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Aug 2016 Rads anyone?

Re: Aug 2016 Rads anyone?

I got myself into such a state about my CT scan but did it and just waiting for,results now. I had my 12 /20 today and just looked at my boob,and it's suddenly gone really red all over and nearly up to my neck. It doesn't  feel sore at the moment but the redness was a bit shocking, really worried how it's going to end up but the time I have finished and beyond, 

Re: Aug 2016 Rads anyone?

Haha, the cucumber ladies!

How is everyone doing? 

Kim how was your CT scan? I hope it all went alright and also hope you're rash is easing up. You're getting closer to no.20!

Janey what therapy have you chosen to have? I hope you're doing alright, that's a lot and as Lesley says nothing's definite. Try and take a portion at a time. You have your Oncology date and that'll soon come around and note any questions popping into your head between now and then....they may not all be relevant. I like that phrase Nanna naps.....oh that is a perfect explanattion of them. Though mine are more like nodding and dribbly nanna naps!

Sue hope work goes well and it's not too overwhelming but a welcome distraction.

And Lesley, ooo I hope the canestan works and good news about the bone scan. I pushed for one through my GP, still waiting and already Vit D deficiant but waiting!

ahhh cucumbers...maybe pack them into abikini top to hold them in place!! Or maybe just keepthem for G & T's!!

No.1 son has just cooked dinner....off to eat now so take care all, and hope your evenings are caaaalm.....

Kate xx

Re: Aug 2016 Rads anyone?

Good evening cucumber ladies,  oh Janey, that is not what what you wanted to hear!  Still, it's not definate yet is it?  That's the worse though, you just have to go along with what they say and just sit or lay there while they do things to you and take the control away from you.

 

Well, went to the doctors this morning, got there as they opened the doors and asked for an on the day appointment, got booked in with the specialist nurse.  As someone on here said, they don't know anything about RT, poor lady nearly passed out when she saw my boob.  She said, oh your so burnt.  Told her, not bothered about the burning, it's the rash and the swollen nipple which has a greenish hue I'm bothered about. In the end she asked a doctor to look.  Got a prescription for canestan for rash and assurance that nipple is not infected.  The good news is, consultant sent results of bone scan through and although some thinning nothing major, been prescribed vit d and calcium tablets twice a day and another scan in 2 years.

 

Hope everyone else is doing ok xx

Re: Aug 2016 Rads anyone?

Sorry meant focus is on Thursday! See what I mean.

Re: Aug 2016 Rads anyone?

I think a cucumber mask for boobs sounds good. I raided our cucumber this afternoon for my eyes as didn't get much sleep and laid on the bed with slices over my eyes!! Back at work this eve after op. Bit apprehensive but should be ok. Just that my do is is on Thursday at mo. Hope everyone's had a good day. Glad we can giggle too on here even if it's about big bras and an overdose of cucumbers!! Xx

Re: Aug 2016 Rads anyone?

Morning glories! Lesley that sounds like a perfect birthday and I hope you spent frivolously! I'm off to our local cancer support charity today for my first group. I rang yesterday to see if it was worth going without a treatment plan but was told yes. I'm gong to choose my alternative therapy treat wisely but not look at the wigs just yet! Kate, do you think they would think me off if I turned up with lots of cucumbers?!
I'm beginning to feel mighty fed up with the wait, although I have finally got a date for an oncologist of 2nd September. I spoke with my GP yesterday who has had a copy of a letter suggesting chemo rather than the Oncotype and you lovely people are the only ones who know. I don't want to say it out loud at home. Yesterday an additional woomph, as my oldest friend chased up her 3 year mammogram on the back of mine, had it last week and was recalled for today. Sleep wasn't my friend last night but I shall look forward to what my Mum calls a "Nanna nap" later! Kate hold onto that idea for a cucumber boob mask - on the back of another thread, if you could make it for big boobs, it would be snapped up! Xx

Re: Aug 2016 Rads anyone?

Happy birthday Lesley, just past the hour but hope you enjoyed it. That sounds like a good day....food, friends, shopping, napping and wine....pretty good one I think! 

