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Chemo JAN 2017

Re: Chemo JAN 2017

Hi Mooney, just coming round from my 3rd FEC. Feeling more tired this time for sure and sore mouth and throat today but no temperture thankfully. I feel like all this poison is catching up with me!!

Want to feel better for tomorrow's pamper afternoon - really looking forward to it and read lots of good reviews.

Hope you start to pick up soon. Certainly only do what you feel like doing and don't do too much.

 

Take care x

Re: Chemo JAN 2017

Hi all,
Luckily my mouth hasn't been too bad but I just made a summer fruit nutribullet and although I could actually taste it, it did try and take the skin off the roof of my mouth! I read somewhere to make a mouthwash of warm water, salt and bicarb of soda. Whenever my mouth feels a bit tender I do that and it does seem to provide instant relief. I use half a teaspoon of each in a small glass.

Re: Chemo JAN 2017

Well just surfacing from FEC 3. Been a bit absent over the last few days. Dealing with awful heartburn acid reflux tummy pains, nausea and generally not a scrap of energy even getting up was a no no.But omeprazole sorted my stomach issues out and am beginning to get up so got to sort myself out a bit.
Envious of all you people with energy to move house and clean and generally be extremely active. Don't know how you do it.
And sorry for all your lovely people with problems. Jackie your bob sounds dreadful! Robin chemo buddy, glad for you that you managed to get to your friends funeral and that your results are positive. To everyone else, hope all goes well this week for anyone having chemo. Am just going to get up I think and try and motivate myself.
Hugs to all
Mooneyxxx


Re: Chemo JAN 2017

Hi to all the gorgeous teddy gals here, just spent a lovely hour catching up with you all.....been thinking and worrying about you all week end.  

It appears to be more good news than bad.  Jackie you seem to be on the mend, Robin great news, Wtp I am with you - have sore bum and constipation....got some bisacodyl from my doctor which I took last night having given up on the senokot, havent been for 4 days and last night was spent on the loo - think I lost a couple of kilos!  Feeling a bit wobbly today. Blue2 I bought chlorhexidine mouth wash from Lloyds chemist for my mouth but it seemed so strong that I got some listerine, probably not as good. Egg you take care of those pesky white cells of yours for next week.

Jackie I am sure you are right about being able to grumble and groan here whilst family and friends feel the need to "fix it" and get a little upset if they cant.  And a good rant always helps.

Think I am probably amongst the oldest in the group and my major problem is the hot flushes and night sweats which are much worse just after a chemo session.  I so miss the HRT !!!  But thats what got me into this mess in the first place!  It did however sort out the osteoporosis which I am aware might be badly affected by the chemo.   

Really looking forward to the pampering session on Friday, no immunity but I am going to go.  Sorry cant remember who is doing it the same day as me but think it was in Kingston.  I am in Worthing so its a shame we wont meet up.

Is anyone else having trouble remembering things ?????

Sorry such a long post, take care and big hugs to all, Ebimx

Re: Chemo JAN 2017

Blue - when I had neutropenia I got some masks from the chemist. I felt a bit ridiculous but my older son had stinking cold at the time and I really didn't want to end up in the hospital. So you could try that? If it's any consolation I think scarlet fever tends to affect kids rather than adults.
Robin - I have something called Biotene mouthwash. It's for dry mouth but I used it in the first week of second cycle and it seemed to stop the sore mouth that I had in first cycle at the same point.
Good luck to all having chemo this week!
Egg

Re: Chemo JAN 2017

I am prescribed chlorhexidine mouthwash to use for Tax chemo mouth problems, and I use it regularly to try to prevent it, not treat it if it occurs. Not sure if yours will be the same - might be worth checking?

I'm not sure if my youngest has scarlet fever - it's pretty rife around here at the moment - and I'm stressing as I'm due round 3 this week. I've never worried about myself getting ill from the children before - it's just part of being a mum, cleaning up sick, sleeping with them to comfort them when they're feverish in the night, and worrying about myself when they are suffering feels really selfish and totally un-mum like!!!!

