im also 37 her2 negative Er + 40mm lump again no family history fit and healthy !
i was told chemo radiotherapy and tamoxafillan I wanted chemo as I knew I had thrown everything at it I had FEC T chemo .
i was never sick nor did I feel sick I carried on working part time I had my bad week and I stayed in rested but it felt like I'd been to a rave all weekend the body ached but the mind was still dancing lol I'm as bald as a baboons bum but the fuzz is growing back it really isn't to bad I finished my treatment 1st September I to was scared but wanted to crack on with it , if I'd not been offered chemo I would have demanded it lol I'm the same as the other lady with extreme anxiety and panic attacks if we can do it anyone can good luck if you want to pm please do I've not met many people the same age as me going through this xx
It's great to hear that your Oncologist had all the figures worked out and an easy decison for you in the end.
Fingers crossed for next week.
If you find that chemo knocks you about too much then the drugs and the dosages can be changed.
Hope it goes well!
I have HER2 positive and my cancer was tiny - 3mm or as big as a peppercorn. I had clear margins and no lymph node involvement. They recommended chemo and Herceptin for me and in the beginning I was horrified and scared stiff. I have had 2 cycles already and am using the cold cap which so far is working and it is not as bad as I had feared.
You don't HAVE to have chemo - they cannot force you but if they recommend it then I would take them seriously. It will take about 4 months 6 cycles at 3 weeks aprt for most of us. Then the Herceptin every 3 weeks for a year.
If you don't have it then you will always be afraid that it will come back and because the HER2 is so aggresive it can come back and if it does it may spread quickly. That is why they want to treat it with chemo.
Don't be afraid of chemo - lots of us are going through it and most of us felt the way you do now xxx.
Hi Steph, there are tests that could help determine if chemo is best for you. Ask your oncologist if you are suitable for any of these.
Here's one and there are others
Also bear in mind that there are different doses available for the same drugs you are having.
I was very reluctant to have chemo but after my lumpectomy my pathology results showed that I was HER positive, Grade 3 18mm tumour, clear margins and no spread to lymph nodes. The Oncologist went through the stats and the chance of a recurrence was reduced by 18% if I had chemo and herceptin so I went for it. Had the percentage only been around 4-5% I probably wouldn't have had it. My oncology team keep pointing out that it my case it is the herceptin that is my "main weapon" against recurrence but as others have pointed out herceptin is not licensed to be given without chemo. Studies have shown that herceptin works better alongside chemo in the beginning apparently. Obviously you continue to have it on it's own after chemo.
I have a long term mental health condition. Severe anxiety and depression and have been under the care of a psychiatrist for over 20 years. I also have an extreme phobia of being sick. Believe me, if I can do it, anyone can.
I totally understand the concept of having a treatment that you know is going to make you feel unwell when you feel healthy and have recently recovered from surgery.
P.S. I wasn't sick during chemo although TC has less sickness than FEC. Some nausea but plenty of anti sickness meds available. I fully expected to be bed bound the entire time. This was not the case and I also felt fine on my third week and got my taste buds back in third week also.
I totally understand Steph. It's a bizarre feeling when you feel totally well and can't believe that you have to put yourself through it all.
Yes, chemo is utterly draining at times and you lose your hair and your taste buds. But it's not always like that. After the first week, I feel fine and just get on with things as normal.
Also have grade 3, and was advised that chemo is very effective for that. I am currently half way through chemo and never questioned what my consultant told me as I am of the belief that they know what they're doing. My ex partner has unfortunately quite a few family members who have been through treatment and those who had chemo have had much better results, so I was of the opinion that that was the right approach.
Chemo isn't much fun, but it's probably not as bad as you think. And really it's such a short time of your life....surely the positives outway the negatives?
This is just my opinion and we, and our cancers, are all different. You must make the right decision for you.