Blue Egg and Ebim,
I'm having 25 sessions of rads, done 9, so by Thursday I'll be halway through.
I've been better for having the weekend off. It makes a big difference.
I don't think I've had it any worse than anyone else.
My SEs have just been different that's all.
So far I haven't lost any nails, or had horrendous experiences with lines and the like.
I've not had any tremedous fear either - maybe beciuase I'm that much older and my faith keeps me going, along with a wonderful hubby and son.
I'm more worried at the moment about one of my dogs, a Standard poodle called Lulu who we have had since she was 6 weeks old. Now 12 and healthy as a bull until 2 weeks ago when she stopped eating and was in tremendous pain. Turns out she has pancreatitis, and my vet collected her this afternoon to put her on intravenous fluid therapy.
I have another focus for my worries I guess.
I had 15 taken out - if there were any left they didn't tell me, so I guess it was full clearance.
The important thing for me was that I started my exercises as per the Breast Cancer Care booklet almost immediately after surgery.
Having the axillary nodes out means your arm will be stiff for quite a while. Mine still is, 6 months on, but it's not a problem as long as I keep on with the exercises.
Also I had lots of twinges for a while as the nerve endings regenerate - again nothing horrendous - just a nuisance.
Once the stitches are out you will be much more comfortable, and it's important to keep moisturising.
Hope this helps.
Had 4 iv and 1 subcutaneous. Came out in skin rash everywhere! It was like hives. Going to have medication first next time to see if that helps. I want to get rid of the pic line so really don't want iv.
was in hospital from Thursday to Saturday. Was lucky with the drain amount. Took ages to come back from recovery because blood pressure wouldn't drop. Not nearly as bad as I thought x
Not had ful node clearance, had 6 nodes out so sorry no advice on that.
How many subcut Herceptins have you had?
Yes I will. Don't know how many yet. Path report will say whether I'll have them to the armpit too. Herceptin for a year too. Had allergic reaction to the subcut jab. It never ends!!
Very best wishes for tomorrow. Compared to what we have been through overall, I found surgery to be a very positive and manageable experience, so I hope you do too; anxierty of course is completely natural but this time tomorrow you will have crossed that hurdle.
We've all got your back!
just to let you know I got home from surgery yesterday. Wire guide dead excision and full node clearance. Bruised and sore but not as bad as I thought. Boob bit is fine. I got hubby to take a photo and all looks normal! I was so anxious. Any questions please ask x
As always humour in your posts even though you are feeling awful. You have had more than most in the way of side effects and problems. How many more rads you got to do? I think you should award yourself a certificate for humour over and above side effects !!
Our motto could be "Tax Warriors sport fluffiness with pride - we survived chemo "
Egg only 2 to go - well done you...are you doing rads?
Esther - well done yoga buddy on completing the course.
Beedot - you always seem to remember everyone - whilst I struggle to include everyone even with copious notes ! Good luck for rads on Monday
Blue - have you got any other hair to join the nose hairs? Good luck to you on Monday - hope it goes well for you.
Good to see Slowski's on the post.
love to all Ebimx
Sorry for not checking in lately - the truth is that I am so tired from my rads treatment, and the 140km, 3 hour round trip that I have little energy for writing.
I'm also thinking I must be the only person in the history of rads to suffer nausea and total lack of appetite.
I lost 5lbs over 8 treatments.
My rads doctor says they are just side effects...................has anyone else had them?
Ebim - your cruise sounds fabulous. Just the ticket. Like you I am now bare headed - it is far too hot here to have anything on my head.
I am sporting my fluffiness with pride - it means I survived chemo.
I have no idea about my op yet. I just know it will be when my rads have finished (9 July) and Ive reconnected with the clinical oncologist.
Please don't be frightened by the possible side effects of Letrazole. My Tamoxifen had the same, but if we read, and were put off by the possible side effects of paracetamol, we'd all have permanent headaches. xxxx
Esther c - sure hope your chemo aches and pains go soon.
Blue - best wishes for your surgery.
Beedot- how your comment about not wanting to shave off your fluff made me laugh. My hubby is ex military so likes things ship shape. He wanted me to shave mine too, to make it look neater. Hell NO!
I've fought for this fluff and I'm keeping it.
T anyone I have failed to mention individually, I'm sorry............I'm off for a lie down...............my brain hurts.
For Esther c
Another brave warrior crossing the rads finishing line.
For fortitude and bravery I am delighted to award this certificate.
Good luck with rads next week. I am due to finish Thursday so not done yet but SO FAR has been a breeze compared to chemo.
What I am struggling with is the mental side - I keep convincing myself the cancer is spreading and worry about every ache and pain. Does anyone else feel this? I find it quite overwhelming at times. On the other hand I don't want to mention it to the team as dread being sent for more scans and the scanxiety that comes with them. Any tips on how to move forward gratefully received !
Enjoy the heatwave Teddies X
just catching up after a treatment free week.
congratulations to Suze, Robin, Fen Hen, Nicky and Esther on finishing rads and Jackie for your dedication on the certificates, I hope you are getting on OK now.
Egg - I think you are still on chemo but nearly there? anyone else still being zapped?