Re: Chemo JAN 2017

Hi Robin- im not sure the difflan stops the sores coming but more provides relief if they arrive?? Ive been lucky so far and only suffered with what i can only describe as a thick throat and a couple of tiny ulcers - i tried the difflam but found it too strong so just used bonjela on the ulcers. So far thats been enough help. I went to a demystifying chemo day right at the start at my hospital and the nurses were advocating salt mouth rinses too. You can dilute the difflam but im not sure what the best days would be to take to try and prevent any sores. Sorry not to have been much help xx hope your day been ok xx

Re: Chemo JAN 2017

Thanks so much everyone for all your kind words re my biopsy. I really do feel incredibly supported by this group.
Egg, I'm still taking multivitamins and a cranberry capsule. Cranberry helps protect the bladder which can be irritated by chemo. It also has vit c.
One quick question. I got prescribed difflam mouth rinse this time because I had a sore mouth on first two cycles, although I think the sore mouth might be to do with low white blood cells. Should I start the mouth wash now or wait for the sore mouth issues? I'm on day 5.
One funny thing. On Friday when I went to the funeral people kept grabbing my right hand and then thumping my right arm really hard while they told me how well I was doing. I was dying to say that's my chemo arm and you're really hurting it but somehow I didn't have the heart! Happy Sunday everyone. R x

Re: Chemo JAN 2017

Morning all, 

That's such good news Robin on your results.

Jackie, sounds like you are in the best place for care and attention to Bob, I hope it is getting better.

i had my hair clipped and it feels so much better and surprisingly I don't mind wanderering around the house looking like the proverbial moth eaten bear. The grandchildren are coming today and it will be interesting to see if they spot my wig, I only saw them last week when I still had hair. My eye lashes/ brows are ok at the moment Wtp but I am a bit behind you in treatment I think. 

Has anyone else lost their sense of taste? (literally, I don't mean my choice of wig) it's really annoying but as its my only SE I can't really complain.

have a good day everyone.

Beedot x

 

Re: Chemo JAN 2017

Hi everyone,
Thanks for all the advice about portacath. I am definitely going to ask my onc about it at next appointment. Am on day 15 of FEC2 so entering the "normal" week before it all starts again. Next one will be slightly out of sync because of low white cells in last cycle ao I'm hoping it will be ok this time and not delayed again!
Just wondered what others do about vitamin supplements particularly vitamin d and c? Also heard b6 is good to try and prevent neuropathy which might be an issue in the T part of regime. The docs seem anti everything in clinic but I thought having vitamin c surely better than catching germs and ending up in hospital especially when neutropenic!
Hope you are all having a good weekend and finding the energy to do what needs to be done. Mine is spent cleaning and unpacking after half term!
Egg x

Re: Chemo JAN 2017

Hi Egg
I had a portacath fitted mid January. Ive had 2 blood tests and FEC1 and 2 through it so far. I wasn't keen on the idea of it at all but once inserted and settled down it has really helped me and nurses when having chemo. I would definitely recommend having one if you can. Mine is on the inner side of the upper arm 1/3 of the way up as not much spare flesh in my upper chest so I just have to watch extending that arm about my head to often so I don't damage the tube - other than that I do forget it's there. Hope that helps and good luck.

Re: Chemo JAN 2017

Happy Friday all!
Great news Robin re biopsy - such a relief!
We'll done on the renovations Ali - I'm feeling so lethargic now, I really need to step up a gear as time is going so fast now.
Jackie - I feel your BOB pain!! I too have something (not quite as bad!) in that area which means I can't sit or lie down - a real pain in the ass! That coupled with some terrible piles from the constipation has had me in tears!! I have my 4th EC this wk so will ask for something to help ease the side effects of the drugs we've given to help the side effects!

Talking to a friend yesterday who used to be a bio chemist - when testing chemo drugs, they had to wear those full spaceman suits as protection! Crazy - we have that stuff inside us - no wonder there are some strange SEs...

Hope everyone is doing well. I'm finding myself more tired, 3 rounds and 2 wks down but not sure if it's the chemo or just lack of routine. Sprained my ankle this wk which was very frustrating as it meant another wk on the sofa... boo!

