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Being a patient patient playing the waiting game

9 REPLIES 9

Re: Being a patient patient playing the waiting game

Good news for you. You can enjoy life again!! I must admit I've taken reassurance from the group as lots of women have had good news.
I've got a 12 year old son too. I just keep thinking of them and having to break news to extended family. (We're really close family!) but trying to not go there. I've got all sons football team and families coming this weekend for a bit of party. So busy organising this. So should take my mind of things this week.
Wishing you future good health! Xx

Re: Being a patient patient playing the waiting game

Jean this had been the most stressful week or so, I like you have a step daughter doing GCSE's and 12yo daughter who is still settling into a new school in a new area. I really wanted to protect my family from it, my mum had a mastectomy almost 3 years ago so our entire family is already over exposed.

 

Luckily for me my appointment went well, I can't believe it, I had absolutely convinced myself of the worst case. I'd had severe itching, inflammation and lumpiness of my left breast. I also have inflammatory bowel disease and had been experiencing alot of bleeding and headaches, a recent endoscopy had shown no sign of active diease so I'd joined up all of the dots and convinced myself I had bc. 

 

I saw a consultant on Satruday morning, had an examination and ultrasound, nothing showed up whatsoever. My GP who referred me also thought there was a lump. They think my symptons are hormonal and advised me to monitor any changes.

 

This forum was a godsend to keep me sane, I really hope others can get some comfort from my experience. The waiting is awful.

 

 

Re: Being a patient patient playing the waiting game

Jean

 

Thats a good idea.  I actually kept it from my mum until I knew what I was dealing with, you was not very happy with me but did eventually appreciate that I did not want to worry her.

 

Know what you mean, I worked up until I had my op and it was a great distraction.

 

We are here when you need us my dear xxxx

Re: Being a patient patient playing the waiting game

Thanks Helen,
Yes, I'm definitely not telling daughter anything until I know for certain. I've got a few things planned this week to distract me and of course work. (Never thought I'd hear myself say that I'm happy to go to work for distraction!)
Its going to be a long week!! X

Re: Being a patient patient playing the waiting game

etandme

 

Hi how did you get on at your appointment yesterday xxx

Re: Being a patient patient playing the waiting game

Jean

 

Hello and welcome to this forum, I know it is not a place you want to be, but there is loads of help and support on here from all the lovely ladies who know exactly what you are going through, there are those who have been diagnosed with bc but as you will see there loads of ladies who have been told that it is a benign lump or is another breast condition which is not cancer.

 

It is a very worrying time, I would strongly recommend that you do not google freely as there is a lot of out of date and misinformation out there which, as you have found out will only scare the living daylights out of you.

The best site to come on to for information is here or the MacMillan web.

 

Try and I know this is not easy, to distract yourself until your appointment.  Think about this in small steps, the first one being your appointment, you do not know what you are doing dealing yet so I would not say anything to your daughter unless you have to and that is a big IF.

 

I know it is difficult with you having had a lump before but there is nothing to say that the both things are linked at all so dont beat yourself up about it.

 

The thing to remember is that IF and a big IF it is cancer then it can be treated and treatment now is very successful as you will see from reading the posts on here.

 

Are you taking your hubbie with you as it would be a good idea for moral support and another pair of ears.

 

We are all here to help you get through this so come on whenever you need there will always be someone here to help and support you.  There is also the wonderful helpline the number is at the top of the page if you want to speak directly with someone as well.

 

Sending you a hug

 

Helena xxxx

Re: Being a patient patient playing the waiting game

Hi There,
I've just found this site and I'm toatally beside myself with worry too!
I have a large marble sized lump with prominent blue veins around it. My GP described it as a irregular lump! (Off course I've googled it!) she said she's very concerned and requested an urgent appointment.
I'm even more worried as I had a small lump about 8 years ago in same place and was referred to breast cancer centre had a ultra sound and came back all clear. I'm now torturing myself thinking they've missed something and it's had 8 years to grow.
My appointment is a week on Tuesday. I just don't know how I'm going to get through the next week!
I'm torturing myself! It's my daughters GCSE's I keep thinking how am I going to tell her if it isBC. That's the last thing she needs to know at this stressful time. My husband has been fab. But have not told anyone else as don't want to worry anyone.

Re: Being a patient patient playing the waiting game

Thank you for your reply Ann.

 

I was about to book a private consultation this morning, after a big battle with my gp surgery for a referral and them telling me I was playing the system by having an NHS referral then wanting a private consultation, not that I see it as anyone else's business!

 

Anyway decided to call the hospital to check in and they advised I have an appointment for this Saturday so glad I checked in now and just a few more days until the first hurdle x

Re: Being a patient patient playing the waiting game

Hi etandme, 

There's no magic wand in getting through this stage, but you will get there. 

Thank goodness you've been referred, to have it properly looked at.  Mostly, it turns out not to be bc, but if on the off chance it is, then the sooner it gets dealt with the better. Treatment for bc has some of the best outcomes out there.

Most of us here have been happy with the NHS & it does not make a lot of difference to timescales & there's no difference to treatment, so I would concur with your gp on that.

do let us know how you get on

ann x

 

Being a patient patient playing the waiting game

Hi,

 

Completely new but lurked these forums 2 years ago when my mum had breast cancer.

 

Currently torturing myself waiting for my first referral, it's only been 4 days. 

 

Having large boobs I've always found examining difficult but for some time have had a nagging worry, over the last month have experienced itching to the point of distraction of my left breast and last week found a lump.

 

My poor OH is scared stiff, as am I, neither of us are sleeping but trying to keep family life ticking over with a smile.

 

Told my employer what is going on as they are pressuring me to travel alot for work at the moment and today I just cannot focus on my job, not that it's stopped work piling on the pressure and telling me there's nothing I can do whilst waiting for my appointment and I have alot of work to get done! Seriously that's not helped and if I wasn't worried I'd need my sick leave in the near future I'd being going off today.

 

Am tempted to go privately for my initial check but my GP has told me today if I do that and need treatment I will have to start the 2 week referral period from scratch and I don't think we could afford to self fund an entire treament plan if it came to it. 

 

Scared, stressed, exhausted and overwhlemed.