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Chemo JAN 2017

Fen Hen
Member

Re: Chemo JAN 2017

Thank you ladies! Especially Jackie for the badge, you are very kind, I will print it as a final bit of paper for my chemo file, a lovely positive end!

Robin I would love to join your party, although as my last dose of T made me very grumpy I don't think you'd want to know me just yet! I will be definitely be there though when I'm a bit more human again. I hope you had good news about your Picc line today and the MRI went well.

Esther I hope your last dose is being kind to you, only another couple of weeks for the worst to be over. I don't know about you but I think my thermometer may go in the bin then, or definitely put somewhere where I don't have to see it for a very long time!

I hope the last few weeks fly by for you Wtp2016. Yes plenty of hot flushes here, we must be the only ones glad of a bit of colder weather today! I've got myself a chillow mat to go under my pillow which has made it a bit easier at night, doesn't stop it from happening but cools me down quicker when it does.

Best wishes to all of you, take care xxx
Wtp2016
Member

Re: Chemo JAN 2017

Evening everyone!
Just a quick message as I'm falling asleep in front of the telly at the mo.
Just wanted to wish you all good luck this wk. Can't wait to graduate too but I have another 6 weeks of taxol to go. It's not half as bad as taxotare but I started to feel more tired this wknd and the foggy head...

Egg, I'm sure you'll find it a walk in the park vs docetaxel though. Maybe not the most pleasant park but better than what you've been through for sure. I had a port fitted pre chemo and it's been great - def recommend if you can get one. Even for the last 9. You're having surgery post chemo too, right? They can just whip it out at the same time 🙂

Hot heads! OMG!! I can't cope with these hot flushes. Is it menopause or just a SE? I'm 36 and really hoping it's not menopause but finding it increasingly hard to cope with - not strip off and take all headgear off. Sweating like made then freezing cold. All night too, really disrupts sleep. Will it be the same on tamoxifen? Agghh!

Congrats to the finishers - can't wait for my badge too.

Sorry not to reply to all individually. Thinking of you all xxx
OldDawn63
Member

Re: Chemo JAN 2017

Esther - congratulations on reaching the final one. You have to brace yourself for the SEs but at least you know this is the last time.

 

Robin - the end is in sight now, although the fatigue may hang around for a while. Did you manage to get your PICC removed today? I hope so because if the CT scan is just for the radiotherapy planning, you probably won't need a cannula. You will have needles, but not in your arms! As part of the radiotherapy planning you have tattoos to help them line you up. You don't get a choice of design (lol), they are just 3 small (ish) dots, one in the middle of your chest and one each side, under the armpits. Please don't worry about this, because the needles only go just under the skin so there isn't much pain.

 

Truey - thanks for advice about spas, will bear this in mind if planning this in future. You are right about the nails. Mine actually got worse after chemotherapy finished. They have since had nearly 4 months' new growth which has made a big difference. The tips are still ridged, dry and flaky but I expect this to be replaced by new growth within the next 6 weeks or so. I read somewhere that it takes about 5-6 months to grow a complete new fingernail, and about 8-9 months to grow a new toenail, which fits with my experience.

RobinJ
Member

Re: Chemo JAN 2017

Congratulations to Esther and Fen Hen our two new finishers and welcome to the party! Jackie I'm so sorry to hear about return of Bob you poor thing. Let's hope Bob doesn't hang around for long.
I still have my picc line but am hoping it may be removed today after the mri scan. It depends if the chemo nurses have received documentation from the onc as they are strict about only doing that if instructed. However I still have c.t. scan to come on Thursday so am wondering if I should ask for it to stay in? I so want to get rid of it I'm prepared to take my chances with cannula. I lose track of all these scans but I think they are routine and the ct one is to do with radiotherapy.
I still have immense fatigue, leaden legs and breathlessness if I walk anywhere. But am managing to struggle on with bits of work and other stuff so I suppose it's manageable. Last gcsf injection tonight!
Good luck to all warriors and everyone getting zapped this week. Hugs to all. Gentle ones. R x
Truey
Member

Re: Chemo JAN 2017

Hi Esther,

 

Before you book a spa or commit to a long journey there, ask your oncology team for a letter saying that you are able to return to normal life. I've had a lot of problems with spas who won't touch anyone who ticks cancer on their questionnaire and I wouldn't want you to be disappointed. I almost had a complete meltdown after a point blank refusal from a spa who were less than sensitive in turning me away. My oncologist said there is no medical reason for this for most people - it's just the spa minimising risk.

