77.1K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

BC has come back after 16 years, this time in BOTH breasts!

13 REPLIES 13

Re: BC has come back after 16 years, this time in BOTH breasts!

Really pleased for you clawsie...now you can enjoy the BH hopefully 😁 my cousin also spent his last few months in agony due to the bone metastasis 😩 so is it a lumpectomy on both for you now then? Then back on tablets? Debbie x

Re: BC has come back after 16 years, this time in BOTH breasts!

OK so just got back from hospital and I’m quite happy with the results, mainly because the bone scan is ok, phew! Was really concerned about that, cos my uncle spent his last few weeks in agony due to a bone metastasis! MRI scan was ok and confirmed there’s no other areas of concern in both breasts. The two known tumours are IDC small, less than 15mm, one is grade 2 & one grade 1. Both primaries and both ER+ and HER2-.

 

What threw the consultant was something they spotted on the MRI, a large-ish, egg-shaped “lump” behind the heart, 90 x 45 mm. At first he thought it was a swollen lymphnode, and was going to discuss chemo, but after checking with a radiographer he came to the conclusion it’s not a lymphnode (he said there would be more than one involved if that was the case), and it could be something benign, a hernia, or anything else, basically he didn’t know. Has anyone else come across some “strange finding” on their MRI scan?

Re: BC has come back after 16 years, this time in BOTH breasts!

Good luck with your results today 🤞🤞🤞fingers crossed for you x

Re: BC has come back after 16 years, this time in BOTH breasts!

Clawsie, best of luck for your results tomorrow. I hope the news is not too bad, but at least you'll know what you are dealing with and can start to get your head around it. The waiting is the worst! Just remember we're here for you come what may. Big hugs.🌷🌷🌷

Re: BC has come back after 16 years, this time in BOTH breasts!

Good morning clawsie and thank you for your reply...on both threads...have you had the bone scan and mri now? Is it just the CT that you are waiting for? Have you got a date for it if so? Yes it’s definitely the waiting that’s a bummer. I had the bone scan just this Monday gone (nobody forewarned me how close the screen comes down to your face lol...I was proper starting to panic that my head was going to be crushed 😱😱😱) but I lived for another day. My CT scan is on the 6th April...then have to have a bone density scan end April but will be seeing consultant before then. I’m definitely more calm about it this time and if I didn’t have the CONSTANT pain in my boob reminding me all the time I would be even better. Do you know if the cancers in each of your boobs are the same cancers? I really hope that you get good news on Thursday and its/they have not gone a travelling 😡 and then at least you can enjoy the bank holidays a bit more. I will be looking out for your results 

Debbie x 

Re: BC has come back after 16 years, this time in BOTH breasts!

Hi Debbie,

Sorry to hear you're in the same boat... it sucks big time!!! I should have my results this Thursday & find out if it's spread and what they gonna do about it. 3 weeks from diagnosis... the waiting is the worst. Still haven't had my CT scan, delayed because of incompetent hospital admin! Still feeling cheated, when I think about the doctors back in the day saying I was "cured"... but then again, they didn't know what they know now. I've been reading about "dormant cancer cells" and it's been quite an eye opener! I bet this wasn't common knowledge in 2002 😞

Re: BC has come back after 16 years, this time in BOTH breasts!

Hi there...I think I’m about a week behind you...bloody cak isn’t it? When do you get your bone scan results? Having mine on Monday so fingers crossed for both of us 🤞

Debbie x

Charys
Community Champion

Re: BC has come back after 16 years, this time in BOTH breasts!

Glad you feel a tiny bit more settled Clawsie...I put a post on our community champions page, asking if anybody knew of anybody who could help.....and Shi found Tatyana! Thanks Tatyana, much appreciated. Wishing you huge strength and fortune for Monday, do let us know how you get on x

Re: BC has come back after 16 years, this time in BOTH breasts!

Good luck with the scan, Clawsie! Waiting for the results is one of the worst things of all. I'm keeping my fingers crossed for you, let us know how it goes! 🍀🍀🍀🍀

Re: BC has come back after 16 years, this time in BOTH breasts!

Thank you so much for your replies. Feeling a bit more hopeful now, spoke with other patients at & they all regard the surgeon/team as really good and efficient, so that's reassuring. I'm having a bone scan next Monday, hoping there's no secondaries lurking 😞

Re: BC has come back after 16 years, this time in BOTH breasts!

Hi Clawsie, I hadn't seen your post until Shi from another thread pointed it out to me, bless her!
I had BC in 2002, er+, lumpectomy and rads, zoladex, tamoxifen, letrozole. Like you I was fine and thought I'd sent it packing for good! Then in May 2017 it came back, only on one side in my case but with lymph nodes.
I know how you feel, it's such a horrible shock after all that time. It takes time to get used to the idea, but trust me, when you get the scans done and work out a treatment plan it will get easier, because you'll know what you are dealing with and you will be doing something concrete to fight it.

It's so tough to have to face it for a second time. But you did it once and you'll find you are stronger because of that. You won't find many of us on here who've had a recurrence after such a long time. But once you get your treatment plan sorted, you'll find plenty of folks who have been through or are going through the same treatments, and I know they have been a MASSIVE support to me.

Hang on in there, take it a day at a time, it's not easy but it's not always going to be as bad as it feels right now. Let us know how it goes, and meanwhile I'm sending you lots of hugs and love.🤗🤗❤️❤️
Charys
Community Champion

Re: BC has come back after 16 years, this time in BOTH breasts!

Hiyer Clawsie,

 

I'm so so sorry to hear that you've had this recurrence in both breasts after so many years. I'm also going to apologise that I have no experience of this myself as only had my treatment two years ago, but I doubt very much you will be alone in your diagnosis after 16 years - and I'm hoping some people will be along shortly who can share their experiences. I didn't want to just walk away though, after reading, and wanted to welcome you - albeit under very difficult and upsetting circumstances.

 

x

Re: BC has come back after 16 years, this time in BOTH breasts!

Hi Clawsie

 

Sorry that you havent had a response yet, hopefully someone will be along soon to share their experience with you.  It may be, because this is rare, that people are unsure what to share with you.

 

Have you thought about talking with one of our experts on our free Helpline, 0808 800 6000?

 

Best wishes
Anna
Digital Community Officer

BC has come back after 16 years, this time in BOTH breasts!

Hi, had BC in 2002, grade 1 17mm, tiny little thing, ER+, had lumpectomy, radiotherapy & tamoxifen for 5 years. Got my 10 year discharge in 2012. That's it, I thought. WRONG! After a routine mammogram, just been diagnosed with the bastard again, this time in BOTH breasts! Looks like they're both small lumps of 15mm each, no lymph node involvement according to ultrasound. Consultant sounds concerned and is "throwing everything at it" (his words) because apparently having bilateral BC is quite rare, so CT scan, bone scan, MRI etc. I've been absolutely numb & spaced out since diagnosis, don't know what to think/hope for.... I feel cheated. All I can think is how could it happen after all this time! Anyone been through anything similar? Thanks for listening