thanks Bella , i am not sure what to do i guess im jumping the gun a little i havent ruled out just having my other breast reduced will be able to look forward after next week x take care x
Hi Tracey I had an immediate reconstruction with subpectoral implant and ADM. Well that's what my notes say 😀 I know it as the pig skin hammock reconstruction...fluid build up doesn't sound pleasant I hope they get it sorted. I've got two drains attached due to the reconstruction so fortunately no fluid build up just a snazzy shoulder bag to carry them around in.
I've got a quick check at hospital tomorrow and then full results like you next week. I've given up thinking of what the outcome might be as I've got it wrong in my head several times so flexibility is the name of the game and I'll just go with the flow till I know next week and then have a melt down if appropriate at that stage 😅 Xx
Hi,Bella glad to hear youre doing ok must say the mastectomy not as bad as i thought , although i am waiting for a call back from my breast care nurse as the fluid build up is increasing daily so may have to get it drained but hey ho could be worse , my results from lymphs next week so fingers crossed for us all , can i ask which type of reconstruction did you have ? x
As I wasn't expecting the full lymph node clearance I haven't researched or been given any information about the consequences of it. However am a little concerned re not having blood taken from it as the nurse in hospital did just that? I was never asked which arm surely they would know not too take blood?
Think I will have to do some googling today to see what I can and can't do. Also concerned about the injury bit as well. I have a horse and we're not unknown to part company as she can be a tad spooky. What would happen if I fell off and injured that arm?
sorry for questions but no one has spoken to me about it I was just told they were doing full clearance. Is it something my physio will discuss with me in a couple of weeks? Xx
Hi Tracey and Sue,
Sorry for delay have just found these posts as still trying to navigate round this site. Came out of hospital on Friday having had mx and immediate reconstruction with 3 drains. Unfortunately had to have full node clearance as the SNB showed one of the two taken was cancerous so they took them all for biopsy. Am doing ok and managed to have a bath today, well a sit in 3 inches of water but it was nice.
Tracey when you have a reconstruction here's a tip don't look down after the operation without being able to see a mirror. I looked down and thought what on earth had gone on, also didn't take into account that the drains were still in which affected the look. Having had a proper look through non drugged up eyes I am quite happy with my reconstruction and that's before the swelling has gone down.
Just the wait now for the drains to be removed in 10 days time along with the results from the nodes and pathology report on tumour. Next step chemo,just need to find out how long between op and chemo.
More waiting now but a little further down the road to recovery 😀 Xx
lol hope so, i am not sure what to do yet all i do know is that my other boob needs reducing definitely which my consultant says they can do eventually so that makes me happier x
Hi.Sue, advised against immediate recon as may need radiotherapy and to be honest i am really pleased with my scar and how it looks i did think i would be freaked out but quite the contrary , glad for the time to think about it all .
well had my mastectomy and lymph biopsies yesterday and apart from the pain inbetween meds i feel ok back on the 26th for my results fingers crossed , hope you are ok Bella and are recovering well .
Good luck for wednesday Bella i am sure youre right about the labour thing let me know how you get on. i am also on the lookout for front fastening bras , asda do some might investigate its gonna feel so weird i am quite large breasted am scared i will fall over lol think baggy clothes will be my saviour xx take care
Hi Sue thanks for the info re bra had bought one that was front fastening but think I might need to go a size larger not in cup size but around my chest as I think the one I've got is already a bit tight.
Re the tops were you able to get tops on or did you need shirts with buttons on the front. I don't know how well I'll be able to manoeuvre my arm to get in a top?
Tracey I don't know what your feeling but I am certainly up and down. I've got my radioactive injection tomorrow and node biopsy wed and it's starting to feel very real. Have just packed my hospital bag for wed. The last time I did that was when I had my son 20years ago. Never been near a hospital or doctors often in that time so a little apprehensive. The only thing I can think of is that a 23 hour labour must be far worse that a four hour plus operation that I will know nothing about. Fingers crossed I'm right 🙂 xx
Thanks Sue i was quite down when i knew i coulnt have a reconstruction for at least 6 months but now i think more positively it will give me time to recover and think about what i want to do , i didnt think initially i would need radiotherapy but now it may be the case but we get on with what life chucks at us dont we ? my meltdowns are a little less frequent now lol but its a life changing experience for us all and it helps to chat to others x
hi Sue thanks for the reply and the heads up re final diagnosis at least I'm prepared now should things change. Re the implant I'm thinking tennis ball 🙂 till things settle down.
Thanks Lexi re advice on other sites etc, good to hear you are doing well. There are so many other things to sort out other than just your treatment. As people have said its a marathon not a sprint and I'm just passing the start line. So many positive stories on here and I'm always up for a challenge so let it begin x
Well done on finding this site early and gaining such great support, it took me much longer...
As mentioned everyone has different results and treatment plans, in addition to their own unique home environments and associated support strategies.
I would urge you to look at the advice pages here and on the Macmillan site re work, benefits and additional support you may be able to access due to your change in circumstances. Maggies Centres are also fantastic for hand holding, and guiding you thru this quagmire
Good luck with treatments and being where you want to be.
