Well done hunny... I'm not long behind you I have my induction on 1st December for radiotherapy and start 22nd December for 4 weeks.. I agree anything is better than what we are all going through with chemotherapy.. after this I feel I can do anything!! Xxxx
Yes got through it! Thank goodness... bloody hard though. I'm going to ask too anything go make it easier.
Awwwww bless you I do hope it all goes well and that your side effects are easier for you.. keep in touch as and when you can to let us know how you are doing. Love and hugs to you ❤
Hi lovely ladies
Glad you all ready for the T Aine and recovering well this time around... I have my last one on the 25th Nov and I am deffinately going to ask my oncologist about the Dex, anything to make things easier.
You did make me chuckle about decking the next person, I fully and we fully understand that yes you get sick of hearing it and the positivness begins to disappear sometimes... keep your chin up and I hope your T side effects are to a minimum.... ❤ hope everyone is getting on OK and feeling well xx
Love to us all xxx ❤❤❤
This is all extremely practical and useful advice about how to prepare for the T cycles.
I am trying to prepare myself mentally having had a really tough time during the 3 FEC cycles.
I am on my 'recovery' week now and can't believe how much better I am - omg no nausea at all!!!!
Many many thanks for all your sensible and clear advice....I am taking it all on board.
Got Clarityn. Got the Dex to take before the big day. Will ask for strong painkillers and get a week's shopping in the fridge and freezer!
If anybody else says to me sure you're nearly finished I am going to deck them!!
Good luck to you courageous ladies who are nearly 'there'!
If I remember correctly it was dexamethazone.
The usual dose for T was 4 tablets twice a day, starting the day before, day of & day after chemo.
(I took them at 8am & noon, I never had trouble sleeping)
With the steroid tale it was the same as the above then for the following three days two tablets once-a-day, then for the next three days one tablet once-a-day.
Best of luck xx
You can do the steroid tail yourself because you don't get any more you just take fewer pills on more days. It just means that instead of "leaping off a cliff" when your steroids stop you descend a flight of steep stairs.
You can Google "steroid taper" but basically if I was doing it and I had 16 mg of dexamethazone for 3 days I would take all 16 the day before chemo. Then all 16 the day of chemo but instead of taking all 16 the day after I would take 8 the day after, then 4 the next day and the last 4 the day after that.
That means I would take my dose over 5 days not 3 and have 3 days recovery so to speak. I only know all this because if you take steroids for a long time you have to taper them or it is dangerous to stop suddenly. A few days is not a long time but some people have to take them for many months.
I am from the class of September 2013, I don't visit often nowadays but couldn't read and go.
I went through six rounds of its FEC-T
First dose of T absolutely floored me, terrible pain felt like I'd been beaten up with a baseball bat. Prior to my second dose I complained to my oncologist about it, hoping to be able to score some super strong painkillers.
He prescribed what he called the steroid tail, great I thought more steroids! But blow me it was like a miracle cure, on the days that I should have been flat on my back according to the previous cycle this time I was putting up my Christmas tree!
For those of you suffering the bone ache of T I'd definitely mention the 'steroid tale' to your team.
take care x
Morning lovely ladies
Well done done to us all getting through this roller coaster of a ride to say the least..
I had my 2nd T (5th chemo) 3rd November, due to the horrific side effects I had to endure the first time round I decided to try claritin as mentioned here... I started the claritin 4 days prior the chemo and I will be taking them until 10 days after the chemo, last one being tomorrow. The side effects I have to say were just as bad, however, they didn't last as long so to me that is a bonus but I did feel out of sorts for the same period of time which I can cope with however it has still been a rough week. This time round though I have to say has been an emotional roller coaster for me... I suffered constipation again even though I followed a healthy diet, drank lots of water, laxatives on a daily basis and many many prunes 😐I eventually could take no more and had to contact the out of hours for help as I was very distressed.. and scared after the first time this happened.
I eventually was able to go to emergency walk in centre at 1am to get some surpositries which helped eventually, again this was an awful experience but we are all different and respond differently to the treatment and the many meds we are on.. this has happened twice to me now so I guess 2 out of 5 ain't bad 😟
I will be taking claritin again as it really helped with the pain...
This time round I have had to endure severe fatigue, this is very alien to me as I am very independent and active and my brain was saying yes but my body no! And we have to listen to our bodies so I have stayed in a lot more this time and slept a lot more...
I guess we are all coming up to our last session soon, mine is on the 25th November yayyyyyy. ... we have come so far lovelies and nearing the end! Well done to us all and love and hugs to us all too! ❤❤❤
Well done Benno getting back to work, I think normality is such an inportant part of our journey.. I am hoping to go back in January.
Hi from the September thread!
