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Breast Lymphodema

8 REPLIES 8
susanmary
Member

Re: Breast Lymphodema

Thanks for replies. Its now over 3 weeks since my referral (which got lost!!) and still no appointment for clinic, although the breast care nurse has explained how to do massage and things to avoid doing.

Just want to make sure I am doing things right. Feel frustrated.

x

Helenbythesea
Member

Re: Breast Lymphodema

I have it too, over an implant and it is really uncomfortable.  Lymphatic drainage massage twice a day helps, a friend showed me how to do it - he worked in a hospice - and my physio knows i am doing it.  I have also been advised to take ibuprofen (with food) to reduce any inflammation - I am down from 6 to 4 pills now.  A little exercise often helps too.  My op was at the end of October 2013

Guest user
Not applicable

Re: Breast Lymphodema

Hi susanmary

 

I had lymphodema in my breast due to the radiotherapy. I was referred to the hopsice as they are the ones who run the clinic. They showed me massage and exercises. I am delighted to tell you that it more or less got better on its own, ok it took four years but it's fantastic to see the improvement, I don't have to do the massage or exercises now. Good luck!

Chris61
Member

Re: Breast Lymphodema

I didn't wait very long ,about 2 weeks before I was seen. It has made a big difference . Hope you get sorted very soon. Take care x x
susanmary
Member

Re: Breast Lymphodema

Thank you ladies for taking the time to post your experiences, it helps to know I am not alone. The discomfort is getting me down. Did you have to wait very long before you were seen in a clinic?

xx

Chris61
Member

Re: Breast Lymphodema

Hi susanmary I have breast lymphoedema and in my arm . In December I was referred to the lymphoedema nurse and she gave me as sleeve and a compression bra. It has helped . I am still in pain but I feel it would have been worse if I hadn't had them . I go back to clinic in February . Hope that helps x x
didi62
Member

Re: Breast Lymphodema

Hi Susannah I have mild lymphoedema in my breast .it is 16months since I had lumpectomy.it first started a year ago but been more sore lately so I was referred to clinic.I have been shown how to massage  my chest to try and encourage drainage to the other side.it is sorer after a few days of doing it but hoping it will help.take care Denise x

Janet_BCC
Member

Re: Breast Lymphodema

Dear susanmary,

 

While you are waiting for other forum members to come along and respond to your question I wondered if you had seen our publication on lymphoedema.  I've attached the link for you in the hope it may be of some help:

 

http://www2.breastcancercare.org.uk/sites/default/files/bcc15_reducing_the_risk_of_lymphoedema.pdf

 

Very best wishes

 

Janet

BCC Moderator

susanmary
Member

Breast Lymphodema

I saw the nurse practioner this week and she says I have breast lymphodema, I thought it only occured in the arm. I am to be refered to a clinic.

Is there any other ladies who have had this problem? Any advice/information would be much appreciated