Hi is the link to some headwear sites, some include discount codes. I ordered quite a few from Anna Bandana, I particularly like the the cotton jersey elasticated "ready made scarves", the prices are reasonable too. I would also recommend come cotton sleep caps, handy for when your hair starts to shed.
I am also interested in the Heather's Hair headwear, I've had a look at their website.
I have ordered hat and scarf combo and got them today, they are really lovely. Site also has headwear not just wigs.
Hope this helps x
For those of you thinking about going on a Look Good Feel Better day, I've been on one today and it was a lot of fun. I've written a full review of it here: https://gettingabreastofthesituation.wordpress.com, including a list of the contents of the freebies which are well worth having.
Well worth booking up. The website lists the venues that host them along with booking phone numbers: http://www.lookgoodfeelbetter.co.uk/workshops-and-advice/dates-and-locations
Hope that helps.
Hi, I start my chemo on 13 August, I am 9 weeks post op because my oncotype DX result took a while to come back (the person who was meant to send it forgot to) anyway another story, I am still a little in the dark about what is to happen, and like you are gathering tips from the forums to help me through it, hope all goes well with you, and keep in touch on forum Deb
Hi - I am starting chemo on 13 August, and I am wondering if anyone has any good sites for headscarfs turbans etc, I have one and I have tried it on, but I look like terrible, I know I dont normally look gorgeous but I want to a least look a bit feminie , I think I may have to try a wig. Deb
I put this an another thread when someone asked about help for her mouth, we are talking about ProDentis lozenges. I have bought a pack of 30 and plan to take one a day for 5 days after every session.
My sister-in-law had chemo for Non Hodkinson's Lymphoma and suffered terribly with her mouth and her doctor said she should have them. Cannot remember if they were a prescription or she just bought them. Anyway they are for people with gum disease, see this:
Ask your nurse/doctor if they are ok to take but they are about £20 on Amazon.
welcome to the forum, I only joined a couple of weeks ago and find it very supportive and filled with so much information, the forum helps us all regarding information but most importantly hearing experiences of other members is amazing and inspirational to people like us who are just begining this journey.
I am post op of 5 weeks and waiting for my first chemo session on the 11th August. I found out last week that I am having FECT 3 weeks apart for 6 session followed by radiotherapy. The tips here are invaluable as they are tried and tested and passed on. I am currently purchasing suggestions from members to help me during chemo sessions.
Welcome Bekah, I am waiting to start but will be on TCH x 6 and my C is the carboplantin. I will get the Herceptin with the chemo then switch to Herceptin in the thigh when chemo is finished.
Would prefer a jab to the leg 😁 Others on same protocol getting it from start but they all seem younger than me so maybe that's how the choices are mad. Glad the sick meds are working , I'm taking everything they've offered me so far ok . All the best for the next few days X Ann
Hi Hazel MUGA scan fine but oncology late authorising herceptin so delays at start of day, liver function test clotted twice on the centrifuge do everything delayed in the end because I had taken my steroids I had the TC and going back Monday for H . Veins already struggling.How you doing so far? Ann
Hi, I am due to start chemo on 13 August, I had the Oncotype DX test I had early detection of the cancer, and had a lumpectomy (partial removal of breast) and luckily my lymph nodes were clear, but my test came back at intermediate risk of recurrence, so this has been a roller coaster of a decision, but I have decided to have the chemo which makes gives me a 92% chance that it will not recur, this test is fairly new and the MDT could not advise me as my result was slap in the middle so its a 50/50 gamble but increasing my chances, so for 4 months I thought I would throw everything at it so that I dont regret if it comes back. I am loving all the chats, I know absolutely nothing only what I have been reading, I am having PICC line put in the day before, and today had my hair cut short, as I was advised that my hair would fall, (does it always) ? I have 6 sessions then 4 week radiotherapy at the end. D
With you all either just starting or just about to start I thought I'd pass on some useful tips for attempting to keep your veins in good condition while you're having chemo. These drugs are not kind to veins and those of you on FEC in particular will find it worthwhile doing everything you can to preserve your them if you haven't been given a PICC line or some other permanent access for the duration of your chemo. We need to try and avoid using our lymph node removal arm if at all possible because of the lymphodema risk so that only gives us one arm to work with.
The veins become painful due to two things: inflammation and cording (become tight like cords). Inflammation is acute while the cording is chronic.
Prior to attending the chemo unit for your chemo, plump your veins up by:
Between trips for chemo do the following to help veins stay in good shape:
If/when veins begins to become painful or inflammed:
As with any issues, always discuss it as soon as possible with your chemo team. This information is based on my rummaging around the internet, discussing it with my chemo team and discussion on forum. It is based on my understanding and I am more than happy to be corrected if I have got things wrong. I found this pdf which had some advice http://mylrh.org/wp-content/uploads/2009/09/Vein-Care.pdf If anyone can add anything else which would help, then please do.
Hope that's useful,
I'm starting TCH chemo tomorrow only found out yesterday eve as letters had not been sent out ! Had my MUGA today, so now hoping I don't hear from hospital that there is an issue and I can't start. Nervous but just want to crack on with it now.
