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BRCA 2 gene and risk reducing surgeries and HRT

7 REPLIES 7
Joie
Member

Re: BRCA 2 gene and risk reducing surgeries

Hello,
I have had a positive result after being told it was negative.....I am wondering if I should have a second test, perhaps privately, to be sure and certain before making a decision about surgery etc.
catchpole
Member

Re: BRCA 2 gene and risk reducing surgeries and HRT

I took HRT from 41 to 67. and my friend as she has had breast cancer and had the gene was advised never to take it. HRT is Hormone replacement therapy surely.june

original69
Member

Re: BRCA 2 gene and risk reducing surgeries and HRT

Hi

 

I had the option for risk reducing surgery. Didn't have to fight for it. I had a think about it for a while and decided that was the route I wanted to take. My sister has died from ovarian cancer and I would never have found out about the gene if she hadnt being diagnosed as my mother the carried at 67 has never presented with any cancer (very lucky)

 

I found my consultant was lovely and explained everything. Obviously there is still a risk after but if you have a gene the risk is reduced by about 90 to 95 percent with risk reduction surgery... so still a risk but a lot less than doing nothing and having high statistics. I think the view point it that it should be up to the patient so if you decided that is what you wanted then they should allow you to have it.  It should be up to the individual. Each health authority is different and sometimes it is down to money.  

 

Maybe your consultant is thinking that because you dont have a gene then there could be other things you could take to lower the risk. I think if I am right that with a family history but no gene the risk is 30%, general population risk is 12.5 percent. Maybe there is something you could take after surgery to reduce your risk. However you are could be right with the gene thing as when I saw the genetic consultant she said there were genes not even identified and they only really knew about 3 genes at the moment. The 2 brca genes and one beginning with T i think

 

You need to push for what you want. Hopefully you will get some questions answered at your next appointment

 

 

newey47
Member

Re: BRCA 2 gene and risk reducing surgeries and HRT

do you mean hormone therapy as opposed to HRT - two very different things x

catchpole
Member

Re: BRCA 2 gene and risk reducing surgeries and HRT

Hi original 69.

 

I was on HRT from 41 to 67 i gave it up when i found my breast lump,.  I had a hysterectomy at 60 to removed fibroids and they took my ovaries to,  The reason i was on it so long was my mum had osteoporosis very badly and like her i had an ealy menopause. My oncologist says he believes ,my breast cancer as i have few other risks was caused by my long term use of HRT.  So as much as i do miss it anf the damm night sweats have come back, no i wouldnt take it anymore,  Im on taxmaxifen now, but dont need chemo thankfully,just rads..

 

 

I have friends, sisters and a cousin who all have the BR gene, their mums died of breast cancer about 15 yers ago, ,  All had breasts removed at a young age, one was found to have cancer when gene tests were being done. 18 years later she is fine but was told on no account must she ever take HRT, Shes had ovaries removed,  Her sister who is younger has yet to do so. and her cousin has had ovaries removed, She lives in different part of UK and is on HRT but has been told shouldnt be for long.

 

It was hard for me to give up HRT ive always felt well on it and it seems to have stoppedf me getting osteoporosis, i do have thin bones, but then ive very petite and slim.   But after having breast cancer i just wouldnt risk it again.  june

 

 

 

mickey24
Member

Re: BRCA 2 gene and risk reducing surgeries and HRT

Hi

I have just posted under a new thread regarding Risk reducing surgery. I am afraid I can't give any advice regarding HRT, but I hope you don't mind me asking if you had to fight to get approval for risk reducing surgery? I don't have the BRCA gene but my sister got breastcancer at 28 and I got it at 45, My consultant thinks Risk reducing surgery would add little benefit , hmmm 😄 Michelle
Janet_BCC
Member

Re: BRCA 2 gene and risk reducing surgeries and HRT

Dear original69

 

Welcome to the BCC Forum.  While you are waiting for some replies from fellow members I've attached a link to one of our publications which I thought may be helpful

 

http://www2.breastcancercare.org.uk/sites/default/files/bcc27_ovarian_ablation.pdf

 

I've also attached a link to some information about breast cancer in families:

 

http://www.breastcancercare.org.uk/breast-cancer-information/about-breast-cancer/breast-cancer-famil...

 

It might also help to talk to one of our Helpliners for information and support.  Opening times are 9-5 on weekdays and 10-2 on Saturdays.  The number is 0808 800 6000

 

Very best wishes

 

Janet

BCC Moderator

original69
Member

BRCA 2 gene and risk reducing surgeries and HRT

I had breast cancer nearly 11 years ago. This was oestrogen receptor positive 100%

 

Since then I have found out I have the BRCA 2 gene as my sister was diagnosed with ovarian cancer

 

I have opted to have risk reducing surgery, double mastectomy with immediate reconstruction and ovary/fallopian tube removal.

 

I am 45.

 

Has anyone been in the same situation and had HRT after. I am wondering if I would be offered HRT because I had an oestrogen receptor positive breast cancer. Will I be allowed this as I am having a mastectomy so the tissue will be removed.

 

Any advice would be appreciated