LL , 2 years post diagnosis, 18 months NED x
Hi Bella boo, Your final treatment confirmation will depend on the results from pathology a couple of weeks after your operation. Great to see you are preparing well! It will be over, before you know it - and often not as traumatic as imagined. Initially I was diagnosed with a 2cm Grade 1 or 2 lobular invasive after ultrasound, which changed after my biopsy and MRI scan to a 3cm Grade 2, ER+, no node involvement. So we (surgeon and Bc nurse) all thought initially - mastectomy - (I am not a large lady 38B) and chemo perhaps not necessary. Hence the decision for the reconstruction straight away. It was done in Haywards Heath, West Sussex by Mr. (removed due to Ts and Cs), who is a specialist in onco plasty, a relatively new specialism. My smallish size and pertness made it possible to have the kind of op I had with a great outcome. As it was, when the final results came back from pathology it was an 11cm cancer, whose size just did not show up on the MRI, as many of its 'tentacles' were single strand cells. Thankfully nodes clear, which is apparently a small miracle! I am so happy I opted for the mastectomy - at least the thing is gone! I now have clear margins - the chemo is a must and the radiotherapy will make doubly sure that nothing is left in the site. i.e. it kills any cells, which may still be there at the operation site. Unfortunately it may affect my implant - shrinking and hardening is possible. Should this happen I have been assured that they will replace it to ensure the outcome will be as good, as it is now. I am sure you are aware that the implant will not feel quite like as if you would have your breast enlarged. If your breast has been enlarged it tends to be positioned underneath your your breast tissue. In our case, that is obviously not the case. So you may wish to be a bit more careful with that side in the future, as it is not as well protected, as it would be in a breast enlargement. It may initially feel hard and a little strange and perhaps look, as if it is not in the right place. Don't panic - it takes well over 6 weeks to heal properly, although with luck you can drive after 2. There will be bruising visible on the outside - and of course bruising and trauma inside. It all needs a little time to heal properly and for the tissue to heal and relax. Hang on in there - for me getting the final results was the worst part of my diagnosis. I hope yours will simply confirm initial findings, which happens most of the time. I certainly sympathise with that others react more dramatically! For me, even now with chemo - it is - lets get through this and get on with things again. It is not going to kill me tomorrow or in the short term, so what is the problem....perhaps I am stupid, who knows....time will tell. Good luck for Wednesday - let us know how you are getting on. xx
i did did laugh when I read the bit about 'fooled you'. That's exactly how I feel I keep expecting to turn up for my SNB on Wednesday only for them to say oops sorry we made a mistake your ok!! I know that's not going to happen but everyone else's reaction seems a bit more dramatic than my own has been. Other than a couple of wobbles I've not had a meltdown yet but I'm sure I will at some point. I'm quite a practical, pragmatic person so am just off to the shops to prepare my hospital bag as I can't drive after Wednesday so need to be ready.
can I just ask a question. I'm having a mastectomy and reconstruction on the same day followed by chemo and Herceptin injections for 12 months. Why do you have radiation as well and where if you have had a reconstruction? My consultant hasn't mentioned radiation so I'm just a bit confused.
Hi.Sue you are so prepaired i find it hard not to look too far ahead and people say to me take it one stage at a time and of course they are right . I have to wait for my reconstruction (if i have it ) as my consultant feels it would be best especially as i may need radiotherapy its confusing really as some have it immediately even with radiation hey ho i suppose he knows best . Counting down now to the 11th , i wish you all the best youre doing so well x
hi Bella , went for pre-op so all set for the 11/5 i am really up and down just want it over , got told im having an injection of radiation on the morning of op to check my lymph glands .....now im trying to picture myself with only one boob lol . good luck for the biopsy keep me posted xx
I work for a small company and told everyone via email. The main reason I did this is because I knew I wasn't going to get in to the office as I am a commuter (80 mile round trip, approx 3 hours daily driving) so I didn't want people jumping to their own conclusions about where I was. I also told other companies that ring me regularly that I was available via email only for a number of months which has allowed me to continue my working relationship with them. Everyone is different and everyone's work situation is different so Its a very individual choice what to say and to whom.
I finished full time on the Friday 19th Feb, 5 weeks after diagnosis, and had my op on the Monday 22nd. apart from 3 days to recoup after surgery, I've worked part time (20-25 hours per week) at home since. As well as financial reasons, it's kept me sane continuing to work as a bit of normalily remained plus kept me in the loop.
Hi traceyfizzi, how you getting on. Got my sentinel biopsy on wed so it's just starting to feel a bit real. Heaven knows how I'll feel before the big op xx
I worked until the day before my surgery just to keep my brain space occupied which it did it's a really personal thing. I only told my manager and my team to start with but when I finished and found out I would be off for a while I did say that i didnt want it broadcasting but if people asked outright that was fine. I work in health care and most people were just concerned. It's work well up to now and has filtered out over time. Good luck everyone. X
i have my mastectomy on the 11 th May as well. Ive got a sentinel biopsy next week to check the lymph nodes but am having the a mastectomy and reconstruction on the 11 th. I've just stopped working as I can't provide the focus I need to do to do a good job. I don't know what's to come but am positive that it'll be a good result in the end but just a bit of a journey to get there. Best of luck and I hope it all goes well on the 11 th.xx
hi, i work in a nursing setting and i must say that i find it helpful that my collegues are aware, i am soooo up and down at the moment and i dont have my mastectomy until the 11/5 so am working until a couple of days before . I think i would ponder too much if i wasnt keeping myself busy x Good luck everyone
Welcome Sonya, I told my boss and a few work colleagues who are also good friends, I know the news filtered around which I didn't mind as we are all quite close knit at work , other than that it was only immediate family and there are many that don't know still, I just hadn't felt the need to discuss it with everyone and it's been lovely to bump in to friends and just chat about normal rubbish knowing that they have no idea! Don't feel pressured in to telling everyone Xx Jo