to your HR people and come to some sort of deal whereas if you do a few hours a day when you feel able it won't clock up as sick (spent most of my life working in HR, and know most companies will do this). Are you definitely gong to take Anastrozole or other hormone drug?
Spent a another hot sweaty itchy night, was glad to get up this morning and have a cooling bath, though I'm looking forward to the day I can go back to soaking in a hot bubbly bath again, baths are not the same with no bubbles and just a wash down with simple soap.
Hi Katkit, I've popped in from the July rads thread - I finished my booster treatment on 9/8 after starting rads in July. I think the radiology consultant you saw may have been the Oncologist - I'm at QE B'ham and was prescribed Tamoxifen and Radiotherapy by the Clinical Oncologist. I was seen a few days prior to treatment starting, half way through and have a follow up in October. If you have the name of the person you saw, try Googling them - I did with mine before I went to the appt in the hope there'd be a picture so I'd recognise the person I'd be speaking to. Made me feel more comfortable during the appt. the other thing I do prior to apps is write down my questions and take them with me and refer to it during the appt. No one minds and it's reassuring to me that I've got answers to my questions - may be worth a try - helps me feel more 'in control'!!
My skin which was very pink and itchy has really started to heal amazingly fast - copious applications of cream helps hugely. Good luck and I hope you all have a great weekend. Jay X