Unfortunately, I had to go back to see my consultant, because the pain had built up again. He checked and reassured me it was either scar tissue or damage caused by radiotherapy.
The pain is much, much worse now, and I contacted my breast care nurse again on Monday - she checked my notes and just repeated what the consultant said, and that I should just keep to my appointment in August because it was only scar tissue or radiotherapy damage.
I feel in my heart that something isnt right - why would the pain only start 4 months after radiotherapy had finished? why would scar tissue only start to be a problem 9 months post surgery?
I am staying positive at the moment, but it seems each week the pain is getting worse, but no lump or anything to be felt (original tumour was attached to the chest wall).
Has anyone else experienced this? Pain starting months after treatment finished?
The nurse recommended an over the counter pain killer i.e. paracetamol - I laughed and told her that was kiddie stuff! I am on 8 X 50mg tramadol, 9 X 300mg Gabapentin, 2 X Naproxen and 3 Amitriptilyn every day for pain caused by osteoarthritis and fibromyalgia, so I shouldnt really have a pain in my mastectomy site at all............................
to be continued I guess - it's just gonna be a game of wait and see!
Pleased to hear positive news and that staff treated you quickly. This is really reassuring.
Little build up's of fluid we can manage!! Congratulations on the Baby news.
Take Care Gilly x
thank you Brewster.
Great that you are half way done with your chemo, and hope its not been too unkind to you 🙂 Good luck on your journey x
Today finally came.
It was fluid build up. Quite common apparently, I had an aspiration done there and then straight after my consultant examined me. I am so glad that I called the Breast Care Team though.
He withdrew 70mls of blood coloured fluid which had caused the swelling and pain. I am just to keep an eye on it, and he said if I have any problems in the future, to get in touch straight away - you bet i will!!
I hope everything went well for you Soi, and it was just a rogue cell. Good luck x
On a much more positive note - I am getting another grandchild in September this year, this will be a little brother or sister for my grandson who is 3 years old today - I cant wait to Skype with him and his mum and dad tonight (they live in Texas USA).
I had FEC-T treatment started June 2014, Mastectomy in August 2014 and 15 bouts of radiotherapy ending December 2014.
I have had no problems with the scar site at all since August, but a few weeks ago, I thought I felt a bit of swelling in my scar site, I have just kept an eye on it.
The past few days, I have felt a little discomfort in that area. Last night, I really felt it while in bed - if I lay on my mastectomy side (left), I can feel like a dragging sensation - when I had my tumor (6.7cm), it felt like that if I lay on that side my left breast would have a draggin sensation.
Anyway, i just wondered if anyone has had any experience of such a quick recurrence in the same site? I have just rang my Breast Care Nurse at Perth Royal Infirmary to explain my symptoms, and she has booked me in to see my consultant on Monday morning.
Any info greatly appreciated.