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Bone pain


Re: Bone pain

Hello Ziggy
I've only just seen this. I'm very sorry for not responding after you too such a lot of effort to help. I've taken your points onboard, and am planning changes in my diet, as I may be coming off my meds, so need all the help I can get! Thanks again x imac

Re: Bone pain

Hi everyone. Imac...dont worry too much if you have to use morphine. I have mets to lung spine pelvis ribs and recently liver. I use mst tablets but at a low dose and combined with paracetamol they have a goid effect on pain. I also have a bone injection 4 to 6 weekly. Also if you are not happywith your onc...ask for a different one. You should be happy and confident with your doc.
Hope you get your pain under control x

Re: Bone pain

Hi Ziggy, very interesting post. Were you being literal about drinking half your body weight in water very day? I can see it might be helpful, but boy thats alot of water...how do you manage it? I think theres also a danger level of water intake we should not cross, isnt there?  Seem to recall a friend being cautioned against overdose of water.


the books you mentioned sound interesting and ill try and read them. Are you on chemo now? And have you got mets?


i would be really interested to hear more about your history if you feel loke sharing.


hugs, Moijanxx

Re:metastasized to bone

Like others, I was misdiagnosed . Now there bone cancer in my spine, pelvis, hips & sternum. That said, I'm doing ok. This has been going on for a couple years, I'm a big reader and have educated myself outside regular treatments to help myself as well. There's a website called chrisbeatcancer.com that has a lot of helpful info. The book Radical Remissions has helped me tremendously as well. I no longer sleep 8 hours straight. But am not in agonizing pain in bed (even without the foam topper). So I thought I'd pass on some of the things I'm doing for what it's worth. 

Breast cancer is also called a disease of nurturers. If your oncologist hasn't told you I'm surprised. There are certain personalities that are actually associated with disease. Being a nurturer is one for breast cancer.

No stress. It activates everything and the point is to keep fear (which is unhealthy) away so we can heal. In my case, I've lovingly detached from some. I realize they are toxic to me right now.

some say it's a "spiritual disease". For me, I was disconnected with that part of me and had to find a way to reconnect . It's ongoing, daily & intentional. It matters.

I drink half my body weight in water daily no matter what.

Meat, dairy and processed food is bad for cancer. So are carbs, sugar and sugar substitutes. Cancer feeds on sugar. If there's no sugar it's starves. 

I practice fasting. Started with a one day fast weekly. Then worked up to 3-5 day fasts (water fasts). 

I've juiced, done coffee enemas and many of the weird things you've probably heard. 

We have you move ! Cancer is just our good cells trying to defend us from the bad environment they're in. They can turn back into healthy cells (it's happened). Rebounding is great for breast cancer and everything else. Plus, it's easy. If it hurts to stand on it then just sir & bounce. They're mini trampolines...

So even when we get radiation or chemo (which kills cells) if we don't make lifestyle changes it can return. In my case I cheated all the time and only changed a bit. Radiation / chemo don't kill stem cells. The stem cells are there and so to be fully well we have to have a different environment undesirable for cancer (unhospitable). 

I take supplements. Vitamin D3 is nearly always depleted in breast cancer patients. It's cheap & east to take.

Im in the U.S. So do t know what's offered over in the U.K. Sorry if I went on too long. I wish you all complete healing, no more pain, finding your joy again and some silver linings from this. I'm here for you, at the moment feeling strong yet knowing we all get to freak out (let it out) on this lonely individual journey .

Re: Bone pain

Thanks for your support Ginger21. Pain, particularly At night can be frightening. I don't have much confidence in my oncologist as he has made several errors so far. He doesn't inspire confidence, and his nursing team, both very experienced, contradict him frequently. My nurse said the radiotherapy could only be given once, he said this week I could have it again. My dad had lung secondaries in bone, and they never got the pain under control. I'm pretty scared at the speed of this.

Re: Bone pain

Hi Imac55


When I was diagnosed with stage 4 a year ago I had significant bone mets including base of spine and pelvis. I was prescribed Targin which includes an opiate as a short term solution for the very bad pain. In my case it took about 10 weeks for the rads to kick in. Once that happened I weaned myself from Targin which took about 2 weeks reducing the dose a few days at a time. Have had no pain since which is 9 months so the rads really do work.


Together with bone mets I have several liver mets and slight pleural effusion. Was on Eribulin for 6 months and now Tamoxifen. As soon as I started with the Tamoxifen I went to London for a month and returned to Australia a week ago. (Yes, it's a very long way) Had a fabulous time and plan to do it again so don't give up on your plans. Once the rads are complete there will be a good chemo for you to control the spread as there was for me. I know it can be scary and a shock but know they will get on top of this for you. 



Bone pain

Hi. I'm feeling a bit panicked, as my condition seems to be deteriorating rapidly. Diagnosed in June with primary lung cancer in error. After biopsies found to be lung and pelvis bone metastases from earlier bc in 2006. The oncologist made out it was all small and minor, but from only needing occasional paracetamol 3 wks ago, I'm now on tramadol plus naproxen and paracetamol, and he's talking about morphine soon. I'm having a planning scan for radiotherapy which he's marked as urgent asap. Hopefully this will help with pain but I don't think spread. I had so many plans. Travel, now I'm scared to think too far ahead. How could the oncologist get it so wrong?