Hi Charley and Madhatter hope you are both feeling well and not too many side-effects im also having fec-t 6 sessions and herceptin on 4th cycle ....counting down to next thursday xx
Hi Charley and Madhatter,
Congratulations on having your first chemo! It gets the horrible anticipation feeling out of the way now you've got one under your belt.
Hope you both sleep well and have no or minimal side effects.
Hi Charley - we must have been having treatment at the same time today, I had my first chemo today too at 1.30! It is scary - I was so nervous and worried but the actual chemo was not too bad. What treatment are you having, I am having FEC-T, 6 sessions in all. I know what you mean about anticipating side effects - I am tired but feel it is a waiting game! I start steroids tomo - do you have the same? I too didnt fancy the cold cap, I recently had my hair cut very short not sure when to shave, if I do! I will post how I progress, and look forward to reading how you get on. Sending you hugs, thinking of you and all others on the same journey.
Had my first Chemo , today feeling tried now , had it at 130 , had a light tea and drinking lots of water , just having a hot flush , as l write , this. Was really scared , but to be honest , had worse things having other treatments , over the years , won't be scared next time , Having six lots , every three weeks part that scares me is the , waiting for the side , effects , if and when they come , going to shave my hair of in a few days , didn't want the cold cap , been reading things on here tips , ect which l will try , will share my journey on here with everyone , lots of love leexxxxxxxxx
I'm jumping in from an earlier starters thread. Also FEC-T. I did 3 x FEC and about to do my second T.
The drug you inject is usually GCSF and my one was called Filgrastem.
If you do end up with my high temperature I hope your hospital is as good as mine. They had me in a private room hooked up to a IV of antibiotics and a few other drugs very quickly indeed. Only spent one night in hospital as I refused to stay longer. For my other cycles I got my GP to treat me at home. I had infections on every FEC cycle but nothing (touch wood) on T so far
Hope yours goes smoothly
Found out I start FECT chemotherapy on the 11th August with pre assessment on the 8th August.. thank you all who have gone through this, going through this and for posting and sharing your tips and experiences to help others like me..it's so helpful and supportive.. 🙂
The appointment yesterday was a lot to take in but I came away with lots of information for support.
I was told that I have to take my temperature regularly and that if I get a temperature it could be life threatening.. scary stuff, I was also informed I have to inject myself with something at home after chemo but just can't remember what she said now. I'm sure I will get the hang of it like we all do eventually..
Warm wishes to you all xx
Hi Blueash I put a bit of Emla cream on my leg an hour before Herceptin & you can't feel the needle going in. Might be worth a try for your bone marrow injections into your stomach, as you will probably more willing to stick a needle in yourself if it doesn't hurt. I got it from Boots. The other option to to get your practice nurse to do it, which I did. x
Just jumping in from an earlier thread ( I started Chemo in April and still going)
It could be GCSF (Filgramstim or a similar name)
I injected this for 5 days as part of my Taxotere and Herceptin cycle. Inject it into my leg as I have a very tickly tummy.
Found it very easy but I have injected things before - which may be why. Very small needle and practise helps to find the right, painless bit of fat to inject into.
Hello ladies, I initially joined the July thread as I was due to start my chemo on 7 July, but this was delayed due to an infection. I see on this thread that some ladies have had seroma's. I too had a seroma under my arm, which was extremely uncomfortable. I had it drained three/four times, which did help initially. I then got a nasty infection and I was on very strong antibiotics for two weeks. Eventually things settled down have finished antibiotics last week - I now have an appointment with Oncologist tomorrow and if he ok with everything am due to start Chemo. Am extremely nervous as I am sure all you ladies are. Although I find all the information on here helpful, no one knows really what to expect. I have tried to gather as much information as possible, but I didnt know about Onicolife! Now concerned that maybe I should buy some as my nails are dry before start treatment!!! Have any other ladies tried this on nails, I have purchased some Cuticle serum from M&S, should this be used in conjunctionwith Onicolife - can anyone advise??
Big hugs to all you ladies going through this journey
Hello girls - I would like to join in. I have no start date as yet because I am having a CT scan before I begin but my regime is TCH x 6 and then Herceptin injected into the thigh every 3 weeks for a year. The bit that scares me the most is having to inject myself with something to help the blood count. Nobody is more squeamish than I am but they say I will be fine because they will show me exactly what to do. I forget the name of it but 2 to 3 days after chemo I have to inject myself in the belly every day for 7 days.
I have ordered some of the expensive nail drops someone mentioned.
