Sorry if my previous post was confusing but the side effects I mentioned were "pre-surgery" when I
realised something wasn't right and then got diagnosed with the brain met. I have had no side
effects at all since the surgery. I was weaned off the steriods gradually over a period of 4-6 weeks
and I did not have any headaches.
My last CT scan showed my lymph and lung mets have returned to their original size. The oncologist
thinks the steriods help reduce them pre-chemo, but the chemo has not reduced them any further.
So for now I'm off chemo until a new treatment plan is decided. I've been put on Letrozole hormone
suppressant which they hope will keep the brain met from returning as the CT scan also shows a small
spot near the brain surgery site but they are not sure what it is. I'm seeing the Neuro Surgeon on Thursday for his opinion. Interestingly my original BC was triple negative, the secondary lymph is also triple negative, but the brain met is hormone receptive. We don't know about the lung met as no biopsy
has been done.
I'm looking into Cyber Knife as a possible next treatment option for the lymph, lung (and maybe brain if
necessary). I'm not too impressed with the chemo so far and if I can get these mets zapped in one hit I will be happier.
Generally I'm fine and quite upbeat and optomistic ... provided I don't visit my GP again. He is just
doom and gloom and gives me terrible advice on Secondary Cancer stats and whether treatments are
worth it versus quality of life !
I think a new thread on brain mets is a good idea as it is getting confusing reading updates on different
threads. What area of the country are you in ? I'm in Berkshire.
Hi ladies I have been on this site for a couple of months and the looking at "brainy" bits for a week or two but have just come across you now. I'm the total wreck with the brain added to the bones and liver last week. Would be so reasuring to be in touch with some others. Looking at the time of a 4am post is someone else finding the steroids effecting their sleep?! I started getting wobbly legs and bad vision a couple of weeks ago and was waiting for yet another MRI on my liver when I told the breast care nurse then to be told they would do my brain at the same time just in case. (Why oh why don't they "do" you top to toe just in case in the first place!) Confirmed last week that it is in my brain. The thing I find so frustrating is lack of information from hospital they tell you then ask if you have any questions but you just don't know what to ask. You will see from my other posts about my steroid lack of information! I was told my what ever it is, is it a tumour or little green munching brain cancer cells, is at the back left hand side of my head whiich is why it effects my right eye. Phoning the breast care nurse she said it was so many mlls by so many mlls. I work in feet and inches so have no concept of size though she said that was relatively small. The oncologist said there was one chance of zapping it not operable and that's it. Why is that it arghhhhh!!!! I was told there would be a two week wait until radio started but then got a phone call to say they would start Thursday just gone. So now have had two sessions of being "nuked" three more next week. What I didn't like was the info sheet they gave me about paliative radiotherapy. I don't like that word palliative I want all singing and dancing both barrels blazing stuff!! I was amazed to read about how quickly you are getting over surgery fantastic things are going well. I was told to give up my driving licence but I haven't done so yet as it is my only form of photo ID! I hate driving and don't do if unless I have to so am quite happy being driven around! There is another lady on here who has also just been confirmed with brain mets so there are a few of us. Maybe we can get together regularly for note swapping and updates! Hope to keep in touch Vicky!
Just read your post, sorry I wasn't able to offer you my positive feedback sooner, but just to let you know I had a 3 hour brain operation back in March and my 4cm tumour was removed successfully. All my friends and family were amazed that within an hour of returning to my room I was texting, eating and drinking and back to my normal self. I was discharged on the 4th day. My tumour was on the front right side of my brain, apparantely very close to the skull. The only symptoms I had was lack of coordination and weakness on my left hand/arm with no seizures or headaches. I had my op at John Radcliffe in Oxford. Amazing what they can do these days !
Hi Hilsy. Thats fantastic news....its amazing what these surgeons can do today, seriously! So glad youre on the mend with no nasty effects of surgery.
Yes definitely another "inspiring success story"!
Big hugs to you...long may it continue!
Bev xxx ♥♥