 

Today I'm finally able to use a spa voucher for a facial that my sister bought me just after diagnosis last July!! Hurrah 😀 I shall be arriving with my magic letter in hand though......

 

Hope you find a spa where you can go and swim safely.

 

About the nails......I did the oil care etc like Old Dawn but my nails are still awful on my hands and my last Taxotere was on 11 th January!! None have fallen off but be aware warriors that this thing hangs on forever after you finish active treatment ☹️

 

Sue O

 

 

Esther c
Member

Re: Chemo JAN 2017

Morning all! Pleased to say my final chemo went as planned yesterday! I'm no longer having chemo yay!!
Jackie sorry to hear of the potential eruption of Roberta! I hope you get her sorted. Have you considered lymphatic drainage reflexology for your lymphadema? They take measurements of your arm before and after treatment to show the reduction in the swelling. I've had good results both post surgery to help with that initial fluid build up and with the swollen ankles I currently have. Luckily my sister is a trained therapist! Might be worth a look at though.
Thanks for thoughts on swimming. I was told yesterday that it's fine to go swimming just to avoid if it looks a bit of a manky public pool! But a spa would be fine! 😂 Might opt for the spa as a holiday treat in a couple of weeks time!!
EggG
Member

Re: Chemo JAN 2017

Jackie how are things with BoB today?
Jackie1952
Member

Re: Chemo JAN 2017

To our latest chemo grad, Fen Hen, are awarded this badge and graduation certificate.

Another one who has ridden the storms of chemo, bravely and with valour.

I hope the SEs after your final dose are less.

Well done.

 

 

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OldDawn63
Member

Re: Chemo JAN 2017

FenHen - congratulations on getting to the last one. Nearly there! You just have to go with the flow with fatigue, unfortunately. Your body will tell you when you need to rest and when it's time to be active, but you do need to push yourself a bit when you start to feel a bit better.

 

Robin - you have to give in to the fatigue when it's at its worst, you really have no choice, but there will be better days. Good luck with your scans this week and hope you don't have too long a wait for the results. MRI scans are horrible, particularly when you are feeling rough (can't even lie back and sleep, not that you could sleep with that racket anyhow) but hopefully this will be the last one.

 

Sheilab33 - sorry missed your post. While you are waiting, it helps to do something positive, such as gather information so you have a better idea what to expect and can prepare. The best sources of information are your breast care nurses (BCN) and reliable sources such as this site (see Chemotherapy Tips and Tricks), Macmillan and Cancer Research UK

There should be a May 2017 thread like this one appearing soon, for you and other ladies starting chemotherapy at the same time.

 

Egg - glad you are home now. You should be able to continue with the targeted therapies, because you have already had chemo.

 

Mooney - glad the wedding went well and the face paint worked. Hope the redness subsides, but it may stick around until chemo has finished. Hang onto your green war paint.

 

Beedot - yup, I had the blotchy face as well, plus my skin went all hypersensitive and I couldn't put anything on my face at times, not even E45 moisturiser. It got worse during the last cycle and didn't really settle down until a month or two after chemo finished. At first I blamed the Herceptin but it wasn't. It was Tax. Apparently it can take a while for it to work its way out of your system.

 

Esther - Tax Trots, sore throat etc have usually gone by the last week, at least I hope they do.

 

Blue2 - well done for getting out. If you can manage to get out and walk it's a struggle at first, but then it gets better and you feel better. And yes I found my 'good' weeks at the end of each cycle were better with FEC, I was getting out and walking too and was almost back to normal (well what passes for normal for me).

 

Jackie - sorry you have yet another infection and hope it will respond to treatment before it gets chance to turn into a full sized BOB. I was advised that if I needed to go to A&E, to make it clear to the receptionist that I was a chemo patient. I had to go as 'walking wounded' on a couple of occasions, and each time they isolated me, even though they were extremely busy and it was difficult for them to find me a room or a cubicle.

