I feel like I keep falling in the small % all the time. I had a mammogamme last Oct and informed DCIS only small had a wire guided WLE in Dec only then to be told not got it all. Need mastectomy and recon. Date set fo 6/2 in the meantime had sentinel node and other pocedures done. 5 nodes taken not the one told only small % will have anything in the nodes as it is DCIS, 2 weeks on infection and horrendouse time then to be told, it is not DCIS in my nodes but I have cancer in 1 node and they do not know where the primary is and will not do a PET scan quoting protocols and cost!
Has anyone else had this problem I am sick to the stomach wondering where else it may be and now they are saying I need a clearance in my arm and the first hospital may have missed the cancer.
Has anyone else been refused a PET scan all be cancer in your nodes? or had DCIS and cancer at the same time?