Hope you get the rash and nipple pain sorted out and start getting some comfort.

 

Kim good luck with the CT scan tomorrow and also hope your getting some relief. 

 

Night all

Kate x

 

Oh, no.2 son came back from the allotment with 3 more cucumbers....am seriously thinking to make a cucumber boob-mask! Or a cucumber foot bath!

 

Re: Aug 2016 Rads anyone?

Thank you Janey.  Change of plans, we ended up having brunch with some friends then hit the shops to spend some of my birthday money from my husband (new TK Max just opened in town) then I was was so tired we came home and I had an old lady nap, got a better sleep than I do at night!  Just had a takeaway and a couple of glasses of wine.  Decided not to ring BCN but go to GP early in the morning and get an on the day appointment instead as will probably need a prescription for the rash which is getting worse.  Nipple doesent seem as painful tonight but that could be down to the wine.  Hope you're doing ok and enjoying your cucumbers xx

Re: Aug 2016 Rads anyone?

Happy happy birthday Lesley. Enjoy your lunch out and hoping you get a good night's sleep later, as a special present!! Xx

Re: Aug 2016 Rads anyone?

Good luck with scan Kim, and well done, over half way with rads.  Keep us posted with results of scan.  Glad you've found a cream that suits you xx

Re: Aug 2016 Rads anyone?

Lesley you poor thing it's sounds very sore. I hope it settles soon. I am having my 11th / 20 tomorrow, boob has a rash but not too sore at the moment. I am plastering on the aveno cream. I am also having a CT scan tomorrow so nervous about that. 

Re: Aug 2016 Rads anyone?

Kate, thanks so much. Will note that down and perhaps get some. X

 

Lesley, hope you have a better day tomor for your birthday. X

 

we're a healthy lot aren't we with our home grown veggies!! If we all lived near ea h other we could do swappsies!

 

hoping for a better sleep as didn't get much last night. Just couldn't switch my mind off. 

Have a good night folks. 

Sue x

Re: Aug 2016 Rads anyone?

No Kate, no drop in, but a few days after my surgery I had a seroma and rung my BCN and left a message on her answerphone, one of her colleagues rang me back and told me to go to breast clinic and said they would fit me in for draining.  Had to wait 3hours but that's not so  bad.  It did come back but it was close to when I was seeing consultant for results so waited and he drained it  again.  Janey, it's not where I had to go for rads it's my local hospital fortunately.  Still going to try to wait it out until Tuesday though, really do not want to got to hospital in my birthday.  Thank you for birthday wishes, won't be one of my best ones but at least I've finished rads, that's a huge bonus xx

Re: Aug 2016 Rads anyone?

Enjoy your birthday tomorrow Lesley and I hope BC nurse can help, although I know you're at a distance from hospital. I shall raise a glass of my favourite cucumber recipe (thinly sliced over ice and gin with tonic!) to you. I should add I was lucky to get the veg planting done before my diagnosis and now I just dish out orders for picking!! Xx

Re: Aug 2016 Rads anyone?

Hi Lesley,
I would definitely get in touch woth BCN, they are there for you. Do you have a drop in clinic there, Barts have one for anyone wants to be seen without an appointment.
I hope it eases up and you get some relief.

Not really doing much at the allotmemt...a nice walk and making a to-do list; one of my sons has become passionate about it so am very lucky he does a lot of the hard work. I get as far as picking cucumbers and beans and sitting in the shade!

Happy birthday for tomorrow as well, enjoy your lunch xx

Re: Aug 2016 Rads anyone?

Hello ladies, well you all put me to shame, busy working on your gardens/allotments and baking while I've been moping about!  

 

Puce boob has now gone back to red thankfully but rash underneath and cleavage no better and poor nip is still massive and throbbing, stabbing pains continue, but there's a limit to how much whinging I can do (even on here). Think I'll have to call my BCN for some advice.  I've only seen her once and that was when the consultant gave me the diagnoses so it's about time I called her.  Will try to hold off until Tuesday though as its my birthday tomorrow and although only got a quiet lunch with husband planned I certainly don't want a visit to the breast clinic to spoil the day.  The strange itching sensation under my scalp is much improved since I've started taking the antihistamine tablets regularly so that's one positive.  