 

Ebim - nail problems are common with Tax. There is guidance on Nail Care on the Top Tips and Practical Support board though you may have to hunt for it. There seem to be two approaches, either try to protect them and disguise the discolouration by using strong dark nail varnish, or try to maintain their condition by regularly applying nail oils/ cuticle creams or special products such as Onicolife drops (expensive and only available online from Live Better With). I went for the latter and it seems to have worked.

 

Goodnight all and hope tomorrow brings better news.

Fen Hen
Member

Re: Chemo JAN 2017

Forgot to say, it was organised by my consultant. I was surprised as I'd been told by the nurses too that they usually like to wait a couple of weeks just incase it's needed - wasn't going to disagree though! Maybe it depends on your consultants view, hope you get yours out quickly too xx
Fen Hen
Member

Re: Chemo JAN 2017

Thanks Ebim! I will treasure my badge!
Yes the PICC line was taken out straight away, only took a few seconds and I didn't feel a thing. They could take it away as I'm not due back now for any blood tests or anything until radiotherapy, and fingers crossed this last dose will be straightforward. It feels strange tonight not to have my arm bandaged, but I'm sure I'll get used to it! xx
ebim
Member

Re: Chemo JAN 2017

No brain...couldn't remember what I had said the first time!
ebim
Member

Re: Chemo JAN 2017

Hi Fen Hen,

well done you on completing the treatment, bet that's a good feeling, makes you our second scout to go through....consider yourself badged!

did they take out your PICC line at the same time as your final chemo??

Post gone a bit funny tonight, this maybe already listed, 

Ebimx

ebim
Member

Re: Chemo JAN 2017

Hi Fen Hen,

could you let me know how many days after your last treatment the PICC line was removed please?

the community nurses are telling me one thing and the chemo nurses another.  I am in the middle and whilst I would not have wanted to have done chemo without the line, I would like to get it out asap when I have had the final zap!

Fen Hen
Member

Re: Chemo JAN 2017

Hi ladies,

So sorry you've got problems again Jackie, you've really been through it, I hope the antibiotics kick in quickly.

Robin I hope everything's ok with your scans, I suffer really badly from scanaxiety, I do feel for you. I hope at least you know the outcome quickly (all good news obviously!)

Egg, I didn't find the PICC line that bad, I had mine put in just before my 2nd treatment (the veins in my elbow and neck turned bright red after using a cannula for my first FEC. There was a chance it could have been permanent - it wasn't fortunately but they weren't going to risk it again). It took a while to settle and I've had a few issues with allergies to dressings but it's been great for treatment and blood tests and good to know I could be hooked up quickly and easily if needed.

Anyway my line was taken out today as I am now home after my Final Dose. Can't quite believe that's it yet, celebrating with a cup of decaf tea and a biscuit tonight, proper celebration arranged when I'm at day 21! Hot flushes galore already but ok apart from that. This last dose of docetaxol has been reduced a bit ( I've have problems with my fingers which hadn't cleared up this time, so my consultant wanted to reduce the chance of permanent damage) Anyway hopefully that means the rest of the side effects will be slightly better too, although I'm sure I won't escape the fatigue.
I did feel for the lady sat near me who was just starting today, it seems like such a long time since the beginning of living in this bubble and everything arranged around good and bad days.

Four weeks to recover now until radiotherapy, although I have sore 'bad' arm which I'm hoping isn't the start of lymphedema. Jackie I hope you manage to arrange some treatment for yours.

Best wishes to all of you, whatever stage you're at the end is getting closer, take care xxxx
EggG
Member

Re: Chemo JAN 2017

Oh Jackie it never rains but it pours! I can't believe BoB has spawned. Really hope the antibiotics knock it on the head quickly and you don't need anything else doing or any delays to last chemo - you are so near to the end. Could you try using a compress with salt on it? I've heard before that can sometimes draw things out, or sitting in warm salty bath. Keeping fingers crossed that it settles down.
I heard from my onc team today that they have switched me over to weekly Paclitaxel so will start that next week. Which although is meant to be "kinder" (can chemo be kind??) means 9 sessions not 3 so I may wind up with a PICC after all. I think I would have managed without for 3 chemos but 9 might be pushing it. Anyway, at this stage I don't really mind just want to get through this without any more hospital admissions.

