Thanks for your update on your targeted radiotherapy. I'm still waiting to hear from the Oncologist if
I will be given radiotherapy and if it will be WBRT or targeted. It seems they have to discuss and agree it in the weekly MDT meeting so all members of the medical team have a say. I'm now on a hormone suppressant drug (Letrozole) which hopefully should prevent recurrence of the brain met as they now know it has mutated from Triple Negative (original BC) to ER positive. I suspect this is why the chemo I was put on wasn't effective in preventing it returning, but the Oncologist won't support this theory. The Neuro Surgeon said he took some extra margin of brain tissue around the brain met this time so we are hopeing there will be no recurrence, although he did say if it was in the same place he can get it out again ! I'm seeing breast surgeon tomorrow for discussion on having full axially clearance (lymph node clearance) as the Cyber Knife(stereotatic radiotherapy) is not an option for the lymph whilst I have two remaining mets. In some respects I'm not keen as there is risk of lymphodema later, but in other respects I just want the darn things out to prevent further spread ! It is a worry currently as I've not been on chemo since 27th June as it was not reducing the mets.
Keep me posted on how you are doing once your radiotherapy finishes.
I agree its all very scary stuff, but I can recommend sending off for a DVD/CD from "The Haven"
cancer support website. It has some great meditation sessions which I've found very helpful and some
tips for nutrition and wellbeing.
I hope you are are doing ok !
Just wondering how you were doing after your brain radiotherapy and if you had WBRT or targeted ?
I may have some brain radiotherapy following a 2nd surgery I had in July. Unfortunately the original
brain met returned (in the exact same place), but fortunately I was able to have surgery again. This time I'm keen to get some radiotherapy to ensure nothing is left behind but I'm not sure of the side effects. Any info you can give would be appreciated on how you coped with it and what side effects you experienced.