Enjoy your wknds xxx

P.s. Anyone losing eyelashes yet? Mine have noticeably thinned 😞

Re: Chemo JAN 2017

Evening all - yeah thats great news re biopsy Robin! What is it with the cleaning today for us all it almost felt like i was nesting! ive sorted out the kitchen cupboards - found stuff with use by dates circa 2000! So had a good throw out very satisfying.
Thanks for all the advice re wig pack - i did buy it in the end. The wig looks great at the back and sides but toooo wiggy at the front despite the styling however i do want it as a stand by option so went for it in the end. Managed the school run on Friday with a scarf rather than a wooly hat which was actual alright in the end.
Jackie really hope BOB is behaving and u r recovering!
Much love and hugs to all xx

Re: Chemo JAN 2017

Honestly, I'm not. I've been lucky with side effects, but also I'm so excited to have this house that I'm on a massive high. 

 

There will be plenty of lazy days ahead for me 

 

xx

 

Re: Chemo JAN 2017

Ali you are superwoman! All I can manage is to.lie in bed and read the papers. And you're renovating a house! Wow. Hope everyone else is doing ok. Jackie how's the horrible old Bob? Hugs to all.

Re: Chemo JAN 2017

Just popping in. 3rd EC on Wednesday and I'm feeling ok. Probably as well as the first two rounds.

 

We've come to Manchester to start work on the house. Yesterday afternoon we made the kitchen and a bathrooon bearable and threw out the carpet from the room we are sleeping in. Camp beds last night, but I crashed out at 9.30 so was fine. This morning we've removed a bed, a sofa, two wardrobes and lots of other stuff. Three trips to the dump. Having a little rest then we are off to screwfix with a huge list of things we need. 

 

I can't comment on men and cleaning. 6 years ago I stepped up my career, while Chris became a house husband. Have to say he's pretty good. I get ironed sheets and a house cocktail every Friday. (Although not last night!) 

 

Great news about biopsy, Robin and glad the BOB is getting sorted Jackie. 

 

Love to all

 

Ali (definitely moth eaten and honestly rather grubby) 

 

xx

Re: Chemo JAN 2017

Great news about the biopsy Robin.
Men don't see dirt do they?
They try - bless em - but never do it like us.
Although I have to say that since my diagnosis I have started to care less and less.
Either that or I'm becoming progressively more lazy!

Re: Chemo JAN 2017

Thanks Blue 2. I know what you mean about using the good week to try to get the chores done. And I don't mean to sound sexist but I also know what you mean about husbands! They just don't see it in the same way do they?!

Re: Chemo JAN 2017

Robin, that is great news re the biopsy. I have been thinking of you awaiting the results but didn't want to mention them.
I'm up early cleaning! It's round 3 for me next week and I like to give the house a good seeing to when I'm able. My husband just doesn't clean it to my satisfaction, although he does do it! How dull I sound?!!

Re: Chemo JAN 2017

Oh lordy Jackie your Bob really is a saga isn't it? I hope the weekend passes peacefully for you in hospital. I've been awake since 5.00am, probably steroids again. But I did make the funeral of my young friend yesterday. A sad day but an uplifting one too. She was very inspirational. I'm feeling ok at the moment as FEC 3 hasn't been too bad so far and I heard yesterday my biopsy wasn't anything nasty. Hope everyone else is having a good weekend and all our side effects are bearable. R x

Re: Chemo JAN 2017

Hello again you lovely lot.

Thought I'd update you all on the BOB  (boil onthe bum) saga .

It has now been officially redesignated an abcess. 

I'm still in hospital.

My white cell count was 0.1,so yesterday I had the G-SFD injection.
Today it's 11!