Esther - I was told at the start of this no swimming on chemo because of infection risk. So probably best to err on safe side.

Big hugs to all
Egg x
ebim
Member

Re: Chemo JAN 2017

If they made a film about this thread no-one would believe it to be true.

Jackie yet another hurdle and goodness knows you have had more than your fair share but as always your seemingly indomitable spirit refuses to be suppressed and you find a message that absolutely fits the occasion.  Keep going you must, no other choice, but you do it in such style.   Go show that daughter of BOB where she gets off.  Just a few more days Jackie and you get to give yourself your very own badge and by God you bloody deserve it....and no I won't apologise for the language !,,

love and know that everyone of us is willing you on  xxxxEbimx

Jackie1952
Member

Re: Chemo JAN 2017

Hey EggG,

So pleased you are now home, I was getting worried about you. Yes - I've had the sweaty head too.

Mooney - all kudos to you for enjoying the wedding. And for going in the first place.

Beedot - I had cellulitis on the face a couple of years ago - and yes - you think of cellulite, and it is far from. I hope the antibiotics do the trick for you.

Robin, that's the joy of Tax - it's SEs seem to be cumulative. It's brutal. Hope you feel better soon, and the scans go OK.

Esther c - sorry I don't know about swimming, but I would be worried about the possibility of infection.

ebim - my nails have a white line on them - one for each chemo session. I have heard of others having nail problems, but that's all for me.

 

So, 5 days from my final chemo, and thinking I'd got away with it - daughter of Boil on the Bum put in a last minute appearance last night.
Just like that!
Off to A & E , where I refused to sit in the full waiting room, amongst who knows what germs, so they saw me straight away.
Lesson learned for next time!
Doctor diagnosed an abscess "brewing", sent me away with antibiotics, and an appointment to see my favourite surgeon tomorrow, to see if it needs draining.

You honestly couldn't make this **bleep** up! (Sorry for the language)
Oh - and my private insurance won't cover the cost of physio for lymphatic drainage.
Somebody tell me this will all be over soon!

 

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ebim
Member

Re: Chemo JAN 2017

Hey Egg, good job that you are home, can honestly say I know how you feel and yes have night sweats, boiling one minute freezing the next. Vitamin C is supposed to help. But I can't remember where I read that! Xxx
ebim
Member

Re: Chemo JAN 2017

Good Morning Warriors

like Robin I am feeling about as far from a Warrior as is possible, steroid crash is completely how it was Robin, one day on the go, next bam couldn't get out of bed....weak, crying and feeling very sorry for myself. 

Does anyone have toe or finger nail probs....maybe just my curse instead of crusty nose.

sheila, welcome - do you know what your treatment is going to be yet?

Mooney great news that you had a good time at the wedding, you so deserved it.

jackie you ok?

chemo brain so can't remember who is our next finalist, Ester think you are up this week. SLowski & Scotty?

good luck to all having treatment this week, commiserations with those lying low and go have fun to those in their "good" week.

love and big hugs Ebimx

EggG
Member

Re: Chemo JAN 2017

Dear All,
Thank you all so much for your kind messages. Got home but was exhausted over the weekend with zero energy which is not like me at all. Was dehydrated and had neutropenic sepsis although no fever, so had IV anitibootics, fluids etc and home with mega dose antibiotics 😖. Finally this morning have had the energy to nag my 2 boys into getting ready for school so I guess I must be on the mend! Still feel breathless whenever I climb the stairs, and sleep isn't great as I keep getting a sweaty head which then gets cold! Anyone else found this? Am going to call the onc team today to confirm that I won't continue on Docetaxol and will switch to Paclitaxel, but also want to make sure I will continue to get the Herceptin and Perjeta with this new regime. Will keep you all posted. Thanks again for all the messages it really means so much to me that everyone on this thread looks out for one another, and knows what we are all going through. It is a huge support.
Big hugs to all
Egg xx
Blue2
Member

Re: Chemo JAN 2017

Hello everyone!
I have been enjoying the weather and my good weekend before EC2 next week. I feel better on EC than Tax - my good week/weekend is better if you know what i mean?!! Tax I think lowered my mood although I didn't realise it at the time, and walking, especially uphill became a struggle after several treatments.

