Blue2, Thanks for the heads-up re T.I have managed to get out every day since chemo started with FEC but it sounds like that might have to change with T!
Hi all, Round 2 is in the body and it all went well except I got into big trouble as I had completely forgotten to take the anti nausea pill, they gave it to me then and I had to wait a little while whilst it took some sort of effect. OH was with me which means I shall now have to write everything down which is what he told me in the first place. So I have nowhere to run too!! hoping that this session is as good as the last.
I didnt have a choice I was given a date to go to the hospital to have a PICC line put in, I was a little relieved about this as have had some very bad experiences with some painful searches for my veins and extremely painful cannulas. The procedure wasn't at all painful, had to have an X-ray after to make sure it was in the right place. Had a couple of runs to the hospital as mine bled on two occasions which apparently can happen until it settles down. Now that it has settled, I am aware of it but for me it's so much better than the hassle of cannulas. I would recommend it.
I really think I am very lucky with my hospital as they told me prior to surgery - "If you need it - you get it". "No post code lotteries here".
Also was lucky with the LGFB pampering day as they gave me a date 24th Feb, by which time I shall be in a wig with no eyebrows I am sure......just a tad worried as I will be on day 9 of this session and low on immunity. 😡
gotta go I have got a list to write! Hugs to all, Ebim x
Ali, On the LGFB workshop I got called up for a cancellation last Monday to go last Thursday, and I got the impression this happens a lot, so fingers crossed you might get one sooner. I'm stilled so pleased with the goody bag, especially the Urban Decay stuff.
Well done all those who've done FEC3, I wish I could do mine this week and get it over and done with.
Hi, Robin. I'm good thank you. Went well, running on time for once. Only moment was when I went in to book my Look good, feel better workshop and they told me the first space was in July! Not much help to me.
I really think you should look into getting a PICC line. I'm sorry, I can't remember if you're having 6 or 8 rounds, but even for the remaining 3 it would be worthwhile. Phone your BCN and tell her what happened. You might have to push, although Guy's were fine when I (sort of) insisted.
Hope you feel ok otherwise. And that everyone else is doing well.
Jackie, how's the bottom?
I've also wondered what's the difference in FEC/EC and T in terms of what it does - I think I read somewhere that T is more about the spread into the lymph nodes and dealing with that. I think my onc is very frank about SEs for T - the words 'not knowing what's hit you' keep ringing in my ears .....eek. But we can all get through this together.
Thanks, Beedot. Yup the new house is in Manchester. We rent a place in London and will keep that on (although a smaller house) because I work in London for roughly 6-8 days a month. The house in Manchester needs lots of work, so a lovely distraction from chemo
Ebim, I think you and I are similar, I had a lumpectomy and now 3 X FEC then 3 X T. I am ER+ and HER-. I will then have radiotherapy for 15 days and will be on Anastrozole for at least 5 years after.
i had my second FEC on Monday so you are only just behind me.
so far I have felt much better than on round 1, I didn't get the hangover on Monday evening and I wasn't as washed out yesterday as last time. Apart from the night sweats which I assume is the steroids, I feel ok, mind you not up to drinking an Aperol Spritz, that's impressive Mooney!
my hair is speeding up on thinning now, I wore a lacy turban that I made yesterday for the first time, nearly time to get the wig out of its box.
how are you doing Jackie?
Ali, congratulations on the house, so you will be nearer to gorgeous grandson?
Listening to you gals there is so much I don't know! And so much is the same....the fears, the questions, the worries etc etc etc, don't you just hate them. I had a lumpectomy in November and now on FEC-T 3 & 3 sessions. But I haven't been told anything about herceptin or the perjecta. But two things I have come to realise is that we are all in the same boat called confusion and that I have come to rely on this forum....thank you ladies you give so much support under such difficult circumstances. Sleep tight, hugs ebim xx
Sorry Blue! Really seems to vary according to where you are in the country and your exact type of BC. I think mine and Ali's sound really similar but our chemo regimes are different so who knows!
Hi Ali, Mooney, Slowski & Suze have to say I am a little envious of you all being on FEC 3 as I am just coming up to FEC 2 .....are you all going on to have 3 on Docetaxel - sorry if I have spelt that wrong - which is my programme 3 of FEC & 3 of the one I have probably mispelt. Hugs Ebim x
Good luck to everyone on FEC3 this week as well. I'm next week like Slowski.
Halfway point will be a big milestone for us, We can do this!!!
Good luck, Mooney, for today. Great Valentines Day you're having. I'm being done tomorrow, along with Ebim and Ali, so good luck to you two too. We can do this! Sorry to hear about the boil on the bum issues and the bleeding thumb - sound painful. Have a good day everyone. R x
Good luck with number 3 Mooney. Happy Valentine's Day!! I'll be joining you with number 3 on Friday. Marks the halfway point for stage 1 for me. We're getting there!
Ouch, Jackie. One of my sons had a pilonidal abscess when he was a teenager. In the cleft of the buttocks. It was horribly painful and I really feel for you. Glad they were on the case there though.
Suze, sorry to laugh, but that was a great story.