However my blood sugars are now elevated so,although they think it's probably related to the G-SFD, they are monitoring me for diabetes. (Never had high sugars before)
They are keeping me in till Monday so they can dress the abcess wound, which is pretty sore.
This cancer/chemo lark keeps throwing curved balls.
Much love to all suffering this week.
Ali -hope the move is going well.
Suze -I'm deffo moth eaten. I only have one arm too as already had MX.
Hat wise - I'm bald in hospital and at home. Got an African head wrap like Ali, but have no idea how to tie it.  Also have hats that I hate.
Robin and Ebim, I don't have steroids thank goodness. Hope you manage to sleep better. 
Welcome Star. Hope all goes well with your first treatment. 
Lots of love from Spain you wonderful ladies. Xxxxx

 

 

 

 

 

 

 

 

Re: Chemo JAN 2017

Hi everyone

 

i think that this is the absolute best place for us to post when we are feeling down, grotty and (I love this phrase we've adopted) like moth eaten bears. Because we all completely understand and sympathise. It's also hard to say things like this to family and friends because they then feel bad and want to 'fix' it for us and they can't. Here, we can just be honest and it really helps to get it out there.

 

My PICC line is settling down finally (after two weeks) but I had my first FEC before it was put in and, like Egg, my forearm really aches where the veins have been hammered by FEC1. As I had my surgery first they want all drugs to go in the other arm so there will be no respite but at least the PICC saves my veins lower down now. I dread to think what it would have been like with two doses. I'm struggling to drive and can't full straighten my arm. Couple that with it being the same one I ripped the thumbnail on and I'm a bit of a mess!! (Ebim, thank you, it's getting better!) 

 

On on the hat front I got my sleep caps from the HeadStrong charity which is onsite at my trust (Clatterbridge) but I think there are a few others around. Breast Cancer Care have stopped their funding though so they may have had to close some of them. They have lots of headwear and it's all sold to you at cost price so I paid about £4.

 

I do have to recommend notanotherbunchofflowers.co.uk for hats; they have bold beanies and these great soft cotton berets that look like wool (not Marcel Marceau style with a little stick thing on top, more baggy and stylish!) which I really like. 

 

Wow, I've rambled on! Big virtual hugs to everyone that's feeling bluergh, having duvet days or sofa sessions and starting the obligatory Homes Under The Hammer/Place in The Sun marathons (that'll be me next week).

 

Special hugs to Jackie, Robin, Ebim & Mooney and anyone else feeling grotty xxxx

Re: Chemo JAN 2017

Hi Ebim. I haven't slept much either. About five hours. Steroids effect maybe. Going to try to sleep more this morning in between taking pills. I'm meant to be going to a funeral at lunchtime. It's for my young friend who died unexpectedly of pneumonia in January. It's going to be a sad day but I do want to go if possible. Hope you all get a good rest today. Sorry I've forgotten who it is who is having first dose of FEC today but I'm thinking of you! R x

Re: Chemo JAN 2017

Morning or middle of the night, got the steroid bug!  Been awak for hours, now have cup of tea and a jammy dodger.  Been thinking about you all and how you are you are all coping.  We are all on this journey together, not knowing what we are going to have to endure.  You all have such spirit, it may fade a little during the bad times but it's there.  I feel so blessed to have you all As my moth eaten old teddies.  Sleep tight Ebimx

 

Re: Chemo JAN 2017

 

Re: Chemo JAN 2017

Hiya! I paid £30 for my wig care kit - I kind of justified it was the saving I made on VAT. I've worn my wig about 6-7 times in the past month but have totally appreciated those times - for work, random pub trips etc. I've only used the spray so far and the polystyrene head but think I need to was it now as starting to get a but shiny and fake looking.

I've got a port and it's amazing! I have a 2 year old who climbs all over me - no probs!! I've had 3 rounds of EC and no poorly veins no issues finding a vein. Couldn't recommend it enough!

Xxx

Re: Chemo JAN 2017

I find I'm wearing my wig only when I see people I havnt seen for a while. I'm liking the scarves I've bought but these are mainly hats with long tails that I tie around my head and then sleep caps around the house for comfort and warmth - my head has felt very cold this last week so I double hat!
I still wash my head with shampoo! Which is quite funny! 😂

Re: Chemo JAN 2017

Hi Lighthouse, have a look at this link, you could get the pack for a lot less by the looks of it. 

https://www.wigsuk.com/Aftercare_Products

I have worn my wig all day today and I am growing to like it but it gets a bit hot now and again. 