I hope your scans are routine screening/assessment ones Robin? Hope they go OK.

Egg, hope you're home and have managed to enjoy some sunshine this weekend. Any news on the change to weekly treatment?

X
Esther c
Member

Re: Chemo JAN 2017

Hi everyone. Hope you have all managed to enjoy the sunshine this weekend and glad you made it to the wedding mooney.
Welcome Sheila hopefully you will find some useful tips from us us and the may thread.
Beedot I'm jealous - no tax trots! I'm hoping I won't be too bad next week.
Robin I now what you mean about the cumulative fatigue affect - debilitating! Thinking of you with your scans.
A quick question ... has anyone swam during chemo or know if you can through rads. Now I say swim but what I'm really wanting to do if loll around in warm water to help with my aches and pains! 😜
RobinJ
Member

Re: Chemo JAN 2017

Mooney glad you made wedding and it was so lovely.
Sheila welcome to thread although you may want to follow May starters as well as that is the thread for people going through chemo with you in May and beyond. It may not have started up yet but will start up soon I'm sure.
Egg I do hope things are improving for you.
I'm on day 5 of Tax 3 and have been wiped out with fatigue all weekend. Steroid crash I assume. Awful feeling. So weak and feeble. Can only sleep. Breathless and exhausted if I do anything else. Tax is meant to be cumulative so I suppose more fatigue was to be expected.
Added to this awful fatigue I've got not one but two scans coming up this week. An mri and a ct. So I have to drag myself to hospitals and have the horrible scanxiety...
Hope everyone else is doing well and good luck to everyone getting treatment this coming week. R x
Beedot
Member

Re: Chemo JAN 2017

Hi everyone, it's quiet on the forum this weekend, hopefully because everyone is doing something nice.

 

Mooney, glad to hear you made the wedding and enjoyed it.

 

welcome Sheilab, I hope you can see from our wibbles that this is all doable and the support from this forum is great.

 

Ebim, thank you for the Pliazon tip. My heels are actually OK now, they were just numb but nervy last week. I can't remember if it was you that suggested the daily foot balm before but I have been doing it and it works.

 

Egg, I hope you out of hospital.

 

Day 14 after Tax 1 and most SE's settled down (no tax trots, I hope I got away with that one) except my hands and face have had swollen, purple patches for the last few days. I have been taking Loratadine which helps a bit. The worst area is the back of my hand on my post surgery side which is where it started. The chemo team warned of cellulitis  - sounds low key, like cellulite, until I looked it up - why does every SE associated with this treatment have the potential to become so serious! and  of course Lymphodema risk. So anyway, to cut a long story short, I am on antibiotics now just in case.

 

Good luck to everyone getting zapped this coming week.

Beedot x

Mooney
Member

Re: Chemo JAN 2017

Good Morning everyone on this lovely sunny morning.
Thankyou to everyone who gave links and advice re red face. The green slap worked a treat.By the time I put all my slap on you couldn't see the mess! it's all dry and flaky now though. Wedding was stunning and lovely and joyous. Just the thing to lift your spirits and to make it perfect the weather was glorious. 😎. Can't post picture from my phone but will try from laptop when I get home.
Hope everyone coping with side effects - Robin how you getting on with your last tax?Yeah!
Egg are you still in hospital or recovering at home? Hope you are feeling a bit better and the old white cells are flying up. Sending you hugs.
Love to all of our chemo warriors. Hope you can all the sunshine a little.
Mooney xxx
OldDawn63
Member

Re: Chemo JAN 2017

Jackie - Thank you for badge! Will wear it with pride. Hope your lymphoedema really is mild and that the physiotherapist can show you some good exercises to control it.

 

Egg - sorry you find yourself back in hospital and hope you will be out soon, once they've got you sorted out. I also hope you find the weekly treatments easier to cope with, as WTP has, once you are back on track.

