Hi all. Sorry not to have posted but I've been whacked by my radiotherapy journey.
Blue I was so sorry to hear your news. I saw it when you posted, and I've been thinking of you ever since. I don't know what to say except please pm me if you feel like it, but know that we are all here if you want to rant/cry/scream.
Slowski/Esther/Beedot/Lighthouse, I thought all my nails were ok, but my big toe nails have gone very thick, and white. I can't decide if it's nail fungus caused by low neutrophils, or they are going to fall off. My fingernails have 6 white lines, not exactly ridges, but I'm guessing it's the 6 chemo sessions.
Chemo - the gift that keeps giving!
I am really wanting to be part of the Facebook group. If anyone wants to send me a friend request this is me:- edtited to preserve privacy But please put your BCC name in the message.
If all goes to plan, Ebim and I are hoping to meet up whilst she's on holiday - she's only 1 hour away from me, so if she agrees, I will take some pics of the 2017 Teddies on Tour.
My active treatment has now finished, but I would feel bad about shouting it out as so many of you have more trials to come.
I'll just give myself the last badge.
Lots of love to you all.
i have just sent a couple of test pm to some of you as would be interested in the fb pg - most of the time i access the forum on my phone and it seems some of the functions of the forum can only be accessed when on the full site, i have found all sorts of new things this morning! xx
Morning all, sorry not to have posted - I have been reading and keeping up to date but busy preparing for return to work next week. So weird to be heading back after nearly 8 months off.
Blue - I am sorry to hear your news, rant/rage/cry to talk to us ... I hope that you are getting support from your team too and they have a plan you feel good about. Sorry I can't remember if you were hormone postive, if so there are other weapons in the wings to throw at it all too. Big hugs
slowski/esther/beedot - my fingers and toes are the same - all feel like they will fall off at any min, finger nails the worst. What was weird tho, is this didn't happen until many weeks after chemo and no ridges just the whole nail turning milky white and decesending down the nail, not from nail bed up which is what i expected. The numbness is driving me crackers but can't work out if delayed se from chemo or new from the hormone treatment. I also have developed pins and needles in both arms, some mornings I can't even hold a cup, not sure how getting back to work is going to be!
Scotty - still okay post herceptin? fingers xxxxx
wtp - hows your recovery going? I would be interested in the fb pg.
ebim - how was your holiday, hope you had some down time xx
Beedot - have you finished your rads yet?
Nicky - did you get on the trial you were talking about, I would be interested to know x
Much love to all, looking forward to meeting you all a bit more in the virtual person if we can organise Fb group!
I still have numbness and tingling in feet and toes. Also my fingernails feel very precarious, like they might slide off at any moment! I had my port out on Friday and it was fine. It was done under local and didn't take long so hope this is reassuring for anyone else who needs to have this done.
Hello Blue. Just wanted to say I've been thinking of you over the weekend. Sending you love and hoping you have an appointment soon to discuss the details of your path report. Take care, we're here thinking of you. X
Just wrote a private message to you and when I pressed send I got an errtor message and it all disappeared!
Anyone got any idea about settings or anything?
We are all thinking of you Blue, stay strong.
Egg, I still have semi numb fingertips and tight fingers which are making me really clumsy, I keep dropping things, some of my nails are now very black too. The weirdest thing is that every time I nod my head vigorously or look down quickly, I get sort of electric shocks through my feet!
Blue, sorry to hear that. Did they get the margins on the tumour or clear nodes beyond the live ones or do you have to have more surgery? Sorry, I don't mean to be nosy, no need to answer if you don't feel up to it.
It's a lot to deal with when you are still low after the surgery etc.
Sorry to hear your news. What have the team proposed in terms of next steps? I have alwayy found it takes 2-3 days to absorb and process the b****cks that this journey throws at us before coming up for air so to speak and starting to focus on the next stage.
Big hugs and love.
Scotty, all the best with Herceptin, hope you have a better experience.
Its all happening tomorrow, Blue results, Scotty Herceptin, Wtp recovering from surgery and I'm having port out - hope its less of a palaver than having it put in !
Brilliant image Wtp! Do it!
Well done for finding some humour at this point, as ever the waiting is excruciating.
I remember that putting my own knickers on again felt like major progress, those Bridget Jones ones are really not fetching are they. The very best of luck, thinking of you.
Hope all goes well for you tomorrow with results - hope I've got that right.
Be thinking of you tomorrow WTP xxx