Blue - good luck with your surgery on Monday.
I am starting rads on Monday, for 4 weeks. I've also got to go back to the chemo unit for a blood test then Zometa infusion which is via a cannula, more blooming needles! it's going to feel like a chemo day and then to round it off, I restart Anastrozole that day too. I use the Macmillan app to remind me to take it since I forgot when I was taking it before chemo so no chance with current level of memory.
Ebim, you are so brave going bald/fluffy, I haven't plucked up courage to go out like it yet. A number of people have suggested shaving/clipping the fluff to encourage growth but I can't bring myself to part with any of my new fluff. Wtp, how did your's grow so well?
Like you Ebim, my ankles have taken to swelling, I looked it up and sure enough, a well known SE of Tax. I have decided to attribute a late weight gain to fluid retention as eating less hadn't made any difference.
My nails are still on but most have bruises under them and still a bit numb on the tips. Still not much taste but improving slowly and energy is starting to return.
I wish I was good at eyebrow drawing Esther, I just cannot get them even, I have the Roger Moore type look of quizzical surprise mostly.
Hi to Lighthouse,Slowski and Scotty - Are you still tuning in?
good luck to everyone this coming week with treatments or just coping with the adjustment after it, sorry if I have forgotten anyone.
hugs, Beedot x
We too live in a hard water area and I am not happy about buying bottled water, do you think filtered water would be ok?
Day 4 of Rads today, and I am already tired but think it is the chemo still rolling around my body, which is why I asked if you had any side effects. I think I will get away with 2 fingers and 1 toe nail. Hair is now an embarrassing fluff and in this hot weather I dont bother with wig or scarves so the world just has to put up with my bald fluffyness. And my legs are swollen and achy. However the awful taste has gone, the streaming eyes are down to a trickle. For me the taste was the worst so with that gone I can handle whats left. well it would be nice to have some real hair
Thanks to all for the heads up on letrozole, I will definitely start it tomorrow. If my still addled brain remembers !
love to all, Ebimx
Hi Ebim and Robin,
I'm also on Letrozole and bisphosphonate, zoledronic acid, as a jab every 6 months for 3 years. I have found letrozole ok, have sore hips at times but had that before BC diagnosis, otherwise I've found it fine. Still got 6 rads to go plus Herceptin.
so pleased to hear from you as I have just read the long list of side effects letrozole could have, know I must take it but knowing you have been OK has given me the confidence to start it tomorrow. Do you have to sit or stand up after taking the iasobon? My biosphonate I have to for 30 minutes after taking on an empty stomach.
do you still have any chemo side effects ?
The onc was running late so it didnt matter that I was ! He has put me on letrozole and biphosophonates as well for my bones and apparently they also protect against bone cancer he said. Anyone also on letrozole?
Got to see my dentist first in case I need any treatment as they prevent the jaw bone from healing should I need teeth taking out. Nothing is simple is it.
Nicky - well done for finishing treatment. Fizz & cake sounded such a good idea that I got a bottle in Lidl on the way back from the hospital !
Robin - well done to you too for finishing, there were times when it all seemed so dark and here you are, no more chemo or rads. Your sentiments about staying on the thread are so good, we all seem to have bonded and its good to know you are there.
Jackie - what a brilliant job you are doing as certificate mistress as you have done all the way through with your upifiting sayings. You must be tired as I think you have a long round trip for your rads. Do you know when you are going to have your op yet?
Last thing, I spoke to the radiographer about low bath water and not getting the lasered area wet.
Her comment was "Rubbish, of course you can wash and get it wet, just dont rub too hard or have the water very hot" . Only passing on the info, please dont shoot the messenger ! However I am going to have a few more inches in my bath tomorrow morning.
Love to all, Ebimx
Seems to be so much to catch up on and due to my own catching up (holiday laundry, missed emails, dog walking etc etc) I have only just caught up with you, however you are always in my thoughts whatever the time of day.
Blue - sorry to have worried you with my absence and thanks for the welcome back from you and Egg.
Good luck with the surgery, after the chemo you can cope with almost anything.
Egg cruise was mainly to Spanish ports - Barcelona, Malaga, Cartagena & Ibiza with Gibraltar in the middle.
It put a barrier up between the chemo and life after. Even if like others the side effects are still with me !
Lighthouse did you get any more info on the exercise course ? Well done for getting to the finish line.
Wtp, guess we are all in the secret sisters club now. My bald head (with fuzz) is on show most of the time now - scared the living daylights out of two carpet fitters half an hour ago - I was not at all what they expected to open the front door ! There is some fun in baldness.
I have got more on my list to comment on but am off to the onc to get the news about tamoxifen, will post the remainder later. like the white rabbit I always run late !
For Fen Hen
Wow! Another teddy warrior crosses the active treatment finishing line.
For your steadfastness and bravery, I am pleased to award this certificate.
The third of our brave teddy warriors to pass the finishing line of active treatment.
For resilience and bravery all through your treatment.
Well done Robin.
Another one of the teddy warriors passes the finishing post for active treatment.
This certificate awarded for fortitude and bravery in successfully enduring both chemo aand rads.
Well done Nicky.