Thanks for all your good wishes, I am hoping to be able to keep up with you all whilst away.
Scotty - hope I got it right.....good luck on Thursday.
And Wtp too.
Beedot , it was like coming out of a dream - couldnt believe the mess the house was in, and it was all mine!
normally the tidy one out of the two of us, I was shocked at all my clothes strewn around. Its looking a lot better now - it has to we have a friend coming in to take care of Max (the dog ! ). We all put our energy and efforts into dealing with the chemo that something had to go, in my case a tidy house !
Egg - you have had such a bad time of it, the side effects will lessen each week but it does seem to take an awful long time.
Love to everyone Ebimx
Congratulations on finishing Ebim and enjoy your holiday.
Wtp, good luck with your surgery which I think is later this week.
Blue, sorry to hear about your seroma and the wait for results, I know how crushed you feel when you have prepared yourself and then they are not back, it's agonising to be in that limbo period.
Egg, I felt really washed out after the final chemo, heavy limbed and achy, swollen ankles etc. fatigued for the first time. I put it down to getting increasingly aneamic. It took me a good 4 weeks to recover. Last week was 5 weeks after chemo and I felt my normal energy coming back, I started spring cleaning (I have a great urge to get my life and surroundings back under control) and OH asked if I'd started on steroids again.
Plodding on with rads here, another 9 to go and finding it much preferable to chemo so far.
hugs to everyone, Beedot x
What a bo**ox that they didn't have your results on the day. Waiting for results truly sucks. I hope the next few days pass quicker than you think and its a good outcome on Friday.
Ebim, well done and here's to a fab hols!
Egg, yes am on the Herceptin road, done 6/18, all subcut, even the 3 done with chemo as my trust (of which more later) said they didn't have funding to deliver them IV! However, I've found it all pretty ok and fairly painless so far. I did have a largeish lump at the site after 1st or 2nd but it soon went down and didn't really trouble me.
My main problem has been the interminable wait for a 5 minute injection - the last twice it was 2-2 1/2 hours. I have put in a complaint, encouraged by the staff in fact who are clearly overstretched to a ridiculous extent. Not expecting too much to change though, but have managed to get 8.30 am for next one. In terms of SEs its really the drippy nose; I wonder if there'll be any improvement as nose hairs grow back?
Scotty, hope you get sorted too. There are quite a few of us going through this together.
God I hope so. Onc was so flippant when we saw her. Just casually dropped in that she would stop it. Really want to change to someone else as I still have rads to come which she oversees. Would just like something to go without a hitch. Sorry for rant. You caught me in a bad moment!
I'm having a bloody nightmare with mine! Came out in an allergic reaction like hives. Been poorly managed to be honest. Diagnoswd over the phone as heat rash?! Going to have steriods and antihistimines IV as pre med on Friday. Onc said if it doesn't work she will stop it. In a complete tail spin. Bet you wish you hadn't asked now!
With all the latest news, It seems so insensitive of me to say this but I AM DONE! ! Done with chemo, done with rads, done with hospitals until September.
If wishes could come true I would want you all to be able to say this and I really feel for you having such a rotten time. You are never far from my thoughts.
I maybe done but I still have nails to come off, toes that don't have needles and pins , sore boob and chest and of course a bald head which I now flaunt in Jackie mode!
Off to Spain next week and I wish I could take you all with me, now that would be a party.
You are all such a large part of my life now that I shall be taking you with me virtually so that I can keep up with the news.
Much love and hugs to all, Ebimx
Unfortunately I haven't finished rads just yet.
I still have 6 to go (out of 25), but rest assured I'm crossing each day off.
Thank you so much for thinking of me. xxxx
Wtp glad you went out with a real-life friend - I'm sure all us onlne buddies have been holding you in our thoughts these past couple of days and were helping you drain that bottle in spirit!
Egg - yes to lots of joint pains after chemo and also was the most fatigued I have been at that point. I've just had a quick look back at symptoms diary I kept and it took 2 weeks before I saw the word 'improving'. Hope that helps.
WTP, so sorry to hear that you're dealing with this news. I wanted to also send you a giant hug and to echo what everyone else has said: we are with you all the way, urging you on to beat the bu**er and cheering on the sidelines as you kick its arse into touch!
still in my thoughts. Devastating news and a whole new load of rubbish to absorb, you don't have an alternative...you have to keep on fighting. And with your depth of spirit you will. Love Ebim xxx
Dearest Wtp - about my mastectomy.