Hi Alex Well done on getting your first one done & glad you're beginning to feel a bit better. I think it's important to know it will go away, because we can all put up with something if it's just a few days. You can put nail varnish over the top, but obviously you have to do your nails yourself, because you need to take off at the end of the day to put some more on overnight. I found some really nice non toxic nail varnish/remover by Benecos & it was just as good as my usual stuff. Onicolife is from Mosaic on line & is quite expensive c.£15, but one small pot lasts a while (some places give it to you like a chemo take home prescription, but not the Marsden where I am). If that's out of your budget, Horses Hoof is about £6 for a big pot or Dada oil about £4. People's nails get awfully dry & start cracking or lift (vile right?), but I was a bit freaked out by the idea of that, so my BCN recommended what I have told you & mine have been normal throughout, although now have a few more vertical ridges than before. Not sure if they will go eventually. Hope so! FEC didn't seem too bad for nails but the T is. She also said keep nails a bit shorter than usual if you can on the T & keep your hands as dry as poss, so use rubber gloves in the kitchen. Sorry for another long post xx
Good luck to all you ladies. I was standing in your shoes this time last year. Just wanted to reassure you that chemo is usually not as bad as you think, although it can have its moments of course, it's more an endurance test in feeling a bit rubbish in many small ways, rather than one big awful scary thing. The things most people get are mainly individually manageable & you won't get them all at the same time. Most of us did have good weeks where we felt perfectly OK & managed to live life pretty much as normal, albeit not with our hairstyle of choice! I was on FEC-T & the first few days were challenging, but after that most people see a gradual improvement from day 4 or 5. Please don't be scared of the actual chemo being administered (we all were nervous the night before), once the cannula is in, it's pretty straightforward & a nurse sits with you chatting the whole time. Mine told me all about her online dating exploits & had moved in with the fella by my last one! You feel a bit spacey after, so if you can get a lift home, that would be useful. Then you just gave to sit & wait for something to happen. Everyone's different, but most had morning sickness (feed with carbs/ask for aprepitant from the outset if at all travel/anaesthetic sick), constipation (take Senna on the day to stop it), indigestion (gaviscon), headaches (invest in some soluble ones that go under your tongue in case you are feeling sickly), chemo brain (watch out when you're driving/cooking as we are easily distracted on steroids), sore mouth (difflam/boots dry mouth mouthwash/swill with soluable aspirin) & bad taste (elderflower). A few got neutropenia (take temp regularly/call the helpline if at all worried/carry antibacterial gel), but that was the minority. Put onicolife drops or horses hoof on your nails 3 times a day right from the start. Final word of advice: drink for England day before, day of & day after chemo. It makes all the difference to SEs. Huge hugs & best of luck with it all. xx
Hi all, can I add to the list ear plugs for the chemo bag. These are great if hospitalised as is a eye mask. (Think that is on the list already. Arnie x
Hi Vintage, thank you for your reply. I had my MX 13th June, was on antibitotics, they finished. Going to call BCN tomorrow as it is so uncomfortable. Glad to hear yours is now settling down. Some light there.m
Thank you that does help so much.. your list is amazing and has given me the info I need.
I am due my pre assessment 2nd August. Different regime regarding chemo from you guys but still with same side effects. Have had MX and am currently suffering with a huge seroma across chest wall and under my arm pit. Drained last week 1litre of fluid and may have a haemotoma so this may already delay the chemo start. If I do begin August I will follow this thread.
Thank you Belle for the comprehensive help list and so will start to gather things together when I am more mobile.
Asked for a picc line but not had an appointment through yet!
Hi Seaview & Julie,
I'm so sorry about the cirucmstances that bring us together but you really are very welcome. It is a very scary time so it's perfectly normal to feel that way. I'm a little ahead of you (3rd of 6 FEC just done) and have found once I got going, it was easier in someways. I'm always better doing something than anticpating it.
I found being as prepared as possible was the best way for me to handle it. And I tried to be incredibly busy in the run up. My first cycle was pretty grim re side effects but my team then adjusted my take home meds and the subsequent one have been better in that regard. The tiredness/fatigue is cumulative so use this time to stock up the freezer with meals that just need defrosting and reheating - made such a difference to me. Soup has also been a godsend. And I have a store cupboard full of nuts and dried fruit for quick snacks. Eating little and often has helped keep nausea at bay for me.
Hope that helps,
my first post,but lots of looking around...
I don't have a date yet but I go tomorrow for my pre assessment for a walk around the oncology and meet the team and discuss my treatment plan. I know I will be having 6 sessions over 4months 3weeks apart followed by daily sessions of radiotherapy for 3 weeks. I'm 4 weeks post op from lumpectomy and feeling OK, however I am so scared of going through chemo. I was hoping not to but cancer has spread to lymph nodes.
I have found so much support on this forum and thank you all for your encouragement and kindness.
Great to see you here already. This is a very long post, sorry - but I hope it is of help to you.
The information has come from an old and long thread but it is still a useful list as you are approaching your treatment. This list was started by Princess, reposted in 2008 and most recently updated by Sue H-S who is often around and part of the May 2016 group. A big huge thanks to all the contributors who have added their tips over time.
For the Gums:
Ensure you see your dentist before commencement of treatment to get everything sorted, including Hygienist. It will ensure your mouth is in a healthy state and may help to reduce some side effects.
For the mouth:
Water tasting odd:
Light bites suggestions
General Wellbeing/During Chemo:
Sleep when you can
Dry skin/rashes/spots from Taxol
Hair loss/head coverings
CHEMO BAG AND CHEMO CADDY
Once again, all credits to the ladies who have added to this making it an invaluable reference tool and thanks to Princess for starting it!
Hope this helps 🙂