Like you I gave up on the cold cap and what's left is about to be clipped.

Beedot x

Re: Chemo JAN 2017

Thanks Ali think i may hold off for moment and search around a bit more.
- just realised ive posted twice sorry all!.

Re: Chemo JAN 2017

I'm probably not the best person to ask as mine is still languishing in a drawer. My 'children' who are all grown up, think we should let the cats have her. I'm pretty sure they think she's a squirrel!

 

Other people have said that a stand isn't needed, as you can use an upturned vase or even a full two litre lemonade bottle. I bought shampoo and conditioner from Amazon, much cheaper. I think I paid £10 for three things. And baby oil seems fine for the scalp. I don't think £40 is a rip off, but I think you could spend less.

 

Glad the kids were ok with the hair. I've been barver about being bald in public this week, even if it's only in the hospital.

 

Cheers

 

Ali x

Re: Chemo JAN 2017

Evening all - so want to reply to all comments as i have so much support and help just by reading the thread over the last week but it would be too much i guess! Briefly tho i wouldnt be with out my picc line - its been super easy to cope with (even with children coming in for hugs) hospital even trained my oh so the weekly flush and dressing he does
now.
Hair - completely drove me crackers with the shedding so despite successful cold capping so far i had it cut off yesterday best thing ive done abd tbe kids all coped too. Success. When i end up completely bald well time will tell.....
Did any one purchase a wig pack? My wig fitter has offered this but its £40 so was just wondering if necessary? It contained shampoos/care for the wig but also supposedly products for your scalp. Still not even sure i will have confidence to wear it. Thanks all for being some amazing virtual support it really helps. Xxx

Re: Chemo JAN 2017

Evening all - so want to reply to all comments as i have so much support and help just by reading the thread over the last week but it would be too much i guess! Briefly tho i wouldnt be with out my picc line - its been super easy to cope with (even with children coming in for hugs) hospital even trained my oh so the weekly flush and dressing he does
now.
Hair - completely drove me crackers with the shedding so despite successful cold capping so far i had it cut off yesterday best thing ive done abd tbe kids all coped too. Success. When i end up completely bald well time will tell.....
Did any one purchase a wig pack? My wig fitter has offered this but its £40 so was just wondering if necessary? It contained shampoos/care for the wig but also supposedly products for your scalp. Still not even sure i will have confidence to wear it. Thanks for being some amazing virtual support it really helps. Xxx

Re: Chemo JAN 2017

Oh dear, I think this is quite common but lots of concerns coming out now as we go through. Scotty thanks for asking about the T, I'm trying not to think about it as I still have another EC to go. I'm supposed to be teaching three days from day 5 after my first T so I'm going to get some cover for the middle day in case I'm very tired.

Jackie you poor thing. I laughed at your choice of epidural though. Hopefully they'll blast you with things to get your white blood cell count up while you're there.

I used a gentle shampoo while I had hair left. Now I'm just wiping it with a flannel with a bit of body wash. A nice moisturising one. I'm also oiling it at night. I happen to have an expensive facial oil that I bought but never got round to using, but when it's finished I'll switch to baby oil. Mine is white too, but I'm very pale so it doesn't look too.bad.

Sorry to those of you who are feeling rough. I've just been quite lazy, but feel ok. I don't seem to get a buzz from my steroids, just a bit of a headache.

Off to Manchester tomorrow to start work on the house. Maybe I need extra steroids!