 

I hope everyone going through their rads at the moment are doing ok and enjoying ticking the sessions off the list and watching it get shorter, and those finished are healing well xx

 

Re: Aug 2016 Rads anyone?

Hahaaaa.....yes my neighbours have been getting lots of gifts. One friend told me you can pickle them....though I don't find that appealing. I've done a bit of cucumber crowd control eating little ones fresh off the plant. One allotment pal picked 72 the other day....
Actually could probably make a refreshing soothing skin pack, also slices laid on the eyes refreshes and soothes. I'll see if I can find a recipe as it's very cooling on the skin! May try some later!
Sue I got the coconut oil online from freshskin.co.uk, there's different sizes and I started with a small tub to see how it was. Go for the organic virgin cocnut oil. You can get similar in health food shops but I buy essential oils from this place and always get quick delivery and good quality products. Am going to experimen making deodorant and soap powder...keeps me busy!!
Hope everyone has a good Sunday
Kate x

Re: Aug 2016 Rads anyone?

Maybe we should start a thread on what to do with vegetable gluts?! It's cucumbergeddon here ...

Re: Aug 2016 Rads anyone?

Hi Kate. Thanks so much for your update as its good to hear how you're coping. Where did you get your pure coconut oil from just in case I need to get some? Sounds like you are doing things right. Just doing as much or as little as your body can deal with. I have had a lazy day today but hope tomor I might catch up a bit!

You mentioned all your home grown goodies. Hubby came back in after work with his home grown tomatoes and cucumber and courgette for me. I love all the fresh veggies. Good for my diet too!!!

 

sleep well folks and have a good Sunday.

sue X

Re: Aug 2016 Rads anyone?

Hi and I hope everyone's having a nice weekend. Hve hd a walk to my allotment today...it's my little sanctuary and lovely fresh beans, cucumber, cabbage and broccolli. Oh and apples. Luckily hubby came down shortly after to catry it all home! Cabbage is blanched and in the freezer...beans were for dinner and apples will be blanched for future use....apple pie/sauce/crumble.....
I'm 4 treatments in and have to say by Friday I was really tired, like in my limbs heavy and tired. Though the journey in is a bit hectic/busy, the treatment itself is quick, after the qst which they go through everything and make I was yawning all day on day 2. The radiologist said even though it doesn't seem like much is happening and it's quick, the body is really working hard so it's all normal. They were really sweet and changed a couple of the times for me as I started a yoga class on Fridays and there was a clash so I have all my times set which helps if I feel like seeing people and also have a formal sickness review meeting at work to sort out....blehhh....
I've been using Aloe Gel, dr.organic from Holland and Barret...currently buy1 get 1 half price. It seems to be working fine for me and had used it before. If anyone gets it just check as there are a few aloe gel mixes...I went for the double strength with nothing else in it. Have then used organic coconut oil in the evening.
Deodorant wise I went for the Body Shop...no perfume, aluminium etc though not using on my right side during treatment...but have slapped a bit of coconut on instead.

I'm going to tuck myself up and have a read and hope the weathers alright for a stroll tomorrow. Am finding it very easy to just sit and mope or get frustrated at the things I want to do but don't have the physical energy or strenth for ....am still having moments of trying to strike the balance of taking it easy but not seizing up and going into a flump! I don't know how everyone else is but I feel there are days when I feel in control and others where I just think WHAT to everything that has happened in such a short space of time....
Good to hear about everyone else and hope some of the stuff I'm saying is useful to others and am not coming accross and a winge-bag..... I know I appreciate hearing how everyone's doing so again thank you all.
Right now where's that remote control for a good film to put on.....
Night all Kate x

Re: Aug 2016 Rads anyone?

We had a lovely girly afternoon tea and apparently on Fridays everything is calorie free! I wish! Was lovely to catch up though over lots of goodies. Got back and first thing was get the bra off. Bliss! 

Feeling lumpy and bit sore but seems this is the norm from reading other comments so not too worried. So glad I can come on here and know that everyone understands how each other is feeling.. I find my mind is sometimes taken over by what ifs etc etc. Just pacing myself and preparing for going back to work tues eve.

hope you had a good day too. X

Re: Aug 2016 Rads anyone?