 

Lighthouse - glad you seem to be doing OK apart from the fatigue and taste changes. Only one more to go before your badge!

 

Mooney - hope you enjoy the wedding. I'm sure you will be fine with the right make up. If you haven't been able to get on a LGFB course, their website has a lot of information on it, including videos of tutorials. This may help you with the red face etc (the green face paint sounds weird but it does work). Here is a link:

http://www.lookgoodfeelbetter.co.uk/tutorials-and-advice

 

Esther - it is a pain that the PICC isn't going to last the course, but at least you will get rid of it early. Hopefully the arm will have chance to recover once it has gone.

 

Ebim - hope the hands are better now. The Pliazon cream sounds good. So many people seem to suffer with their hands and feet on Taxotere. This was one SE I didn't have, but I had other SEs that most of you have escaped. The rule seems to be that everyone gets at least two or three horrible ones from Tax, but not everyone gets the same.

 

All Troops - crying, whingeing and moaning is allowed during chemotherapy. In fact, it is probably essential to maintain your sanity. The pills, potions, needles, poking and prodding won't disappear completely when it's over, but there will hopefully be a lot less of it once your active treatment is finished.

 

On a more cheerful note we have been watching a squirrel raiding the bird feeders this afternoon. It is a crafty little blighter and is eating us out of seeds and fat pellets. My OH kept getting up and standing in front of the window to shoo it away, it then jumped down and ran off...but it was probably hiding just out of sight and watching us, because after a few minutes it was back again!

Jackie1952
Member

Re: Chemo JAN 2017

Hi sheilab33

Welcome to the group. We are a group of bald, moth eaten teddies, who love and support each other along the path of chemo.

It isn't easy, but we are all proof that it CAN be done.

Just shout if you need us, rant away, and remember we were all terrified at the beginning, but we are here to fight another day. xxx

Jackie1952
Member

Re: Chemo JAN 2017

Hello Egg.

I'm so sorry you are back in prison - I know only too well how that feels.

Sending you lots of love.

 

Get well.jpg

 

Get well 2.png

sheilab 33
Member

Re: Chemo JAN 2017

i am new to all of this and start chemo 4th may..scared stiff..i love the last line of your message..lifted my mood..thankyou
ebim
Member

Re: Chemo JAN 2017

Egg - feel for you so much, you will get through this.  We all need to vent the tears, nothing wrong with that at all.  I know you are on your back in hospital but we say when the going gets tough ---then its just one foot in front of another.  Probably sounds rubbish from where you are but little steps add up to a long journey.

And goodness knows we are all on one.

Beedot - early on this thread, cracked heels were mentioned and I have creamed mine every day.  If you can get hold of the hospital PLIAZON which I was given 2 days ago for open dermititus on my hands it might help you too.  Provided you dont have open sores.  Its made such a difference to me in just two days.

Mooney - Also have red cheeks and Boots suggested No. 7 Airbrush Away - Colour Balancing Primer.  Its basically green war paint - but it really does cover up the red without looking obvious.

Love to all....Big Big Hugs too, Ebimx

Esther c
Member

Re: Chemo JAN 2017

Oh Egg I'm sorry your back in hospital today. I hope they sort you out quickly and don't worry I would have cried if I'd been in your situation. Stay strong - we're all behind you! 🌷
Mooney I live in Bristol so I've just given you a big wave! I hope you enjoy the wedding.
My troublesome PICC line has moved again and it looks like it won't be any good for Monday which is a bit of a blow but the nurse said this morning that they would canulate instead. It nearly saw me right through and although it has served its purpose I shall be so glad to have it removed!
Hang in there everyone, we will get there!!!
Beedot
Member

Re: Chemo JAN 2017

No Egg that's not silly. I think we all break it down in to the small steps that we can tick off, so when you are told you need an extra procedure it seems so unfair. I cried when I had to have a CT scan recently when the nurse told me she was going to put a cannula in for the dye- no more needles!! But look how quickly it has gotten other warriors back out of hospital. You'll get there. Beedot x
Mooney
Member