Love to all

Ali x

Re: Chemo JAN 2017

I have had PICC line from the beginning and I wouldn't br without it. Makes chemo and bloods a doddle and the nurses love them. I haven't had any problems with infection or pulling. You have to get it flushed once a week but that's quick and easy and have a plastic sleeve to cover it for the bath and shower. For me the pros far outweigh the cons

Re: Chemo JAN 2017

Thanks slowski. I have the same issue as you now with veins post chemo 2 - arm is really sore and tight although it's not swollen or red so not a vein infection. BCN said it's the E from the EC making the veins hard and shrunken. I had both chemos into the same arm so maybe it was my fault for not alternating the arms. But I have 8 chemos in total to go thru hence worried about them lasting - although heard T not so hard on the veins? (But maybe this is wrong) Onc wasn't keen on the Picc but Surgeon was less keen on portacath as said it's more invasive etc etc so am at a bit of a loss what to go for!

Re: Chemo JAN 2017

I'm just back from having pre-chemo bloods in readiness for FEC3 tomorrow (fingers crossed) I asked about the T part as it was worrying me. They said T is much easier on the body than FEC. It's the red one we have at the moment that makes us feel so awful. But for me and Ali (not sure who else) its the herceptin and perjeta that make you feel really tired. But as she said I'd rather have a good kip than puke my guts up! Quite x Sending lots of love to the poorly peeps

Re: Chemo JAN 2017

Egg,

I have a portacth and had chemo 2 through it, which was painless. I have been able to play tennis, do Pilates and go on my bike with it in and so far it has been fine. It's a more invasive procedure to have it fitted compared to a Picc I think, and it took about 30 minutes with local anaesthetic in an operating theatre. I can give you more info about that if you want.

I was glad I had it for chemo 2, as 2 days after chemo 2 my veins in my arm swelled up into hard painful lumps, which was chemo damage from chemo 1 more than 3 weeks beforehand.

Hope that helps.

Slowski.

Re: Chemo JAN 2017

Hello all my fellow warriors.

Ali, my bottom is poorly.

I came to hospital for them to check it yesterday morning, and they admitted me.

It was horrendously red and angry.

My BC surgeon came to see me,  and at 7pm I was on the operating table to open up and drain the access.

I opted for an epidural instead of GA, simply because I was hungry. Woman Wink

I have to see another specialist as my white count is so low.

(Before T2 it was better than normal).

The surgeon says he  sees this quite often in chemo patients.

So I'm lying here, having watched Homes Under the Hammer etc and realising that chemo is so much more than vomiting and baldness.

Egg,I still use shampoo. 😂😂

Sorry for not replying individually, but I hope you are all feeling better , and that your week ahead goes well.

❤❤❤

 

Re: Chemo JAN 2017

Could I ask what seems a really silly question. Have shaved head now (grade 0.8) as couldn't deal with hair all over floor. Just wondered what you all do about washing your scalp? Do you use shampoo still? Or soap? Facewash? Sorry I know it seems daft!
Egg x

Re: Chemo JAN 2017

Mooney I'm sure it's the steroids and lack of sleep making you feel out of sorts. Hope the omeprazole helps

Re: Chemo JAN 2017

PS hair all gone! Scalp white face red! xx

Re: Chemo JAN 2017

Oh Esther I know how you feel - I had to have second chemo delayed because I had low white cells - I never thought I would have been upset to have chemo delayed!! But of course if Picc isn't in right place not safe to do.
Do any of you have a portacath? Wondered what that was like. Have been told my veins aren't great and my onc wasn't keen for a PICC for me as he thought it would get knocked about by my kids. So just wondered what others experience was of veins/PiCC/portacath?
Thank you!!
egg x

Re: Chemo JAN 2017

Still feeling awful hubby out collecting losec. Haven't taken steroids today as affect stomach and the reflux heartburn etc so bad can't eat and not drinking enough. Still in bed sitting up . Hoping omeprzole will sort it out. Feel really out of sorts and tearful, not like me. Sorry to whinge you lovely lot!
Mooney.x

Re: Chemo JAN 2017

Hello chemo buddies and friends. I had a bad time yesterday evening but I think it was my mistake trying to stay up and watch tv. I had terrible nausea and just sat on the sofa groaning and crying. As soon as I went to bed nausea lifted and I slept well. Going to have a duvet day today, day 2.
I do sympathise re hair - I'm definitely at the moth eaten old bear stage.
Mooney, hope you're feeling better today. Ebim, I'm doing a LGFB workshop on 24th too. Mine's at Kingston hospital. Where's yours?
Don't want to scare us but I follow the Dec group too (I was originally going to be a Dec starter). A lot of them are on their first T dose now and are having a horrible time. I'm finding it quite depressing as I really hoped T would be better than FEC. At least no nausea. I know I'm half way through but it still seems a long way to go. Sorry for whinge. R x