Hope you enjoyed your calorie free afternoon tea Sue and are feeling ok xx

Re: Aug 2016 Rads anyone?

I think I've commented on the wrong thread! Hope you're all doing much better today. I'm thinking no more painkillers other than a G&T today - I hear quinine maybe good for hot flushes ....

Re: Aug 2016 Rads anyone?

Glad you enjoyed your celebratory lunch. Maybe the excitement of the end of rads etc kept you on a high but then we always come down with a bump don't we!  Hope you get the itching sorted. Can't be very nice for you.wonder what causes that? 

I was soooooo glad to get home today and as u put it, air my boobs!!  It feels bit sore today and also under my arm. Can't see any signs of any infection so hoping it will ease. I'll be glad when I get a treatment plan sorted. At least then you know what you're dealing with don't you.

 

tomorrow I've got a friends 50th bday afternoon tea. Calorie free of course! Hopefully have a giggle as its good therapy. Don't apologise for whiniging. It's essential in these circumstances.

 

hope you get a good night.

sue X

Re: Aug 2016 Rads anyone?

Well Sandy, hopefully by now you will have finished your last one, congratulations and well done it's a wonderful feeling isn't it?  Enjoy your lay in tomorrow.

 

i enjoyed my celebratory lunch yesterday but was glad to get home and air the boob.  Even though I had to go out braless I was still very uncomfortable and even a soft cotton camisole chaffed.  I felt exhausted when I got home and felt unwell later (two large glasses of wine may have contributed to that).  Today is not much better, bit of post rad blues kicked in.  Strange itching feeling under the skin in my scalp at back of head has been bothering me the last week or so and gradually getting worse, not sure it's it's anything to to with the Anastrozole, or am I becoming a hypochondriac?

 

i was going to go into town for a mooch round the shops today but felt too tired and low.  Think maybe I'll leave  it for a while.

 

Anyway,  that's enough whinging from me (here is the only place I feel free to have a good whine) I hope everyone is coping ok, if not come on here and join me in the moaning xx

Re: Aug 2016 Rads anyone?

Really hope you hear soon Janey. It's the hardest part having to wait. I wonder if some hospitals get their results back sooner than others. I don't know. I've book d to return to work on 23rd then lumpectomy results should be 25th. Sounds like folk have been looking after you Janey with goodies and that's nice to know that people do care. It makes things easier for you. Let us know if you hear anything. Sleep well!

 

sue X

Re: Aug 2016 Rads anyone?

Still waiting on my results too, so hopefully will hear soon. I think the postie is worried I have a crush on him, as I open the door waiting for my oncology appointment every day! I have bandages off on Fri, so hoping to know more then when I see the BC nurse. I had made a cut flower bed this year, but they haven't made it indoors yet. People have been incredibly lovely. I'm worried the family will get used to curries, cakes and cookies deliveries! Xx

Re: Aug 2016 Rads anyone?

I'm hoping we get to start at the same time too but got another week for my results. It's quite tiring when lots of people visit isn't it but they just mean well. I didn't realise how tired I'd feel and even a week later I am trying to pace myself a bit. I've been given some beautiful flowers from different people and then today had to plonk a bunch of roses in a pint drinking glass as out of vases!! 

 

Have a a good evening and keep taking things easy.

sue X

Re: Aug 2016 Rads anyone?

Thanks Kate. After a visit from friends and colleagues today. I've been convinced to stand down all work worries and just stay away from the office. They are a lovely bunch. Lesley, I'm so glad you're all done and I hope that lunch included a large bottle of wine. I think the tiredness is creeping up on me, visiting family's care has left me exhausted!! Sue I'm hoping we may get to start rads at the same time and can draw on you August mob's wisdom! Xx

Re: Aug 2016 Rads anyone?

I was having terrible skin redness and a very hot breast.  I can recommend Avene thermal spring water spray.

Re: Aug 2016 Rads anyone?

Afternoon everyone!!

