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Best time of day to take tamoxifen?

22 REPLIES 22
Butterfly318
Member

Re: Best time of day to take tamoxifen?

Hi there Kath.

 

Sounds like you are coping with quite a lot and you really could have done without anything else, i just hope whichever Tamoxifen you get works for you and doesn't cause the itching. 'cos my understanding is that they are a big part of the treatment. My Onc has advised, from recent big piece of research, that i have to take it for 10years. The way i feel i will be Thankful to be taking it in ten years time.

 

My last Chemo was end February this year (started November 2012) and i noticed a cumulative effect as i went through Chemo of that Brain Fog / Confusion.  I bought a small notebook and wrote everything down and still do if it's important (info at appointments / insurance info etc).  The fog has definitely lifted, i have noticed in the last month my thoughts are much clearer and i can process information much quicker, almost as previous. At first i thought it was stress related from diagnosis / treatment / worry about all of those things only somebody in our situation could imagine......but I have looked at research on Post Chemotherapy Cognitive Impairment which appears to be very real but recoverable.

 

Not convinced i will ever be the same person i was before but trying to be thankful for what i have and doing everything i can to remain well.   

 

Hope you are having a good weekend.   Take Care   Gilly x

Guest user
Not applicable

Re: Best time of day to take tamoxifen?

Hi ladies I will be having radiotherapy in 3 weeks time then will be taking tamoxifen for 5yrs, I was told by my oncologist to take tamoxifen before rads treatment but I thought you took them after rads?... or does it matter when you take them? Thanks jules xx
goldengirl
Member

Re: Best time of day to take tamoxifen?

Hi girls I have been on tamoxifen for 2 days. woohoo! Am currently taking it at bed time, but was told to have something to eat with them. Is that true or do you think as long as it's after dinner you're ok? i'm telling myself no side effects so I wont get any! I didn't have chemo and will start rads within 4-6 weeks. love to all 

poemsgalore
Member

Re: Best time of day to take tamoxifen?

Hi Gilly,

 

I do have a regular pharmacy. I have a list of drugs as long as my arm that I have on repeat prescriptions. Tablets for RA and Bronchiectasis, inhalers, eye drops, nose spray, mouth spray (sjogren's syndrome) and now - TA RA - breast cancer!! If my GP doesn't specify a brand name (which they don't) I just get the cheapest version!!

 

I don't think a drink now and then will harm you. I just don't like the taste of it. I did used to enjoy one or two when younger, but couldn't manage many as with me, one drink = 5 trips to the loo!! How long is it since your last chemo? Mine was on 23rd May and I still have chemo brain. Only now, it might be turning into dementia. Old age rapidly taking over.

 

Best wishes

 

Kath xx

Butterfly318
Member

Re: Best time of day to take tamoxifen?

That is seriously random. Not sure what you can about that, do you have a regular pharmacy?  Whichever brand you get i just hope they are OK for you.  

 

Before diagnosis i would have said i was a social drinker and on the odd occasion drank too much.  I didn't drink at all while having Chemo as i didn't want to speed up my metabolism taking the Chemo out of my system prematurely. (I was desperate to shrink that damn tumour.)   Absolutely no clinical evidence base to say this would have happened just my own personal strange thoughts!!!  Really did not miss it, have just had a small glass of wine twice since and it didn't do me any good??  Also had a lot of that Chemo Brain (serious fog) so didn't want to add to that with alcohol / hangover!!  So glad that seems to be lifting and have even remembered a few birthdays this month, seriously impressed with myself....  (My Mum used to say self praise is no recommendation but a girls got to get her compliments where she can). 

 

Take Care   Gilly x

poemsgalore
Member

Re: Best time of day to take tamoxifen?

Just looked, Eleven are Wockhardt and the other 19 are Teva!! How random is that??

poemsgalore
Member

Re: Best time of day to take tamoxifen?

Thanks Butterfly, I hope so too. I know I said mine were Wockhardt, as some of them are in a Wockhardt box. But it doesn't say that on them. The rest are in a plain white box. I will have to check when I come off PC.

 

Regarding allergies to wash powders etc, I've never had problems before. And as for red wine, I'm tea total except for Christmas Day. I hope thing continue to be good for you.

Butterfly318
Member

Re: Best time of day to take tamoxifen?

Poemsgalore.

 

Enjoy your amnesty.  Itching is really unbearable, i feel for you. I do hope you get on OK with the Tamoxifen when you do go on it.  The only time my skin has itched is when i had a glass of wine (and i really do mean just one tiny glass).  I have done this twice and it has made my skin red / made me hotter and raised my BP.  Currently investigating a lovely array of Organic Sparkling Fruit Waters and Fever Tree Tonic. 

 

In our house we are all a bit skin sensitive, we use Eco Wash Balls rather than detergent (no fabric conditioner) and don't use anything with parabens etc. so i did wonder,  when i saw in a previous thread that you were experiencing itching,  whether i would suffer that but so far so good...and have been on it since July.

 

Hoping it is good for you Poems.

 

Take Care.  Gilly x    

Debrahams
Member

Re: Best time of day to take tamoxifen?

that's encouraging then littlecherubs, good to hear xxx
4littlecherubs
Member

Re: Best time of day to take tamoxifen?

Ah thank you ladies, mine are also TEVA but only 10mg as I got them from the hospital pharmacy and apparently they only have 10's so I have to take 2. Will see what my next script from the chemist is 😕 xx
Butterfly318
Member

Re: Best time of day to take tamoxifen?

Cherubs. 