Just got over the usual horrendous 12 days of cycle 3 FEC and am rejoining the human race.
If anyone needs a laugh I put a few jokes on my thread 🙂
Can you buy Claritin over the counter or do I need to get a prescription?
Also I have to take Dexamethasone for 24 hours prior to my first T and H on the 21st.
Has anyone else done this?
I asked my doc about Claritin when I was getting my last FEC and he didn't have a clue what I was talking about.
My god you ladies have been through hell lately....I am really scared.. I think i will have an overnight bag packed in case I have to go to hospital on short notice.
I am trying to be positive. Carpe diem is my motto and i'm trying to enjoy being at home and not having the stress of work to worry about for a while longer. My daughter has a cushion in her room that says 'positive vibes only' and I love that. We survived FEC and we will survive the rest....X
Hi, Vintage its horrid isn't it youre suffering , i had a streaming cold after all the hosp stuff so i dont think that helped had 2nd t and herceptin yesterday feel ok so far , the pharmacist sent me home with morphine for when the pain kicks in as he said it definitely will lessened my t by 20% ... cheers lol , he was more concerned about my numb finger ends which worried me a bit cos he said if i ignore it it could be permenant so im on edge about that now only 1 more t to go so am a little happer heres to us all having better side effects xx
So pleased you are now home....👍 Awwwww bless you, you make sure you take it easy hunny. ❤
Thank you for your reply... well 5th chemo done, been a long day but one to go yayyyyyy... I do hope SE are not as bad too but I'm ready this time for it!!!
Sopke to my oncologist and she said she wasn't to worried as it's not near any organs but if still there in 5 days to call and go in for assessment and scan, so I'm happy about that as I am worried but she alleviated them a little.
My thoughts and love are with you! ❤❤
HI lovely ladies...
Awwwww bless you Vintage and See See... Hugs and love to you you both ❤
Let us know how you get on.. I may be out of it for a few days as I have my 2nd T tomorrow not looking forward to it after last time but at least this time I know what to expect, I have also been taking claritin..
I was hoping you ladies could answer a concern I have... over the last couple of days I have noticed a few lumps on my lower ribs (breast cancer side) they are painful to the touch, in certain positions and when I lift my arm up it really hurts as though there is limited movement... has anyone else suffered with this? I must admit it does worry you...
Love and hugs to us all ❤❤❤
i got out of hospital yesterday with oral antibiotics. They think mine was a chest infection. They've said the oncologist needs to check my chest again next week and my breast care nurse says I may get a reduced dose of the last 2 'T' or longer between doses. My white cell count is lower than when I went into hospital. It's hard to tell what are SE and what's out of the ordinary when you're changing drugs.
Hope you get out soon
Just wanted to wish you well and cheer you up if that is possible! Don't know what to say about your proposed choice of treatment but be sure to let us all know what you decide xxx
Bless you, it sounds awful and not good for you! I hope you are able to go home as soon as you are well.. love and (((hugs))) to you ❤
It sounds we are all really going through it with the T, thanks for the tips regarding claritin, I will be deffinately trying that.. anything to help with the pain. Dreading my 5th session this Thursday but after that I have one more to go like many of us August starters we are getting though it... we are doing so well and yes it's doing its job.
Hugs and love to you all..❤
The claritin is for everyone having the tax (docetaxel) because it gives you such bad pains but claritin helps with the pain. See here for details:
It cnnot hurt you and might be a real Godsend. Take it a day or two before your chemo and for at least a week-10 days after. It does not works as well if you let the pains get established. If you don't let them start you might not have any, I just felt very tired and achy but I was not in agony with it.
SeeSee I am really sorry that you feel so awful.
I have just been reading the August threads for the first time and I am quite shocked and dismayed by it all. I am getting cycle 3 FEC tomorrow and was delighted to be able to say I am now half way through this.
Now I am realising that it is just going to get even worse. I have had bad nausea problems and have been extremely tired.
Are you all having such a rough time on the T cycles? Has anyone advice on how to prepare for the first one please? I see the advice on taking Claritin - is that for people who have hayfever problems normally? I don't.
I had my first T on Wednesday. I ache all over; my arm from the problem that required the PICC line is sore; my neck and ears ache; I have no appetite and my mouth feels awful. Doing anything other than sitting or sleeping is too much for me. Don't remember feeling this bad for a very long time 😞
You have to get claritin hayfever tablets! Take them a couple of days before and for 10 days after. You will not get the pains I promise.
hi vintage , no was fine until 2 days after t and herceptn then had the most awful pain in my bones then my temp went up so ended up in hospital again for a few days , pain not bad now but got my next round on thursday and am dreading it i think the t and h has given me different se like sore finger ends and feet very odd . Hope you are as ok as possible only 2 more t to go yippeeeeee cant wait x