I am with Carol in what she says. You certainly have had more than your fare share of things. Does anyone go with you when you have your appointments? I am lucky to have my husband come with me and it is great having him with me as support and also to ask anything I may forget about. Do keep us informed how things go as I will be worried about you. I am lucky with Oncology at Roya Berkshire as their attitude is totally different to what you have experienced.
I am so pleased to hear that the smudge was due from the recon op. Did you get to see your scan? I am sure it would help alleviate your fears. I know with mine they did say that due to my age, I would have areas in my knees for example that would show dark due to wear and tear. Do you mind my asking you where you go for treatment?
As to CT scans, I have CT scans all the time, they are nothing for you to worry about. It is only a safety precaution to ensure all lis okay. You are naturally worried, that is to be expected but nothing to worry about. Did they give you anything for the pain? If you are not happy with what you are being told, can you seek a second opinion? Dont be afraid to push for answers if you are not happy with what they are saying if it would help you. You are not parnoid. I was in my early days and thanks to my husband, he always brought me back to earth and to see reason however much I may have hated him for it at the time, but he was right and made me see sense.
I will keep everything crossed for you.
The pain you described, I had last year and again this year. It was excruiating in every way and taking extra morphine was the only way I could control it. On seeing my oncologist I told them about the pain, and after a poke and prod of my back in the chest area, they recommended a bone scan and this I had. This was the first time for me as I had never had one before so like you was anxious and fearful of the results.
I dont understand why they are telling you the results are not in. For me they said it would be up to a week for them to be analysed and sent up to my Oncologist. For me, I found the scan frightening and I found upsetting to. I knew I had bone cancer but not to the extent it was showing on the scan. Having gotten over the shock of seeing all the black areas which was were where the bone cancer was, I saw in my chest area some dark areas and they matched where the pain I had been experiencing was.
You are only normal to worry, we all do. I have not meant to scare you in any way but what I have mentioned above. You should ask to see a copy of your scan. It will be an image front and back. Royal Berkshire are brilliant with allowing me to ask questions and insist on seeing either on the computer or a paper image of things that they have taken of me. I like to understand what is going on inside. But that is me. I bet I have made things worse and it was not meant to be. If there is cancer there, you can be treated for it. They do a radiotherapy form of treatment not as strong as actual radiotherapy and it will help ease the pain. It did for me and can be done again a few times if needs be. Please forgive me if this has upset you in any way.