My gown is rather fetching too Janey,the first one they gave me giant boob burst out the side of the Velcro!This one has press studs!,Im shocked to hear about your BC nurse being crap,i have been very lucky I can't fault the team iv had looking after me,just hope the new rads team are as good.Its so good to hear there's light at the end of the tunnel too Lesley glad you are feeling much better,happy Sunday.
Hi Kate, hang on in there, it does get better I promise. All healed on outside now, just skin feels a bit rough, twinges and aches inside much better and generally feeling more 'up'
Did manage to get through in the end but again, my BCN was busy but spoke to one of her colleagues who answered my question. She also asked how I was doing and was lovely. I told her I was seeing the oncologist in Monday for follow up after rads, she said she would try and be there at my appointment, which considering I'm not "one of hers" is really good of her, wish I'd been assigned to her not my one. To be frank, at the only meeting I had with her, after just being told the news she took me and my husband into a room and started firing details of the surgery, recovery etc at a hundred miles an hour in a chirpy way while we were both still in a state of shock - she seemed to be really excited that the date of my op, 8 June was her daughters 4th birthday and she was planning a lovely party for her!
Don't expect a response from Janey, she's away at the moment and wasn't sure of Internet connection.
enjoy your Sunday xx
Lesley, can't believe your bc nurse hasn't got back to you! I've always left a message and they've got back to me. Hope you ok. X
Hi Janey, yes, I saw your dates had already been set and you've had your tattoos done after I posted on a different post. Much be such a relief to ve finally on the move as it were. Husband is on the mend thankfully. Been tryin to get through to my Breast Care Nurse all morning with no luck. I've only seen/spoken to her once and that was the day I got my diagnoses. Will keep on trying, phone constantly engaged, so frustrating!
Read you've been given a gown to wear for your rads, I didn't, used to have to strip in corner of room then walk over the the machine naked from the waist up, lucky I passed the shyness stage years ago lol xx
Fantastic, at last Janey after a long long wait you're finally on the way! Hope you get your planning date through soon. I got a phone call giving me my planning appointment a few days after my results, hope you do too. With regard to starting the Anastrozole, I know from reading posts on here lots of people wait until they've either finished rads or near the end before starting. I started 3.5 weeks before (same time as coming off hrt). Guess only you can make the decision. Xx
Well, came back Sunday from a two and a half week break in lovely Wales staying with my sister. Felt so much better after lots of good healthy food (sister a really good cook), lots of long walks on beautiful beach literally five minutes walk from her house. Unfortunately my husband was ill while I was away and admitted to hospital. He was discharged on Sunday evening but still poorly, so what with the worry about him and a visit to the ENT department today and finding out that I've got have an op on my sinuses I'm not feeling as chipper.
Boob almost back to normal four weeks after finishing rads, just slightly achey, slightly darker and a bit bigger (not sure if that's permanent or will go back to normal?) and the skin is rough. I see the oncologist on Monday. Still getting hot sweats in the night, thank goodness for chillow and cooling pads.
i hope everyone else is recovering well, and Janey, got everything crossed for a good result for you tomorrow xx
It's so frustrating for you having to wait and wait, you will feel so much better when you are into the next stage. They say radiotherapy should be eight weeks from opp, then it's wait wait wait, mine was two and a half months later. Hope you get there soon. Well done to those who like me have finished and I agree it's a bit weird how the tiredness and soreness gets worse. I'm going to Majorca on 1st Oct for a week, so hope it's not too bad by then. Hope you all sleep well, I'm lucky I don't get the hot flushes, just aches and pains.xx
Janey, I am so sorry, you really keep getting a rough deal, so flipping unfair. This thing is so awful and having all tthe extra stuff you've had to deal with on top, one thing after another. I feel for you. Wish I could give you a big cuddle and pour you a large G&T xx
Sorry to hear your appt cancelled. So hard when you gear yourself up for something. Still waiting for my plan meeting. Seems like forever. No bone scan yet either. Hang in there girl! Xx
Good morning, yes Kate, it does get worse before it gets better. The burning comes out and I got very sore after, also very tired. The good thing is though you haven't got to go everyday to be fried and can rest when you need to. Enjoy the nice weather, look after yourself and try to forget about work for now. I'm feeling so much better 3 and a bit weeks on, a bit better each day. Hope you do manage to get a break away, makes a big difference.