Re: Chemo JAN 2017

Oh Egg so sorry. I hated being in hospital too, it's awful when your body just goes off on its own and just down tools. Nothing you can do about it and I think it's the loss of control that really gets to you. I seem to have no control over anything, the side effects just take over. Patience we are nearly there.
I am away in Bristol being looked after by my lovely brother and sister in law, before we go to wedding on Saturday. Have lovely new dress but talk about moth eaten . The face has developed dry crusty patches around my mouth and have lovely red rashes on cheeks. Grrrrrrrrr what with no hair a lovely sight! At least everyone's attention will be on the lovely bride!
Jackie love the badges. Well done - what a tonic to get one thankyou, brilliant.
Robin am jealous! I should have been there with you if not for my hospital stays.
I would like to come to the party too please!
Completely with you all with pills potions injections. I hate giving myself the gcsf injections with a vengeance. I was on no regular medication before I started this.
I send love hugs resilience and courage to all you chemo fighters out there. Though as I have said before chemo is our friend, cancer is our enemy.
Mooneyxxx
EggG
Member

Re: Chemo JAN 2017

Dear All, back in Hospital today, feel worse this morning. Apparently I am dehydrated and have low magnesium so about to get a drip. I nearly cried when nurse told me. Isnt that silly. Waiting for neutrophils to come back... fingers crossed
lighthouse07
Member

Re: Chemo JAN 2017

Morning my fellow warriors - ive been reading and keeping up with you all, just exhausted and havent had the oomph or mental ability to think of something funny to write! Day 11 of tax 2 so yep light at end if tunnel! Whoop whoop. Main side effects have been the tiredness leaden legs etc and i have really struggled with no taste buds - more so than i expected. Love reading all the thread it really does keep me going. Rt dates all in so should be finished by mid june if all goes smoothly yeah. Love hugs and massive well done to all of us on the steps weve achieved so far. Xx
Blue2
Member

Re: Chemo JAN 2017

Hi Egg, hope you're feeling a bit brighter today? You've had a really rubbish time so far, with both chemos affecting your neutrophils as they have, ontop of all the usual side effects. Plus, you're facing 8 treatments in total, so although number 6 is in sight, it's not the end, which is the same for me and im finding that a bit disheartening. Not that I'm not absolutely thrilled for you Robin, crossing the finish line - I really, really am. It must feel wonderful and in 6.5 weeks, I'll be there too and am counting down! The thought of your party for us all is delightful and beedot has described us all so beautifully!! Can I request that the party food be as bland as possible and that there's plenty of ice lollies for our sore mouths, and pineapple and blueberries for our knackered taste buds?!

Hopefully weekly treatment will be better for you Egg? And I totally get the being fed up with all the drugs we have to take/apply/inject! I had a bit of a block with the gscf jabs myself - my OH used to have to check up on me as some days I just couldn't face having them! Lucikly (or maybe not?!) I don't get them on EC.

Hope your lymphoedema improves with physio Jackie. Might it have been triggered by the rising temperatures in Spain? Or is it just one of those things we all will live with it potentially affecting us at any time?
ebim
Member

Re: Chemo JAN 2017

Egg, you really have had a bad time, like everyone else here you are in my thoughts and hope that Wtp 2016 advice gives you some comfort.  We are behind you 100%.

my morning routine with pills, potions, creams and injections.....late last night realised had forgotten injection!

at least I don't have to wash my hair and with streaming eyes and a runny nose make up is not an option. 

Robin you have lifted us all with your completion of chemo and Jackie what a marvellous boost you give us, Grad Badges who would have thought....but I so want one!  There seem to be T shirts out there but the badge from the forum is way way more precious.

love to all, especially to Egg, Ebimx

ebim
Member

Re: Chemo JAN 2017

Egg, you really have had a bad time, like everyone else here you are in my thoughts and hope that Wtp 2016 advice gives you some comfort.  We are behind you 100%.

my morning routine will pills, potions, creams and injections.....late last night realised had forgotten injection!

at least I don't have to wash my hair and with streaming eyes and a runny nose make up is not an option. 