Yup, I've got chemo 3 on Wednesday. I've fasted before the other two and have been very lucky with ses. I am doing 48 hours on water, tea, coffee and miso soup. Then I won't eat on the actual day, but will have breakfast on Thursday. But I do fast regularly so the actual process is fine for me. My onc was a bit sniffy, but I'm happy to do it anyway. But despite that, I haven't lost any weight. Still, I guess I might have put it on otherwise.
Our new house went through today, delayed from Friday. So I'm hoping to be uber well this time, as we have a huge amount of work to do. Have ordered industrial quantities of disinfectant, rubber gloves, dust masks etc.
Back from FEC2 today, feeling not too bad currently. I had a snooze once I started the jet lag type nodding off earlier and I am waiting for the hangover later on but OK for now.
Blue2 - re the cold cap mets. risk, there was a Dutch study in 2011 that analysed the data from 60 other studies on scalp cooling and my reading of their conclusion was that it was a theoretical risk but there was no evidence in those studies of it increasing the occurrence in people with solid tumours (Breed, van den Hurk,Peerbooms) - sorry, I am a bit of an anorak once I start researching. However, once I found that study I was happy and gave up looking for anything that might contradict it! I gave up on the cold cap today though because my hair is really falling out so I made my mind up on the way to the hospital and when the team saw how much was coming out that said they thought it was the right decision, so pixie cut coming later this week etc etc.
Re. the fasting, I told my Oncologist that I had done it before both sessions and said no doubt she would tell me off but she said fine, if it works for me and I'm eating healthy stuff and not relying on say one Mars bar a day, carry on and report back as she was interested in hearing experiences of it. There is a separate thread on the forum about it. The research has only been on mice so far by Professor Valter Longo (who is keen to stress don't try this at home without medical supervision) but a small study on humans concluded that at least fasting didn't seem to be detrimental to people having chemo. However, I found a few anecdotal reports from people who had done it on some sessions and not others and said that it seemed to reduce the SEs. My method is the Fast Diet (5:2) because I have done it before, I think others do a total fast. I know my combination of carbs, protein etc isn't the Longo research proportions but I feel comfortable with the routine, just extended to 2 consecutive days and then today by default because I don't each much anyway on treatment day. As I said yesterday, it's probably doing nothing at all but I feel I am doing something helpful and although I drop a couple of pounds in weight it soon goes back on over the 3 weeks so my weight has stayed about the same.
I will go and hang up my anorak now.
I am going to book myself on a LGFG workshop, it sounds really enjoyable.
I have chemo 2 Wednesday so join Mooney in wishing all good luck for this week . Fingers crossed for bloods being right for all of us, and fully agree with SE's being kind to everyone.
The antics of us all should be turned into a t.v. sitcom and Jackie & Suze episode could be entitled "Thumbs and Bums". Seriously though, hope you both are better soon.
Somewhere on this thread Day 20 was mentioned as hair falling out day, I am on it today and the bath looked like a disaster area when I got out this morning. I am late (very late) sixties and its bad enough to have sagging chins & wrinkles without losing my hair too. Also a bit of a klutz so headscarves are a bit of a no no as I wouldnt have the confidence that they wouldnt unwind in the middle of shopping in ASDA.
Take care, Big Hugs, Ebimx
Blue2, I spoke to my team about cold cap and risk of skull mets. They were dismissive of the risk and said they would not in all conscience advocate it if there was a risk, and that they would not be allowed to in such litigious times because if such a risk existed someone would sue them. I think other teams may have a different stance.
Just popping in from the October thread. Yes, the sore and tight feeling in your arm is the effect of the EC/FEC on your veins. I did all my chemo via cannula and in the same arm (due to mastectomy and ANC). It does feel uncomfortable but this wears off eventually because the T cycles are kinder on the veins. However, it did get more tricky to cannulate as some veins in my hand became uncooperative! My arm is better now but the veins are still hard and blood tests from that arm will always be a challenge I think. I gave been told that the veins may take months or years yo totally recover. Certainly over 1 month after my last cycle of chemo, I can still see a swollen vein in my hand.
if you have already had surgery, the exercises we are prescribed for that help with the sore veins by easing the the tight feeling, so keep on keeping on with those.
Hope the rest of your chemo cycles go well.
Aw Jackie... sending you a massive (gentle) hug. It sometimes feels that the little extras we have to deal with on top of all the other crap can push us over the edge. But, we are not going to let it!
To make you feel better.....
i was a right prat this weekend as I managed to partially rip off my thumbnail whilst locking the patio door! Am a total clutz at the best of times but I think they are a bit sensitive due to the chemo. Really hurt, bled everywhere and caused me to feel really dizzy and then to vomit in shock. However, my poor hubby hadn't quite got the bucket ready in time... not my finest hour! I also realised later that as I had run around after it happened, doing the very mature "ow, ow, f%^*!" hysterical thing, I had managed to splatter blood up the wall, on the door and even the ceiling. Looked like a crime scene!
It's fine now. So, this one is going down as one of those things I will look back on and cringe/laugh. Knowing me, there will be lots more!
I lucked out on the LGFB workshop and even though I'm mid 50s I got Bare Minerals and Urban Decay along with quite a lot of No 7 and some Clinique, Lancome and L'Oreal. I didn't see any lavender water! We did a bit of swapping between us too. Def recommend to anyone, even though I had to travel about 35 miles, as I wanted to check out the journey as the hospital is a possible location for rads for me (Addenbrookes).