this is the first time I have read any of these threads, i wish I had joined this before now.
I was diagnosed in Jan, had 2 wide excisions and still no clear margin, started chem0 in March, finished on 3rd July and due a double mastectomy end of Aug.
I had 3 EC and 3 docetaxol. I have peripheral neuropathy, swollen ankles, extremely swollen eyes which are nearly closed first thing in the morning - has anyone else had this?
There was a post about looking down and getting an electric shock in the feet - I get this and thought I was going bonkers!
I feel better reading all of this and I think my expectations are have been way too high, after 3/4 weeks I expected to be myself and all side effects gone. I havent lost any nails but they are very tender and it sounds as though this can still be a possibility.
As I said, I wish I had joined this forum at the beginning
I am still here, I just haven't sorted out FB yet - I had a scare when I set up an account and it immediately started presenting me with dozens of my family, friends and work colleagues. I panicked and logged out quick!
Blue, Suze and Wtp have been giving me FB tips and I will try again.
I finished RT a couple of weeks ago and I have been enjoying the new found freedom of no appointments for a while.
I did a Lymphoedema Awareness course at the Haven, it was really useful and informative, I would recommend going to one of the centres if you are near one, they provide all sorts of help. I attach a link to the page where you can find the daily exercises, aimed at trying to avoid Lymphoedema.
I also had to buy a new handbag with wider straps - following medical advice obviously!
I hope everyone is doing OK?
hugs to all, Beedot x
OMG I have been off line for a week and missed so many pages and its seems like chaos has set in!!
names being changed, can we have a list of who was who on the forum and who is who on FB cos I am confused.com!!
missed you all soo much and only got wifi in a cafe for a coffee so would be here for dinner catching up since last Wednesday!
I have tried to join FB, but the picture has jammed (more chaos) half of a fantastic teddy bear and half of Robin (real name, FB name or otherwise) can't see below that.
laughing here at it all, seriously hope all is ok, much love and hugs to all.
ebimx.....what's my new FB name ???
I really want to join the fb group but like Blue don't want anyone but you lot to find me....any advice anyone on how to join?
Back at work was great but would like a few days off to recover! They were all great and indeed have been massively supportive since this all kicked off in the autumn. .
First day back at work today after 8 months - am so shattered!
Hope everyone's doing ok. Jackie well done on completing rads and all that travelling.
Scotty hope Herceptin was ok for you ?
We have a FB group up and running now - pm me, Scotty, Fen Hen or Jackie for details - we need to add you as friends on FB and then can add to the group and make us all admins...
Blue and others not on FB, we will continue to support on here too, of course 🙂
I'm doing ok post-op thank you! in fact, recovery has been much better than I had anticipated! Just got that dreaded report to come on the 24th... xxx