 

Only one more left!!!! Hurray. Well done getting to the end Lesley you must be so pleased! I can't wait to have a nice lie in on Friday I think it's going to be raining so good excuse for a lazy day. I am feeling pretty tired at the moment so can't really believe I can get any more tired but I'm sure I will from what I have heard... I had my breast review yesterday which went well said my skin is very good it's just a bit red and expect it to get redder... My nipples though are still sensitive and sore so slapping on the cream and not wearing a bra. She also asked how I was getting on with the tamoxifen which I started before rads and touch wood apart from feeling very warm every now and then I've been okay. Im almost at 60 days. My heart goes out to you all suffering the flushes. 

 

 I also learned I was okay to have any massage I want which I was delighted to hear as my breast care nurse had advised against anything other than a head massage. There is so much conflicting advice! What has everyone been advised? I am looking forward to getting back to swimming once my skin clears and am definitely going to book a spa day (or two lol) once I have recovered.  I think we are to avoid the sun though until skin clears? 

  Have a great day xxx

Re: Aug 2016 Rads anyone?

Goodmorning all,

 

So relieved I didn't have to do the long journey this morning.   Sue, ask about travel, I was very lucky, my local health authority arranged travel for everyone, regardless of their financial circumstances as the nearest place that did rads was a long distance away.  I got picked up every morning in a car, and most days travelled with the same two people which as great as we supported each and became good friends (one was also a BC lady and one a prostate man).

 

Kim, I hope your hip is just a temporary thing, youve got enough on your plate at the moment without something else to give you pain.  Really hoping things improve for you xx

 

Kate, can't believe your machine broke!  Think that would have put into a real panic.  I found the first few times scary enough at it was.

 

i was hoping that I would get a better nights sleep las night due to the relief that it was all over, but no, the draped flushes and throbbing good made sure I didn't.  Still I did enjoy laying there this morning knowing I had a nice lunch to look forward instead of rads.

 

Jay, glad to hear outside healing well, just hope inside starts to catch up.  Keep us posted xx

Re: Aug 2016 Rads anyone?

Ooops.. posted that twice! Falling asleep with fingers on the keys...not a good idea!
Have a good day everyone 🙂

Re: Aug 2016 Rads anyone?

Hope you get some sleep Sue, try and think of the fun you're gonna have tomorrow with your grandkids.
Night x

Re: Aug 2016 Rads anyone?

Hope you get some sleep Sue, try and think of the fun you're gonna have tomorrow with your grandkids and block the worries.
Night x

Re: Aug 2016 Rads anyone?

Thank you JayG and Kate for your advice. I don't think I'll be entitle but will ask in case. Didn't know about an exemption prescription card so will ask about that too. Hope you get on ok Kate. This is my mind working overtime time! Good job we have little granddaughter tomor to keep myself occupied! 

Have a good day tomor folks. 

 

Sue x

Re: Aug 2016 Rads anyone?

Lesley, well done on finishing! Hope the rash and soreness clears up. Thanks for the good luck...yes I started today. My machine broke (I seem to have this effect...the CT scanner broke when I went to be measured up so had to go home and back a few days after! ) So a couple hours after they slotted me into another one. A new experience and a relief to know what's involved...we shall see how it goes. Am using Aloe gel and Aveeno cream later on in the evening...slather slather!
Sue255, hope you're doing well. Waiting is so difficult....I don't know about you but all the what ifs were in my head....a friend told me "a pesimist is never disappointed"...made me laugh! The staff have to give us all the possible outcomes and actions just so we are aware.
Feeling tired... it's part of it.....it's all physically and mentlly exhausting and we try and understand the processes amd learn about what's happening. Remember as well that you're not long out of surgery, the anasthetic is in your system for a while, add the emotions and worry and that your body's trying to heal itself. So take rest when you can. I got into watching Monkey Business on tv....and snoozed when I needed....I haven't slepf like that for ages...amd yes disruptive sleep at night but m trying to go with it! Luckily my daughters on holiday so there's a spare bed I can retreat to...plus she has the nicest, most recently spruced up room in the house!!
They will give you all the info about the radiotherapy and a pre-appointment to measure you for the machine and explain what happens. They'll check you've healed enough as well and anything you're not sure about just ask them. I keep a notebook handy and write things down when I think of them. Do you have contact info for your breast care nurse....you can ask them about the processes as well.
You can ask Macmillan if they can support you with travel costs, though I asked today and here it's means tested and as I'm on sick pay and hubby works I don't qualify. Or ask the BC nurse about transport....may as well ask. Have you got your prescription exemption card...I didn't know until a friend told me to ask...they weren't forthcoming with that and it was a question in my notebook.