Re: Chemo JAN 2017

Well this moth eaten old bear didn't get to have her 3rd chemo this morning. My PICC line has come out a few centimeters! Which meant it wasn't safe to give me chemo. I have to have my line re inserted on Monday followed by chemo. Never thought I'd say I was gutted to not be having chemo!
They seemed to think it was when I have my line care. For those of us with PICC lines apparently the nurse should measure your line each time they do your line care so they can see if it has moved - mine hadnt been measured.
Ebim I go to a class. Have done it once at home. Shame you can't find a class / worth asking the mac nurse though.

Re: Chemo JAN 2017

Morning Ladies,

I can really relate to the hair thing today, I think Esther's description is spot on, a moth eaten old teddy bear and shedding everywhere. OH is going to clip it for me later, starting on a no. 7 and working our way up. I am wearing my wig but it keeps rising up at the crown because I still have hair underneath I think, probably needs clips or tape once the hair is gone. I chose a colour that is blonde but rooted, so it looks like regrowth but OH says why would I choose to look like I need to go to the hairdressers! 

I am on my last day of steroids, they sure don't give me a buzz, just make me sleepy, I will be pleased to take the last one shortly.

Beedot x

Re: Chemo JAN 2017

Hi Lovely ladies,

Firstly my hair is going bonkers - shedding all over the place, worst in the kitchen with a black floor and I am bottle blonde.  Slowski I lol when I read your comment about downward dog - I could see it happening only with me I might have started off with sparse hair and come up with none!  I am coping with everything they throw at me excepting the damn hair. Its a huge comfort to know you are all so supportive.

At various times in my life I have had to take courses of steroids....and I love them!   But you definitely need to take them in the morning....I think 6 a.m. is a bit of a push especially if you have been up at 2 a.m. I take mine after breakfast and simply love the buzz they give me....whizzed around the kitchen cleaning madly. its better than speed (no never tried it had enough difficulty giving up fags)  

Dealing with all that we have to, you really do need to sleep....give an early morning dose a try.

Esther, I couldnt find a yoga teacher who would take me on with a PICC line, and there doesnt seem to be one attached to the hospital but might run it by my chemo macmillan nurse.  Or of course I could get down on the floor by myself, I find it difficult to motivate that one.  Do you have a teacher or are you going to shame me into the floor?!   Good luck tomorrow.

Mooney.  Did you get back to sleep?  I do so hope you did, you need it.

Suze. how is the thumb and Jackie is it any easier?

Take care all of you, ......hugs Ebimx

Re: Chemo JAN 2017

Yup I was going to say a sleep cap. I've got a thin cycling hat for wearing under my helmet in cold weather, which is good too.

I have to take all my steroids at breakfast. This probably explains why I sleep through until 4am!

Ali xx

Re: Chemo JAN 2017

Slowski I wear a sleep cap from Anna bandana when I go to yoga. I wore a scarf once but it slipped off and I felt a bit self conscious, especially as my head looked like a moth eaten old bear!!!!

Re: Chemo JAN 2017

Hey Mooney, Hope you're still in bed enjoying a lie-in to catch up on lost sleep. I really struggle with the effects of steroids and spoke to my onc about it. He said to take the 2 doses at 6 am and 10 am to try and give a better chance of sleep, as like you I wake up at 1.30 am prompt after only 2 hours. He also said he is not willing to cut them back on my final FEC but will consider it on TAX chemos.

 

I am struggling a bit with the hair situation as I feel fine and would like to go to Pilates later today but don't know what to put on my head which will make me feel confident enough that it won't come off in a 'downward dog' type situation. Anyone got any experience or opinions about this?

Thanks, Skowski .