Hi Mooney, just coming round from my 3rd FEC. Feeling more tired this time for sure and sore mouth and throat today but no temperture thankfully. I feel like all this poison is catching up with me!!
Want to feel better for tomorrow's pamper afternoon - really looking forward to it and read lots of good reviews.
Hope you start to pick up soon. Certainly only do what you feel like doing and don't do too much.
Take care x
Hi to all the gorgeous teddy gals here, just spent a lovely hour catching up with you all.....been thinking and worrying about you all week end.
It appears to be more good news than bad. Jackie you seem to be on the mend, Robin great news, Wtp I am with you - have sore bum and constipation....got some bisacodyl from my doctor which I took last night having given up on the senokot, havent been for 4 days and last night was spent on the loo - think I lost a couple of kilos! Feeling a bit wobbly today. Blue2 I bought chlorhexidine mouth wash from Lloyds chemist for my mouth but it seemed so strong that I got some listerine, probably not as good. Egg you take care of those pesky white cells of yours for next week.
Jackie I am sure you are right about being able to grumble and groan here whilst family and friends feel the need to "fix it" and get a little upset if they cant. And a good rant always helps.
Think I am probably amongst the oldest in the group and my major problem is the hot flushes and night sweats which are much worse just after a chemo session. I so miss the HRT !!! But thats what got me into this mess in the first place! It did however sort out the osteoporosis which I am aware might be badly affected by the chemo.
Really looking forward to the pampering session on Friday, no immunity but I am going to go. Sorry cant remember who is doing it the same day as me but think it was in Kingston. I am in Worthing so its a shame we wont meet up.
Is anyone else having trouble remembering things ?????
Sorry such a long post, take care and big hugs to all, Ebimx
That's such good news Robin on your results.
Jackie, sounds like you are in the best place for care and attention to Bob, I hope it is getting better.
i had my hair clipped and it feels so much better and surprisingly I don't mind wanderering around the house looking like the proverbial moth eaten bear. The grandchildren are coming today and it will be interesting to see if they spot my wig, I only saw them last week when I still had hair. My eye lashes/ brows are ok at the moment Wtp but I am a bit behind you in treatment I think.
Has anyone else lost their sense of taste? (literally, I don't mean my choice of wig) it's really annoying but as its my only SE I can't really complain.
have a good day everyone.
Honestly, I'm not. I've been lucky with side effects, but also I'm so excited to have this house that I'm on a massive high.
There will be plenty of lazy days ahead for me
Just popping in. 3rd EC on Wednesday and I'm feeling ok. Probably as well as the first two rounds.
We've come to Manchester to start work on the house. Yesterday afternoon we made the kitchen and a bathrooon bearable and threw out the carpet from the room we are sleeping in. Camp beds last night, but I crashed out at 9.30 so was fine. This morning we've removed a bed, a sofa, two wardrobes and lots of other stuff. Three trips to the dump. Having a little rest then we are off to screwfix with a huge list of things we need.
I can't comment on men and cleaning. 6 years ago I stepped up my career, while Chris became a house husband. Have to say he's pretty good. I get ironed sheets and a house cocktail every Friday. (Although not last night!)
Great news about biopsy, Robin and glad the BOB is getting sorted Jackie.
Love to all
Ali (definitely moth eaten and honestly rather grubby)
Hello again you lovely lot.
Thought I'd update you all on the BOB (boil onthe bum) saga .
It has now been officially redesignated an abcess.
I'm still in hospital.
My white cell count was 0.1,so yesterday I had the G-SFD injection.
Today it's 11!
However my blood sugars are now elevated so,although they think it's probably related to the G-SFD, they are monitoring me for diabetes. (Never had high sugars before)
They are keeping me in till Monday so they can dress the abcess wound, which is pretty sore.
This cancer/chemo lark keeps throwing curved balls.
Much love to all suffering this week.
Ali -hope the move is going well.
Suze -I'm deffo moth eaten. I only have one arm too as already had MX.
Hat wise - I'm bald in hospital and at home. Got an African head wrap like Ali, but have no idea how to tie it. Also have hats that I hate.
Robin and Ebim, I don't have steroids thank goodness. Hope you manage to sleep better.
Welcome Star. Hope all goes well with your first treatment.
Lots of love from Spain you wonderful ladies. Xxxxx
i think that this is the absolute best place for us to post when we are feeling down, grotty and (I love this phrase we've adopted) like moth eaten bears. Because we all completely understand and sympathise. It's also hard to say things like this to family and friends because they then feel bad and want to 'fix' it for us and they can't. Here, we can just be honest and it really helps to get it out there.
My PICC line is settling down finally (after two weeks) but I had my first FEC before it was put in and, like Egg, my forearm really aches where the veins have been hammered by FEC1. As I had my surgery first they want all drugs to go in the other arm so there will be no respite but at least the PICC saves my veins lower down now. I dread to think what it would have been like with two doses. I'm struggling to drive and can't full straighten my arm. Couple that with it being the same one I ripped the thumbnail on and I'm a bit of a mess!! (Ebim, thank you, it's getting better!)
On on the hat front I got my sleep caps from the HeadStrong charity which is onsite at my trust (Clatterbridge) but I think there are a few others around. Breast Cancer Care have stopped their funding though so they may have had to close some of them. They have lots of headwear and it's all sold to you at cost price so I paid about £4.
I do have to recommend notanotherbunchofflowers.co.uk for hats; they have bold beanies and these great soft cotton berets that look like wool (not Marcel Marceau style with a little stick thing on top, more baggy and stylish!) which I really like.
Wow, I've rambled on! Big virtual hugs to everyone that's feeling bluergh, having duvet days or sofa sessions and starting the obligatory Homes Under The Hammer/Place in The Sun marathons (that'll be me next week).