Jay, thanks I looked it up and yes the radiology consultant was in fact the Oncologist! Hoorah! And remembering to take my notebook with questions AND a pen to write the answers!

Janey I hope you're doing alright and manage not to worry too much about work. I'm trying to worry in portions now...one worry at a time!

Am holding off the Tamoxifen until after treatment...I still feel tired and getting to Barts is tiring...straightforward journey but CROWDS to dodge and get through...that's enough hectic for me.

I can't believe how calm everyone is there.....I'm sitting there feeling anxious and everyone else comes accross as fine and dandy...though after meeting the staff they do so much to put you at ease...so maybe in a week I'll be Mrs.Calm!!

Night all and happy Weds. Lesley have a great time at your lunch!

Kate x

Re: Aug 2016 Rads anyone?

Lesley - huge relief at finishing your rads. Well done you for getting through. Let the healing commence. Since finishing on 9/8 I've started to heal well on the outside; inside is taking a little longer!
Sue255, your hospital may have given you information on travel to and from appointments - the QE B'ham certainly does. If you're struggling then ring your specialist nurse who will help you get the assistance you need. Take care and I hope it works out for you. Jay

Re: Aug 2016 Rads anyone?

Does anyone know whether you get help with travel to and from rads or is it just in certain circumstances?

Re: Aug 2016 Rads anyone?

Lesley that is brilliant well done what a relief it must be. I had 7/20 today def pinking up nicely. I have not been sleeping with hot flushes and hip pain. I got in a real panic today about my hip pain and spoke to the dr today and am having a bone scan and CT, more waiting for results now . 

Re: Aug 2016 Rads anyone?

It seems that no one really expects the extreme tiredness but now I do understand how it feels and haven't even had rads yet. You've done amazingly and it has probably now taken until this time to come out fully. None of us are immune to these effects and they get us one way or another. Just don't feel guilty for resting!!!

 

get my results on the 25th. Two weeks after this op. Hoping it's just rads and the oestrogen med as don't really want to have to go through it all again. I'm not good at waiting!!!  Wish these results came back quicker but hey ho go with the flow. It doesn't help the Parkinsons as stress aggravates that too!

 

really appreciate your help. Keep resting X

Re: Aug 2016 Rads anyone?

Thank you Sue.  Yes, I saw oncologist at the hospital where I had my surgery about 2 weeks after getting the results from the consultant.  Less than a week after seeing him I received a phone call from the hospital where I would be having my rads arranging an appointment to go for planning.  Today they told me I would not be going back there but will receive an appointment with the oncologist back at my local hospital for follow in about 4-6 weeks.

 

Just woken up from an hour an half nap, think it's finally caught up with me.  Everyone talks of feeling tired while having rads, I was tired anyway due to lack of sleep due to hot flushes during the night but didn't notice feeling anymore tired until this afternoon.  Maybe it's all in my mind but suddenly exhausted.

 

have you have your results yet? Xx

Re: Aug 2016 Rads anyone?

So pleased for you having finished your rads. Well done for coping! Not really sure what to expect. Do you have a planning appt at the hospital doing the rads first? I suppose it will all be explained at next results appt. 

enjoy your lunch out because you certainly deserve it.. X

Re: Aug 2016 Rads anyone?

Well that's me done.  Sore, itchy and very very tired but I haven't got to get up at the crack of dawn tomorrow morning and endure the long journey there and back.  Been told to expect skin to get worse before it gets better but they said its held up really well (apart from a very swollen and painful nipple).  

 

Table booked for lunch at my favourite restaurant tomorrow with husband and friends to celebrate.