Robin you have lifted us all with your completion of chemo and Jackie what a marvellous boost you give us, Grad Badges who would have thought....but I so want one!  There seem to be T shirts out there but the badge from the forum is way way more precious.

love to all, especially to Egg, Ebimx

Jackie1952
Member

Re: Chemo JAN 2017

Just a note.

I'm not that computer savvy, but you can only upload pictures from the desktop site - not from a phone.

Then it's quite easy.

I have appointed myself the badge monitor - hopefully I won't forget anyone.

Hugs to all.

Beedot
Member

Re: Chemo JAN 2017

Egg, sorry to hear of your setback, hopefully the antibiotics etc will sort you out quickly.

you know I had the same thought this morning about the amount of medication involved. I got out the soap bag I was given at the LGFB workshop and tipped out the contents and refilled it with all the creams, tablets etc that are currently in use, it's quite a collection. 

 

Jackie - impressive computer skills with those badges and such s lovely thought, you have started something there!

 

Wtp, going running is impressive too. I have been wearing my running shoes just because my heels are sore from Tax but haven't run since this all started, I want to run out of this tunnel (well, jog slowly, I was never very fast). The physio suggested getting a hula hoop for now.

 

There are a few warriors we haven't heard from lately - Lighthouse, Suze? How are you doing?

Beedot x

Esther c
Member

Re: Chemo JAN 2017

Feeling for you Egg I hope you feel better soon and I hope the weekly treatments are a little less harsh for you. X
Jackie I love the badge that's great - you've certainly raised our spirits through this journey with your quotes and now chemo grad badges - thank you.
Jackie1952
Member

Re: Chemo JAN 2017

I'm the same Egg.
Please whinge away.
I'm so full of chemicals, being poked and prodded, having my BOB dressing changed, and now I have to have physiotherapy for mild lymphedema in my arm following mastectomy and full lymph node clearance.
It's never bloody ending.
But - we are warriors and we are strong and we WILL overcome.
Hugs to you. Xxx
EggG
Member

Re: Chemo JAN 2017

Oh jackie I can't tell you how much I want one of those badges! For now just concentrating on getting through the next few days. I am looking at my 2 huge boxes of antibiotics now, is anyone else sick of taking tablets/rubbing creams and ointments onto themselves/jabbing themselves in their belly or is it just me who feels like I've reached my limit.
Sorry. I am whingeing AGAIN.
Jackie1952
Member

Re: Chemo JAN 2017

For Old Dawn63

 

How could I have forgotten our dear Sgt Dawn, who came to us when we were floundering?

For her infinite patience with us, her knowledge and her bravery in completing not just chemo but rads too.

 

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RobinJ
Member

Re: Chemo JAN 2017

Thanks Jackie! That is brilliant! I can't wait for us all to be wearing our badges. And we will be. There's light at the end of the tunnel for everyone now. R x
OldDawn63
Member

Re: Chemo JAN 2017

Like the badges - I'm jealous now, cos I didn't get one when I finished!

 

Jackie1952
Member

Re: Chemo JAN 2017

For RobinJ

 

This award is given for the successful completion of her chemotherapy course.

In recognition of bravery in the face of scabby, bloody nose, vomits, cramps, twitchy eyes, joint pains, and anything else I've forgotten.

 

You may choose the colour of your badge.

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RobinJ
Member

Re: Chemo JAN 2017

Poor you Egg. Hope things improve for you soon. Yes wtp of course you can come to the party. Esther and I will save a seat for you and a sausage roll. Can't wait for you all to join us. R x
Wtp2016
Member

Re: Chemo JAN 2017

Well done Robin on finishing!! Loving the party!!

Egg - just a quick note to say I'm on weekly paciltaxel (6 weeks down, 6 to go) and it is a walk in the park vs what you docetaxel girls are going through. My neuts were 0.8 today though but they still let me have chemo. I seem to hover around 0.8/0.9.

Honestly, if they offer it to you, grab it! I feel like fraud on this thread since I went weekly as the SEs are so minimal. I hope I'm still allowed to the party? I'm even running 4 times a week. It's not easy as I'm not sporty and overweight since EC but I would never have dreamed of doing it on EC. Just wanted to let you know of the silver lining. And no injections on weekly!

Good luck to you all xxxx