Special hugs to Jackie, Robin, Ebim & Mooney and anyone else feeling grotty xxxx
Morning or middle of the night, got the steroid bug! Been awak for hours, now have cup of tea and a jammy dodger. Been thinking about you all and how you are you are all coping. We are all on this journey together, not knowing what we are going to have to endure. You all have such spirit, it may fade a little during the bad times but it's there. I feel so blessed to have you all As my moth eaten old teddies. Sleep tight Ebimx
Hi Lighthouse, have a look at this link, you could get the pack for a lot less by the looks of it.
I have worn my wig all day today and I am growing to like it but it gets a bit hot now and again.
Like you I gave up on the cold cap and what's left is about to be clipped.
I'm probably not the best person to ask as mine is still languishing in a drawer. My 'children' who are all grown up, think we should let the cats have her. I'm pretty sure they think she's a squirrel!
Other people have said that a stand isn't needed, as you can use an upturned vase or even a full two litre lemonade bottle. I bought shampoo and conditioner from Amazon, much cheaper. I think I paid £10 for three things. And baby oil seems fine for the scalp. I don't think £40 is a rip off, but I think you could spend less.
Glad the kids were ok with the hair. I've been barver about being bald in public this week, even if it's only in the hospital.
I have had PICC line from the beginning and I wouldn't br without it. Makes chemo and bloods a doddle and the nurses love them. I haven't had any problems with infection or pulling. You have to get it flushed once a week but that's quick and easy and have a plastic sleeve to cover it for the bath and shower. For me the pros far outweigh the cons
I'm just back from having pre-chemo bloods in readiness for FEC3 tomorrow (fingers crossed) I asked about the T part as it was worrying me. They said T is much easier on the body than FEC. It's the red one we have at the moment that makes us feel so awful. But for me and Ali (not sure who else) its the herceptin and perjeta that make you feel really tired. But as she said I'd rather have a good kip than puke my guts up! Quite x Sending lots of love to the poorly peeps
I have a portacth and had chemo 2 through it, which was painless. I have been able to play tennis, do Pilates and go on my bike with it in and so far it has been fine. It's a more invasive procedure to have it fitted compared to a Picc I think, and it took about 30 minutes with local anaesthetic in an operating theatre. I can give you more info about that if you want.
I was glad I had it for chemo 2, as 2 days after chemo 2 my veins in my arm swelled up into hard painful lumps, which was chemo damage from chemo 1 more than 3 weeks beforehand.
Hope that helps.
Hello all my fellow warriors.
Ali, my bottom is poorly.
I came to hospital for them to check it yesterday morning, and they admitted me.
It was horrendously red and angry.
My BC surgeon came to see me, and at 7pm I was on the operating table to open up and drain the access.
I opted for an epidural instead of GA, simply because I was hungry.
I have to see another specialist as my white count is so low.
(Before T2 it was better than normal).
The surgeon says he sees this quite often in chemo patients.
So I'm lying here, having watched Homes Under the Hammer etc and realising that chemo is so much more than vomiting and baldness.
Egg,I still use shampoo. 😂😂
Sorry for not replying individually, but I hope you are all feeling better , and that your week ahead goes well.
I can really relate to the hair thing today, I think Esther's description is spot on, a moth eaten old teddy bear and shedding everywhere. OH is going to clip it for me later, starting on a no. 7 and working our way up. I am wearing my wig but it keeps rising up at the crown because I still have hair underneath I think, probably needs clips or tape once the hair is gone. I chose a colour that is blonde but rooted, so it looks like regrowth but OH says why would I choose to look like I need to go to the hairdressers!
I am on my last day of steroids, they sure don't give me a buzz, just make me sleepy, I will be pleased to take the last one shortly.
Hi Lovely ladies,
Firstly my hair is going bonkers - shedding all over the place, worst in the kitchen with a black floor and I am bottle blonde. Slowski I lol when I read your comment about downward dog - I could see it happening only with me I might have started off with sparse hair and come up with none! I am coping with everything they throw at me excepting the damn hair. Its a huge comfort to know you are all so supportive.
At various times in my life I have had to take courses of steroids....and I love them! But you definitely need to take them in the morning....I think 6 a.m. is a bit of a push especially if you have been up at 2 a.m. I take mine after breakfast and simply love the buzz they give me....whizzed around the kitchen cleaning madly. its better than speed (no never tried it had enough difficulty giving up fags)
Dealing with all that we have to, you really do need to sleep....give an early morning dose a try.
Esther, I couldnt find a yoga teacher who would take me on with a PICC line, and there doesnt seem to be one attached to the hospital but might run it by my chemo macmillan nurse. Or of course I could get down on the floor by myself, I find it difficult to motivate that one. Do you have a teacher or are you going to shame me into the floor?! Good luck tomorrow.
Mooney. Did you get back to sleep? I do so hope you did, you need it.
Suze. how is the thumb and Jackie is it any easier?
Take care all of you, ......hugs Ebimx
Hey Mooney, Hope you're still in bed enjoying a lie-in to catch up on lost sleep. I really struggle with the effects of steroids and spoke to my onc about it. He said to take the 2 doses at 6 am and 10 am to try and give a better chance of sleep, as like you I wake up at 1.30 am prompt after only 2 hours. He also said he is not willing to cut them back on my final FEC but will consider it on TAX chemos.
I am struggling a bit with the hair situation as I feel fine and would like to go to Pilates later today but don't know what to put on my head which will make me feel confident enough that it won't come off in a 'downward dog' type situation. Anyone got any experience or opinions about this?
Thanks, Skowski .