Hello Alex, and the rest of you. I have bone mets too, dx last may as I had a spinal cord compression, nearly 5 years after the primary. I'm on denosumab and anastrazole. I had radiotherapy on the spinal tumour which was causing the problems, and it was like a miracle, all the aches and pains are gone.
I'm so sorry that you have to deal with this at your age, Alex. I'm 52. I am feeling well, I have no pain now, and apart from fatigue sometimes, no symptoms. I think there is a great deal to be positive about, we all live in this game of snakes and ladders and sometimes ofcourse I feel down, especially when something scarey happens, but so far the treatment has always resolved things. On the whole I'm really really happy. I'm working, and have 3 children and 3 step-children so I live a very full life. I'm coming to the conclusion bone mets can be seen as a chronic illness, and people can live for many years with them, often without too many problems. That's what I intend to do! There seem to be lots of treatments and thank God for the NHS and the brilliant people who work in it. Bless you, Alex and best of luck with your treatment,
I'm considerably older than you and am on Capecitabine and have the monthly Denusonab injections. My tumour markers reduce whilst I'm on Cape and I feel generally fairly well (there are some side effects). I work full time, commute 4 hours per day to work and have a reasonable life outside work. I hope that it works for you too!
Hi Everyone... I'm Alex, 25, living in Manchester. My primary diagnosis was in 2013 aged 23 but I've recently been diagnosed with Secondary Bone mets in my hip, spine, shoulder, ribs and skull. I had to have a pin fitted through my hip and femur to prevent bone fracture where the cancer is. I'm starting Capecitabine this friday and Denosumab injections monthly. Please could I have some feedback from others in a similiar position, I'd like to hear some positive experiences as I'm quite scared at the moment. I hope you're all as well as can be. Thanks xxxx