Hope everyone has a good day xx
Still away in Wales staying with my sister, going home sometime over the weekend. Will miss the beautiful beach, feel the sea is healing, but will be glad to get home to the husband, missing him like crazy. Put on weight (needed it) but hope I don't put on too much more, can't afford a new wardrobe.
Well Kate, youve done it, wonderful feeling isn't it? Hope the nipple doesent give you too much trouble, I'm over 3 weeks post rads and mine is still slightly swollen and sensitive, peeled about 3 times. Rest of boob is is now fine on the outside, just feels a bit rough and looks very slightly darker than the other one. Still getting twinges inside and the odd sharp pain but few and far between. Feeling ok in myself except tired because of lack of sleep due to flushes/sweats, also now getting pains in left hand and both arms, not sure if they're caused by Anastrozole, will ask at oncology appointment on 26th.
Kim, hope you're doing ok. Janey, not long now until you find out what's what I hope, it seems ages to me so goodness knows what's it's like for you. Sue I think you get your dates soon? Heather hope aches and pains are not too bad and you're ok Kary. Xx
Kim,im struggling with sleep too I think I could cope better if I could sleep,flushes are aufull too.Yes Janey ,planning app cancelled as scanner was broken will be going nxt week they will ring me Monday,oncolgist meeting still went ahead,slight lymphoedema in breast but happy to go ahead ,so rads will have started before end of the month.happy Sunday ladies😁
Hi everyone. I am 5 days post radiotherapy and at the moment the boob is doing ok, a doctor I spoke to says the affects peak at 2 weeks post last of rads so I am not counting my chickens quite yet. My problem at the moment is the hot flushes and not sleeping because of them. I went to the dr yesterday and was given some Venlafaxine which I took yesterday and felt so ill last night and couldnt sleep at all, I have felt rubbish today too so am not taking anymore of it. So I will just have to cope with these wretched flushes. xxx
I know what you mean about the aching and doing too much Lesley, I don't get the hot flushes but lots of aching at night, hope you feel better today. x
just checked in in to see how you're all doing. Nothing from Kim, hope she's doing ok now finished her booster week.
I'm enjoying my break away but really overdid it yesterday, first sunny day since I arrived so set off on the train to Tenby. Was a very long day and ended up walking miles. Aching back, hips etc today and of course the usual sweaty restless night (thanks Anastrozole).
Take care all xx
Hi Terri Anne,i bought the chillows which are the cold pillows from e bay from Hong Kong £2.79 bargain.The cool pads are on Amazon and e bay I got a pack of three for £9.99,they can go in the freezer or can be heated up,they are smallish about the size of a small tablet,you could put in hot/cold pads.I hope things go well with the tamoxifen Kate,im struggling with it almost a month in,chillows and fan,i also managed to get a little portable fan hand held thing,at the till at m&s,handy for outings,my sun took me for a meal yesterday and out came the Portuguese gift shop fan,did the job though,good luck everyone x
Hi all my cooling pads came today got two of them in the freezer thank you for the recommendation ladies.planning going ahead on Thursday ,and I'm 51 too.
it's a shame you're not feeling 100% but having the break will help I'm sure. The walks by the sea sounds ts good therapy in itself. Enjoy being looked after and the quality time.
Sorry for for typo errors. Have a good week all. P.s. Think starting Anastrazole on 8th.
Just Wanted to to say a quick hello. So glad things looking good Janey, fingers crossed for you. With you on the pretty underwired bra again Heather, getting sick of going either braless or too big sports bras. Hopefully not long now till you get your dates Sue. Kim, you must be finished your boosters now, really hope you did something nice to celebrate and poor boob is not too bad. Kate, getting close to the finishing line.
Im being thoroughly spoiled by my sister. Haven't felt that well since arriving here but have managed to get 2 5 mile walks on the beach in so far. Wish I could say I was sleeping better but alas no, still suffering from the dreaded hot sweats/flushes all night, still, I'm hoping that after a few more days of walking by the sea and lots of good food and relaxation I will start to feel better and hopefully even get a good nights sleep, it's certainly much cooler here.
enjoy what's left of the weekend all xx
I hope you get the result you want Janey,and glad you have slept better.I don't think it matters how old you are heather its great to get support and advice from others who are going through or about to go through the same thing.I hope you get your date soon sue.Im still not sleeping I'm sure it's the tamoxifen I hope it styles down soon,im feeling better so antibiotics are working but still very hot and swollen will find out Monday if planning app still goes ahead,happy Saturday ladies x