I can so understand you being worried about how you will look and feel afterwards...............our breasts are very much part of who we are, and you have every right to feel the way you do.
I was very much in the opposite camp.
I was just SO glad to get rid of that boob, that in truth had given me problems for years, that I wasn't in the least concerned about losing it.
I know I keep saying this, but I really DO think my age has a lot to do with it.
To those who asked if I was having reconstruction, I would answer, " What do I need a boob for? I'm not going out on the pull. I'm not planning on breast feeding anytime soon, and how incongruous would a lovely perky boob look next to my 65 year old gone south other boob?"
I was also very much against having any further surgery...................again my age.
I don't know how many years I have left, and I didn't want to spend them having more surgery.
Life here in Spain is very much more relaxed than in the UK.
When I worked I was booted and suited, and made up 24/7.
Here I rarely wear make up...........it melts in the summer.
I have felt confident enough to go out with my baldy teddy head - I wouldn't have been brave enough in the UK.
My mastectomy wasn't really what I was expecting, as my surgeon didn't leave me flat. He left all the pectoral muscles so I actually have 1 1/2 boobs, and wearing a prosthesis is almost impossible.
So I go as I am - almost Flat and Fabulous, and again, because of my age, I can say, "If anyone doesn't like it - they can look away".
If I had been much younger, say 40s onwards, and living in the UK, I am certain I would have felt very differently.
I am also blessed to have my wonderful hubby who has been so supportive, and doesn't care if I wear a black bin bag, as long as I am well, and I am sure your OH will be the same.
Surviving is the name of the game, and once you have had time to process this huge blow, I know you will arrive at that place.
I hold my head high, and say "This is ME". Deal with it.
Whatever YOU are feeling is right for you - there is no right and wrong.
I have a lot of experience in bra and prosthesis buying if it would help.
Please know you are in my prayers.
I'm so sorry Wtp, I feel really gutted for you. It sounds like you have a good and decisive team looking after you and as the others have said, hopefully we can be of help and support too, as you have been for many of us in leading the way on looking forward. This bas***d disease kicks out but we wont roll over.
All your January 'sisters' are with you on this - I hope you can feel the virtual hugs. We're all in this together after what we've already been through together X
Weirdly, the mastectomy didn't affect me psychologically as much as I thought it might. In fact, I feel worse now at the end of treatment when you feel a bit abandoned after all the appointments stop and, as my Trust doesn't scan at the end, I have a fear of recurrence (I know everyone has that and it's normal but it's still disturbing).
I'd been told not to look at the surgery site until someone was with me in case it was traumatising, however, it was too tempting when I woke up after surgery! Surprisingly it didn't really disturb me. I just felt pleased that the cancer had been cut out. I'm lucky that my scar is both low and very neat.
At at first when you can only go bra less or use a soft bra it is odd but now with my final prosthesis in place, even I forget about it while I'm dressed and sometimes am surprised when I go to bed and notice the missing boob! Mad, I know!! At the moment, I don't think I'll bother with a reconstruction. I can do everything I did before and even my new swimsuit looks fine.
Keep strong - it isn't trivial to worry about how you will look and feel about yourself BUT the mx will save your life and once the initial strangeness is over you will adjust. My main advice is to do your exercises religiously. They are a pain in the a*** but did give me a full range of movement in my arm, which is great.
Good Luck with the surgery 🍀 All our thoughts will be with you....
Wtp, sending you lots of hugs on behalf of the October group. You had a really S****y day!!
Your situation now sounds like my initial diagnosis - they saw calcifications on a routine mammogram and biopsies revealed DCIS attached to a smaller IDC. The IDC is obviously the bit they worry about as the DCIS (and your LCIS) are not invasive. I had an immediate mastectomy and node clearance before chemo and rads. The mastectomy was definitely NOT as bad as it sounds and even the node clearance hasn't caused many issues. On the plus side too, the surgery and hospital stay will be much shorter and easier to deal with than immediate reconstruction (I was home again in 23h from admission). You can pursue that later as you have a lifetime entitlement on the NHS.
It's a very scary time but everyone is wishing you well. Fingers crossed the IDC is the smallest bit! Scream and shout (and have a drink) then come back and kick the b****** into oblivion! We're urging you on.