No hospital stay Scotty, I had the choice of going in for iv antibiotics or having tablets plus aspirations so I went for the latter, I had 3 over the course of a week and it sorted it out.
It took a while to heal but that was only because I had re-excisions to get the margins which slowed the process down.
Ouch Scotty, you have my sympathy, that happened to me too. My face was a picture when the doctor said he wanted to manually drain it or "aspirate it" as he put it but as with everything on this rollercoaster all you can do is sigh and agree to it. I know you are as keen as me on needles but it is a relief.
I had a look at the Add Aspirin trial website. I agree with you Egg, I wouldn't want to end up in the placebo group although I wouldn't know if I was. It sounds like it starts out on the back of some positive results in other studies.
Jackie/Mooney, how are you doing?
Hugs to everyone with whatever is happening this week.
What a great result Scotty! I bet you will be celebrating this weekend. I bet it sent your consultant off on holiday in a good mood too.
Hi Lighthouse, I had a Zometa infusion on Monday, the first standalone one as previous ones were given with chemo. I felt heavy limbed and slightly sick the next day (but I also started RT and Anastrozole on the same day) but nothing like you have described, I would follow that up. I have had swollen ankles and my arms were both looking puffy but that was before the infusion so I think that is due to Docetaxel (last one 22 May).
I can't believe how many of you are closet smurfs! I had full node clearance so no blue dye, I hadn't heard of that extra bonus before. However, I do have a sort of Ziggy Stardust pattern of blue veins down my shoulder strap line which I think is where the lymph glands were.
My arm was doing really well after surgery and before chemo, I would say I had 95% feeling and movement back. Chemo set me back a bit as it kept heading for that area but it is settling down again now, particularly as I restarted exercises ready for RT.
I have just finished week 1 of RT, the boost week, and all fine so far. I do find that the sheer technology of it has set me thinking that this must be serious, chemo seemed so low tech by comparison. I have found myself worrying about whether this has all been a success, will it come back etc, which I haven't really dwelled on much before. I suppose it is seeing the end of treatment in sight, it will have been 11 months by the time I am finished and time for my first annual check in August.
Good luck with results today Scotty.
Mooney - hope the packing us keeping you well occupied.
hugs to everyone,
Morning all, its been busy on here! I am just catching up with everyones news.
Blue/ scotty I hope the recovery is going well.
- I had full axillary clearance which was 12 nodes for me - I still have numbness and sensation change from just below my shoulder, through my armpit and round to the back over my shoulder blades. My surgergy was start of Dec. Its more annoying than troublesome, I tend to forget about it. My surgeon has said its unlikely that the sensation will return, but not unheard of, it can take up to two years. The main issues for me at time of surgery was the pain associated with the nerve ending re engaging, and seromas that needed draining a few times. Thankfully though both of these issues were relatively short lived and managable.
Scotty - think it might be path resuts today? Positive hugs x
Jackie- hope your three hour round trip is not driving you crackers, I an not surprised you are tired i am exhausted and I only had to go down the road! Hows Lulu?
Fen hen/Robin - my fingernails have all gone a milky white and I fear that they will start to fall off - I thought I had got away with this Se as last chemo was May 2nd! I also did the whole dark nail varnish thing.
Wtp - great that your team are being thorough, hope the biopsy goes smoothly tomorrow - will you have long to wait for the results? Its such a nerve wracking time isnt it, stay focused on the trip to Sweden. I realise its easy to say but hard for our minds to do this!
Egg, one more to go! yeah!!!!!! Im still blue tooooo!
Esther/slowski - i am also still finding the nagging voice hard to silence. Some days are easier than others. I have had some counselling but I am not sure if it has really helped yet.
I have had a busy couple of weeks - Rads finished on Monday and I do feel tired. I am okay as long as i keep going but once i stop i just want to sleep, unfortunnately its never a restfull sleep. I really struggled with my first Iv zomera - the first 48hrs were similar to chemo, lots of pain/aches fluey, I even experienced some rigors. I have since had pins and needles in my hands consistently overnight, swelling in my hands that does ease off over the day. But all in all unpleasant I am sorry to report. Is anyone else getting this? I had wondered if i was developing lymphodema but its in both arms/hands so that wouldnt fit. Maybe its just delayed chemo se? I have raised with BC team who say if symtoms get worse then to call and they will see me.
I have been planning my return to work - not sure how i feel about this really. Back on the 3rd july with a couple of weeks leave. so first proper day 17th Jully Eeek! i have been off sionce start of Dec. Will need to go wardrobe shopping as nothing fits - still havent heard back from the leisure centre about the fitness course offered via macmillan either despite having left 5 message! Must chase up!
Went to Wembly last weeked for a gig and had the experience of having my head frisked as part of the security checks! Luckily I was able to laugh about it but my 13 year was so embarassed, a real kevin and perry moment!
I also signed up for a clinical trial - called add asprin, anyone else been offered this? Anyone taking part in any other studies?
I realise i have now written a small essay, so if anyone has managed to get this far, apologies for the length, love and hugs! Look forward to hearing how everyone else is getting on.
Sorry to hear you're struggling mentally but I feel exactly like you; it made me realise thats whats so great about this forum - we are fellow travellers and we get it.
I am plagued by a constant sense of dread and also fear I'll never be a granny. Mine are a few years older but happily single/not in serious relationships and loving their lives so I feel my hopes and expectations of daughters in law/grandchildren are selfish and all about me, but find it hard to move away from these feelings. I guess whatever stage we are in our lives when diagnosed, we start being anxious about the next stage, eg, seeing children grow up/get careers and paired off/grandchildren/seeing GC grow up. I too don't know what the answer is. I have been seeing a counsellor which I think helps but the mental side is pretty overwhelming at times.
This thread is a good support though, and I hope many of us stay on it for a while.
Big hugs to all X
Scotty all the best for tomorrow.
Ebim like you I had op November and still blue!
Had final rads today but still 13/18 Herceptin to go.
Hi lovely teddies,
After chemo finished I thought that the worrying would reduce, but if anything there seems to be more around and I feel so sorry for all that you are going through. I was one of the lucky ones I had my op prior to chemo. And Egg I am that Smurf - op was November and I still have the blue dye. My OH, who is an avid birdwatcher, refers to them as my Blue Tit and my Great Tit !!
Egg have you had your treatment for this week?
Robin - I too had hair regrowth on my legs which was shaved off as soon as I realised it was there - any growing hair has to be on my head !
Scotty good luck tomorrow.
Jaqui thinking about you with your 140 kms round trip
Big hugs to all who are worried, wish I could wisk you all off to a real cocktail bar so you could forget them for a little while.
Love to everyone, Ebimx
Hi Blue, glad to hear you are home. Re bathing - I got OH to wrap cling film round me like a boob tube so I could shower, a strange procedure but it worked a treat! I kept the surgery side turned away from under the shower but managed to get the rest of me washed. I didn't have a drain in by that point though, it was removed before I came home.
Blue ....Just a quickie to say have been thinking about you all day on and off and hope it all went well and that you get a good nights rest tonight.