 

Hope everyone is doing ok xx

Re: Aug 2016 Rads anyone?

Hi, Kate, I think you start rads tomorrow 16th?  Just wanted to wish you all the best.  I expect you're nervous (I know I was!) but really, once they get you in position you just lay there and really it doesn't take long.  There are a few bleeps and zapping sounds though.

 

Had my penultimate one today and saw the nurse after.  I showed her my rash under boob and also my nipple which is sore, swollen and looks a funny colour.  She gave me some gel to apply in case of skin breaks in coming days/weeks but advised to me to put some on my nipple now.  I am so looking forward to not having to go there everyday and start getting back to some kind of normality though been warned Effects will continue for a while, but at least I won't be getting up at the crack of dawn and not getting back till lunchtime.

 

Hope everyone else is doing ok and ticking off the days, (it became the highlight of my day) or if you haven't started yet not getting too anxious about it. Xx

Re: Aug 2016 Rads anyone?

Hope everyone's having a relaxing Sunday....how are you all a..am just back from a weekend with sis in law and ma in law....a nice calm change of scenery!
So much info here, thanks so much for sharing tips and explaining things....it's true... it isn't an area no-one wants to learn about but it helps.
I ordered a Cool Pillow Pad from Mapilns...will let you know how it is...description says that movement makes it cool down....watch this space!
Hope everyone is doing alright as we go into a new week and enjoy the rest of your Sunday
Kate x

Re: Aug 2016 Rads anyone?

Simple soap should be sponsoring this site! Thank you for heads up on HR. I will be fine if no chemo, but now it's potentially in the mix, I'm overthinking in the wee small hours! Luckily my team are hugely supportive but know I'd be vulnerable in my role if at work at the moment to unpredictable nature of the role.
Definitely Anastrozole, regardless of anything in between. Hopefully I'll be one of the lucky ones with side effects. Cool bath sounds lovely, but oh for a few bubbles! I hope you're enjoying the same beautiful weather with you. Xx

Re: Aug 2016 Rads anyone?

Morning Janey,  yes that's a worry you don't need, you've got enough to deal with without adding half pay causing financial difficulties to the mix.  Maybe you can speak to your HR people and come to some sort of deal whereas if you do a few hours a day when you feel able it won't clock up as sick (spent most of my life working in HR, and know most companies will do this).  Are you definitely gong to take Anastrozole or other hormone drug?  

 

Spent a another hot sweaty itchy night, was glad to get up this morning and have a cooling bath, though I'm looking forward to the day I can go back to soaking  in a hot bubbly bath again, baths are not the same with no bubbles and just a wash down with simple soap.

 

Re: Aug 2016 Rads anyone?

I'm so glad the chillows are helping Lesley and a good idea to have one on standby, You've inspired me to do the same and online shopping good therapy for insomnia - This weather is making nights worse for me and I still haven't started on Anastrozole! Pat, I was relieved to hear you're doing ok on it so far.
I'm still hoping I will have a treatment plan soon. I expected to be joining you lovely August rads stars by the end of this month and not doing well with the limbo. I know I'm not fit to work emotionally but concerned the long wait will end up taking me to half pay - or maybe it's easier to worry about finances than what may be next! Xx

Re: Aug 2016 Rads anyone?

Hi Katkit, I've popped in from the July rads thread - I finished my booster treatment on 9/8 after starting rads in July. I think the radiology consultant you saw may have been the Oncologist - I'm at QE B'ham and was prescribed Tamoxifen and Radiotherapy by the Clinical Oncologist. I was seen a few days prior to treatment starting, half way through and have a follow up in October. If you have the name of the person you saw, try Googling them - I did with mine before I went to the appt in the hope there'd be a picture so I'd recognise the person I'd be speaking to. Made me feel more comfortable during the appt. the other thing I do prior to apps is write down my questions and take them with me and refer to it during the appt. No one minds and it's reassuring to me that I've got answers to my questions - may be worth a try - helps me feel more 'in control'!! 

My skin which was very pink and itchy has really started to heal amazingly fast - copious applications of cream helps hugely. Good luck and I hope you all have a great weekend. Jay X