 

Mine are Wockhardt.  The box says Tamoxifen  20mg and in bottom right hand corner WOCKHARDT.   In Red.  Also on foil Wockhardt UK Limited.  I have only ever had this brand although i know there are a number of manufactuers.   I have been fortunate not to have ever had to take regular medication before so was quite anxious that i wouldn't remember it.  I keep my Tamoxifen and Glucosamine / Chondroitin (painful joints) next to bed and have so far i haven't forgotten. 

 

I have to say i started them in July and was hot all the time / having night sweats for the first couple of months but am pleased to say they have settled down.

 

Good Luck with them girls.   Gilly x

Freda61
Member

Re: Best time of day to take tamoxifen?

Cherubs, I have got TEVA and it is on the bottom right corner of the packet on the side it has it again with something about a trade mark or something.  Maybe your pharmacy label is covering it.  Also it says it on the foil of the blister part.

4littlecherubs
Member

Re: Best time of day to take tamoxifen?

Hi Debrahams....I started mine in the morning but quickly changed to evening for no other reason than everyone else seems to think its better then.
Ive been on them nearly 2 weeks now and all ok so far (touch wood) not sure when side effects can start tho if its after a whike or straight away 😕
Good luck with yours too xx
4littlecherubs
Member

Re: Best time of day to take tamoxifen?

This is probaby a stupid question but where do I find the brand name?? 😕 my box just says tamoxifen and ive searched for the brand name but cant find it......am I missing something? xx
poemsgalore
Member

Re: Best time of day to take tamoxifen?

Hi

 

I'm glad I found this question. I am currently in a four week 'amnesty' after taking Anastrazole, but due to the awful itching (no other problems) I've had to come off it. I'm to have Tamoxifen. They arrived today (Wockart brand) but I still have 2 weeks of my 'break' from treatment, so won't begin them untl 3rd December. Has anyone on Tamoxifen ever had any tortuous itching? Pain I can cope with - I have RA anyway - but unbearable itching, no thanks!!

 

poemsgalore

Jo_BCC
Member

Re: Best time of day to take tamoxifen?

Hi Debrahams,

 

Welcome to the BCC discussion forums where I am sure you will get lots of good, honest support from the many informed users of this site.

 

To help you along I have put for you below the link to BCC's publication for Tamoxifen, I hope you find it helpful.

 

http://www2.breastcancercare.org.uk/publications/treatment-side-effects/tamoxifen-bcc20

 

Take care,

Jo, Moderator

Debrahams
Member

Re: Best time of day to take tamoxifen?

Hi,

I had a lumpectomy and have just finished my radiotherapy today. I start Tamoxifen tomorrow. My Oncologist said that most people seem to take it at night so I intend keeping it by the bed. Like you I am nervous to take it, have been told I need to take it for ten years which also worries me.Would love to know how you get on, good luck - D xx

Butterfly318
Member

Re: Best time of day to take tamoxifen?

Hi there 4littlecherubs.

 

I'm been taking Tamoxifen for 3/4 months now and just like the other girls i started taking it in the morning but within 2 weeks was having hot flushes at lunch time.  I have changed and take it when i get in bed.  I have to say i am quite warm all of the time but definately have night sweats some nights at 3/4 am but other than that so far so good, some joint pain on waking but Pilates / stretch have been really good for that.  We have decorated a few rooms whilst i have been off work so when getting new bedding i bought cotton and a 1 tog quilt (from M & S).  Also have a silk pillowcase which is lovely and cool (this was a gift for my 50 in an attempt to prevent creases on face!!  - with hindsight i would gladly swop a few creases for for what i did get !!!). I also take a big glass of water to bed.

 

Take Care.   Gilly x

4littlecherubs
Member

Re: Best time of day to take tamoxifen?

Hi curleychris
Thanks for your reply. Ive been reading through some old posts and it seems most prefer taking it in the evenings....think I will give it a couple of weeks to get into my system then try evenings. Id better get a fan at the ready 😉
Thank you xx
Curleychris
Member

Re: Best time of day to take tamoxifen?

I agree have been taking Tamoxifen since June and started taking thewm in the mornings but changed to evening still have hot flushes and sweats but not as bad as when I first started.

 

4littlecherubs
Member

Re: Best time of day to take tamoxifen?

Thank you for your reply Diana, ive started it this morning so will give it a couple of weeks to see how I get on and if any problems I will try evenings.
Its silly really....everything weve been through and then we worry about taking a tablet 😕 and yes your right we only hear about the nasty things.
Thank you and pleased to hear your doing so well....its very reassuring.
Take care xx
Dianab29
Member

Re: Best time of day to take tamoxifen?

Hi. I started taking tamoxifen 5 weeks ago and after reading other posts I decided to take it on an evening. So far I'm pleased as, apart from the occasional hot flush which I had during chemo, I've had no other side effects. I'm swimming, going to the gym and riding my horse 8 weeks post op. Like chemo, rads etc.. everyone reacts differently so I would suggest just going with it and tweaking the time if you need to. Not everyone suffers side effects and generally, as with most forums, you read about those people experiencing problems and nothing from those who are, hopefully, just getting on with their lives as normal.

I hope any side effects you do experience are minimal.

Take care

Diana x
4littlecherubs
Member

Best time of day to take tamoxifen?

Hi,

I had a mastectomy 2 weeks ago and im lucky enough not to need chemo but im due to start rads in a couple of weeks and have been given tamoxifen today. 

Im really nervous about taking them because of all the side effects and wondered if anyone has found a preference in the time of day to take it ie morning or evening? 

Any advice would be much appreciated Smiley Happy

Thank you E xx