Best of luck for tomorrow. I've been to see the person I think you are seeing a couple of times and found him helpful.
Thinking of you too and hoping your treatment is going OK.
I haven't been on here for a while as the whole village has been suffering with gremlins in the internet connection so have just been having a quick catch up. I just want to send my best wishes to all you other "brainy" ladies out there. I have brain mets as well as liver ribs and spine but is certainly the brain that is the most scary. What makes me so terribly cross is that you may have to pay thousands for treatment because it is not available on the NHS due to cost. I will not get on my soapbox concerning health tourists and aid to countries with corrupt governments for fear of upsetting anyone with opposing views!! I got my diagnosis for my boob a year ago in a couple of weeks time the rest confirmed a couple of months later but looking back the brain mets were already there due to the symptoms I had but I am still here feel very well apart from getting a bit tired. I have lost probably 90% of my vision in one eye due to the mets and my legs sometimes don't want to go in the same direction as the rest of me but I can live with that. I just want all of you in the same situation my love and some cyber hugs and the hope you all get the treatment you deserve. Vickyxxxx
Bevlaar..so sorry to hear you are having such a stuggle. My heart goes out to you but please dont give up. You have come so far and have been such an inspiration to many. I know its easy to say but not easy to do but we are all with you. I know nothing we can say will alter your situation but hopefully it will help you know that everyone is praying your next treatment works. Sending loads of hugs.xxx
by the way i have a question - can you ladies help. had the results of the biopsy to my liver the other day and my cancer has not changed. the nurse said 'that was good as it means they are treating it right' Eghh? What does she mean by that! i am still her- estrogen+
is it good? really? why? ............. anyone know????
no, if there are trials you do not have to pay - quite the opposite, the drugs company they pay for your travel and other expenses. do let us know what t second opinion says. ss
Have been reading all the links, wishing you oodles of luck for Monday. I will have angry eyes ready for action.
I found this quote from Dr Seus ' Now my troubles are going to have troubles with me ' I found this helpful as I think of the big C as a playgroung bully.
Sending positive hugs. Marie
PS To those keeping up with the Poldark saga between Chocolates and me. I have not been unkind to her. Ross and I are now married ; it was a very quiet affair and I am having his baby. This is the end of the matter.
Love Marie Poldark.
Oh Bev, so sorry! I have just been reading all the lastest posts and came across your news. I am so sorry to hear this. Just to echo everyone else (that sounds so inadequate, but all my heartfelt feelings are behind it), but you are very wise to seek a second opinion (go for a third if necessary - don't give up on yourself!). You say you have loads of questions - do you have someone to go along with you to hear the points/answers you might miss? We are all behind you with our thoughts and wishes (and angry eyes if necessary). Hugs and best wishes, Barton.x
Bev, I don't know anything about WBR after vinorelbine. I know my friend had it after xeloda (cap). Is abraxane still available on your health care? I wonder why your onc feels you can't have a combo? Sounds like a question for second opinion man. I'm glad you have mustered up the strength to move forward with second opinion. I also would ask for his opinion on WBR after vinorelbine. There is an American forum called bcmets.org and it is supposed to have a good brain mets section. I also think I spoke too you awhile back about vinorelbine. I had along easy ride on it and I have lung mets. Keep in mind you never know which drug will work for who. I'm hoping it will work for you. Funnyface
Have rung name edited by mod sec and made prov appt for friday or mon next week in harley st for 2nd opinion. Prob go monday to give me time over weekend to get my head round....and write down questions. But really dont know where to start. My onc ruled out the combined chemos. Everything i mentioned he just sadly shook his head. Didnt say much at all. I didn't mention second opinion then but did last week and he ddidn't object at all.
He wants to do Vinorelbine for 9 weeks from next week then scan chest. If still not working he said only other would be eribulin but i would def have to pay.... £18,000.
Then no guarantees I'll respond to that either. When i asked if i may possibly respond as it seems a good drug, again he just said...."we dont know.. probably not based on things so far!"
Is it really worth me chasing this after all the options i threw at him today....to be knocked back on nearly everything?
He said that there are certain cancers that just dont respond to treatment and mine seems likely to be one. God im so frightened and cant think eat or sleep.
I felt sure i had years of options yet but.....
Im in total shock xxxx
Bev, I'm sorry to read this. Please forgive me but I don't remember what treatments you have had. I seem to remember they have been singe line. Maybe it's time for a combo. Also wondering if you need a new biopsy to see if they are the same. I also think I would seek a second opinion. You have had a lot placed on your plate,/ hang in there! Funnyface